Does anyone have severe back pain all the time with Lyme?
Posted by anthropisces (Member # 15672) on :
I became aware of Lyme due to back pain. My experience is that Lyme may exaggerate what would otherwise be a mild symptom.
Hands, arms, feet, etc. may "fall asleep" much more readily, and back pain is much easier for me to incur. Last year, I declined to lift anything weighing more than 20lbs due to the ease with which pain occurred.
Something about me profoundly changed, after much searching I found that I have Lyme. Those changes first manifested themselves as back pain. Later, a very diverse set of symptoms appeared, some of which were really not good.
So in my experience, someone with bad back pain might have it because of Lyme. I am not though a medical professional. I'm just another guy on this site with Lyme disease.
Posted by GraceT (Member # 16558) on :
Hi - Sorry that you are having pain in your back. My husband is long-waisted. He has back trouble. I have Bb, but no back trouble. We are getting hubby test and results should be back soon.
Lot of writers said that they have backaches when they wake up.
Have you tried mangostein, ZRII, or Xango? There is something in these juices that helps reduce inflammation.
Our physical therapist told us that we need to strength the long back muscles. To do this, he said to get on the floor on our stomach with arms by our sides. Next, raise your head & chest area ten times.
We are supposed to work up to 30 of these. Whew. I still do ten, but know I need to get back it. Evidently, this therapeutic movement strengths the back, and does some simple stretching. Go slow - take it easy.
These simple stretches help my back, neck and shoulders. Since I'm already on the floor I do a few more stretches ~ feels great to get ready for the day this way...well, better than if I don't do these.
**As Lyme Disease progresses, a person may experience unrelenting fatigue, fibromyalgia-like symptoms, facial paralysis(Bell's Palsy), liver and/or spleen enlargement, severe headaches (migraines) and abnormalities in heart rate and rhythm.
**In the latest stages of Lyme Disease severe cognitive impairment can occur with continued fatigue (chronic fatigue), joint pain or swelling, stabbing and/or burning sensations, persistent backache, stiff neck, degenerative muscle and nerve disease as well as permanent disability.
**In rare cases, death can occur. It is important for those patients that experience late stage Lyme to seek the care of a Lyme-literate physician as long term treatment may be necessary to prevent permanent disability and further damage to bodily systems.
Another thought... How is your bed doing to support your back? I had to search for weeks to find a bed that worked for me. We left it outside, leaning against the house to off-gas, and then covered it with extra pads, sheets, etc. to make sure I could not smell it. New mattress really helped up both.
I know the original questions was: Does anyone have severe back pain all the time with Lyme?
The simple answer is ``Yes''.
We are interested in the possibility of being treated by Bionic 880 or Bioscan, or any of those therapeutic light devises. Do a search on it and I think you will interested also.
My daughter's main symptom now is back pain. Unrelenting back pain.
MRI's have shown nothing abnormal. Blood tests are normal...no rheumatoid arthritis issues.
It was one of her first symptoms, so we hope it is the last to clear.
Some neurological/psychiatric stuff is still be treated by anti-depressants. Not sure if she will ever get off of those. We hope.
Wish I could give you some advice...sorry you are in pain.
Posted by sparkle7 (Member # 10397) on :
Yes. I have had back pain for many years. It's mostly my lower back but it migrates around to other areas like my shoulders & neck.
My lower back has been in pain for a long time, though. I had problems with it before Lyme but it's worse now.
I really don't know the mechanics of why Lyme seems to affect the back. Maybe the spirochetes set up colonies there in the collagen or muscle tissue? Some people seem to get it worse in the knees but my knees are OK.
Posted by kylasrain (Member # 12031) on :
Yup, back pain is my biggest problem as well. It was also my first symptom and started my Lyme quest after MRIs and other tests showed my back was 'fine'. Like the others, the pain also migrates into other areas like my left shoulder and my neck, but the back pain persists. Other crazy weird symptoms later followed and I eventually tested for Lyme.
I still wake up feeling like I got hit by a bus, and for me, those back-strengthening moves make it worse. Warm baths before bed and frequent 'breaks' thought the day with varied positions which take the weight off my spine are the only things I've found to work.
Posted by lymeHerx001 (Member # 6215) on :
mattress
Posted by kelmo (Member # 8797) on :
Bringing this back up.
Today, my daughter got the results of her thorasic MRI. Every disk is buldging with inflammation!
It's been bad for years, and we haven't been able to get the doc to really look into it.
We just thought it was part of the entire inflammation problem.
But, the infection has set up house in her spine, and now she has to go to a pain specialist to inject something in her back.
She is also starting plaquinil.
Good news, though, her autoimmune level is now negative!!!! Yay! Her sed rate that was 34 two years ago, is now 4.
We are going in the right direction...
As the tie fighter pilot said in the original Star Wars (the best, IMO)..."almost there"
Posted by lymeHerx001 (Member # 6215) on :