She has been on orals for 3 years and now bicilan for appx 6 months. Major symptoms include extreme fatigue, sleep problems, pain in wrists, hands, knees.
Has a positive CDC lyme test and possible bart and babesia.
Any feedback and ideas would be appreciated.
Posted by Lauralyme (Member # 15021) on :
Up for help
Posted by Rianna (Member # 11038) on :
I am on IV Rocephin, the key points are to ensure she takes Destolit 300-600 3 x Day due to the pottential gallbladder issues as it often causes Bilary sludging.
If she is infusing herself via a PICC be educated about sterile Techniques and PICC
Rianna
Posted by lou (Member # 81) on :
So, has she gotten any treatment for babs or bart?
Most lyme docs think that a cyst buster needs to be added to rocephin, like flagyl or tinidazole.
Some people think that low dose naltrexone helps with the fatigue.
How is her thyroid?
Posted by lmz1100 (Member # 15487) on :
I have a low functioning gall bladder and my doc put me on IV Rocephin anyway. I lasted a week. Now I need to have the gallbladder out and there goes my week of treatment down the drain. Be careful.