This is topic call me stupid, but I do not get this in forum Medical Questions at LymeNet Flash.


To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/68333

Posted by jenin98 (Member # 12617) on :
 
if you go to an optomologist, and he checks every aspect of your eye, the nerbe, retina, etc...
ans sees everything normal, then how the heck can you have all these vision problems? where is the place that is causing the vision problems if not in the eye itself? can it ever be fixed?
jenin
 
Posted by roro (Member # 13383) on :
 
try a neuro-opthamologist. things like cranial nerve palsy, optic nerve, etc are the nerves and not the eye itself.
 
Posted by Keebler (Member # 12673) on :
 
-

RoRo has a good point. Not everything that happens with vision is actually in the eye itself.

Aslo - DRY EYES can cause many problems. So, be sure your eyes are lubricated enough.

If needed, it would be great to see a neuro-opthamologist who is also LL. (if there are any out there).

Not everything is lyme, and they do look at what is there. However, if something is connected to lyme, a LL doctor will have more expertise.

Even for those who don't have an LLMD, a call to the closest LLMD office might gather some referrals.

the local support groups, too, may have a list of names to share . . . or the groups in surrounding areas. The area HIV/AIDS support groups also have names of good doctors that look beyond, so to speak.

-
 
Posted by Marnie (Member # 773) on :
 
The inflammatory cytokines can damage the nerves.

Their level is just too high.

They (TNF alpha and IL 1 B) are trying to control insulin levels (cortisol increases glucose) but all of our cells need some glucose....including nerve cells. Our brain cells, in a jam, can use ketones as a substitute.

DCCT Study Findings
Intensive blood glucose control reduces risk of

eye disease
76% reduced risk

kidney disease
50% reduced risk

nerve disease
60% reduced risk

EDIC Study Findings
Intensive blood glucose control reduces risk of

any cardiovascular disease event
42% reduced risk

nonfatal heart attack, stroke, or death from cardiovascular causes
57% reduced risk

It is insulin SPIKES that causes the problems. Think: complex carbs and low glycemic index foods.

This also gets into acetylcholine release which looks to trigger REM...rapid eye MOVEMENT...which starts when the

eye nerves send a signal to the muscles of the eyes.

ROS...too many free radicals...triggered to activate tyrosine kinase (which Bb is inhibiting)...alone can do damage.

Free radicals. High or too low glucose levels. Acetylcholine levels...and more are playing a part in the very complex eye problems that happen in lyme.

Add NO...nitric oxide into the equation. This normally dilates vessels to bring oxygen and nutrients to the cells, but

Bb ties it up. There is a protein in one of Bb's cell walls that binds to (cytochrome C+NO).

Infected cells don't die. IF and when cytochrome C is RELEASED, the cells die.

This is controlled by an enzyme called PKCD.

Bb has a PKC (D) inhibitor, it sure looks like.

The far infrared discusssions are about activating the enzyme that "oxidizes" cytochrome C...and helping to break the Bb's grab.

Information overload, right?

I know. VERY complex.
 
Posted by METALLlC BLUE (Member # 6628) on :
 
The problem is inflammation throughout the nervous system, especially in the brain. Inflammation can easily be overlooked. Also neurotoxin produced by bacterium, can cause further symptoms.

These are simple answers to a very complex problem.
 
Posted by jenin98 (Member # 12617) on :
 
once the inflammation is reduced or the bacteria is eradicated, the symptoms disappear? no damage done, you think?
Jenin
 
Posted by mazou (Member # 15319) on :
 
I just had my appointment with my neuropsychologist yesterday, and he said that LD can cause a different kind of issue with the eyes. The problem is with the visual processing, not the eyesight itself. He referred me to a clinic where they deal with the vision problems of brain-injured people.

I have about 20/40 vision, so I see fine, I just can't put together what I'm seeing. Like, if I get to a red light, I have no idea what to do. I mean I do, if I really think about it, I can figure it out. It's just, something is missing there.

Wishing you luck! mazou
 
Posted by ldfighter (Member # 9405) on :
 
Sometimes a behavioral optometrist can pick up things up that a neuro-ophthalmologist might not find.
 
Posted by Keebler (Member # 12673) on :
 
-

the " . . .Like, if I get to a red light, I have no idea what to do. .. . ."

that has little to do with the eyes. It's the cognitive processing, toxin-laden body, infection state.

When I could still drive, I'd see the light but not know which color meant which. When I did realize the red meant stop, I forgot how to make my car stop - or get my hands and feet to move to do what I needed to do. I had to THINK how to move each body part at a time.

Many lyme patients have the same trouble at the stop lights. So, it's green . . . uh . . .?

Anyone with a bad flu has trouble like that, too. Just short term and not as bad. But, it does show that the illness affects functioning on many levels.

-

-
 


Powered by UBB.classic™ 6.7.3