The new Lyme book "It's All In Your Head" by PJ Langhoff is now Available on Amazon.com
There are 2 books in the series. Both have medical information about Lyme. Both have a "foreward" by Dr. B. The rest of the book is filled with stories from Lyme Sufferers.
I had a thought, if those of us that could afford to buy one book and donate it to a library in your home town... what a great way to reach those still looking for an answer.
Posted by Lymetoo (Member # 743) on :
That's a good idea! We could read it, then donate it.
Posted by Tincup (Member # 5829) on :
Great idea host!
Have you read the book?
Posted by hostbody (Member # 12695) on :
Tin Cup - I'm in the process of reading it.
Chapter 1 of both books seem to be the same. History of Lyme, Lyme symptoms, EM rash, stages of Lyme, CDC statistics, patient responsibility, little bit on the "Lyme war" and Plum Island rumor.
Book 1 then has stories from 12 Lyme patients. Book 2 has stories from patients from all over the world.
I'm so excited. My story is in Book 2!
Posted by lymewreck36 (Member # 4395) on :
I am one of the stories in the book! Haven't been able to read the book yet. My autographed copy was sent to my U.S. address, my parents, and when I get there next week I will finally be able to see the book.
mary
Posted by bettyg (Member # 6147) on :
Both books are outstanding!
I have read ALL of book 1; half-way done on book 2.
I'm in book 2 also;
for hostbody and lymewreck, please send me a PM so i know your names and can then read your stories and reply.
tincup; they are worth the money! i learned things in book 1 i didn't know before.
book 1 has 2 folks have died from lyme disease! each one tugs on our hearts.
pj did outstanding job on editing.
would be nice to show IT'S ALL IN YOUR HEAD so folks know which book this is! we've had other discussions about these marvelous books and the wonderful writer who wrote/edited them!
bettyg Posted by Tif (Member # 12701) on :
I see that the author also has a book entitled "The Singing Forest", has anyone read it?
Posted by Brussels (Member # 13480) on :
I got the second book. Heartbreaking stories, even from children.
How could this be going on? The same story over and over again, there is a clear pattern.
Selma
Posted by bettyg (Member # 6147) on :
tiffany, yes, singing forest was the 1st book i read of pj's! her story about her life...
12 years in court system; losing both her 2 kids to ex-husband who has been dragging her thru court whole time, munchousen's...; daughter turning into columbine type shooter.
Posted by hostbody (Member # 12695) on :
Reading these books, it just amazing how Lyme can take many different forms.
Posted by daise (Member # 13622) on :
I'm reading book 2.
For the first time we have a collection of Lyme patient stories about REAL people and their REAL ordeal.
There is nothing white-washed about it because the stories are written by the patients themselves--straight from the gut, delivered by the heart, to help others.
That's what makes the book special.
The cover, painted by an eight year old with Lyme, has cool colors so many Lymies relish (cool as in cold, soothing.)
It's the book of Lymies.
Thank you PJ.
daise Posted by bettyg (Member # 6147) on :
daise and host,
yes, both books are GUT stories, right from our torn apart hearts of family/friends who won't have anything to do with us.
both covers were good; 8 yr. old on book 2 exceptionally good.
i love my large print book. i read member who is now in switzerland last night; gut-wrenching! Posted by lymewreck36 (Member # 4395) on :
Hi from member in Switzerland.
I can't tell you how it feels to have someone read your story and stop and say it was "gut wrenching."
To be so isolated, to have to pretend life is normal in order to forge friendships and a life of some kind....
Then to be able to tell the entire dirty story to someone willing to buy the book and sit down and read it.....it is the total opposite of the denial I have to present to the rest of the world.
It is actually so wierd to be able to do that and have someone say to me,...ya, what you are going through is a nightmare.
It is healing to be able to do that.
I learned long ago, when I was pregnant with a child I was told would never be able to live, not to share your hardships with the public. (I found out at 20 weeks gestation that I had no amniotic fluid, and then that the baby did not have working kidneys...they were "multi cystic.)
WE had to keep this news, that our baby would be born dead or die soon after birth, very private, because we didn't want our already living two daughters to know what was happening and live like we were, waiting for the "little death."
I don't believe in abortion, so I carried this child another three months waiting for the birth, picking out the tombstone, finding a plot, arranging for her baptism at the hosptial as soon as she was born, .....
We were afraid that if we told our friends what was happening, they would talk about it at home, their children would hear it, and then say to our children at school...."hey, I heard your baby sister was going to die!"
So we told no one.
And after the Little Death, I had to go through people seeing that I had given birth and coming up to congratulate me, and then telling them that the baby died, that we knew it was coming, and then consoling THEM because they felt so horrible at that moment.
What I learned then, is that people started avoiding me. It was just too hard to look at me in the eyes, to awkward, no fun. And some women even got mad at me and told me I was stupid, that I didn't need to go through that and what did I think I was trying to prove.
I gained A LOT of weight, started my first antidepressant after I did a "Humpty Dumpty" and fell off the wall.
But, I learned that suffering is a very private matter, and that there is a deep divide between our public lives and our private ones.
I KNOW that I will not make friendships by burdening people with my STORY. So very few people know that when I am in a group or alone with coffee with a friend, that behind the smile is the OTHER personality, the tears and pain. It is really a split personality.
But....
To be able to print my story and have people willing to read it, .....
How healing. Thank you P.J. Thank you Betty.
I should tell you that after I got my lyme diagnosis, I read in the "literature" that lyme infection can cause multi-cystic kidneys early in gestation. That is what happened to my child. At the time, I was told I had Fibromyalgia and was very sick. So, I believe with my entire being that my child died of lyme disease.
I do have, now, three living daughters that were infected with lyme disease after birth, and not diagnosed until too late. So they struggle like I do now.
They will one day want to have children.
I hold my breath, and they are aware of the risks too.
God bless all of us lymeies.
There will be a cure one day. WE all have to believe that.
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