Hi I just found out i have end stage lyme I just found out thru iginx labs looking back ive had the semtoms for a long time I have pain in spine that radeaits throughout the back ,excruciating rib pain adeep searing pain like i had a knife buried in my left sholderblade horible buring spinal pain in betwen sholderblades.excruciating painful burning tingling and numness all over my body sholderblades down arms fingers hands lower back hipjoints dawnlegs in feet and toes iv out the referal list i dont mind going a long way to find a llmd ihate going that for to find out its the roung doctor would aneyone out ther now of a good doctor even altealternative :bonk: :bonk: :bonk:
Posted by Lymetoo (Member # 743) on :
You're in a bad spot for help. If you're female there is a dr in Denton who may help you.
Otherwise, TX has nothing much to offer. Can you travel to a nearby state?
Don't consider "late stage" to be "end stage"... There is plenty of hope for recovery!!
Posted by bettyg (Member # 6147) on :
welcome pat; so glad you found us.
please UPDATE MY PROFILE and go to bottom to ENABLE PRIVATE MESSAGES; that's how we send you llmd, lyme literate md names.
it's also how i send you my newbie package mentioned below.
please break up your post; instructions are below. thanks so much!
WELCOME, would you like a FREE copy of my newbie package of 120 pages info galore sent by LYMENET'S PRIVATE MESSAGE system here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?
I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!
also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!
If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you!
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When you post or reply, please break up your solid, continuous block text
welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. Posted by Lymetoo (Member # 743) on :
![[Smile]](smile.gif)
![[Wink]](wink.gif)
otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. ![[Frown]](frown.gif)