LymeNet Flash: IMPORTANT-Sign petition to show how many of us there are

This is topic IMPORTANT-Sign petition to show how many of us there are in forum Medical Questions at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/58988

Posted by ellenluba (Member # 1707) on :

Hi folks,
We need to refocus on one of the most important - and
easiest - activities to promote the access of Lyme
patients to medical care.

PLEASE , if you have not already done so, sign the
petition protesting the IDSA guidelines.

These guidelines of the Infectious Disease Society of
America (IDSA) claim that 3-4 weeks of antibiotics are
always sufficient to treat Lyme disease.

These guidelines have provided ammunition to insurance
companies to deny reimbursement for treatment for
chronic Lyme disease. The guidelines deny the very
existence of chronic Lyme disease.

We are sick and , compared to powerful groups like the
IDSA, we are politically weak. BUT the strength we
have is in our numbers.

Right now only 28,000 have signed. That's only a
fraction of the number of signature we can get if we
start working on it.

IF YOU HAVE NOT YET SIGNED THE PETITION GO TO:
http://www.lymediseaseassociation.org/referral/Petitions/Petition.php?id=1

Then send the link to friends and family asking them
to sign.

The following paragraphs from the LDA give more
explanation of the issue:

"The new IDSA guidelines published in October by the
Infectious Diseases Society of America (IDSA) are
already causing patients to be denied treatment for
chronic Lyme disease. The guidelines have recommended
against any long term treatments, listing numerous
specific antibiotic classes not to be given, listing
alternative treatments and even supplements not to be
offered to Lyme patients. Clinical discretion has been
removed from treating physicians. We ask that you,
your families, and friends across the country sign
this petition immediately. Lyme treatment is at stake.

"Petition Information: The petition on this website is
for those 18 years and older to sign. Names and
addresses will NOT appear on the internet but will be
printed out with the petition when it is ready to be
presented to the appropriate entity. LDA never sells
names, nor shares them with marketers. The petition
will be used in an effort to advance our cause at the
appropriate time and will be kept private until that
time. Remember, like many of you, LDA is all patients
and families of patients ? and all volunteer."

Posted by lymednva (Member # 9098) on :

How long has this been around? Is there a way to tell if we have already signed it, without reading through a long list of names?

I can't handle that. I would just read right past my own name. [bonk]

Posted by tic chick (Member # 9156) on :

I may have signed this already but, can't even remember yesterday so it's possible that I resigned....hope it's OK,

Tic

Posted by tailz (Member # 10014) on :

I just signed it. If I signed it twice, oh well.

Posted by artraveler (Member # 12764) on :

Thanks for posting this!! [kiss]

I have sent it to everyone I know -- including another Lyme board.

Posted by blazinglyme (Member # 13320) on :

Hey all,

I have signed this before, but resigned it and passed it to every one on my email list!

Lets hope and pray it goes through this time!

Hey traveler! hugs to u!
[Wink]

Best wishes

blazinglyme