Hi, I heard with Lyme we should stay out of the sun,because of Vit D. Is this true? One book I read said yes and the other send definitely not. Thanks Atheana Posted by feelfit (Member # 12770) on :
Lots of Lymies are VitD deficient. I have heard 15-20 minutes of sunshine daily on entire body.
Of course if on Doxy, this is not a good idea at all as Doxy can cause photosensitivity.
Look in SEARCH, several discussions on Vitamin D.
Feelfit
Posted by steelbone (Member # 14014) on :
I'm taking vit D supplement along with everything else.
Posted by map1131 (Member # 2022) on :
In Ky our winters are so gloomy. I get my Vit D3 in the spring, summer and fall from the sun. In the winter, I take Vit D3 supplementation.
Pam
Posted by bettyg (Member # 6147) on :
are you on doxy? if yes, stay out of sun during 10-3 pm hours.
wear long pants, long-sleeved shirt; gloves if driving or working outdoors, shoes/SOCKS, HAT that covers most of your face if you are driving.
you can suffer AWFUL SUNBURNS otherwise.
Posted by Rianna (Member # 11038) on :
Many LLMD's say NO SUN as it can make one of the forms (L-form) I think proliferate. For me it makes my Babesia go wild and my titres go up after any sun exposure and I get chronically symptomatic.
Whilst a small amount of sun is good for the immune system a large amound supresses the immune system and that is the very last thing you need when the immune function is comprimised alreay.
So personally for me any amount of sunlight gives me severe worsening of symptoms and I can feel everything liven up, so Im the one with the shades on sat under the umberella watching everyone else drinking there pimms whilst Im drinking my glass of water!!!!
Rianna
Posted by ICEiam (Member # 7519) on :
My daughter is totally the opposite from Rianna. Just goes to show this stupid disease is different for everyone.
I have said it over and over, what is good for one isn't generally good for the other. My daughter gets huge benefits from the sun.
She spends hours by the pool in the summer, it helps with her leg pain and general body aches and pains. Extra benefit is she does get into the water to cool off so she is getting exercise.
She does take D-3 also. Her LLMD recommends the sun. I think it depends on what your LLMD says and how the sun makes you feel.
HUGS,
Posted by Julie4848 (Member # 13065) on :
God I hope that is not true, I'm going on my honeymoon in May to Mexico
Julie
Posted by Leonard (Member # 10531) on :
I just went to Dr. C 2 weeks ago and he recommended suntan but not sunburn. In the winter he even recommended tanning beds.
Leonard
Posted by luvs2ride (Member # 8090) on :
Yep. I get great results from the sun.
The first two winters my arthritis increased. This winter I supplemented D3 and had no change in condition whatsoever.
I ride horses so I am out in the elements a lot. I make sure to get 15 mins of sun daily during the warm months, but beyond that, I wear protective clothing.
I am on doxy.
So far, no sunburns or rashes.
Luvs
Posted by Rianna (Member # 11038) on :
[QUOTE]Originally posted by Leonard: recommended suntan but not sunburn. In the winter he even recommended tanning beds.
I also went to the same LLMD followed this and became so ill my lyme and co-infections went to my CNS. So badly it was unbearable I could not stand to be awake. So just a word of warning, I am sure many benefit from the sun as it lifts the metabolism (especially thyroid) but for many it can have the opposite effect.
Rianna
Posted by map1131 (Member # 2022) on :
Know I did tanning beds once a week to 10 days apart for three winters in a row back in 03-06. They helped my bone, arthritic and general body aching. They also helped with the winter gloomy feeling your mind and body can feel during the winter months without sunshine.
I was told by a physical therapists that getting to the point of pink skin, not burnt is good for people with pain. The body will produce endorphins, which are natural pain killers that help deal with it all.
I too love the feel of the sun beating down on my body and warming me to the bone. Free pain relievers. I just don't abuse the sun. Don't use sun lotion either, unless I'm going to be hours in it and I can feel my skin starting to feel more than pink. I'm dark headed and I am not fair skinned, so I turn red to brown the next day.
Pam
Posted by DoctorLuddite (Member # 13853) on :
The best thing to do is have your levels tested (25 hydroxy D and 1,25 dihydroxy D, Calcidiol and calcitriol respectively) and if both are low or diol is low and triol midrange, supplement lightly with a good quality D3 (the quality stuff is harder to find than you might think) an endocrinologist is the best person to manage an abnormal D metabolism, but beware of drisdol, the high strength vitamin D analogue sold by prescription. It is not D3 and has no place in the human body unless you have adapted to getting all your nourishment from fungi...
Posted by atheana (Member # 14273) on :
Hi guys, Thanks for all responses. I was reading in Bryan Rosner's book "The top 10 Lyme Disease Treatments" that Vit D can be very harmful in people with cell-wall-deficient bacteria.It will actually cause immune system suppression and create a more favourable living enviroment in the body. Vitamin D consumption(and exposure to sunlight and other artificial lights)may be neutral or even beneficial to healthy people,it can be poison to people infected with cell-wall-deficient bacteria beacause of the pathogenic process. This of course is based on the Marshall Protocol. So what do we do? The Bahamas is my second home,the Land of Sun! Should I stay or should I go! Atheana Posted by luvs2ride (Member # 8090) on :
It seems like from everyone's experience, you will know right away if the sun if good or bad for you.
What was your experience this past summer?
Posted by atheana (Member # 14273) on :
Sorry I can't remember! I know the sea made me feel great. Right now I am Herxing so I am not thinking at all. Posted by lou (Member # 81) on :
quote:if both are low or diol is low and triol midrange, supplement lightly with a good quality D3 (the quality stuff is harder to find than you might think
And where do you find the good quality type, is this a prescription or a supplement from the health food store?
Should this be done only during the winter, and lay off during the summer? Sorry, I have already seen too many doctors and don't think I can stand to go find an endocrinologist. They probably have squabbles over the subject, and then I would have to sort it out.
Posted by METALLlC BLUE (Member # 6628) on :
From what I remember Dr. Marshall saying, that even if you feel better in the Sun, it's a temporary issue. Apparently those who get real sick are just far more sensitive, but those who do well in the sun, are doing just as much harm. He says the sun "suppresses" symptoms, only to have them increase in intensity later.
I'm not sure how true this is, but look into it if you wish. There very well may be something to this, especially for those who feel the sun is "good" for them -- it may turn out to be a false sense health.
Posted by DoctorLuddite (Member # 13853) on :
High quality D is one that is derived from cod or fish liver oil, humans should generally avoid ergocalciferol, it's great for fungi, that's where it comes from.
I am on the fence regarding lanolin (wool oil) derived D3, I would like to see IR and NMR spectroscopic comparison to fish derived D3.
Perhaps an individuals response to D3 should be included in the criteria for the diagnosis of Chronic Lyme Syndrome.
Many improve quite dramatically with it, others have horrible reactions. So for example, if someone with a symptom complex suggestive of Lyme that has multiple negative western blots and Igenix studies does well with D is simply vitamin D deficient, and if they do poorly, they likely have chronic Lyme?
Can we say with certainty that any human who encounters borrelia burgdorferi will have the organism in their system from that point forward, or are there people out there whose immune system can fend the organism off?
Posted by lou (Member # 81) on :
Thanks for your reply DL. My take on this is that lyme causes all sorts of dysfunctions and it is possible to be D deficient AND have chronic lyme, in the way that a person can need hormone supplements and thyroid supplements as a result of lyme. Or independently.
And it seems the answer to your question about chronic lyme, in my opinion anyway, is that you can have the critters in your system and fend them off with immune response, have no symptoms. Other people are not able to do this for some reason.
There is a window of opportunity in treating lyme at an early stage. If this is missed, then it may no longer be curable, only treatable, if that. It seems to be the case that people can be fairly asymptomatic for a while and then crash, triggered by some unknown cause, perhaps surgery, stress, or for no apparent reason at all.
And, of course, there is the complicating issue of coinfections.
Posted by B R H (Member # 12159) on :
The inconsistent response to vitamin D supplementation (whether by food or sun supplementation) is at least in part due to hormonal issues as well as immune response. All these body systems are related & will suffer some degree of dysregulation once the level of infection reaches some critical tipping point. One reasonable & objective measure of the degree of dysregulation is vitamin D metabolites.
I do believe a healthy immune system can fend off Bb & most other tick borne illness. We are all infected with CWD bacteria since birth & the health of our immune system varies over time for all sorts of reasons. It is the successive exposure to & accumulation of the immense variety of CWD bacteria that leaves us susceptible to chronic disease, including tick-borne infections.
MP attempts to stabilize the immune system dysregulation & kill the bacterial root cause.
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