After three months on the IV/Rocephin, I am just as sick as before I started; has anyone had this experience?
Posted by savebabe (Member # 9847) on :
Are you seeing a llmd? And have you been tested for co-infections?
Posted by ByronSBell 2007 (Member # 11496) on :
were you feling better on the antibiotics and now your off of them? OR are you still on them and feeling bad again?
Posted by BOEJR (Member # 1734) on :
Sorry that you are still not recovering. Hopefully you are being treated by a LLMD or a lyme friendly doc.
Ask you doc to check you for co infections, check your viral titers and check for any heavy metal toxicity.
You would be surprised at how many people walk around with high levels of metals in their bodies.
All or any of these factors can contribute to your lack of progress.
I hope this helps,
Posted by YorktownNL (Member # 7657) on :
I saw little improvement in 3 months at 1 gram a day. But great improvement the next 3 months at 2 grams a day.
Conisder blood thinning as well to help. I used nattosyn then - during the second 3-month period. I am now using Fibrozyme and Rutozyme and it helps.
I also exercised. By the end of the three months I was able to run/jog while infusing. Maybe it helped the abx penetrate by having my heart rate up.
Rocephin was great once my doc figured that stuff out - dosage, blood thinner, exercise. I'd do it again if my doc suggested it.
Posted by CaliforniaLyme (Member # 7136) on :
YES- and at 6 months I was just as sick- and at 9 months I was almost completely well*)!*)*!)*!)!
Posted by lymex5&counting (Member # 7202) on :
I have been on 2 grams am, 2 grams pm, 4 days on 3 days off. For 14 months.
Right about the 9th month I started to get better.
LLMD said lets take a month break. BIG MISTAKE!!!
I totally relapsed and I am not back to where I was.
I am on that regiman again. I also do Magnesium IV's after the Rocephin which helps with alot of my numbness and muscle pain. I am also treating Babesia 5 ml pack in am and again in pm of Mepron, along with 1,000mg of Zithromax.
I have had all my amalgams removed. And on the 3 days off. I try to just focus on detox Glutathione pushes, Phosphotidylcholine IV, liquid and capsules.
Welchol, chlorella, modifilan, charcoal, EDTA pushes, colonics, cilantro, etc. (I test well by ART on all these)
Some of the kids test better on DMPS, DMSA, Metal Free, etc. You need to use what works for you specifically.
Along with antiparisiticals and antivirals.
There are not enough hours in the day. And it is hard to get in all the minerals and vitamins as well but they are so important to help your body balance to remove the heavy metals.
Hopefully your Dr will treat ALL conifections regardless of test results. Very Important!
Hope you get to feeling better soon and seeing some results. I totally understand when you are spending hours everyday doing IV's and not feeling any better!