Good luck and do report back what you learn. I am sure others in your state would be interested.
PS... Might want to drop a quick note to your legislators in your state and ask them to check into it?
Posted by lou (Member # 81) on :
This is terrible. I don't understand how the revision in surveillance criteria could have produced this result. Why would it reduce the number of cases to have the lab evidence now accepting a western blot instead of just the two step process? Seems like there should have been more cases reported instead of less. My mind is boggled. This is sure something that needs to be part of any congressional hearing in the future.
Posted by Tincup (Member # 5829) on :
Yes, terrible for sure.
You said.. "Why would it reduce the number of cases to have the lab evidence now accepting a western blot instead of just the two step process?"
This is a complex situation... one I can't dig into right now.. but...
The new criteria state each state must be "endemic" which is translated to a variety of ways to determine that.
Missouri, for example, states there is no more Lyme there... only a "Lyme-like" illness. They are requiring each county to have evidence of ticks having Lyme in an official report .. ONLY Borrelia burgdorferi... before they declare the county to have Lyme.
OR... they require a minimum of 2 patients to meet ALL criteria (tests, symptoms, rash, engorged tick, etc) and have a skin biopsy of the rash proviong it is Borrelia burgdorfei... before that county is considered to be Lyme endemic.
Then there is the tests. The standard is tougher now.
Then there is the 3 categories. Instead of having Lyme or not.. there are waste basket categories now in which a health department person can toss a report if it doesn't meet all the requirements.
Not all of the categories will be counted.. and not so energetic workers who don't want to spend time counting cases or checking with labs and doctors offices will have a big trash can for a lot of the cases.
There are other reasons.. but the new criteria sucks. The cases HAVE to be lower now... too many easy "outs" for the government health departments to excuse away the cases... and tougher requirements to meet.
Posted by Clint31 (Member # 16420) on :
so only 22 people in ohio this year, and I'm one of them?
don't i feel special.
Posted by bettyg (Member # 6147) on :
i see IOWA has only 24 to date!! vs. 125+- than last year....
Posted by herxuk (Member # 15873) on :
It's called Massaging the figures, done on a regular bases here, to manipulate voters.
Used to reduce the look of Unemployment figures. To reduce the look of Hospital waiting lists.
Lyme, is Fibromyalgia, ME, and many other things, ETC, ETC, see I'v reduced the figures already. !!!!!
Posted by lymielauren28 (Member # 13742) on :
TC thanks for the heads up. There were 0 Lyme cases in Mississippi in 2005 - the year myself and my fifteen year old niece got Lyme - in Mississippi!!! She was even "lucky" enough to get the bullseye rash and test off the charts positive on her western blot!
And yes, her records were sent to the health department...I knew that they didn't report it, but seeing it in black and white...I cannot DESCRIBE the sense of anger and injustice I feel.
I really hope that the b$%^& that runs the show over there,(yes, we've spoken several times ) gets infected with the entire poisonous cocktail of TBI's, and then suffers for years from what we've all suffered from: misdiagnosis, disbelief from friends, family, the medical community, and the very agency she so proudly works for, and the severe pain, suffering and cognitive disfunction that chronic Lyme inflicts.
Thanks again TC, you've re-lit my fire!
Posted by lymielauren28 (Member # 13742) on :
Lyme Disease In Dogs, A Serious Matter For Everyone FOR IMMEDIATE RELEASE 13/01/2006 Veterinary launches website to prevent people and their dogs to catch the lyme disease, and gives information about this painful disease. In the United States , more than 90% of the cases occur in the Northeast, with California and Mississippi second.
Veterinarians know Lyme disease is a big problem in Mississippi. The Department of Wildlife and Fisheries knows Lyme disease is a big problem in Mississippi. When will our Health Department wake up?!
I'll never forget pre-diagnosis going to the ER for what I now know were seizures. I was going over my fifty or so symptoms with the ER doc and telling him everything I'd been tested for previously and all the specialists I'd seen - I could've filled a notebook by then - and he said, "You know, looks to me that you've had a pretty thorough work-up. If they didn't find anything wrong, how am I supposed to? I see about ten people a month with the same bizarre symptoms as you, and most of them never find out what's ailing them..."
Yes! His exact words! Disgusting.
Posted by nellypointis (Member # 1719) on :
Scare tactics resulting in doctors refusing to dx Lyme? What sane non-suicidal doctor wants to embark on diagnosing and treating patients for what they know to be Lyme disease when they know too well that it might mean a black mark against their name in several crucial places.
What is it again you have? ABL (Anything But Lyme)!
Posted by Wimenin (Member # 15294) on :
I know that in Wisc, I first had my LLMDs office contact me and ask for permission to send the positive test results to the state. Then I got an official letter from the state dept of health, telling me that I was one of several people who were positively confirmed via cdc standards for tracking. All of this, after the standard hmos said I didnt have it.
..Figures lie, and liars figure...
Posted by AliG (Member # 9734) on :
Maybe the people in CT charged with reporting to the CDC pulled all their hair out & quit?
It would seem that NJ had something to say about the inaccuracies in reporting.
Julie L. Gerberding, MD, MPH Director, CDC; Administrator, ATSDR
Dr. Julie Louise Gerberding, M.D., M.P.H., became the Director of the Centers for Disease Control and Prevention (CDC) and the Administrator of the Agency for Toxic Substances and Disease Registry (ATSDR) on July 3, 2002.
Before becoming CDC Director and ATSDR Administrator, Dr. Gerberding was Acting Deputy Director of National Center for Infectious Diseases (NCID), where she played a major role in leading CDC's response to the anthrax bioterrorism events of 2001.
She joined CDC in 1998 as Director of the Division of Healthcare Quality Promotion, NCID, where she developed CDC's patient safety initiatives and other programs to prevent infections, antimicrobial resistance, and medical errors in healthcare settings.
Prior to coming to CDC, Dr. Gerberding was a University of California at San Francisco (UCSF) faculty member and directed the Prevention Epicenter, a multidisciplinary research, training, and clinical service program that focused on preventing infections in patients and their healthcare providers.
Dr. Gerberding is an Associate Clinical Professor of Medicine (Infectious Diseases) at Emory University and an Associate Professor of Medicine (Infectious Diseases) at UCSF.
She earned a B.A. magna cum laude in chemistry and biology and an M.D. at Case Western Reserve University in Cleveland, Ohio. Dr. Gerberding then completed her internship and residency in internal medicine at UCSF, where she also served as Chief Medical Resident before completing her fellowship in Clinical Pharmacology and Infectious Diseases at UCSF. She earned an M.P.H. degree at the University of California, Berkeley in 1990.
Dr. Gerberding is a member of Phi Beta Kappa, Alpha Omega Alpha (medical honor society), American Society for Clinical Investigation (ASCI), American College of Physicians, the American Epidemiology Society, and is a Fellow in the Infectious Diseases Society of America (IDSA). She chaired and co-chaired IDSA's Committee on Professional Development and Diversity, was elected to serve as a member of the Nominations Committee , and co-chaired the Annual Program Committee.
Dr. Gerberding is a member of the Society for Healthcare Epidemiology of America, and previously served on its board for 3 years.
In the past, Dr. Gerberding served as a member of CDC's National Center for Infectious Diseases' Board of Scientific Counselors, the CDC HIV Advisory Committee, and the Scientific Program Committee, National Conference on Human Retroviruses. She has also been a consultant to the National Institutes of Health, the American Medical Association, CDC, the Occupational Safety and Health Administration, the National AIDS Commission, the Congressional Office of Technology Assessment, and the World Health Organization.
Dr. Gerberding's editorial activities include appointment to the Editorial Board of the Annals of Internal Medicine. She is also Associate Editor of the American Journal of Medicine, and serves as a peer-reviewer for numerous internal medicine, infectious diseases, and epidemiology journals.
Her scientific interests encompass patient safety and prevention of infections and antimicrobial resistance among patients and their healthcare providers. She has authored or co-authored more than 140 peer-reviewed publications and textbook chapters and contributed to numerous guidelines and policies relevant to HIV prevention, post-exposure prophylaxis, management of infected healthcare personnel, and healthcare-associated infection prevention.
Dr. Gerberding resides in Atlanta with her husband, David, who is a software engineer. Dr. Gerberding relaxes by scuba diving, reading on the beach, gardening, and doting on her three cats.
Posted by bettyg (Member # 6147) on :
quote:Originally posted by gemofnj:
Who reports to the CDC that you have lyme. I know I didnt.
Does the testing agency have to report it to the CDC?
when i was diagnosed 4 years ago, it was up to the dr. CLINICALLY DIAGNOSING YOU OR their blood lab to contact your STATE'S HEALTH DEPT., who in turn the numbers into CDC!
i've discovered all states do NOT do this! i do not know how this presently is handled!! *********************************************