This is topic Has anyone found their fibromyalgia condition to be anything other than Lyme disease? in forum Medical Questions at LymeNet Flash.


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Posted by Robin123 (Member # 9197) on :
 
HI all -- am curious at this point as to whether fibro could be anything other than Lyme. I believe my fibro is Lyme, since I treated with clindamycin and the fibro pain of 25 years went to zero in one week.

I have also googled for clindamycin's effectivenees re mycoplasma and brucellosis, with a positive response on that question. So who knows exactly what's being treated...
 
Posted by daise (Member # 13622) on :
 
Hi,

See my reply at the end of the myofascial pain syndrome thread.

Daise
 
Posted by Robin123 (Member # 9197) on :
 
Hi Daise -- being that I don't have the book you referred to(Living Well with Chronic Fatigue and Fibromyalgia by Mary Shomon), do you happen to know whether anything has been proven about the cause(s) of fibromyalgia or is it all possibilities and conjectures at this point?
 
Posted by CaliforniaLyme (Member # 7136) on :
 
Mine came directly after tick bite and onset of many other syndromes. Mine went with IV Rocephin & has been gone for years now*)!!
 
Posted by bejoy (Member # 11129) on :
 
Lyme is technically just the presence of Borrelia Burgdorferi bacteria.

Lyme Disease really is a tick soup of many different co-infections.

So technically I don't have Lyme since I don't seem to have Bb, but probably another midwestern borrelia strain, along with Babesia, Bartonella, and Bruscella.

In the broader sense I am considered to have a darn good case of Lyme Disease.

Getting rid of 20 years worth of critters is resulting in decreased pain for me for sure.

So the question is how many of our tick born illnesses can result in fibro. I don't know.

My hunch is that fibro can be traced to a variety of vector born bacteria in everybody, but is exacerbated by lost sleep and low cortisol and testosterone levels.
 
Posted by TerryK (Member # 8552) on :
 
You might find more people who respond that their fibromyalgia was caused by something other than TBI's if you were to ask this same question on a fibro list. I think immunesupport.com has one but there are many on the internet.

Over the years, I've heard and read accounts of many people who say that a variety of things caused their fibromyalgia because when they treated something (for example candida, thyroid, parasites etc..) they got better. Unfortunately, many times, the symptoms come back months to years later. Often they come back after a stressful event such as a car accident, divorce or some other stressful, triggering event.

I think many of these remissions and flares are the result of the health of the immune system. Remission when it is functioning well, flare when it is not. Less stress on the body (candida, parasites etc.) and suddenly the immune system is not so overwhelmed and is able to fight off the big infections that are often the underlying cause of fibro. Stress seems to have quite a negative effect on the immune system. So, while we may be able to keep our infections at bay for a long time, stress seems to bring on the infection for some of us.

After my experience with disordered tryptophan and having such a big decrease in pain with tryptophan supplementation, I feel that a part of my pain was a brain chemistry problem likely induced by a brain infection.

Animal and human studies show a relationship between reduced brain serotonin metabolism and pain reactivity. Plasma-free L-Tryptophan is shown to be inversely related to the severity of pain in a small group of patients who fulfilled fibromyalgia criteria in an older study that I found.

Quinolinic acid is a metabolite of tryptophan and it appears that in the presence of CNS inflammation (such as is seen in lyme and aids infections), tryptophan may be converted to quinolinic acid instead of to serotonin. Less serotonin, more pain reactivity.

If you have lyme disease, please use tryptophan with caution. Do a search here for quinolinic acid.

I'm not a doctor, and this is just speculation based on my own experience, test results and research.

Terry
 
Posted by GenaD (Member # 11988) on :
 
I heard just today from my chiropractor husband who is always up on research that true Fibromyalgia has been recently found to be viral.
 
Posted by Lymetoo (Member # 743) on :
 
Which virus?

"true fibromyalgia"?? Interesting term.
 
Posted by Robin123 (Member # 9197) on :
 
Me too -- does he have any more info on what virus(es) he's referring to and what studies are involved in determining as such?

When I first was diagnosed with FM, in the mid- 80s, I was told it was a post-viral syndrome. Made sense to me -- I had had nonstop herpes outbreaks for a couple years, then acyclovir came out and was able to treat the infections.

This happened right before the fibro started. Coincidental timing, I might say. So I accepted the viral explanation as to why the immune system etc might be out of whack.

So if the chiro is referring to an old explanation, it is old, since this here FM has turned out to be Lyme -- not a viral infection, but a bacterial one.
 
Posted by GenaD (Member # 11988) on :
 
I remember going to a seminar with my husband a few years ago where the doctor was talking about "true" Fibro being hormonal. I think the "other" Fibro was basically misdiagnosed conditions like Lyme.

My husband said this viral connection to Fibro was a fairly recent thing he read.

I don't know; there is so much confusion regarding it. All I know is I personally believe most "Fibromyalgia" is probably undiagnosed Lyme!
 
Posted by trails (Member # 1620) on :
 
hi robin! long time no chat---been out of the loop.

I just wanted to chime in here and say that many of my symptoms are endometriosis related. It is very hard to distiguish between endo/hormones and lyme for me.

but many of my LL docs believe that my endo was brought on by lyme....so it all leads back to one tiny sucker.
 
Posted by listenswithcare (Member # 10719) on :
 
My CFS/FM diagnosis turned out to be Lyme Disease.

After finsing out I had Lyme I asked about the CFS and FM. My doctor said that the Lyme caused the CFS and FM and that indeed I did have those in addition to the Lyme.

Robin
 


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