This is topic Success so far..anyone try this ABX combo? in forum Medical Questions at LymeNet Flash.


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Posted by 123harmony (Member # 13413) on :
 
hello! been only treating several months, but so

far i feel like i am having a lot of success.

after about a month, my energy level has really

increased, back pain and my morning 'hit by a

truck feeling' has subsided. of course, i know

things could change b/c my symptoms have come

and gone in the past, but it's still

encouraging. so far had no major herxes, just a

few periods of greater fatigue, headaches, etc.

i haven't read of anyone doing the same abx

protocol as i am, and am curious if there is

anyone out there that is. my doctor said he

feels like this low dose of flagyl is enough in

combo w/others and he does not pulse it at all.

500mg Biaxin 2x daily
200mg Plaquenil 2x daily
875 amoxicillin 2x daily
250mg 1x daily

also probiotics, milk thistle, epsom bath, etc.

my blood test results show pos Lyme, high titers

for chlamydia pneumoniae, low Vit D, high

inflammation (c3,4), elevated C6 peptide, CD57

of 66 at start.

doctor does not recommend supplementing w/vit D

even though i am low and reverse ratios...??

sorry so LONG!
 
Posted by Lymetoo (Member # 743) on :
 
Sounds good!!!

I don't see why your dr tested you for Vitamin D levels if he wasn't planning on doing anything about it!!???

It can boost the immune system.
 
Posted by Lymen (Member # 6882) on :
 
What is "250mg 1x daily"?
 
Posted by METALLlC BLUE (Member # 6628) on :
 
He's avoiding Vitamin D, because he saw the reverse ratio. The high Vitamin D is probably an indication of abnormal immune function as a result of the infection.

Long story short, the Vitamin D should stablize and reverse or at least balance as you improve, assuming the theory is correct.
 
Posted by 123harmony (Member # 13413) on :
 
the 250mg 1x daily is 250mg of flagyl once a day. this seems lower than what other people take, so i was curious what anyone thought.
 
Posted by 123harmony (Member # 13413) on :
 
SORRY I JUST NOTICED I FORGOT TO INCLUDE THE FLAGYL... [Smile]
 
Posted by justwondering (Member # 12813) on :
 
I hope more people respond, I am interested in the opinions and feedback!


Jackie
 
Posted by Lymetoo (Member # 743) on :
 
That's enough flagyl to begin with. May want to raise it later. It's a tough drug to take.

If you take high doses you need to keep an eye out for neuropathy.
 
Posted by CD57 (Member # 11749) on :
 
are you treating co-infections w/this combo?
 
Posted by 123harmony (Member # 13413) on :
 
do you mean the chlamydia pneumoniae? that is

the only possible coinfection that i think i may

have, but i'm not really sure. my doctor says it

means that i could have a chronic cpn infection,

but many doctors would say that i don't. so..i

dont really know? i do know that my mother (who

passed away from MS) had high titers of CPN, and

at least one of my sister's do as well. all 3 of

my sisters have at least lyme, we are pretty

sure.

i'm happy w/the low dose of flagyl, b/c of the

lack of side effects i've had from it. just hope

it's enough in combo w/the others.
 
Posted by jamescase20 (Member # 14124) on :
 
I like it too, looks powerful, now I self treat so, if I was you, and I am not you of course, I would get off cell wall inhibiting abx (pennys and ceftins) and go on minocin and rulide, or zith if I was fearful of rulide, which I am not. or ANY of the abvanced marcolides. AND a tetra (minocin or doxy)...why? Because they both leave the cell wall intact, basially thought to keep the kets from hiding. They dont fear tetras or marcolides is the believe here. But they do kill them.
 
Posted by Lymetoo (Member # 743) on :
 
quote:
Originally posted by 123harmony:
do you mean the chlamydia pneumoniae? that is

the only possible coinfection that i think i may

have, but i'm not really sure.

The most common coinfections are babesia and bartonella. The testing for those often results in a false NEGATIVE.

You need a dr who understands that and will at least give you a trial run of those meds to see how you respond.

If you're not getting better, there's usually a good reason why. Often it is because of an untreated coinfection.
 
Posted by WildCondor (Member # 434) on :
 
It's great that you are on a proper combination of antibiotics. Good job! Now...see how you feel, your doses are low. The combination is good, but the doses are low. Biaxin can be 1,500-2,000 mg/day and Amoxicillin 3-6 grams /day and up from there, Flagyl 1,500-2,000 mg/day...plaquenil leave as is. You may need to raise your doses over time.
 
Posted by 123harmony (Member # 13413) on :
 
i did test negative for all other coinfections, and ok w/that since i really dont have the symptoms for them.

my doctor specializes in treating lyme and says from his experience this low dose flagyl has been very effective:)
 
Posted by 123harmony (Member # 13413) on :
 
i'm sorry jamescase20...i do not understand what you mean...?
 
Posted by Lymetoo (Member # 743) on :
 
quote:
Originally posted by 123harmony:
my doctor specializes in treating lyme

Do you mean as in "only Lyme?"

I HOPE he is right about the co's....but keep an eye out for coinfections hiding behind the lyme.
 
Posted by 123harmony (Member # 13413) on :
 
no, he treats lyme and all coinfections, but

does not believe that i have any. have to trust

him and my symptoms, at least until i have a

reason to believe otherwise.
 


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