this last wave of sx, since beginning of Oct has left me with imbalance, usu to the right. It happened in the summer of '05. and used to happen after I scuba dived for a day or two (not uncommon). My ENG, MRI, hearing tests all negative. I do have chronic stuffy nose but it's never bothered me before with balance issues.
Also I have what I can only describe as "headwaves"...its not dizziness or vertigo. Best I can describe it is as a change of pressure or something. Seems like the two sx above are linked. HHHMMM with all our sx who wouldn't be nutzo. anyone else with similar sx??
Posted by SarahC (Member # 10054) on :
I totally have the same thing and headwaves is an excellent way to describe it. I always said it is the weirdest sensation. I sometimes feel like I need to be committed.
Besides my horrendous headaches and 24/7 dizziness/lightheadedness/fogginess it is in a sense comforting to hear someone else has the same thing.
I hate it! I am starting IV Rocephin next week in addition to my oral abx and I am hoping I will start to see some improvements.
Good luck to you.
Posted by kam (Member # 3410) on :
Looking for answers on this too.
Posted by Laurie (Member # 159) on :
Do you still scuba dive at all? That's kind of Mother Nature's hyperbaric oxygen chamber -- right?
Posted by kumba (Member # 7733) on :
No haven't gone in a few yrs now. Looking forward to the day when i can feel well, work regularly, travel and enjoy some of my favorite activites.
Posted by johnlyme1 (Member # 7343) on :
Kumba -
I am an advid diver also. At the end of this summer I started to get what I felt as if was a wave feeling in my head after a couple of dives. I would lay down and it was as if I was still in the water floating on a raft on the water.
I also get a lot of energenic testing and we tried to pinpoint what was causing this for me. For me my ehrlichia was starting a big flare. Once we started to treat it "again" this symptom stopped.
By the way, just prior to lyme diagnoses, I was diving and got mildly bent. My LLMD is a diver and has a decompression chamber in his clinic. He found a number of small bubbles under my skin. He ran me through 2 chamber dives and they went away.
The infections disrupted the normal offgassing that a healthy person whould have. I can still dive but am limited to shallow profiles and use nitrox mixes to make sure that there is enough O2 in my system.
Posted by kumba (Member # 7733) on :
Interesting John, I hope your rx is working for You!! I had a ENG done last week and they said that my left ear was 14% weaker than my right. could be caused by an infecton that I had or starting...no way for them to tell. My balance is improving a bit now...Happy dives to ya!!
Posted by docjen (Member # 7510) on :
Sounds like classic babesia symptoms. Even the "head waves." Have you been tested for babesia?
Posted by AZURE WISH (Member # 804) on :
I am not sure if this is the same thing -
but a little while ago my balance and coordination just decided to go on vacation.
I kept falling into things...even ended up on the floor.
There was a pink pressurey sensation in my head but I am not sure I would describe it as waves.
When this got real bad I started slurring my words.... The thought was clear in my brain ...
just the physical act of speaking was the problem.
My meds were changed and this has since dissappeared...
Now I am back to my normal state of clumsiness
Best wishes
Posted by kumba (Member # 7733) on :
A few people have mentioned babs to me. I looked at the sx, high temp, severe chills, sweats...but haven't been tested. I never had high temps, onlt lowgrade today 99.4, never severe chills but have been having chills for a month now, and had night sweats when this started maybe around 4 times in the summer of 2005 and then some sweats while eating this past summer. I do have toxo which is a protozoan disease so maybe thats where my sx are coming from.
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