LymeNet Flash: Need opinions/advice

This is topic Need opinions/advice - treatment in forum Medical Questions at LymeNet Flash.

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Posted by lyme in Putnam (Member # 11561) on :

I've been previously on iv rocephin, iv zithromax as well as other orals. I've been on orals for 7 months. symptoms are back now, full force for joint pain, electric shocks in hips as

well as the usual neuro stuff (detachment, when it started headaches for 3 days I couldn't lift my head off the pillow, living in a fog, but thank God basic intellect still there). My llmd

thinks I should go back on iv , 3 grams of iv rocephin as well as oral zithromax and tindamax. I think it's going to explode and I'll be a mental mess, but when it cleared up,

with the God's help, I was human for months of back to myself with hardly any pain. I'm afraid of herxes with a mix like this. Has anyone done this and survived keeping themselves, bodies and

mind in tact? Positive on bartonella and lyme testing.

Thanks much, be well.

Posted by Tincup (Member # 5829) on :

Soooooooooo sorry to hear about your health. Darn it all!

That is a doozy of a combo, I agree. I can't suggest to not do what your doctor wants you to do... but I can say I would certainly ask if you could go slowly... at least at first?

I would also encourage you to LISTEN TO YOUR BODY!

When herxing too hard... that isn't good for anyone!

I hope you come to a comfortable conclusion and it is helpful for you! Please feel better soon!

[Big Grin]

Posted by lyme in Putnam (Member # 11561) on :

thanks Tincup - be well

Posted by Vermont_Lymie (Member # 9780) on :

Yes, I have survived herxes that made me feel like my head was going to explode, and that sent me to bed for a couple of days; this year in fact!

I always feel better after herxes like that. It only happens if I start a new abx or increase doses of a current tx. My tx has really been, no pain, no gain, and more pain, more gain.

But I do not think it is good to herx that much, personally. If I get that sick from a die off after starting an abx, I cut back with my docs permission and start increasing slowly. I might have tried more aggressive tx, but I have to remain functional.

Sounds like your doc has a good plan, but you should let them know if it makes you too sick and you need to take a day off. Hope you feel better soon.