Has anyone gotten rid of babesia duncani or found anything that is helping? Like a lot of duncani people I don't have the sweats, but I have pressure and pain in the head, eye probs, ear ringning, heart palps (my ejection fraction is at 40%) and tachycardia. I'm currently taking
1tsp mepron 2x/day (with fatty food of course) 500mg IV levaquin 1x/day 500mg artemisinin 3x/day red root tinciture 3x/day bactrim DS 2x/day drinking boneset tea probiotics milk thistle DHEA testosterone (it was supper low) japanese knotweed 2x/day and coreg and lisinopril to keep my heart from exploding
Do I need more mepron, should I add larium or quinine or something? I'm taking enough artemisinin to support ten chinese farmers right now. So is anyone having any luck? Or tried anything that worked.
Posted by Nobody (Member # 16041) on :
I'm sorry to hear you are going through all this. I have duncani also, and I am still treating it. I don't like how I feel on the drugs.
They say duncani is much harder to treat than microti, and a well known doctor seems to think you have to add artemisinin to get rid of duncani (I saw it somewhere on this site, I think).
Posted by Angelica (Member # 15601) on :
I might have beat my Babesia duncani which I tested positive for with Igenex testing before I tested positive for Lyme disease. I have been told by two different energy workers that I am clear of it. Sorry I have no scientific proof here. Wish I did.
I never did take any Artemisinin but I did do Mepron for 4 months and then Malarone one pill a day for what seemed like forever. I also did other Asian herbs as well.
Posted by suki444 (Member # 4261) on :
How long have you been doing this for ?
Remember treatment for Babs is long and slow, and it must cover at least the lifespan of a red blood cell. Treatment (as recommended by Dr B) must be minimum 6 months. It can take months just to see improvement on Mepron.
There is scientific evidence now that Artemesia/Artemesinin levels fall after 4/5 days constant dosing and you need to take a break for 2/3 days. Some LLMDs are now doing this.
Also some folks here thinks there *may* be a liver stage - in which case weeks after stopping Mepron it may be wise to take something like Primaquine as would be used in malaria treatment.
It's all a bit trial and error still unfortunately.
Still battling with this myself! Emma
Posted by pryorka (Member # 13649) on :
Well I did mepron with zithromax for 2 months back in march. Then when I was in the hospital for a month I had to stop taking it because the doctors there were saying "why are you taking this stuff you don't have babesia"....they only knew how to test for microti. I told them I was positive for duncani and they told me they don't believe in that voodoo crap and tried to tell me I had to get a heart transplant. So I've been doing levaquin with mepron and all that other stuff for almost two months now. I feel a lot of tingling and itching in my head and face since I've started it so I guess something is going on.
Posted by Angelica (Member # 15601) on :
Some LLMDs are now having patients do 2 teaspoons of Mepron twice a day. If you get yours from Bridges to Access if you get an Rx for this amount they will fill it I have heard.
My friend is doing the increased amount of Mepron and her LLMD has her doing Enula tincture too for babs.
Posted by suki444 (Member # 4261) on :
Two months in you will be herxing but it's not long enough to see real improvements, (Dr B used to be my doc and I remember asking him about my persistant symptoms on Mepron 2 months in).
So just keep going - for 6 months minimum. I am getting the weird nerve sensation, twitching weakness in muscles of my face also and I am 6 wks in. Emma