Was awakened in the middle of the night with this symptom. I usually only have it in the early morning when I wake up.
Does anyone have anything like this? What does it feel like to you and what's causing it?
It feels like all my cells are busy and alive, kicking peripheral nerves into action. When mild, I just feel this buzzing, vibrating.
When stronger, I actually shake a bit.
I used to have the shaking chills, there are no chills with this.
It's a very weird, unpleasant experience.
I took a xanax to try to calm it down and so I can get back to sleep. Don't know if it will work.
Posted by Snap21 (Member # 9587) on :
I feel like my skin is crawling sometimes. Is that kind of what you mean? It is like my skin is alive and crawling is the only way to describe it.
Posted by Carol B (Member # 9110) on :
I called it percolating , but it has calmed down for me considerably. Never woken me out of a sleep though. Speaking of percolating- I need my coffee to wake up a bit more. Carol
Posted by mtnwoman (Member # 8385) on :
I know what you are talking about, I've had it. Still get it if I'm very tired. I think it has to do with adrenal function and/or toxicities.
As a way of warning, the worst I ever had it was after taking even a low dose xanax for about 10 days in a row -- coming off was really stressful.
I can most always feel my body's energetic "hum",,,but when I am healthier it is much more subtle than when I am not well. Then it is a coarse vibration.
Posted by jwenny (Member # 8831) on :
Yes, I get that all the time. I'm positive for babs and think it is the toxins effecting the nerves that control motion.... When we sleep, our bodies are at its most relaxed state and therefore more sensitive to agents effecting the nerves. My vibrations seem most prevalent in the hands. I notice it most when wake up from dozing off.
Posted by nancyf723 (Member # 7505) on :
I have the same sensations, also in the early morning hours, it is accompanied by palpitations. If I over do it or stress myself out they are amplified. Would you consider this a neuro symptom? I'm trying to decide if it could be a babs symptom.
Posted by JeffM (Member # 8919) on :
No its not the skin creeping feeling.
It is like vibrations, like zzzzzzzzzzzzzzzz not sleep but a buzzzzzzzzzzz accompanied by the feeling of my body core and sometimes legs and arms actually trembling a bit.
I've tested neg for babs 3 times but was treated nonetheless. Perhaps it is a holdover symptom. I don't know.
It goes away in about half hour after waking.
I wonder if jwenny's hypothesis is right.
Posted by stella marie (Member # 7216) on :
Hey JeffM,
I have them in my head and chest, yeah and I can see my head shake sometimes. When I was first sick and undiagnosed they were quite alarming for me.
They've gotten better (less intense & less frequent) w/ lyme only treatment. But they are worse when going to sleep for me, and would actually wake me up at night. But they happen during the day too.
[ 17. July 2006, 12:52 PM: Message edited by: stella marie ]
Posted by duke77 (Member # 5051) on :
I have gotten these strange sensations if they are what I think you are talking about. Is it like a buzzing vibrating feeling? It has never been bad enough to wake me though. You said you have had these for a half an hour or so. Mine never last more than a minute or so.
I get this feeling mainly in my legs and sometimes feet. It usually sticks to the left side of my body. Right before I got diagnosised I told the LLMD that sometimes I look for my cell phone in my left pocket because I swear it is set to vibrate. He said that is not uncommon with lyme.
Posted by TheCrimeOfLyme (Member # 4019) on :
Jeff
I do have this, I have asked the same question myself on here. I call it internal earthquakes. My whole body shakes .. its just.. I dont know.. you can never create that feeling by any means , its just a very weird internal vibration/shaking.
After I wake comopletely up, it doesn't happen again; and thankfully, I've only ever had it about 10 times.
My fiance can feel it. I shake the bed. THat may have just sounded perverted, but you know what I mean.
Posted by Cisco* (Member # 5231) on :
Seems a lot of people suffer from these vibrations. I mostly get them when trying to go to sleep so I end up getting insomnia. I have also felt these during the day. In my case, sometimes this constant vibration throughout seems to build up and I end up suddenly jerking my whole body. Fortunately, these are getting very infrequent.
Posted by Cisco* (Member # 5231) on :
JB,
Do you get the vision shaking at the same time as the body vibrations? I think the vision shaking might be more related to the trembling, such as those of the hands, that I constantly get.
Have you also felt that your peripheral vision seem narrower? In any case, the vision problem I found to be more annoying during the day than the body vibrations.
Posted by stella marie (Member # 7216) on :
I get the vision {{{{shakes}}}} w/ the vibrations....when I was first ill and undiagnosed I was putting on makeup and noticed my reflection trembling.
I thought a large truck must have just gone down the road and the house or mirror was shaking.
No change in peripheral vision.
Posted by JeffM (Member # 8919) on :
It sounds like this is a symptom for quite a few of us.
Thanks for the links Stella. I read them with great interest.
So I guess the two major theories are that they are caused by neurotoxic die-off, and magnesium deficiency.
It is like the motor is revving in a car . . . vvvvvvvvv . . . . and I feel I am trembling although sometimes I am not.
I am having them right now. For me it can last for hours.
Its just one of those weird body sensations that I don't like and it's hard to adapt to.
I just hope it's not a symptom of unresolved babs. I do NOT want to go back on mepron.
Posted by stella marie (Member # 7216) on :
JeffM,
Oh yeah, they were really disturbing for me when I had been ill for some time and no one could figure out what was wrong.
I remember I was watching a movie at home w/ husband and I was just rumbling and buzzing away and tears were streaming down my face and then the floodgates opened.
So not like me, I'm not a crier, at least not in front of anyone! I'm usually pretty steadfast.
I then asked my husband what if I'm going insane and just don't know it. I was scared at that point.
He comforted me and said I'm just as crazy as I've always been, not anymore so than usual.
I guess I was lucky in once sense because there were a few other physical things that were going on that couldn't be explained away as being coo-koo.
If you do a search, I can't remember here or on the www.canlyme.com Tom Grier posted about this also. There was an ingredient in Benadryl that helped stopped the {{{{{vibrations}}}}. Can't recall right now what it was.
Anyway I tried it when I was really desparate last year and it worked for awhile.
Mine aren't so bad right now.
I'm not sure what causes them but I did have them before any abx therapy. I'm on week 3 of babs tx and they are still w/ me.
Stella Marie
Posted by Jill E. (Member # 9121) on :
Hi Jeff,
This is a symptom that I had pre-diagnosis and unfortunately has worsened dramatically in the last several months - and here I am two years into treatment. So like you, I'm wondering if its Babs because I have been unable to do Babs treatment yet. Or perhaps it's the build-up of toxins after all this treatment.
Pre-diagnosis, when I became symptomatic with Lyme, the vibrations would wake me up around 3:00 a.m. I kept telling doctors it was like weird energy and they thought I was nuts.
Once diagnosed, my LLMD was very familiar with this.
Amy Tan, the author, has written about having this symptoms, too, and called it Digital Dolby or something like that. So I started calling it my Amy Tan symptom to my LLMD.
In the last several months, it has gotten worse to where I was visibly shaking/trembling - bad during the day but even worse at night - it would wake me, get so bad I developed myoclonic jerking.
I still have some jerking but now it's more like a constant vibration/trembling - Stella Marie put it well like the fast idling in a car. If I hold a piece of paper, it trembles, too. My vision trembles - it's like having a tremor all the time that others can't see unless I hold a piece of paper, or am putting on makeup etc. My LLMD saw it when I held something.
I was so desperate to try to sleep that I gave in and got a prescription for Klonopin, which I hate to take because it is said to be potentially addicting, but it has helped me sleep through some nights.
Yes, it is worse when I first try to wake up.
I hate this. I used to complain that my total body burning was the worst symptom of Lyme for me. But actually this constant trembling/tremoring is the scariest for me.
And I live in the land of earthquakes - having been through the big Northridge earthquake in Los Angeles, so I agree that an internal earthquake is a good description, too.
Jill
Posted by snowflake (Member # 8950) on :
I developed this internal vibrating sensation a couple months ago after I began babs treatment wit clinda/quinine.
I also have the visual shaking thing which is really annoying... and concerning. Also is concerning that the vibrating in my core/spine has now progessed to extremities. I think it is demylenination.
I had meningitis from Lyme and I have vagal nerve involvement (difficulty swallowing at times, movement issuses, etc) so I think i will be a Lyme ALS'er down the road.
Posted by stella marie (Member # 7216) on :
snowflake,
It started w/ the vibrations in the spine then going to the head. It would happen in rushes and I could feel it traveling so to speak. That lasted for about 2 months. Kinda scary for me then.
I also had the difficulty swallowing for 2 months, then came the facial palsy.
Since being diagnosed I've always considered this a lyme or co-infection symptom.
Now I have at rare times felt this in a foot or hand, but mainly in my head and chest and it never returned to my spine.
Yikes, so many here w/ this Posted by polar blast (Member # 9142) on :
i get the feeling of a vibration in the spine only when sleeping...if I open my eyes it goes away...i think that it is a part of the sleep and repair stage...it is not a great feeling. eric
Posted by JeffM (Member # 8919) on :
Jill, Stella, Eric,
All I can say to your posts is "I resemble those remarks".
I am trembling / earthquaking / Amy Tanning / car revvvvvvving right now.
I just WANT it to be because of improvement and so it's a good sign so that's what I am going to pretend it is until I talk to Dr. XYZ.
Posted by LostCityAgent (Member # 9050) on :
ME TOO....
Jeff, check ur PM.
Posted by luvdogs (Member # 9507) on :
Me too!
It is one of my most prevalent symptoms, even when I am doing well otherwise. I get it mostly when overtired, and that keeps me from being able to nap or sleep at night - which is what is most needed at those times. A catch 22.
It also comes from a tad extra tea than my normal cup in the a.m., or from preservatives in food, or f rom whatever.
It buzzes - usually starting at the feet and working up my legs, and then throughout body sometimes. My legs will actually be faintly kicking if I am sitting with my legs crossed when it is happening.
It sucks. V and K and ativan all help it for me. Sometimes magnesium and calcium are enough... and when I can muster myself to acupuncture myself, that helps a lot too. But it usually comes on at times when it is extremely inconvenient to start needling myself (like when I am trying to sleep).
Oh, and if I ever drink (like once a year) - the next day is horrible with buzzing. I think it happens a lot when I am dehydrated.
Posted by cordor (Member # 9449) on :
Somtimes I really belive God is leading me to this site. I don't come to message board everyday, but often enough. Haven't checked new topics in a few days. I was at physical therapist JUST this afternoon and mentioned to her about "buzzing" in the back of my right foot. I was hoping she was NOT going to think I was crazy. Fortunately, she totally understood what I was referring to. She treats MANY lyme patients. Anyway, glad to hear I am not alone with this. Mine is pretty much constant for past 2 weeks. I have had Lyme for a very, very long time,but went undiagnosed until 2 1/2 years ago. I have neuro lyme also. Thank you for bringing up this topic.
Posted by timaca (Member # 6911) on :
I vibrate primarily in my chest area. And usually upon going to sleep or waking up. I call it my "internal vibration." It only lasts for a minute.
Timaca
Posted by Cisco* (Member # 5231) on :
I think these are neurologic symptoms and there are several versions of this "vibration" so let me try to list them. - electricity/buzzing that stays at a constant level for a long time and can be felt anywhere or all over and felt deep (not limited to the surface) - vibrations that can be felt mostly on the surface, usually localized and might or might not be perceived by sight or touch - vibration or slight jerking of the eyes so that it is difficult to stare at something and focus entirely also accompanied by narrower peripheral vision - slight trembling which might not be perceived by others until you hold something in your hands - major trembling which is apparent by anyone watching you
Maybe we can also include the burning or freezing sensation felt mostly on the skin. Sometimes I had them in a small area other times it felt like it was throughout.
Interestingly enough, most people seem to notice these either while resting/sleeping. I personally had many sleeples nights because of these.
Posted by hatsnscarfs (Member # 6562) on :
I've been vibrating for almost 2 years. It is most noticible (to me) in my feet. There is no visible shaking but a feeling like my blood is vibrating. It is a constant vibrating/buzz/electrical sort of thing. It is worst at night. It kind of feels like the vibrating you feel holding the steering wheel.
I think it is from the Lyme die off toxins. Podi Patches & ebay detox patches, help emormously (www.akgnaturals.com). I use them every night and the buzzing is usually gone in the am. Epsom salt baths help too. I also drink a lot of water & detox tea. If I let the toxins build up the vibrating becomes much worse.
The worst vibrating was approx 3 weeks after starting tetracycline. My whole body was vibrating.
hatsnscarfs
Posted by JeffM (Member # 8919) on :
Cisco, if these are neurological symptoms, and I think they are, perhaps mine have increased because I increased my ceftin, and it may be causing more die off.
I'm up again in the middle of the night bcs my whole body is buzzzzzzzzing, with no trembles.
Posted by polar blast (Member # 9142) on :
last night was the worst...I have lost weight in the last month and exercised alot...it seems that when I do push ups and over do it then it will start like this...I woke up in the middle of the night with this vibrating feeling in my spine...it is very bothersome and makes it so I have to relax and try to go back to sleep..it feels like my adrenal gland is activated...it only happens at night...I am on mino but have not stayed on it do to the fatigue and brain fog while on it...anyone else get this...? eric
Posted by polar blast (Member # 9142) on :
last night was the worst...I have lost weight in the last month and exercised alot...it seems that when I do push ups and over do it then it will start like this...I woke up in the middle of the night with this vibrating feeling in my spine...it is very bothersome and makes it so I have to relax and try to go back to sleep..it feels like my adrenal gland is activated...it only happens at night...I am on mino but have not stayed on it do to the fatigue and brain fog while on it...anyone else get this...? eric
Posted by JeffM (Member # 8919) on :
So maybe it's related to "overdoing" it -- exercising too much, or losing too much weight (oh goood, another excuse to not have to lose these thirty pounds that have plundered my body since getting sick) (lol) ...
Posted by Cisco* (Member # 5231) on :
JeffM, yes, these symptoms can get worse due to dieoff. Fortunately, they seem to improve as the treatment continues.
Posted by JeffM (Member # 8919) on :
Well mine only began when I started ketek 8 months ago and had to quit. It's gotta be a herx symptom. I'm going back to the lower dose of ceftin. Once again, the human guinea pig. Trial and error.
Posted by stella marie (Member # 7216) on :
Well all I can say is mine started prior to abx treatment, way before, but it started about 6 months after I suspect being bit.
[ 18. July 2006, 01:29 PM: Message edited by: stella marie ]
Posted by GiGi (Member # 259) on :
Our most active detox phase takes place during the night. If you pay attention, you will also notice that the sense of vibrations that are caused by a flooding of neurotoxins sort of disappears once you head for the bathroom the first time in the AM.
Constant intake of the mop-up agents that I have listed here often helps most.
To stop the neurotoxins that are a cause of the "vibrations" from being reabsorbed in the system and therefore from recirculating and continuing, you can take -- more like - you should take:
Chlorella (clean) 30 minutes before main meal and other meals
Chitosan
Apple Pectin
Betasitosterol
Cholestyramine
This way they eventually become less and less. Neurotoxins are affecting us and staying in our system. They remain after the spirochetes are dead unless you take some of these mop-up meds.
Take care.
Posted by GiGi (Member # 259) on :
This is a copy of my post a few months ago re vibrations:
I had those most annoying vibrations so bad - my down cover would shiver up and down also, especially toward the early mornings hours - for years. Standing next to my stainless steel stove or sink was just as bad! The vibrations are gone after years of detoxing.
Dr. K.'s answer was and is: (he gave me the explanation in German, so I have to translate it here)
"the sense of vibrations is transmitted via certain receptors in the skins and connective tissue. If the receptor is excited through normal stimulation or abnormal stimulation such as neurotoxins -- this is what we sense as vibrations"
Here is his incomplete list of common neurotoxins - In order of Importance:
(i)Heavy metals:
mercury, lead, cadmium, iron, manganese and aluminum (are the most common). Common Sources: metallic mercury vapor escapes from dental amalgam fillings (they contain about 50 % mercury, the rest is zinc, silver copper, tin and trace metals). Cadmium: car fumes, cigarette smoke , pigment in oil paint Lead: outasing from-paint, residues in earth and food chain from time when lead was used in gasoline, contaminated drinking water Aluminum: cookware, drinking water
(ii) Biotoxins:
such as tetanus toxin, botulinum toxin (botox), ascaridin (from intestinal parasites), unspecified toxins from streptococci, staphylococci, lyme disease, clamydia, tuberculosis, fungal toxins and toxins produced by viruses. Biotoxins are minute molecules (200-1000 kilodaltons) containing nitrogen and sulfur. They belong to a group of chemical messengers which microorganisms use to control the host�s immune system, host behaviour and the host�s eating habits.
such as dioxin, formaldehyde, insecticides, wood preservatives, PCBs etc.
(iv) Food Preservatives, excitotoxins and cosmetics:
aspartame (diet sweeteners), MSG, many spices, food colourings, fluoride, methyl-and propyl -paraben, etc.
What are Neurotoxins
Neurotoxins are substances attracted to the mammalian nervous system. They are absorbed by nerve endings and travel inside the neuron to the cell body. On their way they distrupt vital functions of the nerve cell, such as axonal transport of nutrients, mitochondrial respiration and proper DNA transcription. The body is constantly trying to eliminate neurotoxins via the available exit routes: the liver, kidney, skin and exhaled air.
Detox mechanisms include acetylation, sulfation, glucuronidation, oxidation and others. The liver is most important in these processes. Here most elimination products are expelled with the bile into the small intestine and should leave the body via the digestive tract.
However, because of the lipophilic/neurotropic nature of the neurotoxins, most are reabsorbed by the abundant nerve endings of the enteric nervous system (ENS) in the intestinal wall. The ENS has more neurons than the spinal chord. From the moment of mucosal uptake the toxins can potentially take 4 different paths:
1. neuronal uptake and via axonal transport to the spinal chord (sympathetic neurons) or brainstem (parasympathetics) - from here back to the brain. 2. Venous uptake and via the portal vein back to the liver 3. Lymphatic uptake and via the thoracic duct to the subclavian vein 4. Uptake by bowel bacteria and tissues of the intestinal tract
Take care.
Posted by mtnwoman (Member # 8385) on :
Adrenals folks, adrenals! Don't forget this sytem -- it's what deals with stresses of all types.
Remember the very coarse trembling even healthy people demonstrate after a fear shock? Many of you will notice that you vibrate more when you are tired, or when adrenal function is at ebb.
Every body vibrates - it's just that healthy bodies vibrate in a very subtle, pleasing manner. It's the chi that you can feel when quiet or meditating or doing chi gung/ tai chi.
Off balance bodies vibrate at a much coarser frequency.
Posted by stella marie (Member # 7216) on :
Hey GiGi,
I did include in one of my links to JeffM your posts. Very informative......
?'s about the chlorella....
1-clean??
2-I take the abx and babs treatment w/ food so would taking the chlorella 30 min before a meal interfere w/ above treatment?
I have used the cholestrymine and chitosan... of course hours away and days off from the lyme and babs tx.
Thanks GiGi!
Stella Marie
Posted by Areneli (Member # 6740) on :
I always thought it was a common sign of Lyme disease.
Posted by jif (Member # 9215) on :
just to put my two cents in--
i get it too, but not just folks with lymes get it. I have a syrinx in my spine (fluid fillled, well, syrinx) in my spine plus tbd. So, I know a little bit about this.
Anyway, for an fyi, patients with syrinxes or chairi malformations (related disorder, simply put, extra cerebral spinal fliud in the brain ventricals , interested? asap.org) ALSO get the vibrations.
So i wonder, is the commonality simply this- central nervous system involvement/and or pressure inflamation to part of the the brain, I am betting the cerebellum (just becasue of the chairi connection, and alos becasue of my own symptoms .) I guess it could also just be nerve connections being damaged as others mentioned.
It was an early symptom for me, went away for years and now seems as if it has come back more "buzzy". I have been in tx for babs over 2 months.
Posted by LostCityAgent (Member # 9050) on :
My Internal Vibrato can last for hours.
Posted by polar blast (Member # 9142) on :
well last night I slept like a baby and although I did not feel like my adrenal was kicked in I was having the same wierd vibrations...it stops when I open my eyes....so it must be related to a sleep thing....It feels as if the nerves are repairing themselves...by the way I went back on mino and it made it much better..its low dose and seems to work...the first day back on I was fatigued but it last o only for a couple of days.. eric
Posted by stella marie (Member # 7216) on :
Maybe GiGi or someone else can answer my ?'s from previous post concerning chlorella.....
GiGi you mentioned that one might notice the vibrations sort of disappear once one hits the bathroom first thing in am...not so for me
The following activities usually bring it on, but other times they can just pop up.
Anyone else....what brings the {{{{}}}}} on for you?
1-sitting in front of my PC, TV used to do this also but no longer does, just the PC
2-lying down, on back, side whatever... soon as I stand up the {{{{vibrations}}}} are much better and sometime disappear.
3-pressure on my back when sitting down
Stella Marie
[ 20. July 2006, 10:36 AM: Message edited by: stella marie ]
Posted by painted turtle (Member # 7801) on :
This certain type of vibrating is a very new symptom for me.
It comes and goes quickly but does feel like my cell phone is vibrating and I check my pocket to find it's not or not even on my body.
I think this is really strange because of all the neuro symptoms I've had...this one is definitely a brand new experience and I am not sure exactly what that might mean.
Posted by lymemom53 (Member # 9543) on :
My daughter has also had this twitching. The doctor calls it myoclonic twitching. It seems to affect her at different times, but especially when she has been very sick or has gone without sleep. She has chronic lyme and babesia. GOOD LUCK TO YOU! We have found that 1-2 tsp of children's Benedryl helps to calm the twitching.
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