Just wondering if anyone takes topamax for headaches or neurontin for pain. I was put on topamax over a year ago for headaches and neurontin just over a month ago for nerve pain. I haven't been diagnosed with lyme, still waiting on igenex results (hopefully back sometime this coming week?) I know some of the symtpoms I have can be a side effect from topamax, but the symptoms started before I started taking it. Thanks...Tamera Posted by lucy96734 (Member # 8372) on :
Prior to knowing I had Lyme I had neuropathy pain and was given Neurontin. I didn't like it ans was switched to Topomax. I tolerated Topomax well and it decreased the numbness, tingling, and nerve pain some. I stayed on it for about 3 years until I found out I had Lyme and got treatment and didn't need it anymore.
Posted by tailz (Member # 10014) on :
I was on Neurontin. I remembered it helped some, but I honestly don't remember what my dominant symptoms were at the time. Obviously, memory loss is a more recent symptom of mine.
I do remember that my pupils were unequal with the very first dose of it. I did not know I had Lyme yet.
I don't know anything about the topomax.
Posted by arg82 (Member # 161) on :
I've been on both for headaches and both have helped. I stopped the topamax because I was having the side effect of increased tingling in my hands and feet, even after lowering the dose, and that's when I upped my Neurontin dose. I had already been on Neurontin at night to help with sleep so we just added in another dose and it's helped so far, although I've had to add a third dose when things have been worse.
Hope they help you!
Peace and healing, Annie
Posted by Skyler (Member # 11549) on :
I was put on topamax for 'migranes' that were actually babesia headaches in 11th grade. it did nothing to help me at all as far as the headaches and looking back i know it did not help me with nerve pain. but it did make me all drugged up and feel reallyy sick all the time.
Posted by Ntlc13 (Member # 4197) on :
I love my topamax it helps and I have been on it for 5 years. What really helps with the headaches is foricet.
As for neurtin I was on it but quit because it cause people to gain alot of weight. I have issues with that one.
For nerve pain most fibromaylgia people are taking that new drug lyrica. It help me with my nerve endings.
![[Roll Eyes]](rolleyes.gif)