LymeNet Flash: Byron's 2nd Update

This is topic Byron's 2nd Update in forum Medical Questions at LymeNet Flash.

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Posted by ByronSBell 2007 (Member # 11496) on :

It has been 28 days now on IV vancomycin 1,000mg twice a day and high dose bicillin shots at the clinic.

My liver enzymes have risen a little but my LLMD's supplements have knocked them back down without having to back off the IV's.

Herxing is not as severe but still pretty rough.
No real improvements yet.

I will be on Vanco for another 56 days, then retest myself to look for improvements.

A different antibiotic will be used later, most likely Primaxin or Flagyl.

Posted by Clarissa (Member # 4715) on :

Thanks for the update, Byron!

Keep pecking away...you're a fighter.

Healing thoughts your way,

Posted by peter j (Member # 11825) on :

I might also start a Primaxin cure soon. Hopefully in mid-July. I will combine it with ciprofloxacin. Keep us posted on how you progress

Do you know what dose will you be taking of Primaxin?

Posted by Boomerang (Member # 7979) on :

Thanks for the report, Byron.

Hang in there!! Keep fighting those buggers!

Posted by catalysT (Member # 10786) on :

Thanks for the update Byron. I have been interested in seeing how your current therapy goes.

Posted by feelfit (Member # 12770) on :

Byron,

Hope that things take a turn for the better real soon. Hang in there kiddo, thinking of you and sending good thoughts your way.

Feelfit

Posted by Boomerang (Member # 7979) on :

Byron, I keep wondering how you are doing. Hope you are feeling better!

Please let us know when you get a chance.

Posted by Tincup (Member # 5829) on :

Hopefully the worst is behind you now. Thanks for the update.

[Big Grin]

Posted by Boomerang (Member # 7979) on :

bumping for Byron.

Posted by Tincup (Member # 5829) on :

Boomerang is bumping for Byron. Boomerang is bumping for Byron.

That just sounds cute.

Almost like a dance tune!

[Big Grin]

Posted by BorreliaBrain (Member # 7603) on :

Too funny. I am also interested in hearing how vancomycin works as a Lyme cure... my LLMD mentioned trying it next - he told me there was an LLMD in Florida that put his patients on long term vanco IV and says it cures most of them! So let's hope that's what happens here.

But the vanco's on hold because he wants to try one other of the newer abx's first.

So I'll be watching for your updates (and hopefully we can trade success stories)

BB

Posted by MommaK (Member # 10376) on :

Hi Byron!

Sounds like you're hanging in there! So glad the herxes are being helped.

What do you do to keep occupied at the clinic everyday?

Thanks for keeping up posted!

Take Care, MommaK

Posted by just don (Member # 1129) on :

Go gettem tiger!!

PM sent!!

We are all rooting for you,,,in our best manners!!

Posted by doc (Member # 14471) on :

Hi byron , Im kinda quiet here but read most posts, Im very intrested in your program & progress . Please post a update when u can & good luck with your TX , DOC

Posted by Rianna (Member # 11038) on :

The best of luck Byron, we are all rooting for you
[group hug]

Rianna

Posted by ByronSBell 2007 (Member # 11496) on :

I have just crossed the 2 month mark of treatment. I had to be put on IV doxy temporarly because of such severe herxing from the IV vancomycin. I will go back on it soon and do 2 more months of it. I am continuing the IM Bicillin weekly as well.

My circulation has improved, I have more color, some days I have more energy, and everynow and then I will feel "decent" not great but decent... Still such a long ways to go

Insurance ended up paying for my first month of treatment, so that was good.

I am still in the herx storm that continues to go on and on but it is not quite as bad. I need atleast 3 more months of treatment, so I am looking at 5-6 months total for treatment.

Posted by Boomerang (Member # 7979) on :

Byron, hang in there. Hope your herxes begin to lessen a bit.

Posted by feelfit (Member # 12770) on :

Byron,

Have your headaches and stomach aches let up? I think you are a very brave and strong young man...not to mention you have an excellent attitude.

Best,
Feelfit [spinning smile]

Posted by Amanda (Member # 14107) on :

Hi Byron,

you are a dogged fighter with lots of heart, hang in there.

You know, I've never met you..., but you seem kinda sexy! Are you single? [Smile]

Manda

Posted by Lymetoo (Member # 743) on :

Onward, forward!!! [Cool]

Posted by CherylSue (Member # 13077) on :

Way to go, Byron. I'm following your progress. Best of luck.

CherylSue