[ 26. May 2007, 11:29 PM: Message edited by: mikej2323 ]
Posted by radiogirl (Member # 9202) on :
For mycoplasm ...yes.They are hard to test for as I understand it ....I can also tell you that I have experienced a false negative myco test.
There is some good literature at www.immed.org. Also alot of people discuss myco at www.roadback.org as many with a plethora of rheumatic diseases believe them to be microbial based and have gone into remission using antibiotics.Hope this helps RG
Posted by mikej2323 (Member # 8913) on :
RG-
Yep, been to both those sites- thanks. Just getting an idea of how many tested PCR negative, but later tested positive.
First round of myco tests I was positive c.pneu. I did PCR and individual tests not panels.
Months later ,I did them again and I tested positive for c.pneu. and m.pneu. where m.pneu. had been previously neg. Thats my experience maybe others will relate theirs.
Posted by mikej2323 (Member # 8913) on :
Anyone else????
Posted by valymemom (Member # 7076) on :
What is your doctor treating you for? Many have other co-infections and not only mycoplasma and this makes everything more difficult, of course.
Posted by mikej2323 (Member # 8913) on :
Not for me- for a 13-year old girl. Not sure if she has Lyme's; Western blot was negative, but Bowen's QRIBb was the highest at 1:128. No history of tick bites, but did ride horses and found some on dog through the years. Tested positive for M. pneumoniae three times; serology and the CSF, but doctors ignored it. Found mycoplasma research that M. fermentans can affect the cholinergic pathyway in the body thereby affecting acetylcholine.
She was PCR negative for M. fermentans and M. pneumoniae right before whe went into respiratory distress and couldn't move her extremities. Wondering if they cross-reacted and with the Bowen's test AND if anyone later tested positive?
Mike
Posted by Marnie (Member # 773) on :
Mike...are doctors sure it wasn't/isn't botulism?
Not sure about cross-reactivity of testing.
But this:
"Lyme disease was first identified in 1975 and has been discovered in every region of the United States as well as in Europe, Asia, Africa, and Australia. The bacterium is transmitted to humans by the bite of an infected tick.
Members of the research team don't completely understand how the toxin acts, but believe that it may work similarly to botulism, tetanus, and cholera toxins."
The toxin is glutamate...whatever the underlying cause.
It is so rare for lyme to go so fast to paralysis...makes one pause...
Posted by mikej2323 (Member # 8913) on :
Marnie-
Yeah, we pushed the C.botulism thing pretty hard and many said no. There were many signs and symptoms related to botulism that she didn't have. Not like that means anything, but several neuro's said no. They told us botulism progresses very fast; much like GBS - 24-72 hours. And you are definitely right...makes you think...what in the world could this be???
She did have a great deal of mold in her blood, which I think may have "kept the immune system busy" and allowed the bacterium to speed up their damage - just my theory...I don't know???