I am glad I have came across this forum because of the fact that I didn't know this much about a disease which I figured would come and go. Now 10 years later and the whole time I have been thinking it is an hereditary form neuropathy called Charcot marie tooth disease. This is because that is what my mother was diagnosed with.
Now I know that the bacteria can remain dormant in the body and appear years later. Also, I could have gave it to my mother. I am realizing that borreliosis is pretty sneaky. Wow!
So, it has to be possible that my symptoms of numbness in hands and feet at time, muscle spasms, fatigue, soreness in calf muscles, ringing in ears,and inability to concentrate,,could be the lymes out of remission. What do you think?
I was bite by at tick at 16 ( now 26 ) and 3 months later was tested by the family doc. Blood test came back positive. He treated me with only one month of Doxy. Then sent me on my way thinking that was it. Was I under treated? From what I have been reading maybe.
How uneducated some people (docs and me included) are about this bacteria. I wish all doctors knew as much about this as an LLMD. I probably wouldn't be writing this.
I now have just realized this may be lymes. I guess now I need to get the test done, go to an LLMD? Which one first? I don't know I am honestly new to all this information. Confused I guess.
Please feel free to leave your input on this Topic.
Thank You, Stuman455
Posted by Lymetoo (Member # 743) on :
uh.....How would you have given it to your mother????
Lyme Disease Symptoms List
1. Unexplained fevers, sweats, chills, or flushing 2. Unexplained weight change--loss or gain 3. Fatigue, tiredness, poor stamina 4. Unexplained hair loss 5. Swollen glands: list areas____ 6. Sore throat 7. Testicular pain/pelvic pain 8. Unexplained menstrual irregularity 9. Unexplained milk production: breast pain 10.Irritable bladder or bladder dysfunction 11.Sexual dysfunction or loss of libido 12.Upset stomach 13.Change in bowel function-constipation, diarrhea 14.Chest pain or rib soreness 15.Shortness of breath, cough 16.Heart palpitations, pulse skips, heart block 17.Any history of a heart murmur or valve prolapse? 18.Joint pain or swelling: list joints_____________ 19.Stiffness of the joints, neck, or back 20.Muscle pain or cramps 21.Twitching of the face or other muscles 22.Headache 23.Neck creeks and cracks, neck stiffness, neck pain 24.Tingling, numbness, burning or stabbing sensations, shooting pains 25.Facial paralysis (Bell's Palsy) 26.Eyes/Vision: double, blurry, increased floaters, light sensitivity 27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity 28.lncreased motion sickness, vertigo, poor balance 29.Lightheadedness, wooziness 30.Tremor 31.Confusion, difficulty in thinking 32.Diffculty with concentration, reading 33.Forgetfuiness, poor short term memory 34.Disorientation: getting lost, going to wrong places 35.Difficulty with speech or writing 36.Mood swings, irritability, depression 37.Disturbed sleep-too much, too little, early awakening 38.Exaggerated symptoms or worse hangover from alcohol
The following signs/symptoms may be present in those infected with Babesiosis: Fatigue Arthralgias Myalgia Drenching sweats Headaches Emotional lability Depression Dark urine Splenomegaly Dizziness Nausea and vomiting Cough Dyspnea Fever Chills Hepatosplenomegaly Jaundice Malaise Shortness of breath Bleeding tendencies, bruising Thrombocytopenia Hemoglobinuria Hyperesthesia Pulmonary edema Encephalopathy Low to normal range leukocyte counts Possible elevated levels of dehydrogenase, bilirubin, transaminase* Anorexia Approximately 25%- 66% of Babesia patients are known to be co-infected with Lyme disease. These symptoms may continue for long periods of time, decrease, then return. A low Babesiosis titer (IgG) often indicates a chronic infection. An acute or current infection may show a higher reading on the IgM test initially. There are over 100 species of Babesia in the United States but only ONE or TWO species are currently checked by commercial labs.
BRAIN: Encephalopathy may occur 1-6 weeks after the initial infection and is fairly common in patients with Bartonella. Note: Approximately 50 percent of patients who develop Encephalopathy can be affected by seizures (from focal to generalized, and from brief and self-limited to status epilepticus). Headaches, Cognitive Dysfunction, and CNS Lesions may be evident.
RASH AND LYMPHADENITIS: Erythematous papules (red splotches or slightly raised red spots) may develop.
Such papules occasionally occur on the lower limbs but are more common on the upper limbs, the head, and neck. The papules may appear on the skin or mucous membranes.
Bartonella may also cause subcutaneous nodules, with some bone involvement possible. The nodules may show some hyperpigmentation, be tender, fester, and/or be enlarged or swollen, but not always.
EYES: Conjunctivitis, Bartonella Neuroretinitis, Loss of Vision, Flame Shaped Hemorrhages, Branch Retinal Artery Occlusion with Vision Loss, Cotton Wool Exudates, Parinaud's Oculoglandular Syndrome, and Papilledema.
BONES AND MUSCLES: Osteomyelitis, Myositis, Osteolytic Lesions (softening of bone), Myelitis, Radiculitis, Transverse Myelitis, Arthritis, Chronic Demyelinating Polyneuropathy.
HEART: Endocarditis, Cardiomegaly. Possible lab findings: The following may show up during standard testing:
X-ray of the bone may show areas of lysis or poorly-defined areas of cortical destruction with periosteal reaction. Cardiomegaly may show up on a chest X-Ray.
Biopsies of lymph nodes reveal pathology often indistinguishable from sarcoidosis.
Reports of biopsies strongly suggestive of lymphoma do occur.
Tests occasionally show an enlarged liver with multiple hypodense areas scattered throughout the parenchyma.
Posted by stuman455 (Member # 17823) on :
lymetoo: About my mother. She has been diagnosed with a form of noropathy that could be lymes if that maybe when I was about 18 i gave it to her. I thought it was blood borne and could be transferred to another person. Maybe I was misinformed. Still learning sorry Makes since I guess, lymes would not be transferred like a cold when I think about it. Blood borne not air-borne. LOL
Posted by bettyg (Member # 6147) on :
stu,
please copy your entire post and copy it to a NEW POST in SEEKING DR. FORUM.
1st, NO LLMDS IN KENTUCKY & ARK. *********************************
1 IN TENN; 1 IN LOUISIANA.
please show what states you would drive to in SUBJECT LINE.
GO TO bottom left corner and mark box to receive all replies; click send when done. we'll help you out.
meanwhile...read/print off dr. burrascano's lyme guidelines below ok!
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying; so specific titles get our time/replies. non-specific ones, i sob, scroll on by!
Also, please be very specific in the subject line what you will be discussing so more people will be able to assist you.
Dr. Burrascano's most recent "Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @ http://www.ilads.org/burrascano_0905.html suggests that you discuss with your doctor continuing treatment until you are symptom free for 2 months.
please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! @ http://tinyurl.com/58eyou
***************
Posted by stuman455 (Member # 17823) on :
Thanks betty for helping the newb. LOL I appreciate it.
Posted by on :
![[Smile]](smile.gif)
Makes since I guess, lymes would not be transferred like a cold when I think about it. Blood borne not air-borne. LOL