LymeNet Flash: Lyme test.. can anyone relate?

This is topic Lyme test.. can anyone relate? in forum Medical Questions at LymeNet Flash.

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Posted by drdre (Member # 12212) on :

Can any relate? I am dying of liver pain and high enzymes, pulsating headached, muscle twitching, eye pain, back aches. But then all of a sudden I am completely fine for a few days, but then it all comes back again. I have had 3 lyme tests. The first was IgM response to borrelia garinii, after 1 month of doxy treatment I developed a negative IgM but one 58kd IgG and now 4 months later the symptoms are creeping up again and I have one IgM for 41kd and still the IgG 58 kD. If it's not Lyme what is it??? Syphyllis is negative but I had a false positive HIV test which went negative after Doxy.
Can anyone relate or have an idea if I am really positive or not? Borrelia garinii is highly possible since I traveled and hiked a lot in Europe and all over Asia.

Posted by SForsgren (Member # 7686) on :

Try getting a CD57 teest and the co-infection test done via Fry Labs and see what shows up. Both could be helpful.

Posted by groovy2 (Member # 6304) on :

Hi drdre

Dont use Tests to make dissensions in your
treatment --

The tests at this point in time are Useless -
Wildly Inaccurate --

these tests cause more harm than good by having
results all over the map --

Doctors and patients that TRUST these
tests are Doomed -- Dont be Doomed -Jay-

Posted by TerryK (Member # 8552) on :

quote:
The first was IgM response to borrelia garinii, after 1 month of doxy treatment I developed a negative IgM but one 58kd IgG and now 4 months later the symptoms are creeping up again

Did you only get one month of treatment? At what dose? LLMD's typically treat for 2 months after all symptoms are gone and with a fairly high dose. Lyme testing is a real problem for accuracy so you can't go only by test results and this is why lyme is a clinical diagnosis.

Are you seeing an LLMD? You need to see an LLMD so they can use their expert knowledge to help you get rid of this now. You may have a co-infection. An infection that gets passed with the tick that passes lyme disease.

Terry

Posted by bettyg (Member # 6147) on :

welcome to the board,

i'll send you my 58 pages newbie package of links, advise, symptoms, tests, disability, much more, and

treepatrol's newbie link w/1000 sites of GOOD INFO! [Big Grin]