I am using phase contrast 1600x, slide coverslip AND immersion oil.
I see everything.
I have a trained specialist in live blood microscopy who verifed my findings.
Are you saying my specialist is wrong????
STOP THE SMEARS, if you want to attack me, do it here, IN MY FORUM.
Posted by lymielauren28 (Member # 13742) on :
James, I don't give a damn what they say about you over there, you are LOVED by all here.
I think all the stuff you do on your microscope is amazing and I love your tenacious spirit!
You have been through hell and you continue to SEARCH for answers...you're not a quitter and I admire your spirit.
To hell with them! Stuck up, know-it-all Europeans. I think they're just jealous because we stole David Beckham from 'em
Lauren
Posted by Fordace (Member # 14874) on :
never stop James,
F^&%CK em all if they're ignorant
Be cool and Thank God you're doing what you're doing....Rich
( next time I'll say what I really mean... )
Posted by Angelica (Member # 15601) on :
There are a few negative people over there who attack anything they think is different. They have nothing better to do with themselves all day. It is rather sad.
You are better off ignoring them and consider the source. They are not well.
Posted by Dawnee (Member # 15089) on :
Pfft... what the heck? Its obvious you can see what you can see. Oh well... their loss. I love reading your updates on the study!!!
Posted by luvs2ride (Member # 8090) on :
BTW, most of them are not from Europe. A couple were banned from lymenet for their hostile and abusive behavior and a few of their devoted followers went with them to Lymenet Europe.
But they can't quite draw themselves away from here. They keep lurking around here and then running to LNE to gossip and sneer. They are really pretty pathetic .
Don't worry, James, you are in good company. Several people who are well thought of here get smeared over there.
Posted by jamescase20 (Member # 14124) on :
Thanks for your support.
I am only doing this because many dont have the ability to check there blood daily.
Posted by Brussels (Member # 13480) on :
Some banned people from this forum post on Europe lymenet.
I live in Europe and I never visit Europe lymenet as there are barely anyone from Europe ther. I feel it's pretty dominated by the banned people.
You can write a complain to the board administrators, that's what happened before here, and they might take some measures against them.
Posted by herxuk (Member # 15873) on :
I have NEVER been on Lymenet Europe. They must be a bunch of Low Life's, who find fun and entertainment in James work.
Lyme Net has GIVEN me the knowledge I need to fight this disease.
Please don't brand us all, as stuck up know it all's, as I know I have still much more to learn.
Thank you, to all on Lyme Net. Posted by lymie_in_md (Member # 14197) on :
James don't worry about the fools over at LNE. They aren't even worth considering. Anyone who flames on sick people even if they them selves are sick is barbaric. Personally, I don't see them having much of a conscience, good will, nor virtue. They are tyrants of their own point of view.
Posted by sometimesdilly (Member # 9982) on :
hi James--
please listen to the advice everyone is giving you-- ignore what gets said over at "Lymenet Europe."
from personal experience i know there is no possibility of having a rational dialog with almost any of them (a few who still post here excepted).
to give you a flavor, the LNE folks have accused me of many things, my favorite being of conspiring to destroy and pervert Lymenet,this board.
I think the weirdness began because I went there to ask them to stop their ceaseless tearing down of TC, and I became a target of their odd wrath. They never seem to let go of that wrath or their targets..
So hey, word to the wise- save your breath. They aren't worth it.
hugs, dilly
[ 19. August 2008, 01:44 PM: Message edited by: sometimesdilly ]
Posted by djf2005 (Member # 11449) on :
its those jerk0#$@ cave and her compadres.
they tear up anything that is out of the box because they are miserable and are still on these boards after 10 years or so...
laugh it off james, stay off LN europe,and continue doing your work. its interesting and informative. dont let the negative nellies get you down.
im gratefulthey are no longer here, they talk smack about a lot of us, me included. who cares. we arent in high school anymore, i duno why they act like it.
hahaha. needed a laugh anyway.
keep at it james. to hell with them
derek
Posted by charlie (Member # 25) on :
They apparently are monitoring the chatroom like it's an intelligence gathering job, important surveillance I guess.
This is roughly analogous to monitoring a neighborhood bar then gossiping about the gossip they overhear.
Some of them desperately need to find something worthwhile to do.
Charlie
Posted by merrygirl (Member # 12041) on :
They are a pathetic group of stalkers if you ask me!
Monitoring a chat room? Pretty lame.
Get a life people! Posted by blackpowder (Member # 13637) on :
Hi there . I seem to see alot of posting at both sites. Many people don't agree with each other and that is pretty much universal.
I am still relatively new to this whole lyme life and I search daily for any and all help. I was befriended here by several people-some
remain some are over at europe site. I am a pacifist and don't get involved in much controversy because it makes me feel worse.
I have seen plenty of ugliness flying both ways. I have tried to get along everywhere including the chat. I don't particularly
enjoy being called ignorant or a fool. I know as a newbie who posted to help me and who didn't. I know that, at the core alot, of people at
europe site just don't want new folks to be misinformed or duped by misleading info. I really think some of the judgment is harsh and unfair.
I truly wish it would end.
There IS an entire website devoted to debunking MMS and Humble it isn't just europe site.
Posted by merrygirl (Member # 12041) on :
I will speak for most when I say that not every poster on LNE is part of the problem. Most people know who the trouble makers are.
That's what I did. I found some valuable info that had been posted there on Bionic 880 from a German site, but beyond that, when I read it for a few days, all new posts consisted of bashing posts from over here. If that is not the MOST unconstructive behavior I have ever seen. Even if I once liked some of those folks in their online personas, I don't think they understand how self-destructive and useless their activity is. They will rationalize that they are performing a public service that they were rudely banned from doing, a public service to prevent false, misleading, unscientific information about treatments from being promoted on "lymenut", but they are wrong. The reason they are doing it is they're still suffering and they are resentful they were banned, and so they've formed a little club of bashers. I was hoping I'd see good info and good posts there but I don't. If they want to become a solid, good resource for the type of information they think is valuable (on, say, antibiotic treatment) they should post on that. But they spend their time like a club of tittering highschool girls whispering about the clique they can no longer get into.
Of course, they aren't happy, they are suffering from lyme, so you can forgive them, but don't pay any attention to them.
Therefore, continue to post here. Don't waste *your* time reading what they write about you or you'll fall into their trap. I also find various yahoo groups valuable. Lyme-Aid Buhner is interesting, and also ProHealth (ImmuneSupport) has good info. Some smart info about mold toxicity there.
Posted by sometimesdilly (Member # 9982) on :
By the way-
I really hope that at some point the folks at LNE turn their focus on making the site the rich source for scientific and medical info its founder meant it to be.
I love Lymenet, and it is many things to many people, but IMO, it has never been organized or used in a way that made it easy to find purely scientific or medical resources here.
dilly
Posted by D Bergy (Member # 9984) on :
I have been following your posts with great interest, even though my time is real limited right now.
Whether your experiment works or not, you will gain some valuable information. As one experimenter to another, I appreciate you sharing your information.
My wife can not tolerate MMS due to stomach irritation, but most people can.
Everyone should be aware that your methods are experimental and if they are not comfotable using these methods they should not attempt to do so.
We still can learn a lot by following your progress. I hope you continue to post your results for my benefit and others.
Nothing notable is accomplished in this world without undue criticism. It just goes with innovation.
Thanks for the updates.
D Bergy
Posted by Dawnee (Member # 15089) on :
I've never been to LNE, and after reading that..never will. It seems like a lot of them just prey on other sick people. They have issues for sure.
Posted by jamescase20 (Member # 14124) on :
Again, thanks for your support.
Posted by feelfit (Member # 12770) on :
Igonore them James. Most of them cannot come to this forum to slam you because they have been banned.
That speaks for itself.
What you are doing is radical and brave, I for one look forward to your updates more than anything else posted.
Feelfit Posted by suki444 (Member # 4261) on :
Hi James As you know in the UK darkfield microscopy is used by one of our only LLMD's so I'm not sure how they can dispute this.
Emma
Posted by troutscout (Member # 3121) on :
James,
I left this board due to similar issues happening here...eventually they cleared it up and the harrassment sems to have ended...although I will say....just about everytine I start reposting here...those old ugly people raise their head on here.
In fact, I am surprised that some of these people are still allowed on this website.
trout
Unfortuanately....politics....seems to ruin everything.
Posted by Nobody (Member # 16041) on :
To lymenet europe:
STFU!
James, continue to research and report, please. All of us "nutcases" appreciate your findings.
Go watch Lorenzo's Oil... and see what a "nutcase" accomplished where doctors failed.
Stupid a*ses!
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by feelfit: Igonore them James. Most of them cannot come to this forum to slam you because they have been banned.
That speaks for itself.
Posted by sunshinyday (Member # 14337) on :
James,
I look forward to see what you have learned each day!
A well known biochemist told me that mms would take kill lyme. That's what he would do if he were me.
I'm on another protocol now but am watching and learning right along with you. If my protocol does not take care of all the buggers, I may try MMS.
What you do is appreciated by many of us.
Keep it up!!!!
Ignore them.
Posted by jamescase20 (Member # 14124) on :
Yes, mms works.
Posted by kelmo (Member # 8797) on :
Just an FYI
quote: Go watch Lorenzo's Oil... and see what a "nutcase" accomplished where doctors failed.
Lorenzo died six months ago.
Posted by Tracy9 (Member # 7521) on :
That's sad.....
Posted by Annxyz (Member # 9097) on :
James, I appreciate your determination to find a solution and applaud you . This is a " SAVE YOURSELF " disease , period . Everything is experimental. so I do not understand why so many criticize trying different approaches that are not life threatening .
Does MMS work on Babesia ? Can you explain MMS and where it can be found ? Thanks for your perseverence ! ann
Posted by jamescase20 (Member # 14124) on :
MMS was orginally meant for maleria in the african jungle.
So it should apply to babsia.
I already tx;ed babs for about 5 months, so surely theres not much left.
I would depend on mms to kill babs moreso then to kill lyme.
Posted by Blackstone (Member # 9453) on :
James.
If you want to really show them your method has validity, you need to take it to the medical community. Find a LLMD (seriously here- M.D. Not N.D. Not a "Provider". M.D. ) and have them confirm what you are seeing, AND be willing to take your cases to colleagues. I know you said that you had a specialist, but that person's credentials at both technical and clinical understanding of what they're looking at, could be called into question.
Edit: Also, have you considered tigecycline as an alternate efflux pump inhibitor?
Good luck to you.
Posted by yanivnaced (Member # 13212) on :
I've visited Lymenet Europe a couple of times. They're all so high on their own cleverness. If you want a forum for out-of-the-box ideas to get better, LN Europe is less than worthless.
I think a lot of LN'ers would agree that cave76 getting banned from here was one of the best things that could ever happen.
Posted by TerryK (Member # 8552) on :
Blackstone wrote: If you want to really show them your method has validity, you need to take it to the medical community. Find a LLMD (seriously here- M.D. Not N.D. Not a "Provider". M.D. ) and have them confirm what you are seeing
Blackstone, The ND's in my State have the same training as an MD and MORE. They are allowed to write prescriptions for pharmaceuticals. They *are* part of the medical community. There are a number of ND's who are members of ILADS.
Of course, not all States are the same as far as requirements but perhaps you should consider this when you make a judgement about the credentials of ND's.
I doubt that most people here feel a need to prove anything to the members of LNE.
James - look at the source - LNE - enough said. They have no credibility in my view.
Terry
Posted by Blackstone (Member # 9453) on :
Terry
Your state is the outlier, certainly. In many (I would say most) states NDs are not able to write prescriptions for allopathic pharmaceuticals, nor are given DEA numbers. There are only 15 states currently (according to the Wiki -http://en.wikipedia.org/wiki/Naturopathic_medicine) that "protect" ND as a title limited to individuals who have completed a certified program. Even fewer allow access to prescription medication. I'm sure that all those who pass through these accredited programs are worthy of becoming physicians, but in the unregulated areas there are many that ruin the name of the qualified NDs who are "on par" with MDs.
Also, I am speaking pragmatically as a member of the medical community - Since NDs are unregulated and un-certified in so many states and lets face it, there are many unqualified "alternative" practitioners making use of the title, it would make it harder for James to get his personal experiments public, if those overseeing them had questionable credentials. I'm not saying it is fair necessarily, or that James' specialist is unqualified, but unorthodox treatments are so easily dismissed as it is, and lots of good data will be lost on the general medical community if it isn't presented properly, "Getting all your ducks in a row", one could say.
Posted by jamescase20 (Member # 14124) on :
The only thing controversal about live blood microscopy is that one can only see invaders, you cannot for 100 percent sure be sure what the invaders are.
But, you can. Period.
Posted by heiwalove (Member # 6467) on :
james, you are in good company. most of us have been castigated over there at least once or twice. please pay them no mind. they seem to think they're still in their junior high school cafeterias. it's sad, really.
and in terms of lorenzo of 'lorenzo's oil,' yes, he passed away recently, but because of his family's tenacity he lived years and years longer than he was ever expected to.
Posted by lymie_in_md (Member # 14197) on :
Blackstone -- Some very good points about how to establish and why it is important to establish credibility. This is only important if we care about involving the orthodoxy.
I feel there is another avenue, one shared by Pam Weintraub when I asked about research and clinical trials, I can't quote her directly but my understanding is for all lymies to organize and do our own research. I think James is taking the first steps to getting us there.
I just saw my Doctor today and he uses ART to assess lyme levels. I have very little lyme left, his quote infintesimal. I tried Amazon C-F for the first 6 months of 9 months of treatment. It was my major lyme deterent besides MMS. I've been using MMS now for about 7 months. I believe it would have worked a lot faster with monolaurin, garlic and a good transfer factor.
To give you a relative view of my state of health. I played tennis these past two weekends 3 hours each day. I'm a lot better but not quite symptom free.
In my mind the best way to do a clinical study based on people who have to be monitored for over 6 months. I say we do it ourselves working with practitioners. We need to organize these efforts. This would also provide practioners information to help them as well.
Posted by sometimesdilly (Member # 9982) on :
pretty please, no naming and bashing of individual LNE members here.
for myself, i haven't commented here one way or another, James, about the merit of what you are doing.
i replied to say- personal attacks are needless and hurtful. doesn;'t matter whether they are over there or here- both are avoidable.
hugs, dilly
Posted by Pauline (Member # 10000) on :
I don't know anything about LymeNet Europe, nor do I care. What I do care about is checking this site every day for your updates. Please do not stop as the rest of us are desperately looking for answers and anxiously awaiting your findings. There's got to be a way to beat this and it's only going to happen through people like you who are determined and willing to take risks.
Posted by oxygenbabe (Member # 5831) on :
Bob (Lymie in MD) why did you do Amazon C-F rather than Spiro? I've heard Spiro is good and possibly considering it tho I'm not fond of mixtures as I may not tolerate one herb among a group.
Did you ever do abx?
Do you feel the MMS helped more than the Amazon C-F?
James, keep up the good work.
Posted by lymielauren28 (Member # 13742) on :
I'm reminded of Doug - the inventor of the coil rife machine. He and his family were horribly ill from Lyme disease. He actually wrote out a last will and testament because he thought he was dying.
But you know what else he did? He used his brain and realized that currents and frequencies could kill viruses and bacteria. Since he had a background in engineering, he realized that he could probably build a machine that could send these frequencies through the human body.
Sounds like a longshot right? But he did it anyways. He built a machine and then went out and got a microscope and a friend in a lab was able to get a petri dish of Lyme spirochetes. They veiwed the spirochetes through the microscope and ran the machine. It killed them. Shattered them actually.
While testing the machine on the 'chetes in the petri dish, he inadvertantly "treated" himself and experienced a massive herxheimer. That's when he knew that it worked. He went on to treat and cure his Lyme disease and his family's as well with his machine.
That's amazing! Innovative! I'm sure there were people that thought he was out of his ever loving mind, and had he listened to the naysayers, we wouldn't have rife machines today...and many people, including myself use them, and with success too.
Keep truckin James, I think you're on to something
Lauren
Posted by mojo (Member # 9309) on :
I used to go there - there are (although it's been a long time since I've been there)some nice folks there but I noticed anything beyond antibiotic treatment is not well tolerated.
A few months ago I saw a post that said "if a Lyme doctor believes in Rifing are they considered an LLMD?" and they weren't being mean or sarcastic - it was a serious question.
I spoke of my parastite cleansing and it was suggested (in a very polite way I have to say) that maybe there was a reason that I had parasites and they may actually be good for me.
I just quit going because I like to learn about as many alternative treatments as possible. I've learned to "never say never" with Lyme.
Posted by lymie_in_md (Member # 14197) on :
o2babe -- My doctor prescribed Amazon c-f. When he tested me with ART he tested me for ABX, I didn't test well for it, so he tested for an alternative Amazon c-f.
Yes I did try ABX over a year before seeing this doctor, at that time I wasn't sure what I had. I had minor symptoms and I was prescribed ABX, amoxycillin. I felt better initially from 7 day course, but 4 days after finishing that course I got a lot sicker. Went back to the doctor and got a 14 day course of another ABX. Same thing, after finishing the course of ABX, felt better for 4 days and then got really sick. 10 days later went to the emergency room and my wife suggested I might have lyme to the Physician, so he prescribed a tetra-cycline for 30 days. I got better for the first 2 weeks but this time even before I finished the course, I really got sick, almost deathly sick.
I believe I was very susceptible to yeast.
I thought I had sooo many other things and it took a little over a year when I met Dr. B. and he said you have lyme, mercury, lead and yeast. His testing also showed I was very sensitive to ABX, he recently tested me again for doxy for something else and decided on an alternative.
I started MMS and had it tested. My doctor was impressed in how well I tested for it. This was around february.
Today I was tested with almost a non-existent level for lyme. So, I'm in the process of repairing any remaining damage.
Posted by oxygenbabe (Member # 5831) on :
Sounds like you have a good doctor, Bob. You never ran a Western Blot, even an Igenex? Just curious.
Whatever you have/had, glad you're playing tennis and feeling well.
Posted by lymie_in_md (Member # 14197) on :
o2babe -- It just seemed to me if you have symptoms enough, why spend a lot of money on expensive tests. Just start treating, diet, supplements, chellation, dental doing your own research.
I had all the clinical symptoms of lyme and doctor who energetically tested me for lyme. As well as an EDS done by a very good practioner who found lyme. It is enough for me. I trust the energetic testing for lyme by practioners, who I consider excellent, to be more effective then blood tests. Just my opinion.
Posted by luvs2ride (Member # 8090) on :
Hi Bob,
I am one who really prefers testing. If you were just trying over and over again to get that elusive positive lyme test, I would agree. Don't waste your money.
But since clinical symptoms of many different sources overlap each other and the treatment for each source can be radically different, I think it is important to identify your source as much as possible.
For instance, lyme and yeast share many symptoms but abx for lyme actually encourages yeast, so the treatments are different.
My test results show many bacteria and parasites in addition to lyme and my doctor is dealing with each.
I'm happy to have the name of an enemy and a target to go after.
Luvs
Luckily, insurance has paid for most of my testing.
Posted by oxygenbabe (Member # 5831) on :
Bob, the real reason is that you may not have had lyme, and so your improvement on Raintree herbs and other modalities may be to a much less intransingent, virulent bacteria. Energetic testing, I think is valuable as a backup, but suppose you had some other viral infection or some other chronic infection, like chronic strep or something, and a candida infection on top of that because of abx. Then your situation wouldn't apply to those who have a more virulent, tested strain of lyme, and babesia and so on.
So though I am very glad you are feeling better, I have to rule out that you had lyme. Also, a number of lyme strains are mild and/or don't disseminate to the nervous system, making them easier to treat.
Posted by SForsgren (Member # 7686) on :
I find it insulting to suggest that someone may not have had Lyme simply because they relied on energetic testing. Would you say the same to someone in a wheelchair sick with Lyme that their doctor clinically diagnosed?
I just find it illogical to suggest that because someone is getting well that they may not have had Lyme to begin with.
Posted by lymie_in_md (Member # 14197) on :
o2babe -- my doctor is certain i have lyme. the amazon c-f herbs did work, not nearly as effectively as the mms again based on energetic testing. and yes there are complications with candida, strep (more specifically in my case streptocaucus aureus), he found mycoplasma, giarda, herpes symplex, and campylobacter. Not to mention, I was completely mercury / lead toxic in my years of having 50 amalgams in and out of my mouth. I now have "0".
o2babe if you want to trust blood tests over energetic testing. it is your choice, and i can understand why you wouldn't trust energetic testing -- it is really about the practioner and the practioners skill.
Speaking of skills, based on symptoms not blood work. How many folks have lyme or a coinfections based on symptoms and the skills of an llmd of which my doctor is an llmd and not blood work?
Posted by oxygenbabe (Member # 5831) on :
I did not mean to insult you in any way. It doesn't mean you weren't feeling very sick. It just means that because someone muscle tested you and concluded you have lyme, I don't necessarily believe it. I can't afford to believe it, actually.
Igenex tests are very reliable and usually don't miss these things.
It is hard to know what to say about subjective reports of energetic testing. For instance, we haven't heard from Clancy again, but though Dr. W "energetically tested" her husband to be free from lyme, he still had all his symptoms. Clearly he still had lyme.
Without a bullseye rash, history of known tickbites in endemic areas, or an Igenex test for lyme and babesia, I can't feel confident a person had/has lyme just because they were sick. Viruses can cause bad symptoms, so can chronic strep and staph for instance. This is not to minimize that you were suffering, nor to minimize that you are feeling well now, it is just to say that because a doctor claimed via muscle testing you had lyme and that now you don't, I can't trust that.
That is my honest assessment not meant to be an insult. I would hope you would understand why!
Posted by SForsgren (Member # 7686) on :
Sounds a lot like comments from someone that has not experienced ART themselves....
Posted by lymie_in_md (Member # 14197) on :
o2babe -- you didn't insult me at all. I perfectly understand why you might find someone who hadn't tested with igenex in your mind isn't conclusive for lyme. But I believe none of the blood tests are conclusive for lyme if negative including igenex, in my opinion. Granted igenex is the way to go for a blood test to prove lyme, if you want to go that route.
I think Scott is absolutely correct. You have to experience ART over time with a good practioner to understand its value.
If your opinion is ART as an energetic testing has no value. It is your opinion. 8 or 9 months ago, It was getting to the point I could barely walk, was considering disability. Had crawling sensation in my legs and arms. Constant flu like symptoms. I had many other neurological symptoms as well. It didn't seem to be just mercury or viruses or strep to cause severe symptoms of this kind.
The practioner stated I had lyme, it isn't what I think that is important. If you can see some of transformations I've made in 9 months. You might just give him the credit he deserves and respect his assessment. I know this is contrary to what you believe, and you know, that's ok. I'm just stating what I've experienced believe it or not. It's not my issue.
If you would like to talk to me directly feel free to PM me, I'll send you my info. I really do appreciate your posts and find them very respectful.
Posted by jamescase20 (Member # 14124) on :
Yes, I can understand why someone would question lyme without a conv test like the WB.
Thats why I had one done (WB) even though I knew I had lyme via the live blood.
But I did the blot, and sure enough, it was pos.
Posted by UnexpectedIlls (Member # 15144) on :
I dont understand... I feel like people contradict themselves a lot...
Everyone says Lyme is a CLINICAL dx and Labs mean nothing,... and than all of a sudden you all say NO You NEED to get the WB to PROVE lyme..
SO what is it... IS it a CLINICALl DX or a LAB DX
So pretty much what you are saying is that if a person has a negative WB, they DO not have lyme disease...
I think that goes against a lot of what ILADS says.
So if a LLMD clinically dx'd Bob with Lyme, he doesnt have it because he didnt get a WB?? Thats like him getting a negative WB and being told he doesnt have lyme.
I really think you need to read what you wrote.. You also said. If you have never had a bullseye.... Ummm HOW many people NEVER get a bulls eye.. You are really contradicting everything that LLMD's say and ILADS says...
This is why it is so confusing... So I guess my thoughts about not having lyme are exactly correct... I didnt have a Bulls Eye, I dont remember a tick, and I only had a positive IgG and not CDC positive...
Well there you have it! Lyme is a LAB diagnosed illness
Posted by lymie_in_md (Member # 14197) on :
Shandy -- I agree it is confusing, it is really a very confusing disease. I just remember Dr. Alan MacDonald got 10 alzheimer brain tissue samples and 70% of them had lyme. I bet none of them thought they had lyme. My point, if you have symptoms and they prolong more then a year, good indication you have lyme, why worry about tests, fight the disease as if you have it. Because when you fight lyme, you fight everything else anyways. IMO, I believe James and I certainly don't respect the opinions of LNE.
Jeanne -- ART is an advanced form of muscle testing, you have a substance like mercury in a vial and the practioner tests your muscle reaction. It is dependent on how good the practioner is, who maybe doing this for 1000s of patients over time. It becomes a technique. EDS is different, it is a biofeedback device, it sends a signal through your body and extrapolates based on the signal returned what is going on in the body. It is very similar to an EKG only far more advanced. Again this device is interpretive and is highly dependent on the skills of the practioner.
All energetic testing is based on the skills of the practioner. It is matter of reading a complicated document, some will get the points in it, some won't. Reminds you of a primary care physician, some are good some are not so good.
I got lucky and had two good practioners.
Posted by oxygenbabe (Member # 5831) on :
The problem with testing is the conventional testing. For instance, there is a young woman at my holistic doc's who is sooooooooo sick. She walks with a cane. She's in constant pain. She looks glazed over. She has a husband, 3 kids.
She has two positive bands on a western blot.
Her insurance says that is not a positive as it needs to be 5 bands. That's because of the idiot CDC.
Moreover, she lives in front of a sod farm and when they pull up the sod tons of ticks come out. She has pulled ticks off her dog. Her little girl got a tickbite this year with a 104 degree fever.
So, in such a case, you look at 2 bands, exposure to ticks, and you know you have a lyme case. But she can't get IV rocephin because of the CDC. etc.
That's why we say it's a clinical diagnosis. What else is left to us?
Igenex is very reliable, imo.
Unexpected, you mis-read what I wrote. I never said, "If you never had a bullseye." I wrote a list of indications for lyme disease, that I would rely on. A bullseye is diagnostic without any other indicator.
Also, an ART practitioner who suggests amazon herbs and MMS may be a good doctor but he is not an LLMD, imo.
I don't want to get into an argument here and I may be headed that way. If so, I'm going to bow out.
As for Scott, you've been on everything mainstream and alternative I can think of in the last few years. I don't know how you're doing actually. I don't know how to evaluate your situation because you try so many things at once.
Posted by lymednva (Member # 9098) on :
oxygenbabe said:
quote: Igenex tests are very reliable and usually don't miss these things.
You are confusing me here. You make the statement more than once that Igenex tests are very reliable.
Then you say if someone has two positive bands they have Lyme, even though that would be labeled a negative WB blot by Igenex.
I have never had more than two positive bands on a WB from Igenex, but have the clinical dx of Lyme.
I've also traced my symptoms back over 40 years, and I do know I had quit making antibodies by my early 20's.
IMO a negative Igenex WB does not rule out Lyme, which is why there are clinical dx's. However a positive Igenex WB definitely indicates Lyme.
BTW, James, keep up the hard work. We just worry about you sometimes because we don't want you to overdo it. It takes a lot of courage to do what you are doing.
Posted by heiwalove (Member # 6467) on :
no, lyme IS a clinical diagnosis. there are lab markers that can help indicate lyme, but even if one tests negative one can be actively infected and diagnosed clinically by an LLMD.
Posted by heiwalove (Member # 6467) on :
ps. i have found ART to be extremely reliable but it takes an open mind and a skilled practitioner and i realize not everyone has access to both.
Posted by Cold Feet (Member # 9882) on :
James, a constructive comment (hopefully)? How about creating a website of your findings -- photos and all? That would be cool...
Posted by jamescase20 (Member # 14124) on :
A website costs money, which I dont have at the moment.
Posted by SForsgren (Member # 7686) on :
OB - I am not working on my own health for purposes of others to evaluate it.
Everyone knows that Lyme is difficult. In my opinion, integrating conventional and alternative options is the most logical way to approach the disease.
I think you will find more and more treating docs that used to use ABX alone are also starting to change their views in this area and focusing more on detox, herbs, etc. Antibiotics are not the solution; though they may be a part of it.
I happily share my journey with others in hopes that they benefit from it but I am not looking for evaluation or validation from others (though I do appreciate feedback and learning from others) that my journey is the correct one for me. It may not be the correct one for others and then again it may well be.
As for ART, I'd happily toss every last conventional test into the garbage vs. losing the benefits I have gotten from the information revealed by ART.
Posted by oxygenbabe (Member # 5831) on :
To clarify again, two bands is a positive, but not by the CDC. However an LLMD knows that is a positive. The CDC is dishonest.
Posted by SForsgren (Member # 7686) on :
Actually, 2 bands on IgM IS positive even by CDC criteria.
This has been very constructive as far as getting to new points of view. I really appreciate lymenet. It continues to help progressively get us closer to the issues concerning our health. What I really appreciate most is the civility of our debates.
Hopefully LNE takes note, and somehow appreciates other points view in a civilized manner. As far as I'm concerned only a barbarian would use the bashing hammer on a fellow lymie.
I think james has given us a new weapon. The combination of monolaurin or lauricidan with MMS. I thank him for his efforts and we should all celebrate. Posted by Cold Feet (Member # 9882) on :
James, there are many ways to get a free web site; blogs, web sites and more. I wish I could help you now, but I am swamped. Others that can help James, pls PM him...
Posted by oxygenbabe (Member # 5831) on :
Yes I agree James' experiments are very interesting.
Scott--the webpage you cited states:
"There are currently multiple criteria that support a positive blot. "Positive" means that certain antibodies to B. burgdorferi are present. The CDC/ASTPHLD criteria are very conservative, require 5 of 10 bands (antibodies) for a positive result, and do not recognize equivocal or borderline results."
The CDC requires 5 bands. This has been true for a long time. This allows insurance companies to refuse to pay in many cases. That is what this poor woman is going thru and she's only in her early 30's and is really sick. I'm not sure what's going to happen to her. From my perspective she seems to be getting worse each time I see her.
Posted by Limecarnitas (Member # 15449) on :
Hey James how about shutting up those guys and posting the pictures day by day showing clearly all the keets and proving that MMS work? that would be awesome.
Posted by SForsgren (Member # 7686) on :
CDC requires 5 bands for IgG. They require 2 bands for IgM.
From the page I originally posted:
The CDC/ASTPHLD criteria for a positive result are two of the following three bands: 23-25 kDa (Osp C); 39 kDa; and/or 41 kDa
Posted by oxygenbabe (Member # 5831) on :
So what is your point, Scott? She does not have 5 positive IgG. She's been sick a while.
How does a person get 4 positive IgG and that's not enough evidence they have lyme? Its completely arbitrary and basically criminal imo.
And this is off topic of my point which is that if someone gets muscle tested and told they have lyme, and then muscle tested and told they no longer have lyme, that's not evidence enough for *me* especially on a message board. This is not against Bob and he understands where I'm coming from.
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