I have tingling and numbness of the extremities and skin hurts too. I haven't done B-12 shots in a while, but have been taking it orally. I am being treated for C-Diff right now with Flagyl, (although I am on probiotics and never had a problem keeping yeast under control) it seems much harder now.
Anyway, I figured maybe I better hit the B-12 shots again and see if it helps with neuro pain, however, I read in Dr, B's protocol that urine will turn red, and in the past mine has not. I am wondering if the B-12 is not fresh or good. Pharmacy LLMD scripts with is in Alabama.
Also, has anyone experienced burning, tingling, numbess and pain in joints from Bart? I know joint pain can be caused by Bart, but what about the numbness, tingly feelings?
Posted by Aniek (Member # 5374) on :
Have you ever had your amino acids tested? If your amino acids are low, your body can't actually use the B-12.
Posted by minimonkey (Member # 8693) on :
I do the b-12 shots, and find that they help a LOT with my neuropathy -- it is almost completely gone now, and it used to be VERY bad -- how much of that is the b-12 and how much is just me getting better is hard to say. I do them about once a week, and supplement with sublingual b-12 liquid on the other days. My urine has never changed color with them -- at least not that I've noticed.
Flagyl is known for causing neuropathy in lots of folks -- and I think could certainly exacerbate it if you already had it before. Lots of folks can't tolerate it for that very reason.
Posted by badkitti30043 (Member # 2889) on :
I did the b-12 injections for about 6 months , once a week . It nevere changed my urine that I noticed, It helped my fatigue alot, but only while doing them as it eventually wore off when Insurance would no longer cover the shots on my behalf. I tried to fight them on it but just eventually gave up.I do not remmember if it did anything for the PN or nerve pain but it may have .
Posted by iceskater (Member # 8655) on :
I go to a physician trained by Dr B. The B 12 shots do temporarily change the color of the urine to deep pink. I was told this is a function of the concentration of the shot. If it is not concentrated enough, it will not turn the urine colors. Mine is concentrated at 25mg per 1 cc.
Posted by Jill E. (Member # 9121) on :
The burning, tingling, etc. is my worst symptom although I have muscle pain, too.
I did some B12 shots but couldn't get the clinic to do a high enough dosage. I do sublingual.
My Bart test recently turned positive after two years of Lyme treatment and a short course of Bart treatment. I had to stop because of tendon problems.
But more and more, it's looking like Bart may be causing a lot of my neuropathy because it's just not responding that much to Lyme treatment.
I agree that Flagyl can worsen neuropathy from everything I've heard. I haven't done it yet because of concerns like that.
Jill
Posted by TBD-PA (Member # 9790) on :
Be sure to use the injectable Methyl-B12 rather thna the generic Cyano-B12... Methyl has to come from a compounding pharmacy and has to be injection, oral and sublingual forms don't really do the trick! Supplement with a b50 or B100 by mouth. Consider checking your B12 and B6 blood levels first.
Posted by lou (Member # 81) on :
If you already have a catheter, you can also do this IV, which is what I am doing.
Posted by Jillybean (Member # 8071) on :
GET OFF THE FLAGYL!!!!Call LLMD ASAP. I developed peripheral neuropathy from Flagyl over 4 months ago. Numbness in the bottom of my feet, and a little in fingertips. Then the tingling. As soon as I told my LLMD he pulled my PICC (Rocephin)and took me off the Flagyl.
I am currently taking alot of neuropathic pain medicine, and under the care of a neurologist, as the pain became incredibly severe, and has not gone away.
P.N. is not an uncommon side effect (and a nasty one too). I'm freaking not only for what it's done, but don't know how long it'll stay.
I also had "metal mouth" with the abx combo, where I had a metal taste in my mouth, and things tasted and smelled different. Unfortunately, I no longer have working taste buds in the center and on the end of my tounge. Makes it really tough as I am a chef and restaurant owner.
I'm so sorry to ramble about my problems, I just wanted you to be aware of what Flagyl can do, and your sx sound just like mine. I waited an extra week to tell my LLMD....if I'd told him sooner, maybe I wouldn't have all these (extra) problems.
Best of luck, Jill
Posted by lou (Member # 81) on :
I agree with jill on the possible side effects of flagyl. PN caused me to dump this drug in favor of tinidazole, which does the same thing without this side effect. It doesn't happen to everyone, but is common enough to watch out for it.
So, jill says take flagyl off the menu; I second that motion.
Posted by mtgebrkr (Member # 7631) on :
I am on the flagyl for only 10 days, and tomorrow is my last. I was taking it for C-Diff, not Lyme. I also have an appt. with my LLMD. I have had the tingling and numbness in my arms, but never my feet. I also have the ame taste in my mouth, but that also started when I got the C-Diff, so I can't differentiate anymore. The tingling comes and goes, but when it does, it is painflu as hell. I also have skin sensitivity.