herxing? Is the med not working? I did have an MRI
and they found tiny lesions which my LLMD's said
are typical of Lyme, but of course I still have
that MS fear(cause I first went to duck neuro who
diagnosed me with MS) and with all of these new twinges and
twitches, I feel like these meds aren't doing
anything. Please help me to understand. Thank you.
Posted by AlisonP (Member # 7771) on :
Hi la,
I have Bart and Lyme too, and actually just started taking Rifampin myself. This has happened to me, where my symptoms flare quite strongly. My LLMD says that it is a sign that the medication is working. It sort of agitates the pathogen, causing the symptoms to temporarily worsen.
Two times now, I have spent a week and about 3 weeks respectively, doing the twitching thing. It goes way, although lately I still twitch every once in awhile.
But then there's the good old herx, which could also explain things. It's always a bummer when my symptoms get worse but then I always tell myself at least it means that stuff is getting killed. For me, it's just important not to let my system get too overloaded and toxic, which is why I stopped the Rifampin for a couple days when it got bad.
Cheers,
A.
Posted by NP40 (Member # 6711) on :
Hey Lalyme, sounds like your herxing so I wouldn't be too alarmed. Pretty normal for lymies to have reactions to the meds, means their working so I'd doubt the MS diagnosis.
Stay out of the sun when on doxy, can get some nasty burns.
Posted by lalyme (Member # 8964) on :
Yeah, rifampin is insane! Levaquin was great and a breeze. Rifampin if like moving through a blow torch. Than you for your responses.