Good morning, I have given my body a short break after my round of ceftin.I am now about to go on to flagyl and wanting to hear some opinions on it and what to watch out for.Thanks RG
Posted by jblral (Member # 8836) on :
Recommendation: don't take flagyl with orange juice. the combination seems to cause nausea.
Posted by jazzman62 (Member # 9871) on :
radiogirl - how long were you on ceftin and why are you switching over to flagyl?
I've been on ceftin for 8 weeks and no progress at all.
Posted by Vermont_Lymie (Member # 9780) on :
I was feeling fine on Flagyl until day 3 -- when I was hit hard by side-effects and had to take it very easy. I could not work or concentrate for the next two days until I quit flagyl.
I think everyone's experience may be different, but this may be one antibiotic to pulse instead of taking continuously, depending on your doctor's advice of course.
Posted by Lymetoo (Member # 743) on :
AVOID ALCOHOL IN ANY FORM...even mouthwash!!!
Ramp up slowly.....Do not begin with a full dose!!! [unless your dr says you have to]
You will do fine if you take it slow. Slow and steady wins the race!
Posted by radiogirl (Member # 9202) on :
Hi Jazzman, I was on ceftin for close to eight weeks and not having the progress I felt I should have had.I see a very good LLMD in MO and he told me to now go on to flagyl.I let my body rest awhile as I had begun to get swelling (my lips) so I may have been getting a little toxic. Off the subject I was wondering about your screen name if you love jazz or play. My son is in jazz studies at North Texas University.He is a percussionist.He was at The Collective in New York this past Winter semester but he was injured while being mugged so we flew him home.Three large thugs to one are pretty bad odds .He said he would be back up there again no matter what.My hope is when he is a little older and wiser.That jazz has a hold on him.
Anyway wishing you better health, RG
Posted by jazzman62 (Member # 9871) on :
Yes, I love (really love) jazz, can't play it though.
I live in NJ now, but was born in Baytown and raised in Houston - a native Texan!
Anyways, not sure what I'll be doing when my 10 weeks (as per dr.) are up next week with ceftin.
I've heard that lyme can be very resistant to certain abx and then wiped out with another. Go figure...
Good luck on your journey!
Posted by Aniek (Member # 5374) on :
Flagyl caused a very painful herx for me. It was the worst pain I've had by far with Lyme.
My LLMD started me very slow, I was taking it for three days and off for a week I believe. It may have even been less.
Many people post about being emotional on Flagyl too. So watch for that. I cried a lot, even at commercials
Also watch for nerve pain. Flagyl can cause nerve damage, so if the pain it causes is nerve pain contact your doctor about it. Don't assume it's a herx.
Posted by Cobweb (Member # 10053) on :
Aniek-I always chuckle when you talk about even crying during commercials. I think Flagyl is in my not too distant future. I'll think of you when I start crying over some poor woman standing in front of her freezer who gets whacked in the face with a SUBWAY.
Carol B
Posted by radiogirl (Member # 9202) on :
Thank you for all your advice.Im getting my nerve up and going to take it slow.Ill drop in and keep you all posted .Take Good Care,RG
Posted by Jillybean (Member # 8071) on :
My LLMD prescribed 1500 mg Flagyl daily. I took it for almost 4 months until I started feeling numbness first in my fingertips, then my feet. I, too , thought it was a herx, and mentioned something to the infusion nurse (I was also on IV Rocephin)who didn't seem to think it strange. The next week when I saw my LLMD he pulled the PICC and took me off all abx. That was almost 6 months ago. I have small fiber peripheral neuropathy in my feet, and we don't know if the damage is permanent or not----it is extremely painful. My advice is to pay close attention to the side effects of this drug.
I will say, that I feel this drug was a vital part of my abx protocol. It is unfortunate that this happened to me, and unfortunate that I did not heed the warning, but instead mistook it as a herx.
Listen to those here that have taken this, and don't be scared. Yes, you may get a little weepy, but think of all those ketes you're busting up! Listen to your body!!
Healthy Healing, Jill
Posted by HEATHERKISS (Member # 6789) on :
Hi Radiogirl,
Flagyl did me alot of good. It got my groove back. I asked Dr. S if I could take it again. Maybe.........
Listen to Lymetutu.
Love and healing,
Posted by lymie tony z (Member # 5130) on :
Radio girl, Yes flagyl will cause LETHARGY in some folks...
It may cause neuropathy also but I had that long before I was put on flagyl...
As for nerve pain...my nerve pain was alleviated by taking 250mgs three times a day of metronidazol...
Just shows ta go ya...everyone is different.
You should be on a chete killer for when you bust the cysts...however for a long time...
about two years metronidazol was all I took as a sort of prophalactic type of med.
I eventually had to go back to an IV but it sure helped me alot...hope it helps you as well...
While I tolerated the 250mgs three times a day the 500 twice a day I only like to take in a pulsing way...like two to three days a week.
Good luck...........zman
Posted by DolphinLady (Member # 6275) on :
I started flagyl at standard/full dose and continued for 10 months straight (no break). I took it with zithromax.
I developed neuropathy in my feet the last two months, but it resolved after stopping tx. I did use the photonic stimulator by bales scientific to help with the neuropathy. It uses near infrared light and has a good track record helping with neuropathy.
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