Well everyone who was following up on my negative MRI story, here comes the second half. Apparently, the PET scan I had the other week is completely negative as well. The neurologist who apparently has some experience with Lyme (though, I don't think he's an ILADS LLMD type or anything) reported that my PET came back normal. He also sent it off to another specialist, who concurs with the data. Afraid I don't have the "films" myself quite yet.
So that makes a negative MRI and negative PET. Not quite sure what to make of this, but at least this means that my cognitive issues are not the result of direct brain damage. It does pose some questions, but negatives in these respects can be good, I'm assuming.
If you have any questions let me know and I'd be happy to speak on it.
Posted by david1097 (Member # 3662) on :
Did you do a brain profussion spect scan? This is realtivly inexpensive test but can give some ideas of blood flow irregualrities in the brain that could cause the problem you mention but be seen otherwise.
Posted by timaca (Member # 6911) on :
For what it is worth, I had a normal MRI of the brain, and a spect scan that showed "moderate, global hypoperfusion, consistent with lyme". Spect done at Columbia. I had significant cognitive issues then.