I will be traveling to see Dr. H in Redwood City tomorrow.
I have an appointment for myself and for my son who is 20 months old. We are both chronic.
I was wondering for those of you who see Dr. H., what does he tell you about your prognosis?
I mean, I'm still unclear as to whether I can hope to be cured or if I can just hope to feel better.
I'd really like to know that a cure is possible even if it takes years...I just want a cure as in gone for the rest of my life (and a cure for my son, as well).
Does Dr. H. tell you to hope for this or is it just not possible and you will always end up relapsing eventually even if you get off antibiotics at some point? Thanks guys,
Lymer
Posted by kam (Member # 3410) on :
Wow. I hope you have a safe trip. So sorry to hear both you and your wee one are sick.
There is hope.
Dr. H will answer that question for you.
The more you are on the board and in a support group the more you will see people getting well.
You just might get to meet someone in the waiting room who has recovered.
Posted by Lymetoo (Member # 743) on :
There is great hope for recovery and for getting your life back. I did [never saw Dr H].
But we don't use the word "cure" around here.
Hang around here so we can help you through treatment. You will have many questions!!!
If there's an LLMD on the west coast that can get you there, it's Dr. H. He'll probably give you a prognosis at your first visit. He has worked miracle turnarounds for patients, but many patients have seen him for years without much improvement.
But that is a reflection of the complexities of treating lyme and it's many co-infections, not a knock on his competence. He is as competent and open-minded of a LLMD as you will find. You are good hands. Depending on your budget, I would also work with an expert in muscle-testing to help shape your antibiotic & supplement regimen. He will recommend one for you if you ask.
Where are you located lymer?
-joey
Posted by Squeegee (Member # 7219) on :
I agree with all of the positive things already said about Dr. H.
I saw him for two and a half years and he really did wonders for me. I probably had (undiagnosed) Lyme for 30 years and got reinfected some time in the 1990's.
At my first visit he told me that there was no set end point of treatment. It just depends on how well the person responds to treatment and also patient compliance.
Follow all of his recommendations and prescriptions faithfully to give yourself the best chance of getting better.
As always, progress is individual depending upon bacterial load, coinfections and other elements of the "body burden".
Dr. H will address all these things and it will be your job to follow through.
Good luck to you and I wish you and your son good health in the future.
Posted by SForsgren (Member # 7686) on :
I don't think there is a cure and for the most part, I would probably walk away from most practitioners if they made such a claim. I see Dr. H. and have the utmost of confidence in his work, but also have realistic expectations given today's current treatment options.
Posted by Keebler (Member # 12673) on :
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I, too, was on the hunt for a "cure" but that word is really loaded. I was crushed when doctors would say there is no "cure" (well, the ones who really understand this, anyway).
Still, it is possible after the body burden is lessened that you and your son will feel better.
I like the idea of a "solution" - as Singleton's book suggests in the process of it all. There may be on-going self-care and having a mindful attention but many have gone on to live good lives - even while on treatment. (Although, at first, treatment can be very intense, so be prepared. So many think with the first pills they will be bouncing back to previous highs. A realistic view does help.)
If liver and adrenal support are in place, you have a much better chance of feeling better.
It is a process. And it is VERY complex - involving much more than lyme, really. So be kind to yourself and do keep that light of hope alive for feeling better.
I don't know how familiar you are with treatment protocols, so these books listed below might be good to read through before your appointment.
Some of the self-care guidelines are good to know in advance, too.
Even if your doctor has his own methods, the Singleton book will provide some familiarity with why things are done in a certain order or combination. The other books will offer background in the supplements.
I hear your doctor uses some of the supplements in these books.
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This book, by an ILADS member LLMD, holds great information about pharmaceutical and complementary treatments: