[ 11-23-2010, 10:15 PM: Message edited by: sixgoofykids ]
Posted by hiker53 (Member # 6046) on :
up
Posted by randibear (Member # 11290) on :
don't know much about it, but i've heard it's expensive. you have to buy everything from his office, and he's not a medical doctor.
i think there was some questions about his credentials or something.
i'd investigate....
Posted by TerryK (Member # 8552) on :
Sorry, I haven't tried it but Dr. J is a chiropractor I believe. That is a legit doctor.
Many chiropractors treat holistically for a number of illnesses, not just structural.
Terry
Posted by Sparrow (Member # 11734) on :
We did not try his whole protocol for my daughter, but tried his Neuro Antitox.
The first time we tried it, it was capsules and I thought it helped.
She was given steroids without our knowledge and got really sick. We stopped most everything to figure out what was happening.
We ordered again last year and it was only in drops. It did not seem to work as well as the capsules.
That is the only information I can pass on to you.
Posted by bears1985 (Member # 17271) on :
I know some people who have been completely cured by Dr J. Absolutely no symptoms...for years.
[ 11-23-2010, 10:13 PM: Message edited by: sixgoofykids ]
Posted by hiker53 (Member # 6046) on :
Thanks, more replies would be helpful.
Posted by m0joey (Member # 13494) on :
did absolutely nothing for me
Posted by hiker53 (Member # 6046) on :
.
Posted by CherylSue (Member # 13077) on :
Snake oil, I believe. Only one person claims it helped them, and they are on another forum.
I did purchase their neurotox formula ($60 non-refundable) before I did the research and found that the ingredient in the formula was very toxic.
Buhner's herbs have more a success rate, and Cowden's herbs are helprul for following up after abx.
BTW, how is work going? Are you still hanging in there? Have you tried methylcobalamin B12 shots? They're the only thing that's keeping me going at work.
Hugs, CherylSue
Posted by hiker53 (Member # 6046) on :
CherylSue,
I am taking work one day at a time. Missed 1/2 day due to my mycoclonus seizures, but am making it.
My vitamin B12 is actually high in the blood tests, so I don't need shots.
I just need a cure--LOL. Thanks for asking. Hiker53
Posted by lymie tony z (Member # 5130) on :
Dr. J's protocol can take a hike!
Worthless!
nuff said.
zman
[ 11-23-2010, 10:15 PM: Message edited by: sixgoofykids ]
Posted by TerryK (Member # 8552) on :
zman - what is your experience with the protocol? When did you take it? How long were you on it? What exactly did you try from his protocol? Were you under the supervision of a doctor? If so, what kind of doctor?
Thanks, Terry
Posted by hiker53 (Member # 6046) on :
Tony Z
Just curious if you have actually tried Dr. J's protocol? As I said before I am interested in knowing successes and failures of those who have tried it.
Hiker53
[ 11-23-2010, 10:16 PM: Message edited by: sixgoofykids ]
Posted by seibertneurolyme (Member # 6416) on :
Not exactly sure how to answer your question.
Hubby's experience is different than most because this is the first protocol he tried -- back in 2002 -- had had no antibiotics at the time.
He ended up in the hospital a couple of times and in the psych ward once. It is entirely possible that he would have had the same reaction to antibiotics.
In my opinion, the Borrelogen definitely did something, almost worked too well in fact. Definitely feel it is overpriced. We actually spent about a month in Kansas working with Dr J (chiropractor). Unfortunately his detox protocol did next to nothing to help hubby.
Detox included Detox footbaths, chiropractic adjustments, massage, chi machine, baths as outlined in his books (epsom salts, mustard, hydrogen peroxide).
The Wobenzyme protocol is what finally landed hubby in the hospital where he was unconscious for 15 hours one day and had abnormal slowing on his EEG (encephalopathy). 11 Wobenzyme 3 times per day was way too high a dose to start out with in my opinion.
The patients who seemed to have some success on the protocol all had arthritic symptoms rather than neuro symptoms if I remember correctly. Also had had prior antibiotic treatment.
I have always wondered how hubby would react to the Borrelogen now, but have not tried it again.
Spent several thousand dollars and the only positive is that he did get a positive PCR test for Lyme from IGeneX.
Back then we knew next to nothing about Lyme and coinfections and did not have a computer or even know about LymeNet. Took a chance on the J protocol because hubby had worked for over a year to get rid of G.I. parasites and didn't think he could tolerate high dose antibiotics.
As with any protocol, I would suggest you start slow and see how you respond. can't really say if it will help or not.
This is not medical advice, just info based on hubby's experiences.
Bea Seibert
Posted by hiker53 (Member # 6046) on :
Thanks for the details, Bea. I am just looking at options and some on another forum have had good luck.
My symptoms are neuro, although not cogniive and no arthritis.
I believe the alcohol in their tinctures is grain and not potatoes or corn, so I couldn't do that anyway. Hiker53
Posted by capebite (Member # 9789) on :
If someone can have Bea email me her PM is full. I have emailed a few times with no success. I have fry bug (fry Lab), babesia, anaplasma (spirostat). Did start Dr. J yeast ease a few days ago and started herxing badly. Felt it was gettting much more than yeast but could not verify. Ended up in ER yesterday as the shaking chills was so bad thinking I needed mepron zith as noone on Cape Cod will give. But I think it was a bad herx and need input and to be in touch. Lisa
[ 11-23-2010, 10:17 PM: Message edited by: sixgoofykids ]
Posted by Keebler (Member # 12673) on :
- Someone above questioned if he is a medical doctor. Yes, he is. His specialty is chiropractic medicine (D.C.). In addition: D.N.M. - certification in Botanical Medicine through the University of Colorado, School of Pharmacy.
. . . He brings a unique perspective to the treatment of chronic illness, having owned a German pharmaceutical company, Jomol Pharma, GmbH (founded by Dr Udo Ehrenfeld, M.D.), with patents in 18 countries and, founder of an American nutraceuticals company, Jernigan Nutraceuticals, having personally developed over 30 novel natural medicines to date.
He is one of the most experienced doctors in the U.S.A. in one of the latest FDA approved adjunctive diagnostic tests, Computerized Regulation Thermodiagnostics.
Graduating with a Bachelor's degree in Nutrition with honors from Park University, he received his doctorate at Cleveland Chiropractic College-KC.
Post Graduate studies have taken him far and wide, studying natural and anthroposophical medicine in Germany and Biological Medicine with Dr. Rau of the world-renowned Paracelsus Klinic of Switzerland, with later studies providing certification in Botanical Medicine through the University of Colorado, School of Pharmacy. . . .
======================
Gary has had wonderful results. See his last link below in this set regarding Dr. J's methods:
Topic: gwb Hansa Center *****Newest Update ****** -
[ 11-23-2010, 10:18 PM: Message edited by: sixgoofykids ]
Posted by arkiehinny (Member # 26546) on :
I must say that Dr. J's protocol works for many. It is nearly identical to the treatment of the Maximized Living doctors of chiropractic. www.maximizedliving.com. Getting the spine corrected so the central nervous system has no interference is essential to healing.
I didn't start feeling normal until I started chiropractic with a Maximized Living doc. I'm telling you, it works. I'm going for an adjustment today...I go 2-3 times per week plus do rehab at home.
I wouldn't rule out chiropractic care and massage therapy. It goes a long way to healing.
Posted by Keebler (Member # 12673) on :
- Just be sure to never let anyone to a quick sudden twist of the neck. That can be very dangerous with lyme and cause some major problems regarding spirochetes in the spinal cord and in the brain - and rip tender tissue that is just not the same in a lyme patient as in someone who does not have lyme.
There are also some very gentle techniques that are much safer for lyme patients who have serious neck issues.
There may be some similar to this but it's the one that works for me: The UPLEDGER INSTITUTE's method of cranial-sacral therapy is a good choice for those with lyme. While spinal adjustments cannot treat the infection, they sure can help with the body balance so that healing is better able to occur.
Still, for many years, every 3 week, I had cranial-sacral tx but with very little attention to lyme treatment other than what I could figure out for myself. The spinal adjustments helped but did not at all attend to issue of lyme, without specific lyme treatment.
HANSA CENTER and Dr. J go far beyond the body mechanics, though. --------
Topic: How to find an ILADS-educated LL ND (naturopathic doctor), L.Ac. (acupuncturist), herbalists, nutritionists, D.O., D.C., etc.
BODY WORK LINKS here, too. Scroll down to near the end of the thread. -
Posted by Hoosiers51 (Member # 15759) on :
The only two groups I consider to be "medical doctors" are M.D.'s and D.O.'s, which both go to what people call "medical school," and have to take the MCAT exam to get in.
I'm not saying D.C.'s or N.D.'s (naturopathic doctors) don't know just as much about the human body, just that they aren't the same thing. They aren't certified through the same organizations as say, your family MD or DO.
What was said about chiropractors being a speciality is a little misleading. A D.C. is not a specialty under the umbrella of M.D's (like OB/GYN is a specialty), or even D.O.'s, though D.O.'s are closer to what D.C.'s do. Chiropractors are members of different organizations than M.D.'s and D.O.'s (D.O. is another kind of medical doctor, that is more wholistic...they are normally family doctors, like a general practitioner).
Then, of course, there are PhD's. I consider chiropractors to be more like PhD's, personally. But all 3 groups (medical doctors, doctors of chiropractic and naturopathic med, and Phd's) are referred to as "Dr. Smith."
Posted by randibear (Member # 11290) on :
i went to a chiro once and he "popped" my neck. i was ill for months. my neck hurt something awful.
later i got x-rays which showed i had bulging discs (i didn't know i had them) so having an adjustment was the worst thing for me.
i'm sure they help some but if you have any pain at all in your joints, i'd say no.
as for Dr J, i've heard good and bad. but i do know it's expensive.
**edited out the LLMD's name**
[ 11-24-2010, 11:00 AM: Message edited by: Lymetoo ]
Posted by ott70 (Member # 18237) on :
I went to the Hansa Center, twice. I enjoyed my visit the first time that I was willing to go back a second time. Dr. J is one of my favorite "doctors" that I have dealt with when it comes to Lyme.
No, he doesn't crack necks or backs. He believes in light chiropractic adjustments.
Yes, it's expensive. I have stated a few times in this forum that it is expensive since insurance doesn't cover it. If we went to our normal doctors without insurance and got the same amount of care from a one week visit with Dr. J, then I guarantee that the normal doc's fees would be astronomical compared to what Dr. J charges.
That being said, a lot of us don't have the $6K to $10K to plop down for an initial two week visit to his center. I live in Colorado, so I was able to at least make the 8-10 hour drive to Wichita.
Some don't like what he does. Nothing unusual about that. I don't like some regular doctors that other people rave about. Dr. J is not malicious in what he does and I never had a feeling that he was trying to pull a fast one on me.
I do have a feeling that Dr. J could charge less but I don't know what his expenses are to run the clinic. He did just recently build a nice building for his clinic and is located right next to the hotel that they recommend to stay at. I haven't seen him driving a Porsche or acting holier than thou like some doctors do.
I don't think there's any alcohol in his tinctures anymore but I could be completely wrong on that. If there is, I believe he has a way to offer a non-alcohol solution.
The supposed toxic plant in one of his remedies, if not a few of them, is not an issue. I addressed this with him and he gave me a satisfactory answer. I have taken probably 20-30 bottles of his tinctures with more help than harm.
There is a longer thread regarding the Hansa Center and Dr. J. I think it is called GWB's Clinic Visit or something like that. I suggest searching for Hansa and you should run across that thread with more than 200 responses.
Posted by ott70 (Member # 18237) on :
Form your own opinion after looking through the thread. I'm not employed by them and I won't push them on anyone. It's expensive but I liked it and I would go back if I could afford it.
Posted by gwb (Member # 7273) on :
ott70, thanks for posting the thread I started. I credit this protocol for saving my life. I'm still on it but take less remedies now and am doing pretty good most days.
My main issue that we haven't been able to resolve totally is the left side abdominal pain. However, two days ago I read an article about IBS and vitamin D. Apparently there is some scientific evidence, that if you have IBS, it could be related to being low in vitamin D.
In fact, the survey shows that almost everyone who has IBS is low in vitamin D which I found very interesting. SInce I'm low on vitamin D I decided to go from 4000 IU a day to 10,000 IU a day just two days ago, and believe it or not, I've noticed a big improvement already. Whether it's a fluke or related to the increase in vitamin D, I don't know. Only time will tell.
If you do a google search on IBS and vitamin D you'll find that many people experienced improvement in their abdominal pain after taking more vitamin D. Just thought I'd share this information in the event those of you with IBS pain might want to give this a try.
Get tested first to make sure you're low on D (most of us with lyme are) and if you are low start off with 2000 IU (or whatever your doctor suggests) and keep working up until you no longer experience pain. I was taking 4000 IU daily and it did nothing for me, but when I went to 10,000 IU I noticed immediate improvement.
Gotta be careful about doing this for too long as it could become toxic if you get too much. But my recent tests showed I'm still low even after being on vitamin D for a year, so it's not really something to worry about if you're as low as I was, and still am. But still, get tested at least every six months to see if your D levels are going up, if not, then you can increase it to higher levels.
I'll keep you posted on whether or not this increase in vitamin D continues to help me with the IBS pain. I sure hope it does because it's really gotten bad lately. If it helps me, maybe it will help you too.
Gary
Posted by gwb (Member # 7273) on :
By the way, I'm taking Carlson Vitamin D3 (Cholecalciferol) in case anyone is wondering.