This is the last time I will post anything on this subject since people are so touchy about this.
I believe that infra red light may be very helpful in getting rid of Lyme. I haven't been using it long enough to say if it's a cure but dramatic things are happening to me.
If people want to go to Europe, spend their life savings on treatments, & go through the stress of traveling, that's up to them. I wish them well.
I will stick with my opinion that you can do a similar therapy & get results here for a few hundred dollars.
I am not a doctor & I do not advise people to do this treatment without doing alot of research first. Infra red light is very powerful in whatever form of device you use.
The LightWorks is not a toy just because it isn't $10,000.
Good luck in fighting your illness.
Posted by sixgoofykids (Member # 11141) on :
Sparkle, I wish you'd change your mind and continue to post .... just not on the Bionic 880 threads.
I also am using Lightworks. I am interested in Bionic 880 as well. The biggest sacrifice for me to go to Germany is not the money, rather the time away from my family. I would not be spending my life savings.
I think it's a benefit for everyone to have your experience along side the experience of those using the Bionic 880.
While we're talking about the Lightworks, I want to share a story. My husband has had a curious red spot on his nose for a few months. He's delayed going to the dermatologist (don't know why). We're almost certain it's a basal cell carcinoma as he's had a few already.
He's used the Lightworks on it a few times and today it looks like a very small sore where a scab has fallen off. The redness is gone, it's just fresh skin underneath.
I don't know if it will stay "gone" but he has seen a big change in it.
Posted by Keebler (Member # 12673) on :
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Sparkle,
Please continue to share your experiences. It is important to others that a full range of reports is available.
You make some good points and, of course, most of us simply don't have the available income for the treatment protocol of our dreams. But that does not mean we should give up our dream of finding health again.
I admire your research and courage in exploring "how else?"
Still, it's valid to consider the difference in between two machines that are similar in some ways but very different in others. There is much to consider and compare.
As long as we have those details, we can either take a different path or try to figure in adjustments - or wait. I don't think anyone should give up the ship just yet.
This is a place for sharing what is working -or not - and why, whatever the case. There is always room for "What else? How else?"
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Posted by hiker53 (Member # 6046) on :
I definitely herxed from it or else it stirred up the bugs. Did lightworks 15 days in a row for 30-40 minutes per day. More seizures, stomache, headache, off balance etc.
I stopped it. My LLMD says it is like rife--you have to go at a pace that your body can handle or it will overwhelm you. He wasn't speaking of Lightworks specifically, but of infrared light in general.
Hiker53
Posted by sparkle7 (Member # 10397) on :
I just don't understand the attacks about this. There's really no reason for it.
There are other devices that may be more similar to the Bionic 880 that cost in the $900 range.
Dr. Fritz Popp said himself that none of these devices produce miracles. What more can be added to that?
Posted by NanaDubo (Member # 14794) on :
Sparkle - I always enjoy your posts and as you know I own a Lightworks as well.
As said by others, I think everyone is interested in hearing about anything that might be working.
Posted by sparkle7 (Member # 10397) on :
I guess my point is this... if people are getting strong reactions from a lesser infrared light device, it may not be necessary to get a stronger or more powerful device.
I am going though very strong reactions as I posted about 5 days or a week ago. The reaction I'm having is much stronger than abx. This infrared light is no joke.
If people go to Germany or stay at home - they may be able to continue their therapy using the LightWorks rather than using the Bionic 880.
I really don't know what the results of my going through this extreme reaction will be. It seems to be mainly affecting people with Lyme as opposed to non-Lyme infected people.
My boyfriend uses it & he's not having the same reaction. He doesn't have Lyme. So, it must be a Lyme specific reaction.
If people don't share info, we can't compare notes to adjust the potential protocol.
If people want to close their minds & not look at other possibilities it will not be of benefit to the group.
I never said anything against GiGi or anyone who has the resources to go to Germany or Borneo or the Moon for treatments. I just think we can apply the principles here using locally available products & resources.
This is a big experiment & some of us may get worse. If you feel you need to have a doctors guidance - look for a doctor. I am not a doctor & I am not telling anyone what to do.
I just don't have the cash or patience to mess around with doctors who are not familiar with the latest techniques or who send you home with massive quantities of abx.
I don't want to do that right now. You all have to make your own decision. I just though that if I shared my findings - it would be of use to everyone.
I didn't expect to be attacked. It's just my opinion. My information is not meant to discredit anyone or disrespect anyone.
For some reason, people seem to be taking my postings as a personal affront to their own credibility. It has nothing to do with that.
I never meant it to be that way. It's just research...
Posted by northstar (Member # 7911) on :
Well, I, for one, hope everyone continues to post about their light machines, no matter if someone else has difficulty with other light modes.
Closed and biased minds stifle potentially helpful experiences of various symptom treatments and results, and possibly lead to misconstruing simple social statement/social compliment/social pleasantry.
At this point, all the science has to offer is anecdotal evidence and theory, for any of the machines.
Without the anecdotal evidence, provided by users of the Lightwave and all other machines and methods, people would just be discussing concepts.
These above postings are helpful to me, and I am sure to others.
Northstar
Posted by herxuk (Member # 15873) on :
Sparkle, please don't pull out of telling us about your Lightworks . I value what you have to say, and also other's that are using it, Sixgoofy etc.
I and my spouse have been on the site you posted, we want to order, even if just for the other benefits, it claim's. It's more advanced than the Infrared of year's ago. But wish it were available to order, from Retailers here in UK.
I like your attitude as to educating yourself as much as possible to defeat this monster. The IDSA are of the only one opinion camp ( theirs ) . Probably why were all in this mess today. So lets not go that way.
Staying in the dark scares me, I also have an open mind. Keep posting, I am listening. It must NOT be your last word. Don't even think about it.
Posted by sixgoofykids (Member # 11141) on :
Sparkle, I think it's clear that everyone wants to hear about your Lightworks experience, just not in threads about people's experience in Germany.
I have had the same experience you have. My husband does not have any herx type reaction like I have, even though it has helped him with the previous issue I mentioned.
My daughter, who is in remission from Lyme (but gets headaches when she's on her period), used it on a sore ankle. She got a huge headache afterward. Headaches are her primary Lyme symptom (she was never highly symptomatic).
Posted by sparkle7 (Member # 10397) on :
Thanks everyone. I don't know why certain people get so ticked off about me posting. I think the LightWorks can be of use to people who do go to Germany to continue their treatment. Or if you want to use it for other things or on your own.
I didn't say anything negative to Clancy or anyone. I don't think I should be banned from bringing up a different treatment on other threads but I'll comply to preserve the peace.
Some people like to act like this website is their personal blog or to post requests only for info that they feel is relevant to their personal adgenda.
I'm not trying to do that. I'm just trying to share my research & experiences in case it can be of help to people.
This illness is bad enough. We don't need all this in-fighting but I can't control others.
If people want to disrespectfully disagree - it's OK with me. I have done the research myself & I can back up my theories. I'm not too proud to admit I may be wrong, though.
This is a big experiment we are all going through. I used to have a good job & a life. I still have a life but I've had to learn some hard lessons. I think we all can relate to that...
Posted by Keebler (Member # 12673) on :
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Sparkle,
location . . . location . . . location . . .
your post in the other thread fell just after a few who were rather insulting and harsh considering that C and husband had only just returned.
The thread had taken a turn from being what it should have been, a safe place for Clancy to share their experiences.
The timing, placement of your post got caught up in that turn.
I do understand and appreciate GiGi's concern that, according the the method of the Bionic 880, other infrared lights may not be enough. And, as we look at all of this, we will learn more.
We're all fighting really hard to get our lives back and it really shows as we get close to what we think might be a safe way to do that - and a way that is within reach.
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Posted by herxuk (Member # 15873) on :
It's true what Keebler say's, thing's were already hotting up on that thread before your posting. Even so, It's still a weak excuse, as their are politer way's of telling people there opinion's are not wanted.
Me personally, I would rather the Lightworks not get mixed up with the Bionics, I would prefer not to have to go looking for it there.
You and the Lightworks deserve there own thread.
Yet in real life, during conversations , one thing can lead to another, as people interact, not so on here it seems. You have hurt feelings, you'v hit the deck, but don't let it dampen your spirits for too long.
Kind Regard. herxUK.
Posted by lymie_in_md (Member # 14197) on :
Sparkle, I have great respect and admiration for you and GiGi. Maybe we should keep the threads separate. I will continue to post on both threads but maybe it is time to separate them. I hope you continue to post, there is sooo much to learn from each other. Posted by pat1 (Member # 15389) on :
please keep posting im end stage lyme Ineed all
the info I can get and thank you for all the Info
Posted by GiGi (Member # 259) on :
Sparkle, I have absolutely no problem with you. I have a problem with the fact that you move into a thread in a way that immediately makes people reach for their forehead, wondering.
Once and for all, I have learned that light is not light, as you state. The light delivery out of Bionic is a totally different than from the devices you talk about.
Most of all, Dr. W. has treated some 2000 people with it, successfully. That is not anecdotal. T Bionic treats a broad spectrum of conditions.
Your blunt input, light is light, stops and turns the discussion around, into a different area, where no one is talking about the same thing any longer. The talk is about Bionic, the way it works, the way it doesn't work, people's experience with it, the therapists' experiences with it which I am starting to collect -- with only great efforts I might say. We sleep in Seattle, while the Europeans are awake and can be talked to.
You are perfectly at your right to discuss any and all light, but your "light is light" comments are out of place and disrespectful when people are telling us of their own personal experiences with the Bionic, the doctors, the money they had to spend to get at the experience, the therapists/doctors providing the treatments, etc. Our visit to Germany did not come easy, financially or otherwise. I hope you grow to be 76 years old, but won't have to wheel your husband through airports, up and down planes, in and out of doctors offices with stairs, driving the autobahn in a hailstorm, getting lost in the middle of the night. Clancy had similar experiences where one feels one cannot go on. Just for a moment, put yourself in somebody else's shoes, and think the word appreciation. It works, try it.
The Bionic is not a Lightworks. The Lightworks is not a Bionic. It's not an Elixa. The photons delivered are different. I have quizzed everyone I could on this subject. I said this in an early post many days ago: I am tickled and pleased if we find an instrument that does the identical thing, i.e. eradicate Lyme.
This is not anecdotal - this is for real - as experienced by many many Lyme sufferers. I have no interest in passing on untruth.
So don't be offended. It takes every hour I can spare to gather all this information. I would suggest that any of you who really want to understand also contact a few of these 200 Bionic users, doctors and practitioners, whose phone numbers I have posted more than once, to get at the real truth, if my input does not appear valid. Or call any of the Lightwork users and get details of their experiences.
Pardon the interruption.
Posted by disturbedme (Member # 12346) on :
I also enjoy your Lightworks posts. I am very interested in them and would love to order one myself, but unfortunately don't have the funds for it.
As soon as I have the funds, I would love to order one. I like what I've heard about it so far.
Posted by sparkle7 (Member # 10397) on :
There are many different delivery systems for light. Some are coherent like lasers & some are non-coherent like LEDs.
I've very tired now so I don't want to start posting studies, etc.
It just seems that if people get strong results from using the LightWorks, is it really going to be different from using a more expensive tool?
I would think it would be worse with a brighter or stronger device. The infrared light is the same wavelength (880nm) for both devices in question.
The main cautions are that you may get too ill if you are taking abx. I am not taking them. I haven't taken abx since last November.
I found that I do not want to take any additional herbs or supplements since starting this therapy.
I just need to use things that pull the toxins out of my body like clay, psylium, chlorella, & another natural bowel cleanser who's name escapes me.
I am also taking some extra magnesium, a general multi-vitamin, epsom salt baths, & lots of water & green tea.
I pretty much stopped the Cowden protocol & bee venom honey. It just seems too strong in "light" of using the LightWorks.
This is why I say "light is light...". The Nogier frequencies are interesting but I don't really know if they make much of a difference. My observation is based on my experience.
It would be interesting to have someone use both devices & see if they can tell if there are differences.
We really need to have some style of "consumer report" for these "Energy Medicine" devices. I found one website & posted it on another thread but they didn't have much of a comparison for light, laser, or LED equipment.
Whether this "herx" from the LightWorks will accomplish anything positive - I don't really know yet. It's very intense & anyone using this tool should be aware of this.
It's a much more profound herx than any abx produced - if this is any way of testing effectiveness.
From my understanding, it's not good to subject your body to very intense herxes for long. It can be counter-productive...
Initially, the infrared light feels good so you can think it's like using a heating pad but it's not! It has some kind of effect on the spirochetes but I'm still not sure if it's productive.
Time will tell.
Posted by herxuk (Member # 15873) on :
Oh dear, I thought you had the message the first time around.
I would like to add, so no one get's any wrong ideas about my view's, I am not negative as to the Bionic, I would embrace anything that is a breakthrough for this disease, it would be more than welcome.
Never the less, I am interested in the Lightworks for it's own sake, Immune system booster etc.
Given time , the Bionic will prove itself, thing's usually do, if we wait long enough. Me, I'm scared of getting my finger's burned, letting my hopes get too high , then have them dashed.
Posted by Keebler (Member # 12673) on :
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This may have been one Sparkle previously posted, not sure. Someone posted it in another forum today.
Fans of the Star Trek television shows can recall many stirring scenes of medical officers treating patients without drugs or surgery, using instead a device the size of a cell phone that sends out light rays to "miraculously" heal wounds and cure disease before their very eyes.
Now, the use of light emitting diodes (LED) in the practice of medicine has moved well beyond science fiction and into the real world.
Soldiers injured by lasers in combat, astronauts in space and children in cancer wards are already benefiting from the healing properties of near-infrared light in ways that could only be imagined a few years ago.
Several research projects at the Medical College of Wisconsin are at the center of LED treatment development and the application of new technology to a wide range of injury and illness.
"The potential is quite endless," said Harry T. Whelan, MD, Medical College Bleser Professor of Neurology, Pediatrics and Hyperbaric Medicine.
. . .
Dan Ullrich HealthLink Contributing Writer
For more information on this topic, see the HealthLink article Light Emitting Diodes Aid in Wound Healing.
please don't stop posting about lightworks. your posts are so informative.
i appreciate all of the research that you do and also that you share it with all of us.
i like to hear your progress using it as well- i look forward to reading these posts!
Posted by oxygenbabe (Member # 5831) on :
Sparkle, this is your Lightworks thread and maybe you can make a post that links to your other lightworks threads, here, and then let this thread continue as you continue to have experiences.
For instance this is the first I heard that you stopped Cowden which I know you thought was helping you, just because of Lightworks!
People have to be a little gentle with each other on both sides because posts can get misinterpreted. You write it in one mood, the other person sees it in another mood. I think you should just have your Lightworks thread which we will all follow with interest. Don't stop posting, please.
I can assure you from my experience with various LED devices the Nogier frequencies make quite a dfiference. My little Chee device with 14 LED's, a few white, a few blue, a few red and a few infrared, was quite powerful because of Nogier frequencies.
We're dealing with cell signalling factors here. The question is what signals are we creating? We don't really know.
Also, how important are the nosodes? Who really knows. Holding the nosodes and treating sounds a bit to me like NAET, where you may be changing the body's response to something. I do not think you're getting rid of borrelia, but maybe you are changing your energetic response.
I doubt you get rid of borrelia of longstanding in just a few weeks.
Anyway, people, when they have high hopes to get out of their horrible suffering, get very emotional about their cure d'jour. And they can feel very defensive when questions are raised. Though this is not the case right now with LEDs I have seen people hold onto a therapy that was doing them great harm, with delusional hope for it and a refusal to admit it was harming them. In particular with salt/c, where I made my own a$$anine error in believing someone who said it was curing him even while he was applying for SSDI and suffering very bad side effects...and somebody else, sweet as could be, who stuck with it for 2 years until she ended up on an oxygen tank in a wheelchair....before she would go off it! People are suffering a great deal and so desperately want to believe in something, and we have to be aware of that dangers in reports from others and in our own treatments we engage in, ourselves. I myself am always interested in collecting as much information as possible, esp. after a few mistakes I made in my own decisions and care re lyme. Anyone experimenting with these devices is useful to us if they report their experiences. I really appreciated all 3 reports from Germany, and I too concluded that for now, this is on hold for me. I haven't even used my Lightworks as I go step by step and I'm doing some other things now.
Posted by sparkle7 (Member # 10397) on :
It's hard to sort out people being defensive about things they believe will work.
We all hope for an easy way to deal with this & it's hard to figure out if something is working - especially if the sign for that is getting worse...
I figured the the LightWorks would be a way to test a different modality (infrared light) without incurring a huge cost.
This way people could either use it as a test to go on to further treatment or just by itself.
I know people get very defensive about their beliefs about things. The way I see it is one man's/women's meat is another man's/women's poison.
What works for one, doesn't necessarily work for everyone.
I felt the light treatment was so strong - I didn't want to use anything else. For some reason - it seemed to be too much to use other things like alot of supplements, herbs, drugs, etc. That's why I have stopped the herbs for about a week.
When I used the LightWork it made sense to me why Dr. W uses homeopathics... it seems better suited towards healing with light.
To make an analogy - it's like putting sauerkraut on a hot dog instead of something like putting ice cream on a hot dog. It just seem more compatible when using light to use homeopathics. It makes sense.
I have been under a great deal of stress due to other things outside of dealing with Lyme - as I'm sure we all are.
I'm just having a difficult day today & I'm really not feeling well.
The weather is very hot & humid. Someone outside has been burning debris in the yard outside my house all of the week & the smoke is coming in the house... I'm having a hard time breathing. I only got 1 hour of sleep - so, I'm not in a good state right now.
I used the LightWorks last night & I've been in alot of pain today. So, my thoughts are a bit skewered...
I posted numerous articles about studies using light for healing. I'll post a link here to them again, a little later. I really want to investigate further about LEDs & waveforms.
To me, it seems that inchoherent light does not have a particular waveform but I have to research it further. Having a structure seems to be more of an aspect of coherent light but I have to look into it further.
I'm not sure if this has any effect on treatments with light. I spoke with someone who has been selling these light arrays for healing for a long time & he thought it was the 880 nm wavelength that was significant for healing... not so much the frequencies, waveform, etc.
i don't really know... I don't know if using brighter or stronger light, different frequencies, different LEDs, waveform, etc. would have a better effect, less herxing, etc.
All of these things may have an effect but it's hard for me to tell. All I know now is that I really am feeling a very strong effect from using the LightWorks for about an hour last night.
Maybe it was a little too long? I tried different frequencies on various parts of my body. It actually feels good to me when I'm using it - so, I like to continue but I think it may be too long to use it for an hour for me, right now.
I'm going to give it a rest & try it again when the pain calms down a bit. I'm feeling mostly pain in my back, neck & head & I've been feeling a bit agitated.
I'm usually fairly calm so I think this may be a result of the herx effect on me. I know some people experience a kind of "lyme rage". I can see what they mean but it's OK. It's not too bad...
It's just that in combination with other stress factors, lack of sleep, etc. I feel like I'm turning into a warewolf or something LOL...
I'm sure it will pass. I'll keep you posted.
I'm glad you posted a reply, GiGi... I just don't really see any need to be at odds. I feel like my research is supporting the use of the Bionic 880. I'm not trying to prove anyone wrong or say that infrared light doesn't work.
It's a hardship for people to go to Europe for treatment, buy the Bionic 880, etc. I just felt that the LightWorks may be a way to sample the effects that Dr. W was able to achieve & to see if it really had any validity before spending a large amount of money.
It seems that it is doing something but it's hard to tell if it's actually a cure right now. If I had access to unlimited cash, I don't know if I'd go to Germany for treatment just yet.
That's just my opinion right now. Since I don't mind experimenting... my next step is that I am going to make an auto nosode & try that as opposed to using Bb nosodes.
I thought it over & it's seems the right thing to do for me right now when I stop herxing. I know it's controversial but I'm up for experimenting.
If you don't know... an auto nosode is a homeopathic preparation of your own body fluids.
I am not telling anyone to do this! So don't get mad at me if you try this stuff & it doesn't work or worse yet, it makes you ill... Do so at your own risk!
When I'm feeling better - I may try to go back on the Cowden herbs but I have to think it over & see how I'm feeling.
That's all to report for now.
Good luck to everyone!
Posted by sixgoofykids (Member # 11141) on :
Hi Sparkle, I used mine yesterday for an hour, too. I was feeling pretty good yesterday up till then .... fatigued, but still functional.
The Lightworks totally wiped me out and I had an increase in babesia symptoms. I had air hunger so badly that I had to work very hard not to hyperventilate.
I was also very wiped out and felt toxic.
Today I plan on focusing on detox. I think I'll skip everything I normally take except for meds and detox herbs.
I also seem to have overdone it.
I can see your point how it would work best with homeopathy .... but right now I'm having my hot dog with ice cream.
Posted by CraigC (Member # 13732) on :
Excuse my ignorance, but what exactly does the Lightworks system do, how much does it cost, and is it safe? I think the biggest issue is whether a novice user like myself could do it, and not cause bodily harm. Should it be done by a knowledgeable medical practioner, or is it safe for anyone to use?
I'm not trying to argue with anyone, I just am not versed in this type of treatment. Can someone explain?
Posted by sixgoofykids (Member # 11141) on :
It is simple to use. It is safe. But it is also strong, so use it moderately in the beginning.
Yesterday I Googled a lot about infrared light. It is used by NASA because in zero gravity the astronauts have trouble healing. The light gives energy to the cells so that they heal faster. It also helps them with conditioning and other problems space causes.
It is also being used in a cancer ward to help people with mouth sores caused by chemo/radiation that get so bad they can't eat normally.
You can learn a lot about infrared light and experiment with it to see how it helps Lyme.
I get a heck of a herx from it, so it must be doing something. We will find out as time goes on.
Posted by oxygenbabe (Member # 5831) on :
I believe these LED's essentially work by upregulating or downregulating cell signalling factors. Question is--what and where? Is it a herx?
Sparkle sorry you feel lousy. I understand the enviornmental issues and have many in my building. It can drive you crazy. Hope you get a nap.
Posted by herxuk (Member # 15873) on :
Thank's for the article Keebler, we both read it, it's good to boost your knowledge , without any selling aspect behind it.
It was an hand held instrument , penetrating depth 9 in's ( 23 cm ) . Near infrared.
I think it said, used for 10 second's a day, for cancer burn's, amazing healing, as chemo damages immune system, so it's difficult for healing to take place.
Astronauts come back, bone and muscle loss, plus low Immune system. It speed's up there recovery.
If the Lightworks boost's T cell's, and put's new and stronger life into the Immune System , then rather than the Lightwork's killing the Bb, it's possible your own immune System, has become more activated , and strengthened . And It's you that's killing Bb off.
It's hard to take in something like that, as alone, we know , without outside help, our body's and Immune System, get's overwhelmed with Bb. That is the nature of the Beast. It's what it sets out to do in the first instant's, it want's to survive.
I can't help but think that your on to something here. Not a " cure" exactly , but a major new killing strategy.
Something for you to consider.
Hope your feeling better, in mind body and spirit. Kind regard's. herx UK.
Posted by sixgoofykids (Member # 11141) on :
Light emitting diodes bring relief to young cancer patients; NASA technology used for plant growth now in clinical trials
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Healing power of light. Glowing red light emitted by light-emitting diodes or LEDs has been used to grow plants on NASA's Space Shuttle. Researchers at the Medical College of Wisconsin in Milwaukee, Children's Hospital of Wisconsin in Milwaukee and several other U.S. and foreign hospitals are using this near-infrared light, now in the second phase of clinical trials, to promote wound healing. (NASA/MSFC photo by B. Himelhoch, Medical Center Graphics Inc.)
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Wound healing device. The wound-healing device made by Quantum Devices Inc. in Barneveld, Wis., is a small 3.5-inch by 4.5-inch (90 by 145-millimeter) portable, flat array of light-emitting diodes, or LEDs. A nurse practitioner places the LED array on the outside of a patient's cheek where it shines for just over a minute each day, promoting wound healing and preventing mouth sores caused by radiation and chemotherapy. Quantum Devices, the Medical College of Wisconsin in Milwaukee, and researchers at Children's Hospital of Wisconsin in Milwaukee are conducting the multi-year project through a contract with the Technology Transfer Department at NASA's Marshall Space Flight Center in Huntsville, Ala. (NASA/MSFC photo by B. Himelhoch, Medical Center Graphics Inc.)
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Light-emitting diodes promote cell growth. Skin, bone and muscle cells grown in cultures are exposed to the same light-emitting diodes used to treat wounds in patients and grow plants in space. Biologists at the Medical College of Wisconsin in Milwaukee have shown that cells exposed to the near-infrared light grow 150 to 200 percent faster than ground control cells not stimulated by the light. Through a research project funded by NASA's Marshall Space Flight Center in Huntsville, Ala., scientists are trying to learn more about the way cells convert light to energy and identify the wavelengths of light that are most effective at stimulating growth. (NASA/MSFC photo by B. Himelhoch, Medical Center Graphics Inc.)
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Three types of red light. Ellen Buchmann, a molecular biologist at the Medical College of Wisconsin in Milwaukee, is conducting research to investigate how infrared energy from light-emitting diodes influences the growth of cells. Doctors are examining how this infrared energy promotes wound healing. Three rows of glowing light-emitting diodes release energy at specific wavelengths. Different cells, such as skin, bone and muscle cells, respond differently to various wavelengths or energy levels of light. The light can penetrate tissue to a depth of up to 9 inches (23 centimeters). Quantum Devices Inc., of Barneveld, Wis., manufactures the light-emitting diode units as part of a contract through the Technology Transfer Department at NASA's Marshall Space Flight Center in Huntsville, Ala. (NASA/MSFC/T. McMahan)
Posted by sixgoofykids (Member # 11141) on :
This article is a MUST READ! It explains HOW near infrared light works on the cells. It also talks about how it is going into clinical trial for Parkinson's and Multiple Sclerosis.
It already has effectively treated neuropathy in diabetes and blindness caused by methanol.
The Dept. of Defense uses it in the field for wound healing. NASA uses it.
My daughter (who is in remission) and I have had our biggest herxes in months from the Lightworks.
Since you herx so much using the lightworks, would you mind explaining your protocol? Might be helpfull
Thx
Posted by sixgoofykids (Member # 11141) on :
Sure, it's not too difficult and I don't know that I'm doing it "right", but I use it on the inside of both wrists, face, neck, chest, stomach, and both ears. It takes about an hour.
I have been using frequency C and E .... but I am wanting to try other frequencies, like B on stomach and neck and G on face/head.
I've been taking chlorella and zeolite to mop up toxins and drink a lot of water during and after treatment. Also using FIR sauna and coffee enemas. Toxins need to be addressed.
I'm feeling much better today. Posted by CraigC (Member # 13732) on :
I read the link regarding Lightworks and its corresponding frequencies, but it didn't seem always clear, as to where the wand was to be placed. For instance, for cerebral issues, I am guessing that we would use it all over the head area? For such things as muscles, I think I can figure that out, but it wasn't clear as certain other medical issues.
Posted by Nobody (Member # 16041) on :
Sparkle, please do continue to post on lightworks. I got mine, and plan to continue to use it. Your updates are very informative.
I think it is very closed-minded for some folks to say "oh only the bionic 880 will work and if you don't agree with me, get lost!"
Those folks (you know who you are) should understand that not everybody can just pick up and go to Germany and buy such a machine, and if a viable alternative exists (and for much less) in this country, why shouldn't we try it??
So, to all you cranky gits, do what you want and stop insisting that only your way is the right way. Giving all the bionic 880 info is great, but don't bash everything else people are trying. Do you know everything?? I sure don't, but I keep my mind open.
Thanks so much for your posts, Sparkle. Posted by sparkle7 (Member # 10397) on :
I'm still a bit nauseaous today but I'm feeling alot better. I had a bad headache at around 6am so I took some Excederin & it went away.
It seems to me that these are all the classic symptoms of a herx. I had mostly increased pain, headache, nausea, intestinal pain, cramps... Seem like a detox reaction. I also felt agitated - like something was being stirred up.
I don't know if it's a die-off or if my body is realizing there's an invader & fighting it off with increased white blood cells, T-cells, etc... good question.
There are tons of articles about light being used for healing from Eastern Europe & Russia. They did alot of research on this over there. Some of the articles are translated & I'll post some links.
This website has 75 studies about the effects of various forms of light used for healing -
Currently the methods of laser and non-laser (incoherent monochromic, narrow-band or broadband) light blood irradiation therapy - the methods of photohemotherapy - are widely applied in the treatment of different pathologies.
H. Kost et al. (1986) offered blood irradiation with incoherent narrow-band blue light for the treatment of patients with ischemic heart disease and hypertensive disease.
The drop in low-density lipoproteins and cholesterol content of the blood serum was determined. Further studies proved the broad therapeutic activity of the blue light blood irradiation procedures.
In studies of medico-biological effects of extracorporeal blue light irradiation of blood V. I. Karandashov et al. (1996, 2000) detected dropping of viscosity of blood immediately after the reinfusion.
The viscosity of the blood plasma also was reduced, but to less degree than viscosity of blood, and had correlation with concentration of blood proteins. All these have results in augmentation of flowability of blood and improvement of microcirculation.
The changes of viscosity of blood and hematocrit are determined by intravascular dilution of extravascular fluid with lower concentration of high molecular weight proteins.
After the completing the course of irradiation the viscosity of blood was always lower than it was before the treatment. The decrease of concentration of cholesterol, triglycerides, lipoproteins and glucose was also marked.
Thus, the phototherapy by blue light did not damage the blood cells, but stipulated dropping of concentration of atherogenous lipids, glucose and bilirubin.
The obtained alterations had tendency to increase and stabilisation at carrying out of a course of phototherapy. At the same time studies showed that blue light does not affect the rheological properties of the blood in vitro.
The infusion of the blood irradiated with blue light had immunostimulative activity for patients with chronic asthmatic bronchitis.
It was also shown that immediately after the infusion of irradiated blood all main parameters of respiratory function were improved, and the increasing of effect was detected during and after the course of treatment.
Blue light blood irradiation therapy presents very good results in the treatment of different pathologies.
It looks like it combines the best properties of both UBI and LBI procedures. Probably in the near future the blue light blood irradiation therapy will be used much more actively, than today.
-----
There are lots of studies about all of these treatments. I just think we don't hear about it because the drug companies would loose ALOT of money if this info becomes widely known.
-----
My protocol is this, now...
I don't really feel I need to use the Cowden herbs. I take a multi vitamin (food based), some extra magnesium, calcium, & some other vitamins I have around here like a brain formula from Jarrow, extra B-12, etc.
I mostly take them because I have them around the house. I don't think any of these things have created the effect I'm getting from the LightWorks.
Some people know I was experimenting with bee venom honey... I stopped taking that. I think it's effective but I just don't feel I need it right now.
I have been focusing on pulling toxins out so I use: clay for internal use (about a tsp a day) psylium seed an herbal bowel cleansing formula
I just mix them together & drink it with some water & juice.
I also take chlorella & a probiotic with L planarius (re: Marnie's post)
I don't take any supplements at the same time I take the bowel cleansing stuff since it may absorb any benefits of the chlorella, probiotic, etc.
I am also taking a whey product to boost glutathione. It's mainly just because I have it here & thought it may do some good.
The real focus is on the infrared light & detoxing. Some additional nutrients may be good to add since you don't want to get depleted due to the bowel cleansers.
It seems like the bad stuff (dead spirochetes?) are being processed through my bowels. I don't know if this is true but this is what feels like is going on.
I'm also drinking ALOT of water & iced green tea. Taking baths in Epsom salt.
The herxing was pretty extreme so I took some prescription pain meds for that.
GiGi mentioned about this line of products. I think they may be helpful -
Apo-Hepat The primary remedy for stimulating and regulating vital metabolic liver functions, which include the indispensable duties of excretion, detoxification and phagocytosis.
Itires Eliminates local and systemic inflammation of the lymphatic tissues, supports the reduction of swollen lymph nodes and promotes the efficient flow of the lymph.
Renelix Supports the excretion of toxins deposited in the kidney cells and helps restore normal kidney function.
This whole-body homeopathic detoxification program is for the stimulation and detoxification of the liver, lymphatics & kidneys.
I used a pendulum & found that the one for liver function (Apo-Hepat) may be beneficial for me. The pendulum indicayed that I didn't need the other ones. I'm going to order it soon.
Hope this helps.
Posted by sparkle7 (Member # 10397) on :
CraigC - do a search f this website for LightWorks or posts under my name.
There's alot of info that I posted already.
I basically use the light on: inner wrists - for light blood irridiation heart area - for light blood irridiation belly button - for light blood irridiation ears - Nogier points crown of my head - brain function? forehead - brain function?
& where ever it hurts - like my lower back, shoulders, neck
The spirochetes live in collagen so it may help to use it on those areas of the body.
It can also be used to normalize the hormones. I use it on my uterus, ovaries area & my kidney area - I think the adrenal glands are on top of the kidneys.
Some people like to use it on accupuncture points. The feet are probably a good place to use the light on.
I guess you just have to experiment...
Just go slow & be prepared to have a big herx. Don't use it if you have a big appointment the next day or something.
Give yourself lots of time to rest & heal & drink lots of water.
Posted by lymie_in_md (Member # 14197) on :
quote:This article is a MUST READ! It explains HOW near infrared light works on the cells. It also talks about how it is going into clinical trial for Parkinson's and Multiple Sclerosis.
Six, I hope you don't mind but I want to give you a big hug.
In this article is an extremely important tidbit, I know Marnie would appreciate. And if that insulting know it all Niek were around maybe he might finaly connect with what Marnie was trying to say and possibly learn something.
From the article:
quote: So what effect does NIR light have on the mitochondria? Like chloroplasts in plants, it now appears that mitochondria can also convert light into metabolic energy the animal cell can use. While most visible light cannot penetrate our skin, NIR light can reach cells several centimeters down at the site of internal injuries, where it acts upon an important mitochondrial enzyme, cytochrome oxidase. ``Through this enzyme, the light gives a molecular kick to the mitochondria, telling the cell to turn on a large number of antioxidant and energy-boosting genes and proteins,'' she says.
I guess the manner in which we generate energy is similar to plants after all. "Like chloroplasts in plants" from the article. Posted by adamm (Member # 11910) on :
I, for one, always appreciate your posts, which are consistently
intelligent and well-informed. I do hope that you continue to share
your experiences with us,
Posted by Sparrow (Member # 11734) on :
I hope you post about your experience with the auto nosode. I printed out the instructions you posted not long ago.
One of my daughter's doctors has suggested doing this with her blood and reinjecting it in accupuncture points. He said she will really herx so we haven't done this yet, but are considering it.
Please post when you do this.
Posted by sparkle7 (Member # 10397) on :
Bob - Niek was not very well informed... I guess that's why he stopped posting.
I don't have a problem with people who have different opinions. I'm not right all the time. I do try to do as much research as I can so I can make informed decisions.
If anyone wants to debate, it's fine with me. Maybe I'll learn something...? I just don't appreciate it when people are ignorant & rude. I just ignore them - it's not a big deal.
My ego isn't invested in my research. I'm not selling anything. I don't mind if people have something to add or want to correct me.
I'm just trying to help people. I know how frustrating this illness is.
Thanks for the support! I hope we can all get well & we don't have to spend so many hours looking for info on Lymenet.
Even though I never met any of you in person, I feel like we have friendships.
We can do this! (ie: get well)
PS - be careful with herxing! It's not always a good idea to be extreme. Your body needs time to detoxify & heal. Be moderate. Don't overdo it.
I'm going to make the auto nosode sometime soon. I calculated that you need about 4 gallons of water. I think I'm just going to buy spring water even if it's in a plastic bottle...
I have a filter but it's been running kind of slow - it's probably clogged with sediment. I don't have any containers for 4 gallons, either.
I never heard of that about injecting the homeopathics into accupuncture points. That's pretty wild... I'm going to check into it further. I don't plan on doing it but it's an interesting thought.
I'll keep you posted...
Posted by bejoy (Member # 11129) on :
Sparkle,
I am using an auto nosode this week, and like what it is doing. I got this idea from you, by the way.
I had one day of being very tired and having a headache, and today I am so energized that I test for half my dosage of Cortef, which is a miracle, because I had to take an increased dose two weeks ago.
I'm planning on trying a new autonosode with the lightworks, if it tests positive for me to do so. I look forward to hearing your experiences.
I'm not using the lightworks yet, because I like to space new treatments at least two weeks apart for better objectivity.
I'm curious about your recipe for an autonosode, and how it compares to the one I am using. Where do you have it posted? I must have missed it.
Posted by sixgoofykids (Member # 11141) on :
Bob, I'll take a hug any day. I thought it was a wonderful article and really explained how infrared light helps us.
Bejoy, how do you use your nosodes? I understand how to use them with the light.
Can either of you (Bejoy or Sparkle) give more details on how to make this autonosode?
I plan on buying the Lyme nosode and homeopathic vials from AR, who sells the green laser. I'll use the green laser with the two remedies before I use my Lightworks. I'll keep you posted on how it goes.
Posted by sparkle7 (Member # 10397) on :
THE FORMULA
Here is how to make a nosode:
Note: This is not the typical Hahnemann style of making a homeopathic remedy. This way is faster, much easier and requires less equipment - yet still as effective. All of which is critical when time is of the essence.
1)�� You will need to get a sample of the pathogen from an infected person.� Saliva, blood, urine or the pus from a sore all contain the disease.� They all work well, the more sources combined, the better.
2)�� Use a clean glass jar (approximately pint size) and collect the samples, then fill the test of the jar with drinking water.� Mix or shake well.� This is your mother tincture.
3)�� Empty your jar leaving only the amount in the jar that sticks to the sides.
4)�� Succussion:� This process energizes the new water with the energy from the original mixture but at a minute level.� The process requires hitting the covered jar down firmly 100 times against a stable object such as a book.� Many practitioners use a bible.
5)�� Repeat steps 3 and 4 twenty-eight (28) times by filling up the jar with drinking water, succussing 100 times, then emptying it out.
6)�� On the 30th time fill the jar as follows: ����� a)�� 80% drinking water and 20% pure grain alcohol (golden grain) - OR - ����� b)�� 60% drinking water and 40% vodka ����� Note:� The golden grain or vodka serve as a preservative.
At a 30c concentration [meaning that the remedy has been diluted thirty times by a factor of one hundred], there is no original physical substance remaining.�
The dilution is now purely vibrational with the power to stimulate the body to heal itself.�
Take 10 drops under the tongue 3 times a day as a preventative.� Or 5 drops every 30 minutes in an acute infection.��
Allow 30 seconds to a minute to be absorbed before talking or swallowing.�
Avoid food or drink 20 minutes either side of taking the remedy.
----- The authors of the�article are Thomas Lawler (President/Founder,�BioRenew, Inc.), and Chris Kotter (BNP, LMT) - Contact them via www.biorenew.com, or [email protected].�
The�contents of�this email�are for information and historical purposes only, and is not a personal�endorsement of any�specific medical treatment.
Posted by lymie_in_md (Member # 14197) on :
Six, I found in that article everything I needed to put in better perspective all the great information Marnie had been posting. Specifically the association between energy production in humans is also based on light.
In forming a group you have to be able to answer these kinds of questions. I know I can't use too much biochemistry, but an actual article which is so helpful in explaining, "priceless". This is great timing, I'm going to a large support group meeting to talk about the bionic 880 (don't mean to offend if I'm mixing posts). Posted by sixgoofykids (Member # 11141) on :
It is a good article Bob. I'm glad it will help you with your venture.
I am taking it to my LLMD at my appt in a couple weeks. He's so open to alternative treatments that I want to talk to him about this.
Posted by sunshinyday (Member # 14337) on :
Don't let anyone scare you away from sharing anything you think might be valuable information.
Keep sharing on your lightworks.\
Please I want to hear it, and I am sure there are others too.
Gail
Posted by LoneDove (Member # 16516) on :
Sparkle
Another vote for your continuing posts. As a person new to this forum but not to basic netiquette, it's rather shocking that mods don't rein in the crankiness. Ah, well...
Anyhoo, I've been using a mag pulsar with 2 herxes and feel much better esp. joints but not 100 percent. Ordered litewrks and a silver device today so by next week I'll report my reactions.
Question for Litework users:
Has anyone noticed any favorable cosmetic results on their face on the other side of the paddle?....inquiring minds would like to know.
Posted by sixgoofykids (Member # 11141) on :
Hi Dove, I'm hoping for cosmetic results, too. I read that the 880 goes deeper than the red side so I use the 880 on my face.
Haven't noticed anything yet.
Posted by sparkle7 (Member # 10397) on :
My boyfriend uses the red LED side on his bald spot (shhh - don't tell anyone I said that... you know how men are about their bald spots).
I think yellow LEDs are supposed to be good for the complexion. Blue LEDs are supposed to be good for healing acne.
Posted by LoneDove (Member # 16516) on :
O shades of "Stalag..I know nuthink!" LOL
hmm...bald spots sounds interesting for my dh.
Another question....
sota's site mentions an extra paddle. Is there just the one 2 sided paddle that comes with liteworks?
Posted by bejoy (Member # 11129) on :
Sota is just putting out an extra lightworks paddle that has different colors. I don't think it's available yet.
They have a yahoogroups that you can join, where Sota will answer questions about the lightworks, and where people share their experiences. I read up, but don't feel like rehunting the link. They keep it separate from their website for liability reasons.
Speaking of Sota, I love their silver pulser and their mag pulser. Did me a world of good. Sota machine junkie, I am.
Start a new machine-specific thread, please do, if you are getting results from any of these others. There was some minor interest about a year ago, but only a couple of us were playing at the time.
Posted by sparkle7 (Member # 10397) on :
Wow. Great news, Bejoy! That will be interesting to experiment with. I'd like to compile a list of the colors of LEDs & their potential properties.
It's kind of hard to find. There's alot of info on psychological effects of color but not direct scientific studies with LEDs on the body.
I think blue can be very useful in laser form for blood irridiation. I'm not sure how deep it penetrates from an LED, though.
I've seen yellow arrays for use for the skin - it's supposed to get rid of wrinkles by plumping up the collagen (if I recall correctly).
No sure about orange, violet, or green. I'll have to look into it.
Posted by DolphinLady (Member # 6275) on :
Does anyone have experience with the BioMats (Amethyst, Jade) or know how they compare?
Posted by sixgoofykids (Member # 11141) on :
quote:Parkinson's disease is a common progressive neurodegenerative disorder characterized by the degeneration of dopaminergic neurons in the substantia nigra pars compacta.
Mitochondrial dysfunction has been strongly implicated in the pathogenesis of Parkinson's disease. Thus, therapeutic approaches that improve mitochondrial function may prove to be beneficial.
Previously, we have documented that near-infrared light via light-emitting diode (LED) treatment was therapeutic to neurons functionally inactivated by tetrodotoxin, potassium cyanide (KCN), or methanol intoxication, and LED pretreatment rescued neurons from KCN-induced apoptotic cell death.
The current study tested our hypothesis that LED treatment can protect neurons from both rotenone- and MPP(+)-induced neurotoxicity. Primary cultures of postnatal rat striatal and cortical neurons served as models, and the optimal frequency of LED treatment per day was also determined.
Results indicated that LED treatments twice a day significantly increased cellular adenosine triphosphate content, decreased the number of neurons undergoing cell death, and significantly reduced the expressions of reactive oxygen species and reactive nitrogen species in rotenone- or MPP(+)-exposed neurons as compared with untreated ones.
These results strongly suggest that LED treatment may be therapeutic to neurons damaged by neurotoxins linked to Parkinson's disease by energizing the cells and increasing their viability.
The study mentions Parkinson's specifically .... but in the context of neurotoxins. Since Lyme has neurotoxin involvement, I thought it was relevant.
Posted by sixgoofykids (Member # 11141) on :
quote:Fatigue is the most common symptom of all those diseases because the pathogenic intracellular bacteria attack the mitochondria or battery of the cell.
Lipids are the insulation for these mitochondria, and when the lipid membranes are stripped off, this depletes the energy and this is why fatigue is the most common complaint.
One of the keys to improvement then would be to somehow restore the mitochondria of the cell in order to restore energy.
Posted by Keebler (Member # 12673) on :
-
To learn more, there's a lot about mitochondria at this site: www.vrp.com - Vitamin Research Products.
- upper right hand corner, pull down the search menu from "products" to "articles"
Although they sell products at this site,they have excellent research articles, consistently backed with numerous top-notch citations.
-
Posted by sparkle7 (Member # 10397) on :
I used the LightWorks last night for 1/2 an hour (I was using it every day for about an hour, prior to the big reaction about a week or so ago). Much less herxing today! I even figured I could take the Cowden herbs again. I'm going to try the herbs & I'll see if it's a good idea to continue this way.
I skipped a day in between since I was in pretty bad shape.
I'm not sure if I should use it everyday for less time or every other day. I think the Bionic 880 protocol in Germany was 2 times a week. I also think that the Bionic 880 has a stronger or brighter light (more LEDs & stronger/brighter light).
If anyone has any thoughts - please post them.
I don't know anything about the mats with LEDs or the other products. If anyone does use them - please post your results so we can all learn.
The Lumen 90 seems good but it's in the $900 range. It's actually brighter than the Bionic 880... if you look at the specifications.
I don't know if this is an issue, though. I'm not sure how much light the cells can absorb at one time. If something is brighter - it just may mean that you use it for less time.
It's hard to say, though. I don't know if there are any studies about this that are for the public to read.
Posted by sixgoofykids (Member # 11141) on :
Sparkle, my thought is, listen to your body. If you are reacting still from the day before, don't use it.
I am also using Transfer Factor, which is throwing me for a loop. I don't know if my body can handle my immune system waking up! I am still on meds, but I am feeling more from the TF and Lightworks than I have from any med lately (except Zith).
I have been thinking back on my own reaction a couple days ago .... it was a HUGE babesia herx. I hyperventilated, but stopped it by breathing into my hands and slowing down my breathing (no paper bag close). That was the first time I've hyperventilated in a couple years from the babs.
I also was having two or three sweats per night for a couple days.
I'm doing lots of rest and detox between treatments. Also getting some sun and some exercise.
Anyway, got on a tangent .... I think you should listen to your body. When you can handle more, do more, when you handle less, do less. I'm thinking about using it twice per week for now.
Posted by herxuk (Member # 15873) on :
Sparkle. Pleased to here your update, and you seem to have got rid of your toxic overload.
When I get mine, the major pill pushing I will do, is vitamin's, protein's, and acidophilus.
Because, IF it is the Immune System that's in OVERDRIVE, then it will want feeding.
It's a sad and disappointing time for us all, that we have to resort to take what measures we can, for this disease. While the Establishment seem to have abandoned us. Sorry to end in this note, but this is how I feel.
Posted by sparkle7 (Member # 10397) on :
I don't think I have any of the co-infections. Everything seems much more complicated if you have them along with the Lyme.
I seem to be kind of sick to my stomach. I've been taking clay, bowel detoxification mixture & psylium. I don't want to take too much of the bowel cleansers. I think it can deplete your body of other nutrients.
It seems when I take the herb tinctures from Cowden - it's too much. I couldn't even imagine using abx with this infrared light treatment... but I don't believe I have the co-infections, either.
I had a hard time with abx in any case. Some of you say you feel better from taking abx. I never felt any better the whole 8 months I tried various combinations of them. They just made me feel more ill on top of the Lyme & it didn't seem to help at all.
I think using the infrared light is an ongoing process. It may actually be cumulative...
We just have to keep testing it to see what happens. Ultimately, it's something big in regards to the spirochetes. I don't think we would be having this reaction if it wasn't killing them off.
I had a much bigger herx than when I was taking abx. We just have to do it gradually over time.
Posted by herxuk (Member # 15873) on :
Sparkle. Very rarely do I see a glimpse of those feeling a bit better times, as some of them speak of. I always seem bogged down with toxins.
So, I'm not expecting to feel anything but toxic and pain with the LTworks, I have no illusions about that. Killing, leads to the same thing, Toxins, how ever you do it, at least for me anyway.
But there may be added advantages with the LTworks, reduction of inflammation, less or no ABX, ( less Toxins ) maybe less muscle pain eventually.
So all in all, its worth a try. How this will work out with ABX, thats another thing I will have to wait and see. As Goofy says, we will have to listen to our body's.
Posted by bejoy (Member # 11129) on :
Here's the link for the lightworks discussion board for those interested:
Thanks. I joined it...
Posted by sparkle7 (Member # 10397) on :
Here's a tip I got from the folks at SOTA_LightWorks group on Yahoo:
"You might want to include the spine clear up at brainstem, and down spine do tail bone...... so you can include the Cerebral Spinal Fluid, which should catch a lot of the critters....."
I tried it & I felt alot better! I just let the LightWorks run through all of the frequencies, 2 times - at the top of my spine & at the tailbone.
I was really in alot of pain today & it did help.
Posted by DolphinLady (Member # 6275) on :
Sparkle, have you looked into the Amethyst Biomat by Richway? You treat your whole body (spine and all) while lying on it. I have no financial ties.
Posted by herxuk (Member # 15873) on :
Couldn't wait to tell everybody, tonight ( sunday ) my LTwrk's are now ordered. My daughter comes about once a week, and teaches me a bit at a time how to us the computer. I couldn't order it myself as I have a lot to learn yet. She ordered it from E BAY UK, supposed to be fast delivery.
She was very impressed by what she read. She want's to try it, ( no idea why ) as she hasn't got Lyme. I think I will be a bit nervous of it at first though.
Sparkle, hope you find something out about the Euro user's.
Posted by DolphinLady (Member # 6275) on :
Sparkle, sorry I missed your earlier post about the biomat/other light devices.
I will keep all posted on my experience with the mat if I get one.
Thanks for leading us in this wonderful discussion!
Posted by sparkle7 (Member # 10397) on :
Everybody... keep us posted about good or bad results or anything related. If you use homeopathy or abx or other supplements - let everyone know how it's working.
This way we all can learn from each other!
Good to hear, herxuk. My boyfriend uses it & he loves it. He doesn't have Lyme. It's good for alot of things! Aches & pains, accupuncture meridians, wounds, growing hair???
SOTA is coming out with different color paddles soon, too (see below)!
The colours we have chosen are: Blue, Green, Amber and Yellow.
We have also re-designed the RED side to now have a mixture in a random pattern of:
1) 20 x Red @ 660nm 2) 20 x Red @ 635nm 3) 20 IR @ 880nm
The otherside of the paddle will have: 1) 55 IR @ 880nm 2) 5 x Red at 635nm
-----
I'll post more info about the colors & what they are supposed to treat, tomorrow. I have a Word document file I have to copy it from.
Posted by Lauralyme (Member # 15021) on :
Is it safe to use the lightworks while on high doses of ABX?
Posted by lymie_in_md (Member # 14197) on :
First of laser safety, cold laser or LED produce very little directed heat and therefor cannot do tissue damage. So yes they are regarded as being safe. Heat Lasers or focused lasers can do tissue damage just like in star wars. The tissue can be melted or burned.
The lightworks LED is a cold laser and is therefor save at least according to the FDA. Maybe a better testimonial then the FDA is science is regarding it as safe. If you feel concerned about it, ask your doctor. And if you ask your doctor, please post his/her response.
Posted by sparkle7 (Member # 10397) on :
I don't think it's considered a cold laser since it's an LED wand.
There have been alot of studies that suggest that LEDs are very safe. I think the main thing is that the infrared light may cause an intense herx. You just have to proceed with caution in that respect.
I had a very intense herx & I'm still going through it. It's been about 2 weeks. It's funny becuse the infrared light caused the herx but it also can detoxify the neurotoxins.
None of us knows for sure how it effects the spirochetes & we are willing to experiment. Just be a bit cautious of that.
I'm not sure how it will interact with abx. I'm not taking them. Maybe some people will post their experiences so we can see what the effects are.
Some abx cause people to be photosensitive. Using an infrared light or LEDs may cause issues due to that.
Posted by sparkle7 (Member # 10397) on :
Just to let people know... I am not going to remove this thread. Some people have asked me about this in PMs.
I am doing very well with the LightWorks. I went through a pretty bad herx for about 2 weeks. I was sort of afraid to use the LightWorks during that time. I used it a little bit.
After reading the articles that were posted about Parkinsons & neurotoxins, I reconsidered.
I tried using it as suggested to me by someone on another message board. I used it on my spine near where my head joins the neck & the tailbone. It really helped. I just let it run through all of the frequencies.
So, it seems to me that it can make you herx pretty intensely but, then, it can also counteract the toxins.
I think infrared light is really an amazing tool. We have to keep in mind that it can make you worse for a bit if you have Lyme.
I don't know if everyone will be effected by it in the same way. We just have to experiment.
Posted by LoneDove (Member # 16516) on :
I'm excitedly awaiting the arrival of my Lightworks...maybe tomorrow.
doing magnetic pulsing 2x a day and that helps joint pain but careful not to do too much to throw into herx. Understand LW can target lymph nodes and that would help alot.
Oh, yeah, just keep posting the great info and ignore the flak. Always look forward to your posts.
Posted by herxuk (Member # 15873) on :
My LT wrks will arrive this week LoneDove, perhaps you will explain magnetic Pulsing some time in thread. I have no idea what your talking about.!!! Completely in the dark about that. Thanks for update Sparkle.
Posted by lymie_in_md (Member # 14197) on :
Not sure the real difference between cold laser and LED. I've read a few places where it seemed LED is a cold laser as well.
I'm still doing well with my lightworks. It definitely helps symptoms. I don't if this is the best way to describe it, but you feel a little more balanced, like your body is processing better and in better order. Sparkle maybe you can comment on it.
I only really felt bad the first 3 days.
I keep thinking the power difference of the Lumina Marnie mentioned or the 880 both are lot more powerful. Still hard to compare devices. In time I imagine we'll have that kind of information.
Sparkle, I very much agree using the nir behind the head at the top of the spine. I would definitely apply the wand there. Posted by gwenb (Member # 7217) on :
I just ordered my lightworks also - I will keep people updated with developments.
Gwen
Posted by johnnyb (Member # 7645) on :
That's it... am ordering one right now... Posted by sparkle7 (Member # 10397) on :
Today, I'm having intestinal issues... feels like toxins. My treatment seems to alternate between feeling toxic & feeling energized or less pain.
I think it's the light that's causing the toxic feeling since I'm not really using much else that would cause that sort of reaction.
I think I just have to keep continuing with it to see what the ultimate result will be. I am going to try to combine using an auto nosode when I get the time to make it... should be soon.
Bob- I think a laser is coherent light. LED is non-coherent. Maybe you need to use the light for a longer period of time. That would compensate for lack of brightness...
I'd like to spend some time researching if brighter or more powerful light is more effective. I'm having a pretty big reaction just using the LightWorks... I don't know if stronger would be better for me.
Posted by sparkle7 (Member # 10397) on :
Still having intestinal issues, pain in the intestines. Not to be gross but I did see another biofilm in the toilet today... It also happened a couple of weeks ago & I thought it was either the bee venom honey or I had a stomach flu.
I think it's the light. A stomach flu would be gone by now & I stopped the bee venom honey (& most everything else besides the light).
I think I'm just detoxing & getting rid of bacteria that doesn't belong in my body. It may take some time... I've been ill for over 10 years.
I just have to bite the bullet & deal with it as best as I can.
Posted by LoneDove (Member # 16516) on :
Without tmi, what's biofilm?
Posted by herxuk (Member # 15873) on :
Good Question. What does it look like ?? what should we be looking for ??? Or is it too unpleasant to tell ??
Posted by sparkle7 (Member # 10397) on :
It looks kind of like a tissue floating in the water. Sort of gelatinous.
Sometimes you can see them in old apple juice. The biofilm is the slimy stuff that keeps a bunch of bacteria all together in a community.
I posted another thread about it (Lyme, Biofilm, & Alzheimers) & there's a bunch of info about it here on Lymenet if you do a search.
It's the reason why abx can't get to kill the bacteria. It can form a defensive shield for the bacteria in the colony.
Posted by sixgoofykids (Member # 11141) on :
So that's what that stuff is!!! I saw a lot of that when I was getting rid of parasites. I had a lot of GI issues that cleared up with treatment.
Posted by sparkle7 (Member # 10397) on :
What kind of treatment were you doing, six? Also, what sort of parasites if you don't mind me asking...?
I don't think I have any intestinal parasites. I never had much of a problem with my intestines from Lyme prior to using the Lightworks... except some constipation from using Welchol while on abx about a year ago.
At first I thought it was the bee venom honey, so I stopped that. Then, I thought I had an intestinal flu. My doctor told me a while back that an intestinal flu usually goes away in a few days.
Then, I found this excellent article about how Lyme can infect the digestive system - so, I got a bit freaked out.
"Bell's Palsy of the Gut" and Other GI Manifestations of Lyme and Associated Diseases
PRACTICAL GASTROENTEROLOGY April 2006 by Virginia T. Sherr, MD
I don't think this is what's happening, though. I have to keep in mind that Dr. W & others feel we can "cure" Lyme with the help of infrared light. If I were on abx & this was happening, I'd think the abx were doing their job.
I've been dealing with alot of stress, lately... so, I have to continue to convince myself that I'm on the right path. I have no idea if this is a cure or if it's just prolonging the agony.
I've been ill for over 10 years & I've gone through all of this "getting worse before getting better" stuff on a number of occasions. I'm going to try to continue to be hopeful.
I guess it's just going to take time. I've only been doing this infrared light thing for a month. I'll keep you posted.
Posted by hiker53 (Member # 6046) on :
I do see that Sota now has the new colors for sale. You have to buy both sets of paddles for $250. I wonder what green does.
My chiropractor who does energy testing (and I am not convinced about energy testing, yet), said that green was a good color for me and perhaps I reactly so much to the infrared was that red is my worst color. We tested colors for reducing my seizures over a year ago. Hiker53
Posted by sixgoofykids (Member # 11141) on :
Sparkle, I took Humaworm and Enula. I had a large tapeworm, two smaller tapeworms and about 20 roundworms. No wonder I had GI issues! LOL
The Humaworm eliminated the large tape .... the Enula combined with just getting better (making it so it was the wrong environment for worms) helped with the roundworms.
I did not know I had these until I saw them .... I was surprised and it did freak me out.
I don't eat questionable food and I'm very much the perfectionist, so it was this disease that made my immune system weak enough to allow these to take hold in my gut.
I also was treating bartonella, which is known to cause GI issues.
This was all prior to the Lightworks.
I'm still thinking the Lightworks is doing something, too. My daughter who I have always thought might have Lyme but who had heartburn as her only symptom, gets headaches every time she uses it. After several days of using it every other day, she has the worst headache she has ever had.
I think it's like Sparkle and I experienced .... it takes a few times, then a huge herx hits.
I still herx badly when I use it. My other daughter who is a confirmed Lymie and who is in remission (does not herx from meds) herxes from it as well.
Our other two family members who use it never feel bad afterward.
I know this is anecdotal and that pain afterward does not confirm healing, but after using it for a few weeks now, it seems more than coincidental.
Posted by sparkle7 (Member # 10397) on :
I'm starting to feel better today. For some reason intestinal pain makes me very anxious.
I took some charcoal as per another thread here & I'm feeling alot better. (4 caps, twice today so far) It seems to have helped alot. I was taking it but I don't think it was enough.
I think it's still good to use the light even though you may be herxing. I'm not sure if the red or infrared is better. The red side seems a bit more mild. You have to do it at your discretion, though. If it's really bad or if you are on abx - it may be too extreme. We all are different!
Thanks for the info, 6. I don't think I have any of those issues. I took ENULA for about 3 months so far & not a big reaction. It does make me purge a bit so I lowered the dosage.
My shoulders are a still a bit achy. I'm going to just continue with it & see what happens next. I'm curious to see if the hormonal/endocrine balancing frequencies will help when I get my period. I've been using them. I get very severe cramps.
I'm not sure about your reactions to color, hiker. I would like to get the additional color paddles when I have some extra money.
I'll post some info about different colors when I get a chance. Some people here have mocked color therapy but this is a little different... LEDs are a whole new animal.
Posted by micul (Member # 6314) on :
I agree that IR light can heal. I built my own Near Infrared sauna like Dr Wilson describes in his book on sauna therapy. However; I don't belive that IR light has been proven to kill anything, it has been shown to help heal, but in superficial ways like speeding the healing of burns and helping to repair basal cell carcinomas, these sorts of things.
Why don't you guys put this thing to the test and see what is really going on with Clancy? This is the perfect opportunity to test Dr W's claim that he is free of lyme and coinfections. Get together and chip in for some legitimate tests at Igenix and Fry that will corroborate what Dr W claims.
That old saying, "If it sounds to good to be true," is usually right. People have made the same claims about Rife and ozone therapy. You may indeed get some benefit from them, but they are vary far from a cure.
The Bionic 880 probably would have some benefit for a fairly healthy non infected person, but cell regeneration would be very limited and pretty much futile IMO until the infections have been eliminated, and Infrared LED light has not been proven to do that. That's why detox is extremely important with all of these alternative therapy protocols. The infections are still there producing toxins, and so detox is crucial to maintaining health. But still, it slips away. Sometimes slowly, and sometimes very quickly regardless of continued therapy.
Posted by herxuk (Member # 15873) on :
Micul.
With all due respect, this LT Works thread makes no such claims. The word "CURE " is not usually thrown around on these thread's. Neither do we make much, if any conversations about the Bionic 880.
The Bionic 880 discussions has it's own thread. I don't want to talk about it on hear, I can't speak for the others on here, but I don't want the same trouble as what that brought.
Oh, and by the way, were not expecting miracles.
If I have mistaken what you mean, then i'm not afraid to apologies.
Posted by sparkle7 (Member # 10397) on :
I don't mind if you don't agree. The tests for Lyme aren't accurate so I don't think anything can be determined either way by using tests.
I'm not doing a study. If someone would like to fund a study - that would be fine with me. I don't have the money for abx, health insurance, or expensive alternative doctors.
I was ill for 10 years before I got any sort of treatment for Lyme. I've seen many doctors, specialists, etc. The abx didn't help after using them for 8 months. Not at all... no little improvement, nothing.
At this point, all the doctors advice didn't seem to do anything to help me - so, I don't feel I have anything to lose.
If anything - the only thing that has helped is the infrared light at 880 nm. It has produced a strong herx for me - more so than any abx I've taken.
I'm not angry at anyone who doesn't think this will work. It's fine with me if you disagree. The LightWorks is different than an infrared sauna. The light is brighter & more focused and there are a number of other differences.
Several people who post messages here have reported herxes from using the infrared light. None of us know what the long term outcome is from the various treatments for Lyme.
I believe that the abx may put the Lyme into remission but the bacteria may still linger in the body. It is not know how long they may linger in the body for since most of the ways to test are so inaccurate. There are also many disadvantages & side effects of using abx.
I believe that abx are great if you catch the Lyme early - but if you've had it for 10 years untreated, it's a different story.
I have not seen Dr. W nor do I have a Bionic 880. I am the guinea pig for this experiment with the LightWorks. I don't sell anything nor make a profit from this. I am just looking for an alternative way to get well.
If people gain anything from my experience - that would be great. If they think it's a joke, that's OK, too.
I've posted numerous studies about the effects of various kinds of light here. Do the research on your own & decide what you'd like to do for yourself.
I do not rule out drugs, herbs, supplements... it's just that they have been mostly ineffective for me. For some reason this infrared light seems to be doing something. Whether it's a cure... I just don't know. I am going to continue to see what will come of it.
If all of this can help others out there, then it will be worth it. It's just too soon to tell. I don't have any desire to disturb Clancy about what happened. If they wanted us to know, they would post again.
Each person is different. What may or may not work for one person doesn't really prove anything.
I wish for good luck to everyone - no matter what treatments you decide to pursue. We all have to do the research & make a decision what to do. It's an individual choice.
Posted by sixgoofykids (Member # 11141) on :
From what Clancy has said, her husband has other non-Lyme problems, so I think we will know if she is kind enough to post once he gets those taken care of. I won't blame her if she doesn't come back.
That is why I am going to Germany. It's not a huge sacrifice for me and Lyme and co's are my primary problem. I've chelated metals, cleaned out parasites, etc, and the Lyme is still there.
I herx more from the infrared light than from my meds. (I pulse some meds because of the herx and feel worse on light days than on med days).
What is very interesting to me is that my daughter in remission herxes on the light. It's reaching places abx didn't.
As Sparkle said, we're experimenting with the Lightworks to see what it does, and so far we're surprised at how much it does.
I'm going to have to Google on basal cell carcinomas, I didn't know that. My husband is using it on one of his.
There is an LED and Parkinson's study Marnie, posted. I think infrared light looks very promising, beyond the detoxing of the sauna, which is still good in its own right (I use a far infrared one).
Posted by oxygenbabe (Member # 5831) on :
Just a few points to keep in mind:
1) You were not seeing biofilms. You were seeing mucus. The intestinal lining can generate mucus. Maybe you were killing stuff, and the lining was producing more mucus to help you shed it. Who knows.
2) You don't know if its a herx. The light for instance could stimulate inflammatory cytokines that make you feel flu-ish. Maybe it's a herx maybe not but I think its a misused term. Sometimes people use it for abx side effects. Therefore, if people would just report their *symptoms* when they use it, it would be so helpful.
Thanks! I'm going to try mine on my knee this weekend. I injured it about 2 months ago and it doesn't seem to be recovering well.
Posted by sixgoofykids (Member # 11141) on :
Oxygenbabe, my symptoms are identical to those that the Zith causes that my LLMD determined were herxes.
I get shoulder/back/neck pain on the left side only, extreme fatigue, dizziness. The pain is very bad and requires painkillers like I do with the zith.
My daughter gets headaches from it ... headaches were her primary Lyme symptom.
I also get knee pain like I do from Lyme when I use it on the back of my knee on a scar.
I pulse Zith, and I get the same symptoms from either the zith or the lighworks.
Posted by sparkle7 (Member # 10397) on :
I agree that the term "herxheimer" is kind of vague. I think it was originally used in regards to the reaction of treating syphilis.
I think they use the term "healing crisis" for other seemingly negative effects of getting rid of toxins, bacteria, yeast, etc. these days.
Initially, I felt much better from using the infrared light. This lasted about 2 weeks. Alot less pain... I was able to greatly reduce taking pain medication. Then, I got a big herx... increased pain & intestinal pain (which I never had before from Lyme).
I really thought it was from taking bee venom honey. Then, I thought I had a stomach virus. As I stopped all herbs & supplements - I discovered it was from the light.
I started taking alot of toxin absorbers like psylium seeds, clay, etc. Slime or mucus is probably what biofilms are. I don't know if the biofilm I saw in the toilet was Lyme related or something else. It wasn't something I've seen very often in the toilet... (Sorry, I don't mean to be gross but I'm just trying to explain.)
Yesterday, I took an increased amount to charcoal pills & my intestinal issues are much better today. I think the charcoal is really helpful.
I'm still pretty achy in my back & shoulders but I still have not had to use much pain meds. I think I took something over that last 2 weeks due to the herx but I've really been able to reduce the amount.
I was doing the full Cowden for about 3 months. I stopped but I would like to continue it when I'm not feeling such a strong reaction to the light. I will also continue with the bee venom honey when I can. I think it was definitely working.
I just don't feel like I need to take many supplements right now since the light has effected me so strongly. This "herx" was very much more potent than any I had while on abx.
I don't know if herxing proves anything but it seems that this is a pretty basic way for people to tell if something is going on in regards to Lyme since the tests are inadequate.
I'm continuing to use the LightWorks. I used it this morning since I was starting to feel some pre-menstrual cramps happening. After 15 minutes of use - no more cramps...
Posted by herxuk (Member # 15873) on :
Oxgenbabe. You said, "" The light could stimulate inflammatory cytokines that make you flu- ish, maybe a herx, maybe not. ""
When I have a flare up, ( active spiros ) herx include, flu, pain, fatigue, and much inflammation, more skin sensitivity, and feel very ill.
No activity, most of above subside, especially INFLAMMATION.
All this to me is part of, herx, killing, toxins.
If I respond to the LT works, like the above, then I will think the same as Six and Sparkle.
Others that have not got Lyme, won't get that reaction, my daughter, and spouse are going to try it , ( not got Lyme ) so should be interesting, will keep you posted, lets see what happens.
My LT wrks should be here next week.
Posted by oxygenbabe (Member # 5831) on :
Okay folks, then think of it as indulging 02 (me). Could you report all your symptoms when you use the light, whether or not you classify it as herx or not? It would help me anyway. Thanks!
Posted by sparkle7 (Member # 10397) on :
My boyfriend uses it & does not have Lyme. He doesn't have any of the symptoms that I have gotten from using it.
I think he uses it almost every day. He hasn't had anything that I would consider a herx. He says it makes him feel better. He has other health issues but not Lyme.
From what I see - only the people with Lyme seem to be responding by having a herx or healing crisis/reaction.
You can also check on the Yahoo group for SOTA LightWorks.
PS - I also noticed that I have had increased thirst since using this device. I think 6goofy mentioned this, too.
Posted by herxuk (Member # 15873) on :
Is this inflammatory cascade, your own body's response, going to the site ( like when you have wound , cut, injury ) to mop up infection death. Perhaps something like WBC activity. ?????
Posted by herxuk (Member # 15873) on :
Sparkle. Forgot to say, about the thirst you mention.
When these flare ups happen, I am constantly thirsty, to the point of feeling constantly dehydrated all the time, drinking no matter how much, never seems to take away the thirst. Maybe part of the herx, not the LT wrks. ??
Posted by sparkle7 (Member # 10397) on :
I didn't really notice it prior to using the LightWorks.
Having unquenchable thirst can be a signs of diabetes, I think... not to worry you.
Posted by herxuk (Member # 15873) on :
Sparkle. No diabetes, not even borderline. As of now, out of the question. Because of the flu like feeling ( sometimes sore throat ) but not always, It seems like when you get a very bad cold, and you want to drink more, especially warm drinks. I always get this flu thing back on a flare up.
Posted by randibear (Member # 11290) on :
i've read this entire post and am still confused!! lyme has screwed up my brain.
i went to a naturaopath (sp?) and she did this treatment where she took a colored stick type thing, maybe a wand) and rubbed it over my arms, neck, etc.,
she said it was some kind of treatment but i can't remember.
can anybody tell me if this is the same thing? she charged 50 bucks for the treatment but i didn't notice any difference.
she also did the foot detox bath and blood type diet thing.
did i just blow $150 bucks for nothing????
Posted by lymie_in_md (Member # 14197) on :
Herxuk -- lyme does cause dehydration. Do some research into "bio active homeopathic" "hydrate 1". Possibly talk to your doctor about it. It helped me with dehydration and in the mean time lots of electrolytes.
I'm not herxing nearly as much from the LWs any more. I still have symptoms and I really like using it. And use it every day as much as I can. I really feel after awhile the LW still nibbles away at the disease. Time will tell based on others experiences.
Lets do a poll, whose bought an LW used it for about three weeks and found either efficacious or not?
My vote after about 4 weeks -- efficacious
Posted by lymie_in_md (Member # 14197) on :
Randibear -- some treatments aren't worth 150 bucks. I'm not sure I believe in detox foot baths. I believe she use a stick with some kind of crystals a form of energy therapy, i guess. if it works you'll be spending too much money, for not too much.
This is a better way to spend money:
Diet is very important, eat organic as much as you can. Lots of green, chloryphyl in plants is good for detoxification. Especially raw dandelion green.
Assessing your mouth : see a biological dentist really expensive, but essential IMO.
Good filtered water.
lower emf and mold exposure
enzymatic puts a metal cleanse it used to be called mercury magnet. I think it is the most inexpensive way to do metal cleansing. It did have some impressive clinical results, you'll have to look for them. If you can afford more there is "extended health" puts out a product called longevity. Chlorella and cilantro are very good as well. Then while your doing all this, plenty of activated charcoal and apple pectin.
See your doctor for kidney drainage herb supplements. These are very important while you are doing a metal cleanse.
after a few months of doing the metal and toxin cleanse might be the time to consider doing the light works.
These are just some ideas to ponder. Posted by sparkle7 (Member # 10397) on :
I still have mercury fillings. I don't have the money to have them removed right now.
I know people say this is important. I'm going to try to do it as soon as I can. I still figured I would proceed with the infrared light.
I had 2 mercury tests & I was pretty low. I don't like that it's in my mouth.
randi - I don't know what kind of treatment you had. I don't think it was the LightWorks.
The LightWorks is an LED paddle connected to an electronic type thing to make the lights pulse at different rates.
The paddle has 2 sides - one has red LEDs & the other has infrared LEDs. The light is pretty bright & focused. You can use it on different parts of the body for healing.
Some of us think it may be a way to cure Lyme but we aren't sure yet.
I'm with you Bob - it works so far. Definitely going to continue...
I guess the thing about going to Germany is that I think people may need longer treatments than a few weeks. Some people may not be able to get the device as well as the treatment.
I think you may need to use the light for a longer period of time than just a few weeks. That's why I think this is a good option...
Posted by LoneDove (Member # 16516) on :
Just got my ltwrks today but herxing from magpulsar. Used sota silver pulsar which help migraine and detox. Now going to use ltwrks tonite! slowly and see how it goes....
Posted by sparkle7 (Member # 10397) on :
Let us know how it's working... Good luck!
Posted by sparkle7 (Member # 10397) on :
I found some studies where BLUE light can cause ROS (reactive oxygen species).
THIS IS IMPORTANT! If light can cause this ROS... it may mean that it is damaging the body.
This is specifically in regards to blue light. I don't think we have to worry about this with infrared light but just to be on the safe side... people using light therapy may want to increase anti-oxidants like:
NAC vitamin E
These were found to be protective in the case of overexposure to blue light.
I don't think they found vitamin C to be of use. You may also want to take more glutathione.
Just go slow with using any light device for healing. There is still alot we don't know.
Posted by herxuk (Member # 15873) on :
Would Nasa, even consider using this, if it was detrimental to ones health. ? Or cancer patient recovery ? can't see that at all.
Posted by sparkle7 (Member # 10397) on :
No - it's not the red or infrared LEDs.
It's BLUE light!
I just wanted people to be aware of this.
From what I studied red & infrared are OK. You may want to use some extra anti-oxidants just as a precaution.
Posted by LoneDove (Member # 16516) on :
Have done ltwrks 2x now plus the silver pulsar and feel much better.
My face is clear and not molting for the first time in a couple of months. I have a red cyst thingey that showed up a few days ago and it's much smaller. It's on bridge of nose and it's not something that comes to a head...prolly a bart thing, I guess. It's not sore anymore.
Don't have as much joint pain and don't feel the undergrade fever. Lymph nodes around neck feel ok. Making sure I get plenty of vit C and mag and clear out toxins to avoid herxes.
Still could rest but have to go run some errands so will see how energy level goes today. So far pretty good.
Posted by sparkle7 (Member # 10397) on :
One of the things I've been noticing is that I'm able to wake up earlier. I've been getting up at around 10 am. I used to sleep until 12 noon, 1 pm, 3 pm....
I really had a hard time getting out of bed. I was in so much pain & I had a hard time falling asleep...
I just have to see if this continues.
Seems like the worst of the abdominal pain is over. I think I still have some detoxing left to do. I'm going to try the coffee enema everyone seems to be recommending...
I've been avoiding it but it may just be a helpful thing to do. I read alot of good stuff about it on another post.
Starbucks Organic Mexican coffee... It actually tastes good, too. Kind of mild & not acidic.
Posted by sparkle7 (Member # 10397) on :
You can even get light into the blood stream. One of the best ways is through your belly button, because the aorta artery is behind the belly button. So if you insert the light there for 20 minutes, every drop of blood in the body will pass in front of the light, increasing the activity of your white cells, red cells, B-cells and T-cells, so you can boost your whole immune system."
------
ALSO! I posted a comment on the SOTA LightWorks group on Yahoo asking if a paddle for 1072 nm will be available. The owner posted a comment saying that he was very interested & he thought it would be a good idea.
I'll keep you posted.
Posted by LoneDove (Member # 16516) on :
Sparkle
For belly button area:
Do you use IR or red paddle size?
What frequency?
Thanks!
Posted by sparkle7 (Member # 10397) on :
You could probably use either side at any frequency depending on what your health issues are.
You could also just let it run through all of the frequencies on AUTO.
After doing this a few times - my belly button area became a little sensitive, so I cut back. We just have to experiment...
Another area that may be interesting to try is under the tongue. This is an area that we use to take homeopathic remedies. I think there are blood vessels that run through this area, as well.
I saw on a website that they were doing it in this area with UV light for people with AIDS &/or malaria in Africa. I'm not sure if it works.
Just be careful & don't do it too long unless you've tried it & you don't react badly.
Posted by lymie_in_md (Member # 14197) on :
While your using these devices make sure your using binders. Chlorella, apple pectin, and activated charcoal to name some of them. Foods with lots of chloraphyll.
In my own case, I have a lot of headaches right now. Not so much from lyme, but from too much copper. I probably optained too much copper from the the copper water pipes in the house. I'm taking molybdenum and zinc supplements to hopefully rebalance my system. I'm hoping the lightworks helps the elimination by using the red side to strenghen my kidneys. If the kidneys are healthier it aid in elimination.
I added the above to give you some ideas on how think through the process of getting well. We need to consider our own environment supplements we're taking in order to determine where we are at any point during the healing process.
With the lightworks changes will start to happen and you will have to understand how those changes affect how you are supplementing and your diet.
Posted by gwenb (Member # 7217) on :
I received my LW a couple of days ago and have used it two times so far - 1/2 hour each time. I don't feel anything really - maybe a little more energy. I realize it is too early to draw any conclusions. It will be interesting to see how things develop.
Gwen
Posted by sparkle7 (Member # 10397) on :
gwenb- it takes a little time. Best to go slow at first.
If you feel OK, you may want to increase it to 1 hour. Where are you using the light & which side - red or infrared?
Posted by gwenb (Member # 7217) on :
Hi Sparkle
I'm using the near infra-red side. I am using it for a half hour at a time. I thought best to go slow lest I develop a huge herx in several days.
I know it is too early to see any changes. Just thought I would give a blow by blow.
Gwen
Posted by sparkle7 (Member # 10397) on :
It took me until 2 weeks of use at about an hour a day until I had the "big herx".
I'm still dealing with "stuff" now. I tried a coffee enema last night. It wasn't fun & my abdomen was gurgling alot afterwards.
Today I've had diarrhea. I think it's going in a positive direction... I think I had alot of toxins in my intestines. I'm pretty sure it's from using the light. The coffee enema just got everything moving out.
I didn't have any intestinal issues in regards to Lyme prior to using the infrared light.
Please don't take what I say as medical advice. You have to choose what to do carefully based on your own personal symptoms.
I'm very happy with my choice to use this LightWorks. You have to figure out what to do about the release of toxins, though.
In my way of thinking - this is working! I've had Lyme in my body for 10+ years. It's just going to be a process of things & experimenting to get it out.
I am still using the infrared light. Today I was having some menstrual cramps & I used it for about an hour on various areas of my body.
The cramps have subsided. I get have been getting very ill from my period for many years.... I'm not in bed right now - which says alot!
Posted by hiker53 (Member # 6046) on :
I did not get any herx from lightworks until 8 days into using it for 30-40 minutes per day. Developed more myoclonus and major stomaches and mild headaches.
Sure helped the arthritic toe, though.
I am backing off on it for awhile and then may do it just once a week.
Still would like to know what green color does. Anyone know? Hiker53
Posted by karatelady (Member # 7854) on :
I used my Lightworks last night for the first time. I only did the pain frequency because I'm doing N.A.E.T. (allergy elimination) with my ND and want to wait until that is finished before I start all the freqencies.
I woke up this morning with less pain in my neck and shoulders (where all my pain sits) than I've had in years! What a wonderful feeling!
Usually my pain level is around 80% and I'm miserable when I first get up. This morning I would say it was around 40%. This is the first time something has actually helped me relieve pain!
I had a massage this morning to get the "bubble-wrap" knots out of my shoulders and my therapist said they were less than usual.
So time will tell but I'm encouraged so far!
Sandy
Posted by sixgoofykids (Member # 11141) on :
quote:Originally posted by oxygenbabe: The light for instance could stimulate inflammatory cytokines that make you feel flu-ish.
O2, my LLMD has me off Cumanda, Transfer Factor, and even Zith as he thinks the cytokines stimulated from these are what's causing me the pain.
He thinks I need to still treat babesia because it's obvious I still have babs symptoms, but my remaining Lyme symptoms could be due to cytokines.
I have never heard of these. Does a herx produce them? Is it the die-off of the bacteria? If so, then taking those products would be a good thing? Is that right? I trust my LLMD, I'm trying to understand better.
If they are not from a herx, why do immune stimulating products cause more of them?
I also see your point now as regards the light. Thanks for any "light" you can shed on this. Posted by oxygenbabe (Member # 5831) on :
Well, your immune system generates inflammatory "cytokines" when fighting the flu or an infection. In fact the "flu" is really just your immune system's side-effects in a way, as it uses these molecules to rev up and fight. That's why you can instantly have a fever break and all your symptoms go away in an acute flu, because there is a point where your immune system knows that it won the battle, and even if all the bugs aren't gone, it switches off all those cytokines.
Some bacteria such as anthrax, or lyme, or others, have biotoxins that are highly stimulating of our inflammatory cytokines. Much of our symptoms come not from the invasion of the tissue but the resulting inflammation (though I suspect, invasion ain't too good for cartilage and ligaments longterm.)
The light, I'm figuring, could as easily stimulate healing mechanisms as inflammatory cytokines, since we haven't studied it yet. That's why going slow seems good.
It is a very interesting modality I wish we could get some funding to really study in vitro and in laboratory animals, different wavelengths, colors and pathogens.
What transfer factor were you taking? I'm highly sensitive to lactoferrin, my gut gets totally inflamed (not a herx) and I bought Immunfactor 2 and 5 really hoping to deal with some strep and staph that I think cause some sinus/ear issues in me, but the lactoferrin irritated my gut no end. I don't think they needed to add it, and I wish I could just get pure formulations of things.
Posted by lymie_in_md (Member # 14197) on :
O2 the problem is the IDSA political environment. We'll never see the research dollars being spent on a product which won't make money for big pharma. And specifically to helping people with lyme & co. What a quagmire!
We have to create common sense approaches to this, unfortunately. Maybe we can learn ways to determine efficacy along the way.
Posted by sixgoofykids (Member # 11141) on :
So, do these cytokines perform a function? Can we get rid of Lyme without stimulating them? Or are they going to show up no matter how we treat it?
My LLMD is thinking that since most of my Lyme symptoms are gone except for the pain and fatigue, that the symptoms now are coming from the cytokines. He still thinks I have some intracellular Lyme, which is why the Zith also makes me feel this way.
Does going slower get the Lyme without stimulating the cytokines?
I was taking 4 Life Transfer Factor. Any time I took it, I felt horrible as I described above. I felt that way even after 1. It didn't bother my gut at all .... but then again, I have an iron gut. Posted by sparkle7 (Member # 10397) on :
From Bob's post on another thread -
From low level laser therapy in the range of 660 nm & 684 nm...
Using the LightWorks' red side may produce a similar result.
Our results suggest that LLLT induces an anti-inflammatory reaction that may modulate transcription factors linked to mRNA expression of pro-inflammatory cytokines. Further stud- ies are needed in this novel area to elucidate the exact mecha- nism of action of LLLT in reducing inflammation.
Posted by hiker53 (Member # 6046) on :
I did notice the yahoo group that Sparkle posted has a file on what the different colors do. Makes me want to get the extra paddles. Hiker53
Posted by sparkle7 (Member # 10397) on :
I've been using the LightWorkd on & off for the past few days. I'm having bad intestinal pain today & yesterday.
The infrared light did help with menstrual cramps but I think it's producing a die off & my intestines are having a hard time handling the toxins that are released.
I can't think of any other reason that my intestines would be having pain. I usually don't have any digestive problems.
I noticed biofilms in the toilet again from a bowel movement today.
I've been taking chlorella, charcoal, probiotics, & an EmergenC packet to replace electrolites/vitamins. I've also been eating very bland sort of food. I also started taking some aloe vera to try to soothe my intestines.
It seems that my intestines feel worse after eating. I am not on any abx & haven't taken any since last Nov. '07. This intestinal pain has been happening on & off for about 2 weeks, now.
I don't know what else to do except go forward... I'll probably reduce using the infrared light until my intestines feel a bit better. I did use the red light today for a little while.
-----
PS - I don't think it was me who posted info about other colors for the LightWorks paddles. I didn't get to posting anything about it, yet.
Be a little careful about using the colors. The other colors of the visible light spectrum may cause ROS - or oxidative damage to the cells.
The ones that seem pretty safe are red & infrared. If you do use the other colors, you may want to increase anti-oxidants to replace the ones that may be lost. Especially, NAC & Vit. E.
There still needs to be more studies about these things. I think they are good but you may want to do some research just to be on the safe side.
Red & infrared have been studied more & they seem to be pretty safe. I've read anything above 500 nm is considered fairly safe.
Posted by lymie_in_md (Member # 14197) on :
Sparkle, the only thing I can think of is to add 1 zinc lozenge a day. It will help repair any issues in your intestines.
By the way, I have all that coming out of me as well. It looks like mucous (sorry if this is gross) hanging on the side of the defacation. I ve seen it quite often, no so much now. But I did today, jamescase20 will like this, I started lauric acid with the MMS. And vwalla more muccous.
It is going take a while longer. I started seeing this about three months ago when I did a 15 course of detoxamin. I had to break it up and the 15 day course took about 6 weeks.
I really believe it is biofilm and your body is trying hard to remove the toxins. Look up solidago on the web by nestmann pharmaceuticals here's a link http://www.marcopharma.net/chelation.htm. It will help your kidneys drain. The kidneys are very important!
I'm guessing it is biofilm and there is a lot of it and therefor a lot of toxins.
Just want question, are there any pains in your back?
Unfortunately this is all part of the process. So hang in there.
Posted by LoneDove (Member # 16516) on :
I'm thinking about doing the MMS and lauric acid. I'm taking virgin cold pressed organic coconut oil...not sure if that's same as lauric acid.
Alternating with litewrks and mag pulsar helps pain. Finally got some more Naturally Calm magnesium and those 3 things really help eradicate my pain. Also, taking methylcobalamin B12 tabs which gives more energy. Also using silver pulsar on wrist. That plus vit C and cats claw.
Still sleeping in but sleep is deeper. Much less pain when I get up in morning. Getting out of house earlier and staying out longer each time. Not 100% yet but way better. Mental fog better...fog was getting so bad it was hard to communicate effectively.
I really appreciate some of the people at this website for so much info. The guy I bought the sota instruments told me about this place and he's been great also...best price on sota and fast shipping.
Feeling hope for the future after feeling pretty hopeless and in terrible pain and brain mush not long ago.
Posted by sparkle7 (Member # 10397) on :
I was taking the coconut oil for a while but I cut back. I've stopped alot of things due to using the LightWorks.
I have to get through this intestine issue first before I go back to anything. I'm going to stop using the light, as well, for the time being until this intestine issue blows over.
Thanks for the suggestions, Bob. I've been looking into drainage remedies but I didn't order any, as of yet. I think my liver may need this type of thing.
I tested it with a pendulum & I asked about lymph, kidney or liver & it came up with liver... (in regards to drainage). I'll test it again before I order anything.
I'll try the zinc... I never had intestinal pain for this long. It's weird & I have been under alot of stress. It's also busy season for our business now...
I could use a break from this intestinal pain. I have had lower back pain for many years. I don't think it's my kidneys, though. I been drinking lots of water.
I also have some of the Cowden herbs here. I'm sure some of them are diuretic. I don't know if that's the issue. I'll have to think about it.
Posted by lymie_in_md (Member # 14197) on :
Sparkle use the lightworks at 660nm over the liver and the kidneys. That should support drainage as well.
Posted by tonyp (Member # 14960) on :
Just used Lightworks for the first time, definetely stirred something up. Increased stomach pain and headaches.
I am not sure if I could continue as I am on 400 Mg doxy and I am wondering about photosensitivty.
Can you use Lightworks thru clothes or does it not work. Will that protect your skin
I want to continue but I do not want to create any further damage
Thanks in advance
Posted by jamescase20 (Member # 14124) on :
Have you ever tested your lightworks under a scope?
I could and would do this for you for free.
I could take a infected blood drop, foucus in on the alive invaders, then turn on your lightworks.
I would then know in seconds if it works.
Posted by lymie_in_md (Member # 14197) on :
tonyp -- lightworks is not a problem for those with photosensitivity. It is not UV or ultraviolet light. It is save to put on your skin. You won't get sunburned from it.
James, lightworks doesn't kill bacteria or viruses. It triggers a chain reaction where our cells do that. If we would see anything under the microscope, it might be the distruction of our cells because it has the organism inside the cell or the cell expelling the invader because it is now strong enough to do so. We might also see the invader getting killed because the cells are spitting toxins at the invader, such as nitrous oxide.
To see it under the microscope you might want to see it with a very infected person. Also to see if activity occurs in someone no so infected. At this point James you might be a good candidate.
Posted by sixgoofykids (Member # 11141) on :
I'm reading .... I've just taken a Lightworks break so I can see how my new protocol is working (just got back from LLMD Tues.). I'm on mostly herbs now (Buhner, and some Cowden), plus Malarone and Lariam.
Keep posting, I'm reading. Posted by sparkle7 (Member # 10397) on :
I tried the 660 nm, yesterday - mostly on my foot accupuncture points & my wrists. I'm still very ill today. I don't think it's a good idea right now for me.
Our landlord didn't pay the electric bill for the house so we have no hot water. I can't take a bath in epsom salt to detox. There are a number of other stress factors going on for me for some reason right now. It seems like it's all happening at once.
I still think this therapy is beneficial but you have to be careful & not go too quickly. I'm sure people have herxes like this all the time from abx... I just didn't expect this from using light.
Ultimately, I think it's good but it's just kind of unpredictable. Just be careful & try not to overdo it. The infrared light actually feels good but it may cause something unexpected to happen.
I don't know if it's cytokines, immune related or what.
Six... did your doctor have anything to say about using infrared light? Are you still planning your trip?
James - maybe you can try someone who has used the light as a before & after scenario? Test the blood before & then use the light on them - then, look at the blood afterwards...?
I bet bee venom kills the spirochetes, too (as in bee venom honey)!
Posted by hiker53 (Member # 6046) on :
I had to stop the light works after 15 days due to severe stomach pain as well. Part of the pain may be coming from the coconut milk smoothies I drink almost every day to gain weight. I would assume they have some lauricidin in them, so cut back on those, too.
I think I will approach the infrared light like I do rife. Once a week and just do a few minutes.
Good luck everyone and keep reporting. Hiker53
Posted by sixgoofykids (Member # 11141) on :
Sparkle, my doctor was unfamiliar with the near infrared .... he recommends far infrared saunas, but didn't talk about near infrared.
He was ready to put me on an abx break anyway because the Zith was hitting me so hard. As I've been off zith and off the light I have felt better each day. Today I didn't even need a pain killer.
Have you considered that the light maybe be hitting something else like parasites in the gut? I had a lot of worms (tapeworms and roundworms). As I got better and was on Enula, I started passing the worms.
Also, bartonella can cause GI symptoms.
I still plan on going to Germany. I've had trouble getting an appt set up. I've faxed and emailed several times but have not gotten a response. We've gotten through with the phone, but they wanted us to email or fax.
Posted by sparkle7 (Member # 10397) on :
I never had any intestinal issues before this.
I've had Lyme for over 10 years & this is the first time I've had pain in my intestines except when I was taking abx. The main reason I quit the abx was due to intestinal cramps/pain...
I don't think I have bart or parasites. I was taking ENULA for about 3 months prior to using the LightWorks - just as part of the full Cowden protocol.
I don't have any of the symptoms of bart but I figured I'd take the ENULA anyway. I don't have any reason to think I may have any other intestinal parasites...
I'm also fatigued, I have been having diarrhea & increased pain. Seems like a big herx but I don't know. I'll just have to see when this ends...
I stopped almost everything except some charcoal pills & a multi-vitamin - & a little chlorella or zeolites here & there.
I don't think I have any problems with yeast or anything else. It's strange but if it is a herx - that would be pretty interesting.
Posted by karatelady (Member # 7854) on :
The LightWorks is doing wonders for me in regard to neck/shoulder pain.
I'm not using any other frequency except for pain right now and it is awesome to wake up without horrible neck pain.
Once I finish allergy detox, I will try some of the other frequencies but am a little nervous about the herxing you guys are experiencing.
Sandy
Posted by sparkle7 (Member # 10397) on :
Last night I made an "auto nosode". I tried 5 drops under my tongue.
About 20 minutes later, I had some gurgling in my intestines & had some diarrhea (sorry, I don't mean to be gross but I'm posting this info so people may be able to learn from my experience).
Today, I had much less intestinal pain but my back & shoulders ached when I woke up. I'm going to try the auto nosode again a little later today. I'm just going very gradually with it.
I'd eventually like to use it in conjunction with the LightWorks as per Dr. W in Germany. I'm taking a little break from using the light until my intestines are in better shape.
I'm going to take some aloe vera among other things so they can heal. I feel like they have been through alot in the past couple of weeks.
One thought I am having is that there may be spirochetes living in my intestines but I'm not sure.
I don't know if spirochetes are being killed in other parts of my body & being processed through my intestines or if they are (or were) living in my intestines.
I guess it's hard to say.
Posted by lymie_in_md (Member # 14197) on :
They most definitely live in the intestines, and it would be great if someone would take a close look at mucous from defacations. Specifically in a microscope.
If you can get lyme out of the intestines, I believe you've removed there headquarters. Most of our immune system is also headquartered there, once lyme is out of the intestines our bodies are able to do the job. It's also where a lot of our blood junctions, this how we nurture our bodies with nutrients from the intestines. 3 of the 7 major chakras are around the intestines.
So a battle needs to be waged. I think james is onto something as well as garlic, freeze dried bear garlic if you can get it. Or just regular garlic 1 clove after meals. Aloe vera for healing the intestines. 660nm to also heal the intestines and binders to remove toxins.
Posted by sixgoofykids (Member # 11141) on :
My grandmother who is almost 89 used the light yesterday on her arthritic knee and hip. She couldn't tell if it did anything, then she asked this evening to use it again because she thought it helped. She'll be able to use it two more days, so I'll keep you posted.
I haven't used it in a while. I'm waiting until my immune system settles. I was doing significantly better today. I rode on my FIL's motorcycle ... my lymph nodes up and down my back and neck were sore afterward, I think it did more than my rebounder. He said he'd take me on a ride once a week or so. Posted by sparkle7 (Member # 10397) on :
Thanks for the info Bob. I have some problems with garlic. I think I'm allergic to it. I have very few allergies but for some reason eating raw garlic make me get seasonal type allergies.
I still have the bee venom honey... I think that was doing something & all the Dr. Cowden herbs.
I'm just going to continue on this break for a bit until my intestines are better. I'm still pretty weak today.
That's funny about the motorcycle, 6! Who would have thought? I hope your grandmother gets some relief with the LightWorks.
Still have to take the auto nosode drops. I didn't take them, yet, today. I'll keep everyone posted.
-----
PS - This website has some info about using LEDs for skin treatments (especially acne):
There is a caution here - just for your info. It is mainly in relationship to the therapy they provide for skin related issues:
The main contraindications to using this type of photosensitizing therapy is the potential for an exaggerated response to the light.
You must not be taking any medicines that could be photosensitizing. The more common ones are certain diuretics, antibiotics that are any form of tetracycline, and antifungals.
Likewise, if you have any photosensitive disease such as porphyria, lupus or albinism you should not do this treatment.
Because the treatment is inflammatory it can flare herpes, and if you have a history of oral herpes anywhere on your face or in the treated area we will prescribe for you a series of anti-herpes pills to take the day before, the day of, and the day after your treatment. Even so, herpes infection could still break through.
From this you could have pigment or scarring just like in any herpes infection.
-----
I figured I'd post it just in case...
Posted by sparkle7 (Member # 10397) on :
Using light is very powerful. We still don't know the implications of using light for healing. There just have not been enough published studies, yet.
If people do have information & they don't want to share it... then it is only of benefit to companies who make money from "curing" people.
If people decide to use the less expensive mode of treatment (ie: LightWorks), you have to adjust & go slow. Not everyone who is ill can afford expensive treatments or find a job/work extra hours/beg, borrow, steal, etc. to afford it if they are ill.
I've been going through something that seems like a big herx. Other people who do not have Lyme & use the LightWorks do not seem to go through this.
All medicine is trial & error. No one can tell how a person may react to any given treatment whether it's drugs, herbs, light, energy medicine or whatever.
We all are different & have various health issues to deal with either due to Lyme or other problems. I don't mind trying this out & letting people know how I'm doing.
Even though it's been difficult going through this herx reaction - I still feel that I'm going in the right direction. I guess only time will tell.
With any modality - there's always the chance that people will have unexpected results. I guess we will know in time how all the different modalities will measure up.
Some people will travel to be treated & some will stay home. If people want to share their findings, we will all be able to learn how to treat ourselves when most of the doctors have failed us.
I don't believe that the best way to get well is to throw money at practicioners, drugs, devices, supplements, etc. & hope for the best.
We need to establish low cost treatments for people so they can heal themselves from this awful illness. I hope to share my experience since many of us have used up all of our resources to try to get well.
Health care should be a human right - not just for people who are employed or who have wealth.
I hope people will continue to feel safe enough to share their thoughts here - whether you agree or disagree or whatever you find.
Please share your experiences so we all can learn!
Posted by sparkle7 (Member # 10397) on :
Had a MAJOR herx yesterday. I was so ill... I've actually stopped using the LightWorks for about 4 or 5 days or so... maybe more. I did sit in the sun for about an hour the day before the 2nd big herx.
This herx or whatever it was was very severe. But I do think I'm coming out of it today & I'm feeling better. I still have some intestinal disturbance & I'm a bit nauseaous.
I'm just telling you so that you will be careful. I don't think the power of the light matters or the frequency, whether you use nosodes or not, etc.
I think it has to do with the 880 nm wavelength. Actually, I think something more powerful would make you more ill from herxing alot quicker & maybe worse (?).
I have trouble believing that anyone knows how to control the herx & make adjustments in the treatment to do it in a way that is gentle - especially, if they are using a light that is brighter & more powerful then the LightWorks. I might be wrong, though.
I have faith in this treatment but we are all experimenting... Please be careful & be cautious. I was very ill yesterday but it may be worth it in the long run.
It's just that it may not be necessary for everyone to go through as severe a herx as I have been going through. Maybe it's different for everyone...? It's just hard for me to say.
I believe the light is more powerful than abx. The infrared light effects people with Lyme differently than people who don't have it - just by my observations.
Be careful & be prepared for a BIG herx if you use the LightWorks. I think the effects of the light are cumulative. This is just my experience... Time will tell if this is worth it.
Posted by herxuk (Member # 15873) on :
Just checking in, got my LT wrks today. Took 11 days, thats really good. Decided to be kind to myself, and try the 660 nm, and then try the 880 nm another time, then I will be able to tell more what's happening with each one.
I just can't believe what i'm seeing, my knees are looking normal colour, instead of red, theirs still a bit of red, but nothing like before, even after Ibuprofen use.
This is only one day, but i'm so thrilled. Done back of neck, back, and ribs.
Want to try belly button area, for immune system, but I think that is the 880 nm, so I think 5 minutes, just for starters. If todays anything to go by, i'm more than pleased.
Decided to take it steady with the 880 nm, don't want to be overwhelmed with toxins, can't deal with too much in one go, makes me sick as a dog. Let you know more, when I know more. Bye.
Posted by aklnwlf (Member # 5960) on :
Am kinda looking into this too since the post on the Bionic 880 was deleted.
So much drama............
Posted by pamoisondelune (Member # 11846) on :
By the way, a lot of the missing info from Gigi about her Bionic 880 treatment was reposted on another thread:
Bionic 880 thread - promise I won't delete it Pages: 1 2
posted by Nobody
Posted by sparkle7 (Member # 10397) on :
I have a feeling that the infrared light may be cumulative. I stopped using the LightWorks for about 4-5 days. I sat in the sun for about an hour & the next day I had a huge herx reaction that lasted about a day.
I used a pendulum & it responded that I did not need to use the LightWorks for about 1 month but I could use it again before 2 months. I'll check again as I feel it's needed.
I have been going through a very severe herx but I'm getting through it. I really feel better but I'm a bit weak. I have hardly been taking any painkillers. For years, I had to take them every day to be able to function.
I don't even want to take any herbs or vitamins. I'm taking stuff I have around the house since it's here & an emergenC packet every so often.
I'm still having aches & pains in my back. My gums got a bit swollen. I don't know why that is. It seems that the infrared light is balancing out things in my body that are off.
I guess I'll get to work on the aches & pains when I resume treatments.
This may be the real deal as far as Lyme treatment goes...
Please keep posting your results!
Posted by herxuk (Member # 15873) on :
This is only 4 days of using LT wrks, although I have many more issues than just my Knees, I'v focused on this because inflammation is something visible, ( my toes, and ankles as well, ) and if it is allowed to go on too long, can cause joint damage. I would have had to take a great deal of anti- inflammatory's and still not get this result, in this short time, and we know how bad they are for the stomach.
I don't know what else the LT wrks can do yet it's too soon for me to say, but good or bad, I will say how it is, I would not mislead anybody.
The last 3 day's I have done, two 4 minutes, and one 15 minutes, with the 880 nm, on B Mode. on belly button area, this I hope is for immune system, and Lymphatic.
The last few mornings I have woke up without the horrendous weakness and fatigue, like I'v never been asleep, I can't say as yet it's due to the LT wks, but I can say I have spent the last 7 Months like this.
I do hope it lasts
Now to deal with some of these pain issues. Thank's Sandy, for your PM, on the Modes, I was very pleased to receive them. Sparkle, pleased to here from you, I had missed your chatter. Just to say, my knees, ankles, are not inflamed, just a bit on my toes yet. Very happy with this, so far.
Posted by Dave6002 (Member # 9064) on :
Just want to give you who are experimenting Near Infrared light therapy some encouragement and hope.
I have been off abx, without any herbs and supplements either, for over 3 weeks now, and only use NIF LEDs, and got some positive results: the itchy crawling feeling on my face was gone;better sleep and more energy.
Although, I still have pains, the progress is slow,I am pretty happy with the treatment, which probably is the best one for some Lymies like me.
During the past several weeks, I did have several minor herxes, and I used the NIF device extensively probably over 12 hours a day, which didn't kill me.
However, like Sparkle said, please be careful and cautious, and not to overuse it at beginning: NIF could cause severe herx.
Good luck.
Dave
Posted by sparkle7 (Member # 10397) on :
Dave- are you using any frequencies or pulsing like Nogier, etc.?
I'm wondering if you may have different results due to that???
May be interesting to know...
Also, where on the body are you directing the light?
Posted by Dave6002 (Member # 9064) on :
Sparkle, no, no frequencies and everywhere all over the body.
However, I did notice that when I used it around my head, it made me sleepy, that's a good thing, considering that I have had poor sleeps for so long.
The frequencies might make the NIF stronger, but the consistent lights still made me herx. When it stops to herx me, then I'll probably go for the frequencies.
The herx caused by the NIF could last very long, several months? which is understandable, considering how sick we were and how devastating this disease is.
I guessed it based on my experience on an infrared pad I used at the end of last year, which gave me the biggest herx ever, I had to stop to use it for a long time and lost confidence in it, until recently when I had bad back pains and nothing could relive it except the NIF pad.
I am hoping the NIF LED lights will give me back my good health soon, although little by little, I am very happy, probably finally we have some thing that can control or even cure the disease.
Dave
Posted by sparkle7 (Member # 10397) on :
Have you tried using the light on places where the blood can have access to the light - like the inner wrists, belly button area?
Also - it seems to effect the glands & may even penetrate bone. I think Bob posted a drawing of the endocrine system. It may be of interest to see how it may effect the glands.
I was doing some research on the pineal gland today & there are some interesting findings about melotonin & pinoline... I'll post them later - I have to check the stove!
Posted by Dave6002 (Member # 9064) on :
No, I haven't specially tried that.
However, in our skin, there are plenty of micro blood vessels every where, which are reachable by LED lights.
The question about if LED lights may effect on endocrine glands is very interesting. I did use a lot on my head and as we know the most important glands probably are those that reside in the brain.
It's worth to measure the hormone concentrations in our blood and see if we have low levels of some hormones, and see if LED lights can restore the levels, if we want to pursue that direction.
However,right now my mind is setting on the hypothesis that the LED lights are increasing the energy levels of the cell through promoting ATP production.
The pathogenesis of the Lyme pathogens may rely on their crippling the host cells through decreasing cell energy levels, resulting in physical fatigue-due to crippled muscle cells; mental fatigue or brain fog-due to crippled neuron cells; immune incompetence-due to crippled immune cells...
Therefore, if we can reverse the pathogenic process, i.e restore or increase the energy levels of those cells, we may be able to get rid of those pathogens finally.
Posted by herxuk (Member # 15873) on :
Infrared wave length 880 nm has been demonstrated to penetrate to aprox, 30 to 40 mm, into tissues. Suitable for deep work. Bones, Joints, muscles etc.
660 nm visible Red Led more shallow. Penetration depth, 8 to 10 mm. More suitable for surface issues, dealing with skin, and just below.
The Above taken from, Page 1, Lt wrks, posted by Six Goofy, 31st July 09. 03. Site, www braintuner. Lightworks.
( Sota Ltwrks Sellers )
Posted by lymie_in_md (Member # 14197) on :
The bionic 880 or the heliohealth product penetrate much deeper. The power of these units may penetrate as much as 9 inches. It has to do with power output and the type of LEDs used.
Posted by herxuk (Member # 15873) on :
Yes, I know Bob. 9 ins ( 23 cm ) is being used for cancer patients radiation burns, as we discussed on Page 1.
But not sure I would want to go that far for Home use. It was only used for 10 seconds a day.
I am using the 880nm side of Paddle for belly button area, for deeper penetration, and select what I think is the appropriate Frequency setting.
I am ( at the moment ) sleeping much longer than what I did before, and waking up MORE refreshed. Very strange. Will see in time if this is due to the LT wrks, as I am doing nothing else, or taking anything, for this to have happened.
Who knows, we may all vary how it affects us. It's been positive for me up to now, time will tell.
Perhaps, getting the Disease load down, and building the immune System up, would put the body in a better place, for the Bionic 880 treatment. ???
Posted by sixgoofykids (Member # 11141) on :
quote:Originally posted by herxuk: Perhaps, getting the Disease load down, and building the immune System up, would put the body in a better place, for the Bionic 880 treatment. ???
That's what I'm hoping! I have an appt. in Germany for the second week in Oct.
I am off abx and taking andrographis, resveratrol (source naturals brand), and samento. I am still taking Malarone and Lariam for babs, but will need to get off it one week before Germany. I take aretemisia and enula.
I can stay on herbs.
I'm taking Lyrica now for sleep and am sleeping 8 solid hours and waking up refreshed. My adrenals must be improving.
So, I think I'm in as good of shape as I can get to go to Germany, let's just hope it holds. I'll do a blog while I'm there so you can read a play by play (to avoid my treatment getting lost in discussion).
At the moment, I'm not doing Lightworks.
It "cured" our parakeet!!! She had a very enlarged stomach that dragged on the ground. My daughter used Lightworks one her .... she'd sit really still and close her eyes to bask in the light. She has a history of liver problems. Now she looks normal again. Posted by sparkle7 (Member # 10397) on :
Thanks for the info 6! Please let us know where your blog will be. Good luck to you. Going off abx is a big step but I think everything will work out OK.
My feeling is that the light balances things out. I'm not sure how, technically. There are very important functions of the blood, immune system, & hormones, etc. that all seem to work together & adjust each other. I'm no expert in this... I studied art in college.
I was reading that melotonin & picoline produced in the pineal gland are (or function like) anti-oxidants & are also protective of the body. There are studies that they are productive of the body in regards to aluminium - so, they many be helpful for detoxing other metals? Just a guess.
Sleep is very important & I know many of us get horrible sleep. Many of these hormones are produced throughout the day or at night at specific times of day.
I tried putting a dark cloth over my window last night & it made a difference in my sleep. There are alot of lights outside of my window & the light comes into my room at night.
So, there may be a helpful balance of getting the correct light & darkness.
I stopped using the light for a short time. I just wanted to make sure my body has time to heal after going through that huge herx. I will resume treatments in a few weeks.
I agree that the Bionic 880 may be too strong for our home use - judging by what I went through with the debilitating herx for several weeks.
I guess this is what I always suspected. It's nice to have something professional along with the support but many of us can't afford it. I'd still like to get the benefits of using the light.
I think it's particularly important since Lyme is being implicated in Alzheimers by Dr. MacDonald! I think the people at SOTA are looking into making a 1072 nm paddle as per my suggestion (or maybe they thought of it prior - I don't know).
20 cm is fairly deep for penetration of the 880 nm light. It should be suitable for our purposes. It just may take longer to get to all the places we want to treat.
Does anyone feel a difference from using the various modes? It was hard for me to tell but the pulsing may be beneficial.
Posted by evgen (Member # 14118) on :
quote:Originally posted by GiGi: Sparkle, I have absolutely no problem with you. I have a problem with the fact that you move into a thread in a way that immediately makes people reach for their forehead, wondering.
Once and for all, I have learned that light is not light, as you state. The light delivery out of Bionic is a totally different than from the devices you talk about.
Most of all, Dr. W. has treated some 2000 people with it, successfully. That is not anecdotal. T Bionic treats a broad spectrum of conditions.
Your blunt input, light is light, stops and turns the discussion around, into a different area, where no one is talking about the same thing any longer. The talk is about Bionic, the way it works, the way it doesn't work, people's experience with it, the therapists' experiences with it which I am starting to collect -- with only great efforts I might say. We sleep in Seattle, while the Europeans are awake and can be talked to.
You are perfectly at your right to discuss any and all light, but your "light is light" comments are out of place and disrespectful when people are telling us of their own personal experiences with the Bionic, the doctors, the money they had to spend to get at the experience, the therapists/doctors providing the treatments, etc. Our visit to Germany did not come easy, financially or otherwise. I hope you grow to be 76 years old, but won't have to wheel your husband through airports, up and down planes, in and out of doctors offices with stairs, driving the autobahn in a hailstorm, getting lost in the middle of the night. Clancy had similar experiences where one feels one cannot go on. Just for a moment, put yourself in somebody else's shoes, and think the word appreciation. It works, try it.
The Bionic is not a Lightworks. The Lightworks is not a Bionic. It's not an Elixa. The photons delivered are different. I have quizzed everyone I could on this subject. I said this in an early post many days ago: I am tickled and pleased if we find an instrument that does the identical thing, i.e. eradicate Lyme.
This is not anecdotal - this is for real - as experienced by many many Lyme sufferers. I have no interest in passing on untruth.
So don't be offended. It takes every hour I can spare to gather all this information. I would suggest that any of you who really want to understand also contact a few of these 200 Bionic users, doctors and practitioners, whose phone numbers I have posted more than once, to get at the real truth, if my input does not appear valid. Or call any of the Lightwork users and get details of their experiences.
Pardon the interruption.
Posted by herxuk (Member # 15873) on :
They are all different Nogier Frequency's from A to G. Each for a different purpose, select one that suits your needs. will run for 15 minutes on either side of Paddle. Constant has no Frequency.
I think quality of sleep, is as important as the length of time, as you have no control over this once you are asleep, it cannot be faked. I have been in a deeper sleep, which is more restorative.
I think the Bionic 880, is probably more invasive, the treatment seems much harsher, so I think on the same lines as 6, get stronger for this treatment.
Problem is, we have no way to tell, how much Bacterial Load we still have, only by how strong we feel etc. I will consider this when I have managed to get somewhere near how I used to feel.
I think this little machine helps to restore the body, what this Monster has disrupted, interfering with sleep Hormones etc.
6 loved your little Parrot story. Proof enough that LED's are worthwhile.
I think the LT wrks is a great little help mate, it's too early for me to say any more than that. But look forward to post's from others, on how they are getting on with it.
And of course, 6, and her treatment in Germany.
Posted by sixgoofykids (Member # 11141) on :
I will let you know where I post the blog. It will most likely be myspace. I will also start a thread, but I think it's good to keep the treatment information separate.
Actually, Sparkle, my LLMD wanted me to take an abx break anyway. He felt my body was indicating I needed it. He also felt that my symptoms were coming from my own immune system (cytokines) rather than the Lyme, and it seems he was right.
He feels that babs is my biggest problem right now. We know intracellular Lyme is there still, and he just called this a break. He has me taking herbs.
So, it ends up being good timing for the Germany trip. Posted by sparkle7 (Member # 10397) on :
evgen - why bring up old stuff?
Whatever the case may be... I'm feeling much better now, than prior to using the LightWorks (even though I went through a hell of a herx).
I still think light is light - it's the wavelength, not the brightness/strength.
They say "Necessity is the mother of invention." - I just didn't have the money to use the Bionic 880 or go to Germany.
Posted by sparkle7 (Member # 10397) on :
Really feeling alot better!
As per a reading I did on my health with a pendulum - it said I should not use the light for about a month or so. I decided to go back on the Cowden protocol for now.
I'm no longer having intestinal pain or other bad herx symptoms. I'm generally feeling OK. I still have some back & shoulder pain & I'm a little fatigued.
I do tend to go to bed too late but I'm sleeping pretty well & able to get us before noon - which is good for me.
I'm not taking any pain meds, though! (I was taking Oxycontin every day so I could function - so, it's a big deal).
I'm going to do the Cowden herbs for the mean time & then, I'll try using the infrared light again in about a month or so.
Posted by sixgoofykids (Member # 11141) on :
Sparkle, each of us is different but I'm taking Banderol, andographis, samento, and resveratrol and having better luck with it than I did Cowden. Maybe you could test to see which works for you. Posted by Annxyz (Member # 9097) on :
Sparkle , I appreciate your communication on your personal experience with this very much . Most likely , a cure will only result from the combined insights of those who live Lyme Hell and persist in gathering our info and sharing our individual experiences .
Also , you are very tactful with critics, and do not proclaim yourself a scientist .
I hope you get better and better . Your story , like that of Ernie , and DBergy , and lymetutu and groovy2 encourage me to persist .
Blessings to you !
Posted by karatelady (Member # 7854) on :
Last night I got brave and used all the frequencies for approximately 4 minutes on one wrist, 4 minutes on the other and then only the pain frequency on my shoulders/neck area for the rest of the 15 minutes (except for using it on my dog a few minutes - see below).
Wow, this morning I woke up feeling herxy like I had been on abx. I did make myself work out at karate (I get pampered a lot - stay by the fan) and that helped. Also the infrared sauna helped this evening.
I have a Beagle who is only 7 but having a lot of back pain. The few pain meds the vet has tried haven't worked or made him sick.
Last night I ran the LightWorks up and down his back for just a few minutes. Honestly, today he was a lot perkier. I will wait until he is back to his old mopey self and try it again.
This sure is one big experiment!
Sandy
Posted by CraigC (Member # 13732) on :
I have two questions for you guys/gals, regarding the Lightworks product...
1) Do you need to be off of abx to use it?
2) Besides a possible bad herx, are there any other side effects that are serious?
Posted by liesandmorelies (Member # 15323) on :
Bumping to see if Craig C's question gets answered, as I am curious as well.
thank you. Elizabeth
Posted by sparkle7 (Member # 10397) on :
I don't think it is beneficial to use the infrared light while on abx. I have heard that some people have very severe reactions when they mix the two & ended up in the ER. The original protocol from Dr. W prescribes that people are not taking abx for at least a week or two - maybe longer.
For some reason, it seems to me that people with Lyme have more of a reaction that people who don't have Lyme & use the LightWorks. I have no idea why this is. Everyone seems to react differently to the treatment.
In my case, my experience is that it was killing the bacteria & I had a toxic die-off which accumulated in my intestines. I don't know what exactly was killing the bacteria - whether it was the infrared light or an increase in my body's defenses.
It took about 2 months to clear out my intestinal tract with absorbing detoxifiers. I suspect that alot of bacteria was killed, created neurotoxins that had to be expelled from my body & some went into cyst form. I stopped all treatment for a while since I didn't quite know what to do.
I am going to put some thought into it & see if I can come up with a way to continue with the light while using a cyst buster like grapefruit seed extract. I am also thinking of getting an Asyra test & trying some of the Deseret Biologicals homeopathic formulas.
I am going to proceed with caution & use the LW at a much more diminished pace. I'm in the middle of moving cross-country - so, it will have to wait for another few weeks.
I started feeling bad from Lyme recently (after not treating with anything for about 2-3 months) & went back on the Cowden protocol. In the last few days, it has helped alot.
I would like to continue using the LightWorks when I can but I can't go into a big detox reaction right now since I'm moving.
If you use it, you just have to be aware that you may become severely affected by it. I would definitely say to not combine it with abx! Just go slow & take your time.
Be sure to drink lots of water & use detoxifiers like charcoal, psylium, clay, etc.
PS - I haven't heard of any other side effects other than a big herx reaction. Some people with Lyme have trouble detoxing neurotoxins - so, it can be a serious problem.
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