This is topic lymebook... is this a mult level scam? in forum Medical Questions at LymeNet Flash.


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Posted by jamescase20 (Member # 14124) on :
 
I want to say his name, but I fear its not allowed here, but he endoses glyconutrients which is not even really a word. After reading all his books, I smell scam. Anyone else feel this way? Comments please, good or bad.
 
Posted by Lymetoo (Member # 743) on :
 
NO, I don't. If you have a beef with him, take it up with him personally.

I wasn't that impressed with his second book....though it's good. But his book on Lyme and Rife is awesome.

None of his books has anything to do with MLM... not at all.

Bryan is a fellow lymie.

Besides, MLM has many GOOD aspects. More good than bad if you have the right company and the right product.
 
Posted by WildCondor (Member # 434) on :
 
I believe Bryan does want to help people, but the way he goes about it seems shady and crooked. He sells and attempts to steal other people's written work for his own personal profit, and publishes previously written material again for personal profit. He has so many book sales websites, Lyme this, Lyme that...all with his book ads all over the place. Hopefully his intentions are genuine, but his ethics and possible criminal activity are definitely questionable and the jury is still out on this one. Proceed with caution!
 
Posted by METALLlC BLUE (Member # 6628) on :
 
I like Bryan. I like his books, his website, his outlook, and his drive to educate all of us on all of the options that are out there.

We all have to make a living, especially those of us with Lyme. Many of us write books, many of us. Bryan does it in a way that actually reaches the people and it reaches the people because he goes about it the way he does.

His material has been invaluable to me.

Check out his video blog. A lot of the ideas he offers are free! They're things you don't even have to pay for. Don't buy his books if you don't want to, but definitely check into what he has to say. He's well educated.

http://tinyurl.com/6akmvn

[ 23. April 2008, 02:37 AM: Message edited by: METALLlC BLUE ]
 
Posted by jamescase20 (Member # 14124) on :
 
But why does he endose certain brand names? Thats a well known "no no" in the world of honesty. It smells. And the glyconutrient thing really sets a red flag off. The rife I could consider, but that seems totally made up. He says the lyme cysts open up when the glycos swim by, come on, how the hell does he know that?
 
Posted by Lymetoo (Member # 743) on :
 
quote:
Originally posted by jamescase20:
The rife I could consider, but that seems totally made up.

Rife is about 70 years old. It's not something Bryan made up.
 
Posted by Lymetoo (Member # 743) on :
 
quote:
Originally posted by METALLlC BLUE:
We all have to make a living, especially those of us with Lyme. Many of us write books, many of us.

Ditto.
 
Posted by TerryK (Member # 8552) on :
 
I don't know Bryan so can't comment on him personally.

You wrote:
But why does he endose certain brand names?

I don't know why he does but it is a fact that some brands are better than others in terms of effectiveness and purity.

Terry
 
Posted by METALLlC BLUE (Member # 6628) on :
 
quote:

But why does he endose certain brand names? Thats a well known "no no" in the world of honesty. It smells. And the glyconutrient thing really sets a red flag off. The rife I could consider, but that seems totally made up. He says the lyme cysts open up when the glycos swim by, come on, how the hell does he know that?

I can only guess, but from what I've seen Bryan endorses "everything" that has value. If other patients haven't reported significant value, he won't support the companies that provide the "poor" products. For example, he supports the Marshall Protocol and Benicare use, but he doesn't make money off either.

He supports Rife, but Dave and the fellas at Mag won't give him kick backs aside from paying for advertising on his website, which - if I'm mistaken -- he allows them to do for free.

Bryan also supports primarily, the Doug Coil, which is a machine we build ourselves, and thus he receives nothing. He also receives nothing from. He also receives nothing from Dr. Levy who builds the Doug Coil for patients.

You really ought to talk to Bryan directly. He posts here. Bryan probably won't defend himself or really say anthing on the forums, and the reason is simple -- you can't really "prove your innocent" when someone already thinks you're guilty. It doesn't work, so he probably just goes on his way. If you messaged him privately though and were polite and asked questions he'll answer you I'm sure.
 
Posted by Greatcod (Member # 7002) on :
 
Where there's suffering, there's a buck.
Most of us patients don't charge for what we know..
 
Posted by sparkle7 (Member # 10397) on :
 
It seems that he has built a business around Lyme.

We live in a capitalistic country - so, he's free to do that.

He does offer some useful info.

I would proceed with caution... I do agree with james about the glyconutrient thing.

- > Smells like team spirit...
 
Posted by METALLlC BLUE (Member # 6628) on :
 
quote:

Where there's suffering, there's a buck.
Most of us patients don't charge for what we know..

I don't charge anyone, but I'm also not a news journalistis. If I investigated and interviewed hundreds of patients, thousands actually, and took the time to test treatments (Spending thousands of dollars),especially as new methods and conventional research presented themselves, and then I wrote a book. I'd expect to be compensated.

I'd make the information available for free as an E-book, but I'd also write a paperback book and charge for that. The reason being, I would expect something for my hard work so I could live off more than an SSDI check. I'd have to pay for printing, and other processes involved in getting a book onto store shelves too.

You have to have resources financially and it's not fair to say otherwise! There is no known cure at this time for this disease in some patients, but someone has to be on the cutting edge reporting these things, and Bryan is doing that. Some of the cutting edge stuff is garbage until you get enough user reports that it's worth "looking at." and some of it has worked as a result of Bryan getting the information to others. I'm an example of that. Getting the information into people's hands doesn't mean it will work for everyone. It's their choice to decide what to do next.

In the end, I'm defending him simply because I'd do the same thing if I was in his shoes. I'm skeptical and even cynical at times, but I know enough now to know that people are reporting results from treatments that in theory "should not work."

My opinion, if it works, it works, even if by placebo, I don't care how it works, as long as people get well and do their own research and draw their own conclusions. Any research done will be unscientific, since there aren't many studies supporting a lot of what we're doing. We do the best we can with the limited information we have. People make their own choices based on their own risk tolerance, and they're responsible for the consequence, whether positive or not.

Like I said in the Conventional Vs. Alternative Sticky. If you have something to say, say it, and then ignore all the negativity or doubts. We're not here to prove a point, just to share and try to save our lives.
 
Posted by Tincup (Member # 5829) on :
 
I have spoken to SkyKing and have asked him to help folks multiple times over the years.. and doctors too.

I've questioned him to death about a number of topics and not agreed with him a number of times, publically.

BUT... to his credit...

He has always been kind and very helpful... and has gone out of his way to assist others... and me.

He has always been more than generous with his time and products... and is very interested in education.

I would consider this to be an "unbiased" comment as I have never used rife, never bought his books (can't read small print) and he knows I am not planning on doing either.

I NEVER felt pressured to buy anything. And just because something isn't for me.. doesn't mean I would not suggest it for someone else.

In MY opinion... I KNOW what it costs to do things for so many people (and I know he has been swamped with requests) and to educate and spend hours of your time helping people in need... and if you don't have money to pay for the materials and computers and fees... etc... you just can't do it.

I appreciate his dedication and his effort.

[Big Grin]
 
Posted by Peacesoul (Member # 13709) on :
 
quote:
Originally posted by jamescase20:
But why does he endose certain brand names? Thats a well known "no no" in the world of honesty. It smells. And the glyconutrient thing really sets a red flag off. The rife I could consider, but that seems totally made up. He says the lyme cysts open up when the glycos swim by, come on, how the hell does he know that?

Welcome to the world of Lyme.
No one knows this for sure, not even the BEST LLMD in the world.
Lyme is the unknown illness with the unknown treatment.
It's a hit and miss illness.
What I've figured out since being on my lyme journey, take all the info with a grain of salt and listen to your own body.


I have no clue who this person Brian is by the way.
 
Posted by James H (Member # 6380) on :
 
Bryan is a good guy from what dealings I have had with him and what I have heard from others.
 
Posted by maureen2174 (Member # 11471) on :
 
He has posted on the lyme and rife forum and he is not even mentioning his book in the posts that I have read.

I don't own his books, but I do own a Doug Coil machine, which he does recommend. I know other people who rife have only had good things to say about his book. I do also enjoy listening to his video blogs.

I have NO PROBLEM with people making money for what they do. I wouldn't want to work for free, couldn't do it anyway- you need money to live....i really don't think he is a scammer. Whether you believe it or not, he does believe what he writes and it is our choice to buy his books if we want to see what he has to say.
 


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