I have come to a point where I can't take abx anymore: I have allergic reactions to all of them with swelling of throat and tongue and I don't understand why, because I don't have the same reaaction to other drugs. Whether it is Herx or not, I can't take them. I would like to hear from people with similar problems (if they exist because I feel like a total freak) and are there valid alternative to abx, I mean really seriously good stuff because I am now very sick and it has become umbeareble
THANK YOU
Posted by robi (Member # 5547) on :
rife?
Posted by seewater69 (Member # 11433) on :
Did you use rife yourself?
Posted by robi (Member # 5547) on :
I am starting.
Posted by klutzo (Member # 5701) on :
If you are a freak, then so am I. By the time I was finally diagnosed with Lyme, I was allergic to all ABX except fluroquinolones, which do not work on Lyme.
I have had only herbal and TCM treatments. My TCM doc is sending me for homeopathic Lyme dilutions, after I get my gallbladder straightened out (probably having surgery soon).
I have gotten some results from Samento, and some from acupuncture. Other things I've tried have not helped.
The consensus seems to be that alternatives are only adjuncts, and will not work alone, though some think the Buhner Protocol will work. I could not tolerate the main herb on it. There are others here who can address it for you. Do a search for Buhner and you should get lots of info on it.
Look into Buhner and Cowden. They are probably the two best alternative protocols, IMO. Buhner has a book out you should read if you decide to try it.
You can get the Cowden Protocol by going to www.samento.com.ec, click on "Lyme borreliosis library" and print the article by Wm. Lee Cowden, M. D.
Some also like Zhang. I did the Zhang protocol for six months, and all it did was empty my wallet.
If you want to ask me any questions, you will need to PM me. There is some kind of "hard drive cleaner" virus that has prevented me from getting onto this web site for three days now. I was only able to get on now because someone PM'd me, and I answered that to get in. It only affects my access to this site.
Good luck, Klutzo
Posted by Health (Member # 6034) on :
I became allergic to ALL antibiotics when I was off lyme treatent.
I started antibiotics again for lyme but had to start with 1/2 or 1/4 tablet twice a day, and was reacting to these too, but I kept at it.
AND, then the herx started by day 4-5 and I herxed, and by the 6th day or so of the antibiotics, I was noit reacting that much
anymore because i had killed some lyme, must have been this, and then I increased the antibiotics,
And now not allergic to antibiotics..
SO, for me, I was reacting to anitbioitcs because of lyme.
I dont know if this is the case for you.
Trish
Posted by oxygenbabe (Member # 5831) on :
It is a bit dicey, but some people combine low dose steroids with the antibiotics to minimize the herx. It would seem contraindicated--steroids augment lyme, but a few folks have been able to make progress that way. I believe LymeEd did that and ArtistDi.
Posted by seewater69 (Member # 11433) on :
Hi all,
thank you for your answeres. I have tried samento already, although not the whole protocol and it didn't work for me, I would have sworn Cowden was a fraud, but some people had results so I guess it works for some. I will look into bunher and zhang. Anything else under the sun? I have a mouth full of amalgama, but where I am I am scared to have it removed because I hear it's a tricky thing to do. I have tried abx in all possible ways (all orals) but I just can't take them, I tried a quarter of the dose, half dose, after 1 week I have to stop. I was fine on the first 4 months of treatment, then something "broke" and I became "allergic". Those of you who are allergic, what happens to you?
My dr is considering hospitalitazion with IV abx because of my state, he doesn't know alternative medicine, and I am totally scared I will die from it.
Rife I don't know, if it was cheap... it sounds rather farfetched...
Posted by seewater69 (Member # 11433) on :
Me again!
I forgot to say: what are the latest on that protocol for sarcoidosis (based on vit D inbalance?)
I had the crazy idea of using transdermal abx, I wonder if that would give me an allergic reaction...
Posted by brentb (Member # 6899) on :
Whatever you try it must have antimicrobial properties. Garlic, Vit C, Cats claw, and colloidal silver are all excellent imo in killing borrelia. I'm 90% cured on a mainly heavy dose colloidal silver protocal.
best of luck
Posted by IsThereHope (Member # 6581) on :
1) Cumanda 2) Allimax Tablets 3) Apple Cider Vinegar (mixed with water, drink) 4) Bowel Cleansers 5) A good colloidal silver, colloida copper for Koronax
Posted by seewater69 (Member # 11433) on :
Hi Brent,
the colloidal silver is it the Jerningam's protocol?
thank you
Posted by IsThereHope (Member # 6581) on :
Oh, and definitely "Rain Tree Cat's Claw Tablets", "Rain Tree Gravioloa"
Posted by IsThereHope (Member # 6581) on :
brent, I too am basically cured of lyme now, after a decade of failed medical nonsense. Silver was key for me, however, all natural anti-biotics work great, they build up where anti-biotics tear down, natural anti-biotics like silver, colloidal copper, allimax (garlic extract) are very broad spectrum whereas anti-biotics are very narrow and do harm good things that you need. Take MSM too.
Again, treat lyme like a system fungal infection and a parasitic infection and you will get better. Get some whole cinnamon sticks and cloves, make tea out of it, drink it every day, and Apple Cider Vinegar to rebalance your PH, and don't each so much, do colon cleanse's.
Posted by IsThereHope (Member # 6581) on :
I'm not a doctor, but I re-read through some of the posts above, I know now, in my case anyway, that the anti-biotics themselves were making me sicker, they were doing absolutely nothing to lyme yet producing anti-biotic resistant pathogens in my body, creating mutant candida and worse, they'll screw up your skin, sinuses, gut everything. These are the key filtering systems in your body, get your gut, sinuses, skin in order and it will help immensely, if you have rosacia, dandruf all these kinds of things your body is totally toxic and cannot fight what it needs to.
Posted by BOEJR (Member # 1734) on :
Seewater,
Hyperbaric Oxygen does is effective in killing the spirochetes. And it is more cost effective in several euro countries, unlike the US...
If you PM me I will send you some research. Also, I can try and find you a provider if you tell me where you are located.
Blessings,
Julia Posted by brentb (Member # 6899) on :
Never heard of that protocal seewater. I'm on nutrasilver 3200 ppm (150 drops 3 times a day) and also take the invision product (100 ppm). There is also a new silver product (molecule) out that pathogens consume. S/B a great product though I forgot the name.
Be sure to start slow! the first herxes can be nasty. Killing borrelia within the bloodstream is not that difficult. Only then ramp up to get those hard to reach places borrelia love to hide. Also keep in mind my protocal is heavy dosage and will probably not be needed by you. (But hey it's there if ya need it)
Posted by bejoy (Member # 11129) on :
i'm having amazing results on part of the Beck protocol. www.sharinghealth.com Its quite cheap and non abx. It's way out there, but its working very well for me.
My other choice was to self medicate on veterinary meds, and I wasn't ready to go there without solid medical guidance... so here I am.
The Sota SP Lite is a lttle microcurrent generator that is supposed to clean microorganisms out of the blood. Seems to be working. www.sotainstruments.com You can also use it to make colloidal silver.
Many people find colloidal silver to be a great antibiotic. I wuld make sure that it is the kind made just with silver and distilled water. Those made with salts or proteins can cause a problem called argyria.
I use colloidal silver very successfully to treat problems like ear infections, eye infections, and cold sores, although I'm not currently taking it orally.
I'm also using the Sota magnetic puler to drain and clean the lymph system.
I'm also using some homeopathics from Deseret Biologicals. They also have a website, but you may have to phone them for specifics about lyme tx.
I use two or three different natural healers who do muscle testing to help me figure out which treatnents and remedies are best for me.
I am also successfully using low doses of steroids (natural hormone replacement therapy), with great benefit, and without adverse reaction.
I agree that getting your amalgams out is a really good thing, but I'd wait until I was stronger if I were in your shoes, and I would get a really good naturopathic physician who could do IV support to detox the process.
Good luck. There are lots of great treatments out there. You can find a combination that your body will accept!
bejoy
Posted by brentb (Member # 6899) on :
quote:Originally posted by IsThereHope: Get some whole cinnamon sticks and cloves, make tea out of it, drink it every day, and Apple Cider Vinegar to rebalance your PH, and don't each so much, do colon cleanse's.
Mind going into this further? While improving (slowly) I also have to constantly try to eliminate the toxins produced by my infection. Is that what the above is for?
Posted by hiker53 (Member # 6046) on :
You might try immune response training.
Lymefree.com
Posted by IsThereHope (Member # 6581) on :
Sure brent, search on "Apple Cider Vinegar" and healing in google and you will find great info, things like this:
and tons of others, it is a long since forgotten miracle like silver, the stuff is great, I do the Heinz stuff you can buy in the store, I mixed a good doze with an 8 glass of water, once or twice a day and drink it with a straw, it's sour of course but I put the straw way back in my throat.
Some like to do the Braggs, but it's unpasturized and I don't touch unpasturized stuff, no way, no how. Look it up and you will see, I'm telling you the cure to feeling better is cheap, it's not in the medical community, they "treat" instead of cure. Apple Cider Vinegar will cure acid reflux in a week, the medical folks would have you take a purple pill for life, and it's not a disease, how stupid.
Posted by MariaA (Member # 9128) on :
There've been a lot of posts on Lymenet about many people's seeming successes with the Buhner Protocol- an herbal combination that can be tailored to specific types of Lyme symptoms. It's based on herbs with antibiotic properties and herbs that influence the immune system in ways that counteract the type of immune damage that Lyme does. Buhner also suggests a lot of antioxidants and collagen support as auxiliary therapy for counteracting the damage done by Lyme spirochetes.
It seems to take the same length of time for results as antibiotics do for some people (15 months for at least three members here, though Buhner says more like 8-12).
The book is backed by 30 pages of references to medical studies (in vitro and in vivo) from which Buhner derived his insights.
seawater, try doing a search on poster by the name of Gigi. She shares many alternative type ideas that helped her and her husband heal and they weren't young chicks. In 70's I believe.
Yes nothing seems to be cheap about fighting this illness except some abx and docs in the network. Of course alternative treatments are rarely covered in most states.
Good luck, Pam
Posted by MariaA (Member # 9128) on :
Klutzo,
Buhner says often (in the book and in his advice column on Planet Thrive website) that if you can't tolerate one of the main herbs, that there are either alternatives or that the protocol will still work eventually without it.
Posted by Annxyz (Member # 9097) on :
I have read different things about apple cider vinegar on the net . Some references say it FEEDS yeast . Others refer to it as antifungal .
I wish I knew which is accurate . One other member here says that vinegar makes yeast worse for her .
Any other experience with it here ?
Posted by Annxyz (Member # 9097) on :
I have read different things about apple cider vinegar on the net . Some references say it FEEDS yeast . Others refer to it as antifungal .
I wish I knew which is accurate . One other member here says that vinegar makes yeast worse for her .
Any other experience with it here ?
Posted by seewater69 (Member # 11433) on :
Thank you for your answers,
I have a few more questions: those who have improved greatly on natural protocols, did you use abx too? Where you very sick to start with?
anybody has tried this immune system training? It says there is a 100% money back guarantee for lyme sufferers (if you don't notice improvement) on lymefree.com.
thank you!!
Posted by MariaA (Member # 9128) on :
I started with antibiotics, but when I stopped taking them I relapsed completely. At the beginning of January I felt like I"d been run over by a truck. Of course my germ load had probably been taken down a lot by the antibiotics but it didnt' really feel that way during the relapse.
I went to an herbs-only protocol (Buhner's main herbs and a lot of detoxification stuff) and I felt better almost immediately. I'm feeling pretty good without any antibiotics right now several months later.
Posted by brentb (Member # 6899) on :
quote:Originally posted by seewater69: Thank you for your answers,
anybody has tried this immune system training?
It must be right. It was "Endorsed by nurses and nurse practitioners." What more do you need to know?
Seriously...borrelia is a stealth pathogen. Even vaccines fail on this fella. Until I see science...scam.
As for abx I used them extensively and of course they work. If I could have combined the two at the time (silver) I'm certain I wouldn't still be in this mess.
best of luck
Posted by hiker53 (Member # 6046) on :
Actually, I did the IRT training for awhile and my friend noticed the number of seizures I have went down. Then I had two surgeries and quit. Now I am on disability and can't afford the $55 a week fee--not covered by insurance or my flex plan. But, I do think it helped. Hiker
Posted by brentb (Member # 6899) on :
quote:Originally posted by hiker53: Actually, I did the IRT training for awhile and my friend noticed the number of seizures I have went down.
Interesting...as said I've not seen the science behind this. Like to learn more about it.
Posted by Deep in 'tis pear (Member # 10427) on :
To answer Boejr, Hyperberic therapy suggestion, for me, it was a complete waste of money. Not only it didn't help for lyme but after ten sessions I got double vision when looking in the distance... It eventually dissipated on its own.
Posted by losferwrds (Member # 19741) on :
quote:Originally posted by IsThereHope: Sure brent, search on "Apple Cider Vinegar" and healing in google and you will find great info, things like this:
and tons of others, it is a long since forgotten miracle like silver, the stuff is great, I do the Heinz stuff you can buy in the store, I mixed a good doze with an 8 glass of water, once or twice a day and drink it with a straw, it's sour of course but I put the straw way back in my throat.
Some like to do the Braggs, but it's unpasturized and I don't touch unpasturized stuff, no way, no how. Look it up and you will see, I'm telling you the cure to feeling better is cheap, it's not in the medical community, they "treat" instead of cure. Apple Cider Vinegar will cure acid reflux in a week, the medical folks would have you take a purple pill for life, and it's not a disease, how stupid.
From what I read the pasturization the heinz does kills all the healing properties, its the "Mother(enzymes)" that have the curing properties, the pasturization kills that, thats why people use Braggs.
Posted by Cass A (Member # 11134) on :
Personally, if I became allergic to antibiotics, I would start with Allergie-Immun from Germany. There is more than one thread about this treatment here at Lymenet.
I am doing it now, and am noticing allergies that I've had in the past turning up and then going away.
This is an undercut to other types of treatment.
I have tried herbal treatments--with some improvements--but not enough. And, I do also have bad reactions to some antibiotics, although not all of them, as is the case for you.
Best,
Cass A
Posted by ArtistDi (Member # 2297) on :
One way to get an antibiotic into you, and start slowly, is to have a transdermal one. Try Wellness Pharmacy in Alabama. They make certain ones, and I have been on Doxy. My llmd is taking peak blood levels to see what dose is needed for optimal levels.
Posted by karenl (Member # 17753) on :
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