Does anyone have a clue why so many docs are putting folks on IV use and not binding the toxins? or not even checking genetics for the genotype? keep hearing horror stories. Never done IV and now scared to death of it.
Posted by Tincup (Member # 5829) on :
Welcome to LymeNet!
You said.. "Does anyone have a clue why so many docs are putting folks on IV use and not binding the toxins?"
Not all patients have a good response to the toxin binding theory... and not all doctors believe in it... and some have tried it and not seen good results.. and some wait until after treatment as the reaction patients have to the removal of toxins and/or the agents used to remove them can be wicked and interfere with the progress that would otherwise be made without it.
Some of the toxin-binding agents can diminish the meds you are taking too.
Plus.. if you become allergic to something when on lots of meds and supplements together.. no one will know what is causing the allergic reaction... and you will have to ditch any future use of whatever you are on at the time because you can't risk having another allergic reaction.
Those are only some of the reasons I can guess at... but I'm sure there are more and each patient is individual.
You said.. "...or not even checking genetics for the genotype?"
Could be cost. Could be most patient don't want to know. It doesn't matter what it is because it doesn't change the meds used or affect the treatment either way. The basic theory is.. if you need to be treated.. geno-type, or not.. treat.
You said... "keep hearing horror stories. Never done IV and now scared to death of it."
I don't know who would be telling you horror stories... so sad they do... and that just doesn't seem right. Usually folks look forward to feeling better and finally getting what they need to address the infections.
If you feel you want to try to deal with toxin binding protocols... or get a geno-test because it would make you feel better... can you just ask your doctor to do the test and consider the toxin binding? Maybe they will approve.. and if not.. have a reason to share with you.
Good luck with treatment and please... don't be scared. I did enough of that years ago for all of us.... and truth is... it didn't help me or anyone else!
Posted by BarbieM (Member # 15844) on :
Ok, I get the genotype thing, but suspect covered by insurance... and if you have the dreaded one that doesn't allow for removing toxins - shouldn't folks know?
Other serious question which I find ummm annoying as had several docs not get this part (ok most)... is that if you use I.V. or even orals, what are they doing to kill the cyst part that surrounds the infection - i.e. cyst buster (like ghost buster). Seems NONE of them know anything about this, yet I read it on one doctor's site who seems to have a clue. If you don't bust the cyst, you can't kill the infection and neither IV alone or oral alone without cyst (spelling?) buster, will get rid of anything.
Boy you are quite the whiz and thank you for speedy reply!
Posted by Lymetoo (Member # 743) on :
I would say most LLMD's DO use cyst busters. If you need help finding a good doctor, let me know!
Many of us got well on orals.
Posted by ladycakes (Member # 12619) on :
Mine has me taking Flagyl with the IV. I think that's a cyst buster.
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