LymeNet Flash: back from surgery

This is topic back from surgery in forum Medical Questions at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/68760

Posted by roro (Member # 13383) on :

i just major spine surgery on wed, july 2. laminectomy and fusion with instrumentation.

I was in the hospital for a week, my heart rate has not been below 100. its mostly 120, with a scary episode last night at 166. i have been running fevers of 102 and have drenching sweats. my skin looks all blotchy like little red capilaries are blown everywhere.

I have a big lump in my arm vein, the main artery of the forarm where they drew blood. my oxygen level was dropping to the low 80's when I went off oxygen in the hospital.

My hemocrit was down to 23 and I am severely dehydrated. they really never gave me a reason for the anemia.

i am on mega pain meds as I already was on some before the surgery. my mouth is all red, swollen, tongue burns, lips peeling, either thrush or the dehydration.

i remember coming to in recovery and every1 being all spun up, like a code, but when i asked someone said "nothing, everything is fine"

i feel like this is all bad. drs, nurses, family is saying normal for what i have been through.

too tired right now, will right more later.

Posted by feelfit (Member # 12770) on :

Roro,

Oh you tough little soldier. So glad that you are through the surgery, you have ben through so much!

I will say a special prayer for you tonight and hope that your condition improves with each day.

Blessings,
Feelfit [group hug]

Posted by Carol in PA (Member # 5338) on :

Roro,
All of us in chat have been asking about you.

I hope your recovery will be swift and uneventful.

Carol

Posted by sixgoofykids (Member # 11141) on :

Sorry it's been so tough. [Frown]

Posted by AZURE WISH (Member # 804) on :

Sorry you have had such a rough recovery so far. [group hug]

I hope things start to go easier for you very very soon. [group hug]

I know not everything we expereince is tick borne disease related....

but my heart rate went up from babs and i think it can give fevers, anemia, nightsweats... and the little red dots (petchie sp?) I have heard can come from babs too...

babs has given me shortness of breath but i am not sure if it usually actually lowers the oxygen level...

I was just wondering if they thought that maybe having surgery set the babs to flare... like i said I know not everything is from a tbd ...

it was just a thought that was lonely drifting around my mostly empty skull..

Hope you start to feel better soon [group hug]

Posted by Tracy9 (Member # 7521) on :

We have all been praying for you in chat....jeepers, sounds like they should have kept you in the hospital longer!!

How are your son and hubby holding up? They must be awfully worried about you.

Posted by Geneal (Member # 10375) on :

Oh my goodness. [Eek!]

Sending you positive thoughts and healing prayers.

Please take care of yourself and keep us posted.

[group hug]

Geneal

Posted by bettyg (Member # 6147) on :

roro, [group hug]

oh you poor thing going thru so much and the after effects of surgery.... uffda.

thanks so much for checking in, and all our thoughts/prayers/love go to you each day for a full recovery in time! [kiss]

Posted by roro (Member # 13383) on :

thanks evryone i am feeling better already. its been a tough recovery so far, but being home is a lot better than being in the hospital, and no scary episodes yet except for confusion.

last nite i couldn't remember my hubby's name. I knew I wanted something to drink, but i was looking at him and didnt know how to call him.

i was in chat and fell asleep and he typed in that I fell asleep. i was having beginnings of claw hand, but it went away.

it was very scary being in the hospital and not being told

what happened to me. i kept thinking i was dying and they weren't telling me. I fought hard. several times I had to use deep breathing to control my pain.

i never believed in that before but although it doesn't stop the pain, it makes you feel more in control, and is better for you psychologically.

on monday nite in the hospital i had a very scary episode, my heart rate went up to 166. got through it.

having a pain flare up, will post later

[ 09. July 2008, 02:54 PM: Message edited by: roro ]

Posted by stella marie (Member # 7216) on :

roro,

Thanks for the update, please keep us posted.

So sorry, it's sounds scary what you went and are now going through!

Posted by roro (Member # 13383) on :

i wanted to elaborate more on the scary episode with the heart-rate in the hospital. i was hearing a pounding noise in my sleep, it was in real life but interrupted my dream

and in my dream evryone screaming and running away but i woke up to hear it was real. (like when the alarm clock sounds like its another thing in the dream, just before you wake up)

when i woke up i was looking around trying to see what the pounding was. i realized it was my heart. i looked over at the monitor and it was 166. i called the nurse and they watched till it went back down. it was so scary, i could hear, feel, and see my heart.

i am thinking too because the drenching sweats, high fevers it is babs and started treating with artemisinin.

Posted by lymednva (Member # 9098) on :

Roro, glad to hear you are doing better today. Please take it easy. You are in my thoughts and prayers.

[group hug]

Posted by Alv (Member # 15192) on :

roro do you have bartonella...it sounds like you have it and became active...

Posted by roro (Member # 13383) on :

yes, i have bart too, and missed my rifampin the first 2 nights in the hospital. i worry about resistance.

the heavy drenching sweats have gone away already with the art. it usually works fast foro me on this symptom.

does that mean its babs or does bart respond to art too?

[ 09. July 2008, 06:54 PM: Message edited by: roro ]