LymeNet Flash: sick since '02; Anyone want to read my story?

This is topic sick since '02; Anyone want to read my story? in forum Medical Questions at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/67428

Posted by olivia_ham (Member # 9960) on :

Hi. Thought I would post my long boring story...I've been mostly a lurker over the years. I'll try and keep this concise.

Tick bite, NC, spring of '02. Three months later, I got really sick. Night sweats, stiff neck, loss of appetite, bell's palsy, brain fog, to name a few.

Tested positive, elisa? Doxy for three weeks, a month break until finding and scheduling appt. with LLMD.

During the next four years I was treated by LLMD in NC...never IV, just different combos of oral antibiotics. I moved to Washington state in '04 and continued treatment with this same doc until '06.

The summer of '06, I felt well enough and I decided on my own to go off the antibiotics. Two months off, and I developed a constant rocking sensation.

This happened to coincide with a lake trip I took where I was on a boat for long periods of time. I constantly feel like I'm on a boat, plus brain fog, fatigue...all neuro.

I endured this for a year until hooking up with an LLMD here in WA. Don't know why I waited so long!

Anyway, in Aug. '07 I had 7 mercury amalgams removed.

I had my first IGenex test...Positive IgM. I then started Doxy for three months. I added Flagyl, Augmentin, and Diflucan for another three.

In April of '08 I developed a DVT in my leg. Tested positive for prothrombin gene mutation (factor 2)...my father has Factor V Leiden. I don't know yet if I have factor V as well.

I started warfarin which I will continue for at least 6 months.

I also started babesia treatment Mepron/Zith and continue to take Augmentin, Diflucan, and various supplements etc.

Ever since my new "thin blood", I feel like I've been herxing non-stop. Do you think my "thick blood" has been preventing me from feeling well after all these years?

Anyway, hopefully I'm on the right track. I just wanted to share my story with my peers!

Thanks y'all!!!

Posted by AZURE WISH (Member # 804) on :

Welcome [hi]

I know the babs herxes have been very hard for me...

I am not really sure how thickness or thinness of blood would effect lyme or babs herxes but i would think it may.

Sorry you have been through so much. Glad you have a llmd and are getting proper treatment now.

Best wishes [Smile]

Posted by lymebytes (Member # 11830) on :

You are in treatment w/an LLMD that is great, you are on the right track.

Herxing will come and go until you are well.

Take care.

Posted by sixgoofykids (Member # 11141) on :

Welcome! Glad you finally posted. [Smile]

Posted by KS (Member # 12549) on :

Interesting...not sure my story sheds any light on anything but....

My dad, uncle, grandfather, etc. have Factor V Leidan and have had a lot of clotting issues. When I was pregnant with my second child, the OB/GYN had me tested and I found out I was a hetero. carrier as well. Although I had never had any clotting issues, as a precautionary measure, they put me on heparin injections throughout my pregnancy and 6 weeks post-partum. It wasn't until about 6 weeks after I stopped the heparin that my Lyme started kicking up (don't recall a tick-bite).

I've often wondered whether it was the delivery OR the heparin that somehow started stirring things up. I haven't been on any type of blood thinner since....

I'd be interested to hear how you do....

kristin

Posted by cameronb (Member # 12240) on :

do you still have the rocking sensation? did you see a change after you had the dental work done? (or should i say undone?!)

Posted by bettyg (Member # 6147) on :

welcome olivia,

finally had some time to read your story; and it's NOT LONG! and i really apreciated it being all broken up.

glad you have a good llmd in washington state and you have so many to pick from!!

best wishes to you; glad you found us! [group hug]