After eight years of extreme illness and three mis-diagnoses later, it looks like I am going to need a doctor who can and will treat late stage lyme disease - and I mean LATE STAGE - it has been 8 years since onset and I've never been treated. While my WB from Labcorp was negative according to both IDSA and ILADS (one positive band 23 on Igm and two positive, bands 41 & 30 on IgG), I have been told that band 23 on the IgM is highly specific and tht the the IgG results are significant too. I've been advised to test with Igenex and find a good doctor. I have already been through a great deal - treated for everything from Lupus to Fibromyalgia, taken innumerable steroid injectons to the knees so I could be at least semi-ambulatory. My neurological symptoms are getting far worse with time - Welcome to my Pity Parade!!! Does anyone have any points of light to shine my way (and better yet, suggestions on someone credible to see in South Florida, ideally - but anywhere in Florida?). I've been reading everything and everyone current on Lyme and am up-to-speed on the political issues - but I am determined to do what I can to help myself. Many thanks to everyone else with Lyme who is trying to be so brave - I am new to this group and am very glad to have discovered you!
Posted by feelfit (Member # 12770) on :
Two LLMDs in South Florida. One in Tampa area, one in Naples. As far as I know these are the only LLMD's in Florida. Some folks go to another state to treat.
You may want to post this in seeking a doctor.
Feelfit
Posted by Clarissa (Member # 4715) on :
Hi there,
I'm just re-copying your post for those neuro lymies who need paragraph spacing because of vision problems.
For this particular question, Feelfit is right, there are only 2-3 (one in Ft Lauderdale). I'm going to re-post this in seeking doctors forum because you may get more responses there.
Original Post:
After eight years of extreme illness and three mis-diagnoses later, it looks like I am going to need a doctor who can and will treat late stage lyme disease -
and I mean LATE STAGE - it has been 8 years since onset and I've never been treated. While my WB from Labcorp was negative according to both IDSA and ILADS (one positive band 23 on Igm and two positive, bands 41 & 30 on IgG),
I have been told that band 23 on the IgM is highly specific and tht the the IgG results are significant too. I've been advised to test with Igenex and find a good doctor. I have already been through a great deal -
treated for everything from Lupus to Fibromyalgia, taken innumerable steroid injectons to the knees so I could be at least semi-ambulatory. My neurological symptoms are getting far worse with time - Welcome to my Pity Parade!!!
Does anyone have any points of light to shine my way (and better yet, suggestions on someone credible to see in South Florida, ideally - but anywhere in Florida?).
I've been reading everything and everyone current on Lyme and am up-to-speed on the political issues - but I am determined to do what I can to help myself.
Many thanks to everyone else with Lyme who is trying to be so brave - I am new to this group and am very glad to have discovered you!
Posted by Clarissa (Member # 4715) on :
PS>
Hold onto hope. I know 8 years seems like a long time but I'm afraid I beat you with 34-years!
I'm SOOOOOO much better and all of my tick borne illness' are in remission.
8 years ain't nuttin honey! You'll be in good shape but stay agressive and stay with this great board!
Awesome group of intelligent and experienced people here!
![[Smile]](smile.gif)
Does anyone have any points of light to shine my way (and better yet, suggestions on someone credible to see in South Florida, ideally - but anywhere in Florida?). I've been reading everything and everyone current on Lyme and am up-to-speed on the political issues - but I am determined to do what I can to help myself. Many thanks to everyone else with Lyme who is trying to be so brave - I am new to this group and am very glad to have discovered you!