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Posted by Tincup (Member # 5829) on :
 
Trying to make a list of the most commonly used supplements that Lyme patients take.

Anything but prescriptions can be listed.

Don't forget stuff like eye drops, teas, herbs, creams, etc.

Need to get a good number of folks to reply so it is a better sampling.

Thanks!!!

[Big Grin]
 
Posted by DebAz (Member # 18039) on :
 
Ok here is my list and I am positive i am forgetting some

Vitamin D3
Vitamin C
Vitamin B12
Vitamin B Complex
Vitamin E
Multi Vitamin
Calcium
Omega 3 oils
Flax See oil
Colostrum
Bromium
5 HTP
Melatonin
Probiotics
Milk Thistle
Ginger
Salt

Artemisa
Oregeno oil
Olive oil
L Lysine

Fiber Supplements
Metamusal

Tiger Balm
Arnica Cream
Coconut oil

Camomile Tea
Detox Tea

Tea tree oil

Medications I forgot
Miralax
Aleve
Asprin
Advil
Benadryl
Zyrtec

[ 15. December 2008, 05:12 PM: Message edited by: DebAz ]
 
Posted by gwenb (Member # 7217) on :
 
A little bit of background information about myself first. I have had Lyme disease for over 20 years - undiagnosed until two and a half years ago. I have gone a completely holistic route - no abx (it is almost impossible to receive treatment for Lyme disease in Canada, so I didn't have a lot of choice.)

I am about 80-85% better than five years ago when I was very ill. I work full time, bike to work almost every day and go to the gym on weekends.

Most essential supplements:

-Vitamin D 3 - approximately 5000 IU daily in winter. Try to get it through sun in the summer.
-Herbal formula energy tested for me
-Magnesium citrate - taken to bowel tolerance
-Digestive enzymes

Very important supplements
-Grapefruit seed extract
-Oil of oregano
-coconut oil
-sarsaparilla tea
-essential fatty acids
-acidophillus
-bromelain

I have cycled on and off numerous supplements over the years, some of which have been energy tested for me, but the ones above are my top picks.

Other essential aspects to getting well included: working out regularly (which I couldn't do for 3 years), juicing every single morning, low carb diet, no booze, no coffee and very little sugar and gluten or dairy. I am not cured, but I am WAY better.

Hope this helps.

Gwen
 
Posted by Hoosiers51 (Member # 15759) on :
 
Wobenzym
Vitamin D-3 (Now Brand)
Various Probiotics
Psyllium Husk Fiber from Organic India
Tulsi Tea from Organic India (for adrenals I think)
Mitochondrial Resusitate from Metagenics
ElectroMix as needed
B complex
Vitamin C
Sea salt as needed for energy and hydration
E-Lyte brand Chlorella
 
Posted by ajisuun (Member # 17658) on :
 
Cat's Claw
Mangosteen
Calcium
B complex
Multivit
Feverfew
Green tea
Curcumin
 
Posted by JKMMC09 (Member # 15795) on :
 
I would think (and hope) that Probiotics is the most common supplement in the Lyme community.
 
Posted by kam (Member # 3410) on :
 
Probiotics

Was taking some of the supplements recommended in the book Healing Lyme, but ran out of funds.

Xango (donation from others)

Isocort

Detox Tea

Ginger Tea

Some kind of tea to help with sleep

If I had the funds I would add:

Reservetrol (Possibly Vivx with Shaklee)

B Complex
Vit C
Ginko Biloboa

A good vitamin (possibly Shaklee's)

The two supplements that start wtih an A from "Healing Lyme"

Ok Brain is going..will come back later

Doc just suggested several supplements and will list those.

But, don't have the funds to get them right now.

Glycine (montiff), melatonin,
glycine to fall asleep,
melatonin to go back to sleep

Samento
bandero
quina

Teasel Root (10 drops 3 times a day)
Red Root (30 drops 3 times a day)
Bone Set (30 drop 3 times a day)

Helps with Bartonealla, cognitive and ?

Brain function:
Phosphotidyl
Serine

I also would like to add the Trace Minerals from Cowden and the detox stuff from Cowden
 
Posted by treepatrol (Member # 4117) on :
 
Acidophilis 2 pills or more
Yogurt no sugar added
Magnesium 500mg
B12 injections
B12 vitamin this or
that B12 vitamin sublingul
Bcomplex vitamin
Multi vitamin
Melatonin as needed
CQ 10
Adaptogen Rhodiola rosea not lately though
Bernard Jensen Black Cherry Concentrate gout help


Want to take

D3 vitamin
IP-6 is naturally found in grains
Phosphatidyl Serine formula
Lecithin Stop fatigue
D-Ribose Powder
SAM-e (S-adenosylmethionine)
L-carnitine which needs L-tryrosine and L-methionine
Malic Acid
Calcium
Amino Acids
Enzymes
Minerals
 
Posted by Wimenin (Member # 15294) on :
 
Probiotics
Daily vitamin (no Iron)
Vit D
Magnesium
B complex
B12 sublingual
Fish oil (omegas)
CoQ10
Olive leaf extract
Oregano oil
Garlic
Digestive enzymes
 
Posted by Curiouser (Member # 14128) on :
 
B-complex, B2, B3, Pantothenic acid (B5), Folate, B12 sublingual, Vit C, Vit D w/vit A, Vit E

Iron (for deficiency), Magnesium, Calcium, Selenium, Zinc, Copper, Multimineral

DIMension3 & OncoPlex (will have to stop taking these when the bottles are empty. can't afford them anymore)

Theralac & Ultraflora (will switch to a cheaper brand when these run out)

NAC
ALA
Milk thistle
Multi Omega (3-6-9)
Caprylic Acid

Will be adding melatonin soon for it's anti-demylenation properties. help with sleep is a bonus.

Should probably add a separate B6 supplement in there too. Next shopping trip, maybe.

Pau d'arco tea
Tiger Balm/Badger Balm
Olbas oil

Pretty sure I've forgotten some things
 
Posted by onjo59 (Member # 15868) on :
 
Acidopholus

Florastar Probiotic

Essential Fish Oils

Arteminisin

NAC

Grape Fruit seed extract

liposomal glutathione

Milk thistle

Magnesium

b-12 shots

vitamin c

Humaworm
 
Posted by lymie_in_md (Member # 14197) on :
 
I've gotten a lot better and am taking quite a bit less for supplements:

Some herbal tea once a day.
Inulin : 1/2 teaspoon once a day
Carlson's salmon oil two tabs a day.
Yogurt : home made (cultured 24 hours)
 
Posted by adamm (Member # 11910) on :
 
Probiotic
Green Tea extract
Grape seed extract
Ginko Biloba
Milk Thistle
 
Posted by liesandmorelies (Member # 15323) on :
 
Various Probiotics
Magnesium
B-Complex
Alpha Lipoic acid
Co-Q10
fish oil
EFA - Flax seed oil
Glucosamine
Vitamin D

Mangosteen Juice
Organic Ginger & Lemon Tea
Lemon water
Olive oil
Oraganic Green Tea
Organic Echanecia/Green Tea
Oraganic Coffee(one cup per day/no sugar)
Epsom Salt baths

Am considering adding in Resveratrol and Milk Thistle.

Elizabeth

[ 02-04-2009, 02:30 AM: Message edited by: liesandmorelies ]
 
Posted by luvs2ride (Member # 8090) on :
 
Current Supplements

Advanced Inflammation Control 1 caps twice daily
Bio-Inflammatory Plus 2 caps twice daily
GastrAcid 1 cap w/each meal
Digestin 1 cap w/meal
Pectasol 1 cap twice daily
Pectasol Detox Complete 2 twice daily
Pure Vit C 1000 mg daily
Chlorella 9 pills daily
Liver PF 3 caps daily
Probiotic 2 caps daily away from doxy
Calcium D-Glucarate 3 caps daily
CoQ10 200mg daily
NAC 600mg daily
White Mallow 1 caps before bedtime
Maiden Barber 1 caps before bedtime
Super Vit B Complex 1 cap daily
Limbic Balance 2 caps nightly
Silver shield as tolerated
Vit D3 5000 IU daily
Glutathione Suppositories 1 every other day Need another batch
Ultra Balance 1
Parastat
 
Posted by gemofnj (Member # 15551) on :
 
Probiotics - ROTATED in combination

Iflora 20 billion/8 strain Probiotic 1 x a day in combination with others or (3 x day)

VSL#3 - 225 billion cultures/10 strain 1 x day or

Renew Life Ultra Flora Critical Care 1 x a day
50 billion cultures/10 strain
-------------------------------------------------
Dose per day:

Prima una de Gato 1,125 mg(cats claw)- Allergy Research

Grapefruit Seed Extract 500 mg - by Pure Encapsulations

Bromelin 2400, 2,000 mg - Pure Encapsulations

Olive Leaf Extract (Pure) 2 x day- Seagate

AIG Immune 600 mg- Body Wise

Oregano 1,125 gm- Oregamax

Super B complex 100 mg- honey tree brand

Magnesium - Mag Ox 400

Rainbow Lite Women Only Vitamin

Lemon Water
Listerine Mouthwash
Bleach Rinse
 
Posted by carly (Member # 14810) on :
 
acidopholus
green tea
mangosteen
willow bark extract
salmon oil capsules
ginger
garlic
turmeric
 
Posted by bettyg (Member # 6147) on :
 
take only multi-vitamin pill daily
 
Posted by lymednva (Member # 9098) on :
 
Along with many others already mentioned here, my LLMD recently started me on:

Transfer Factor -ImmunePlus by Researched Nutritionals. Will probably move on to the Lyme specific one after a while on this one.

My CD-57 was going lower an lower and this is to help my immune system get going on it's own. What a novel idea! [Big Grin]
 
Posted by disturbedme (Member # 12346) on :
 
The supplements I'm taking:

Transfer Factor
Red Yeast Rice - for extremely high cholesterol (and I'm only 25. [Frown] )
Vitamin D
Vitamin C
Vitex
Multivitamin
Calcium
Magnesium
Fish oil
Primrose oil
Iron (very low ferritin)
B-Complex
CoQ10 (but not while I've been on Mepron)
Iodoral
Selenium (haven't taken this for a while)
NAC (don't take this as much as the others)
organic freeze-dried garlic (but not all the time)
probiotics

Oh, on the herbs side I've taken and take every so often now:

Andrographis
Olive Leaf Extract
Grapefruit Seed Extract
Sarsaparilla
Samento
Cumanda
Enula
Quina
Burbur
Pinella


I think that's about all of them... most of them, at least.
 
Posted by glm1111 (Member # 16556) on :
 
. 20 gms sea salt p/day

..20 gms Vitamin C p/day.

..crushed garlic.(with food)


..crushed ginger(with food)..

..crushed jalepeno peppers(with food).


..lots of yogurt.....


.Gael
 
Posted by ForestNymph (Member # 15109) on :
 
Magnesium
Multi-vitamin
Immune booster supplement
Liver/Gallbladder supplement
Kidney/Bladder supplement
Salmon Oil
Olive Leaf
Samento
Cumanda
Banderol
Burbur
 
Posted by randibear (Member # 11290) on :
 
let's see...

magnesium
fiber
probiotics
lymph cleanser
vitamin b
vitamin c
fish oil
coq10
multi vitamin
glucosamine
calcium
vitamin d
digestive enzymes
 
Posted by seekhelp (Member # 15067) on :
 
Holy smokes...y'all must have some serious $$$ for supplements when I see these lists! [Smile]
 
Posted by GraceT (Member # 16558) on :
 
Alpha Lipoic Acid/Acytle L Carnitine combo
Probiotics -such as Primal Defense
Transfer Factor
Salmon Oil, Borage Oil
D3 400/dy - will try to ramp up to 5000/dy
Super Curcumin
Vit C by Apple Poly, or - Super Bio-C buffered by Solaray
CoQ10
Grapefruit Seed
SAM-e
Milk Thistle
Ginko
B 12 shots 2 time/month
Phosphytidlecholine and Glutathione shots 2X/month
Mangosteen Juice or Mystica (but it's expenseive, won't re-purchase)
Digestive Enzyme w/each meal
Resveratrol
Chlorella
Lysine (to counter arginine)
Gaba + Zinc
Activated Charcoal - evening meal only
Calcium/Magnesium in evening
Super Amino
Garlicque or Caprylic - sure helps Candida

Detox: Burbur, Pinella, homeopathic drops, coffee enemas, Humaworm
Baths: Epsom Salts, Food grade H2O2
Sleep: Kavinace and Gabapentin
Pain: Bayer asprin
Silver - 30 MAX 3/x/dy

The above have been collected over many months. When I run out, often I'll go without for some time $$. No job.

Smiles, Grace
 
Posted by feelfit (Member # 12770) on :
 
Probiotics 2 brands
Saccromidies boulardi

Detox Cocktail
1-2 packets Emergen-C
2 300mg ALA
400-800mg pharmacutical grade glutathione
milk thistle

Natural calm magnesium 2 tablespoons day
Carlson norwegian cod liver capsules
co-q 10
iron-low ferritin
Garlic
NAC
coffee enema

metamucil every evening
ALIVE by Natures Way multi-vitamin
 
Posted by Robin123 (Member # 9197) on :
 
probiotics - healthy trinity
Ultra mangosteen juice
noni juice (anti-tumor)
grape seed extract (anti-tumor)
Vit C - powder
quercitin
bromelain
papain

I've tried a lot of supplements but I'm allergic to most so don't have a long list.
 
Posted by mojo (Member # 9309) on :
 
Pro Omega Fish Oil
Chlorella
MSM
Magnesium/Potassium
Calcium
B-12 sublingual
Vitamin C
Serrapeptasse
HCL
Melatonin
Multiple Vitamin
Milk Thistle
various probiotics
Lithiate
Selenium
concentrated Trace Minerals in my RO water
 
Posted by luvs2ride (Member # 8090) on :
 
quote:
Holy smokes...y'all must have some serious $$$ for supplements when I see these lists!
I spend my dollars where it works.
 
Posted by utz20 (Member # 17058) on :
 
I try to spend my $$ where it works too.... wish I knew for sure just where that is. In the meantime I am taking alot for my neurolyme brain and really feel that *these things are helping.

Probiotics 2x2
Magnesium
Concentrace minerals
biotin (hair loss)
B12-500 - 1000
B6 50
Vit C 0-3000
CoQ10 30-90 mg
*Lithium Orotate 120mg
*Huperzine A 200 mcg 1-2x
*Vinpocetine 10 mg
Resveratrol 80 1-3 X

*neuro optimizer 4x (expensive but noticable improvement) folic acid, CDP choline,phosphatidylserine,A L-carnitine,L-Glutamine,ALA,Taurine,phosphatidycholine

NAC 3x
Milk Thistle
cat's claw 4x
andrographis 0-4x

Tried but suspicious of: Wobenzyme, sarsaparilla

Teas: Red clover,burdock,dandelion,green tea mostly decaf. Small amount of Himalayan black leaf tea.

Lymph massages
Epsom salt baths
Amalgam removal
healing breathe work- Tremendous Relief!!

exercise as much as I feel able to

treats- peach juice with club soda
Pamela's butter shortbread cookies
 
Posted by SuZ-Q (Member # 5903) on :
 
Between my daughter and me, we take:

Magnesium
Probiotics - Florastor
Vitamin D Synergy
Iodine
Neurolink
CoEnzyme B
Thyroid Synergy
Kong May
Bolouke Lumbrokinas
Baby Aspirin
Milk Thistle
Krill Oil
Parsley drops-Nutramedix
Burbur drops
Adrenal support drops
Trace Mineral drops
Pinella drops
Enula
Cumanda
Quina
Samento
CholestOff
Conjugated Linoleic Acid
Alpha Lipoid Acid
CoQ 10
Biolipotrol
Massages with therapeudic grade essential oil
Immupro
 
Posted by Tincup (Member # 5829) on :
 
This is amazing!

I am actually smiling so big my face hurts!

THANK YOU!!!!

I was out yesterday so hadn't seen what you've done till now. I know this took time and effort... a lot of it... and I am truly grateful.

Keep up the good work. Need as many lists as we can get!

Again, thank you. BERRY BERRY MUSH!!!

[Big Grin]
 
Posted by klutzo (Member # 5701) on :
 
As I understand it, Codex will take all of this away from us for good on December 31, 2009.

Supps. have helped me SO much, that I will die when that happens, which is exactly what they want....to get rid of the "useless eaters". (See New World Order Agenda 21 if not familiar with this horror).

Their own estimates are that 3 billion people will die when their standards are implemented. Until then, I'll continue taking:


NSI Synergy RX Multi-vitamin w/minerals
COQ10 (ubiquinol form)
Vitamin D3
Neptune Krill Oil
Epicor Immune Modulator
Better Bladder pumpkin seed extract
Integra-Lean Irvingia
Magnesium Citrate
Calcium Citrate
Pantotheine
DHEA
Digestive enzymes (prescription strength)
L-glutamine
L-tryptophan
Undenatured Whey
NSI 15/35 Probiotics
Lactaid
Vitamin C w/Quercetin
Strontium
Greens First


Klutzo
 
Posted by nenet (Member # 13174) on :
 
I take 2 store-bought supplements (and then several bulk herbs that we make 2 teas from):

1. Theralac probiotic
2. Carlson Cod Liver Oil Super (1000 mg 100 Softgels) for natural Vitamin D - I can't take OTC synthetic Vitamin D as it makes my bones hurt very badly.

Food is just as important as supplemets to me, so I will mention that the majority of my diet includes wild salmon about 2-3 times a week, leafy greens like collards, mustard, turnip, and kale, cooked either in homemade organic chicken stock or sauteed with garlic and thyme and pine nuts.

Lots of real wild rice. We also mostly eat free range organic chicken and sometimes grass fed organic steak - if you look locally you can sometimes find local farms that have great prices on grass fed beef cuts, poultry, eggs, dairy, and organic produce - I have some resource links and more info if anyone is interested.

We eat greens almost every day, and lots of veggies. Only wild caught fish - farm raised is the worst for mercury and chems. I eat an egg every morning because I have crazy low blood sugar and need the protein.

Things I absolutely can't have (personally):

NO alcohol
NO caffiene (including any chocolate)
NO milk and most soft cheeses or yogurt (I developed a sensitivty to it over the last couple years)
NO tomato sauce, though a raw tomato slice or two treats me ok (tomato sauce is very acidic and hurts my stomach/causes GERD flare)
NO spicy foods (until I get better of course!)
*very* little sugar

We try to only get organic as possible, but it can get expensive. Our garden flopped this year, otherwise we could have had all organic produce for 4 seasons for very cheap.

My husband has been making me 2 herbal medicine teas. We buy the herbs in bulk, and try to get only organic and/or wildcrafted herbs. Many of these can be grown easily in most temperate zones - we will be moving soon so we don't have an active herb garden now.

Stomach Tea:
Since I was dealing with a stomach ulcer for a long time, and I have bad acid reflux/GERD, I needed extra help with taking meds which made it hurt more.:

Chamomile
Marshmallow Root
Slippery Elm

Detox Tea:
This helps me IMMENSLEY, with the intent being to bind and remove the toxins from Lyme and its die-off, and helps my body lessen the ill-effects of antibiotics etc.

Sarsaparilla
Wintergreen
Birch Bark
Chamomile
Licorice Root (very small amount of licorice - too much makes me herx very strongly)


I take a combo of half and half of each tea in a mug every morning after breakfast and every night before bed. If I miss the detox tea I notice big time - too many symptoms to list here.

Also, the stomach tea helps greatly if I start having my ulcer or reflux problems, so I drink that occasionally during the day if I ate something that bothered me, etc.


edited to fix for neuro-lymies (I should know better, I am one! very sorry everyone.)

[ 14. December 2008, 02:25 PM: Message edited by: nenet ]
 
Posted by FancyRatFan (Member # 3088) on :
 
Cilantro
Salt/C
Multi vitamin Rainbow light
Vit E
Candida Cleanse Rainbow light
coconut oil


That's it for now. I've cut way back on my supplements. And haven't noticed a difference except when I started taking the salt/c And cilantro. I only kept the ones that I feel a difference on something
 
Posted by Jeanne Marie B (Member # 17666) on :
 
What a great resource list. Here are mine

Acetyl carnitine
Omega 3-6-9
CoQ10
L-tyrosine
L-glutathione
New Chapter Tiny Tabs
New Chapter Pro Biotics
Kombucha - a tiny bit
Digestive enzymes
Charcoal at night for cadmium poisoning
Magnesius aspertate
{Berber Cap
Isatis
Morinda} for a viral thing I'm battling
B complex
Vit D

One of these buggers was making me nauseous but now that I'm on abx, it hardly matters to me.

I'm sure I"m forgetting something. . .
 
Posted by heiwalove (Member # 6467) on :
 
(this program changes every couple months with muscle testing, and i rotate the detox stuff (second group of supps). i am not on abx.)

multivitamin
b12
vitamin C
CoQ10
digestive enzymes
probiotics
liquid iron
liquid selenium
liquid zinc
liquid trace minerals
fish oil
vitamin D3
apple cider vinegar
rhodiola

chlorella
apple pectin
destroxin
betasitosterol
undenatured whey protein
milk thistle
dandelion root
homeopathic lymph formula

oil of oregano
olive leaf extract
rizol oil (gamma)
samento
cumanda
sarsaparilla
freeze-dried garlic
bee pollen
cardamom

valerian tincture
sleepytime tea

sometimes lemon water & detox teas
 
Posted by seekhelp (Member # 15067) on :
 
Wow, there are just SO SO many supplements listed here. It must be a full-time job popping them all every day! Is anyone taking 100 pills+ a day?

I take supplements too, but the sheer volumes shown on this thread amaze me.
 
Posted by pamoisondelune (Member # 11846) on :
 
ELECAMPANE drops seem to be actually NEEDED for me for babesia (along with Mepron/Zithromax), i think; just my feeling; (that's a sbustitute for the Nutramedix Enula).

LOMATIUM drops i take as antiviral, it really kills my potential Herpes outbreaks, which i don't get thanks to Lomatium.

Cardamom for babesia.

Pau d'arco drops have naphthaquinone; isn't that the same stuff as Mepron, atovoquone?

Artemisinin 3 or 4 days a week.

Iron--Dr J S writes that for Artemisinin to be effective, your Ferritin should be at least 45; and since i was anemic, i take a lot of iron pills

Strontium for osteoporosis
Vit K2 menaquinone-4 (called Menatetranone)for osteoporosis

Calcium
Magnesium
Vit D3
Boron,Zinc,Selenium
B-50s
Biotin 5 mg
Folic Acid 2000
B12
Vit C
Choline/inositol
Lecithin
Glucosamine
curcumin
Allimax (expensive, but have to have it to prevent yeast problems)

Milk Thistle, lots!
Probiotics, lots!
Serrapeptase
Nattokinase
Astaxanthin
Grapeseed extract
Grapefruit Seed extract (GSE)

Polygonum (found in SourcNaturalsResveratrol)

Andrographis
Sarsaparilla
Neem pills
Pau d'arco pills
Gotu Kola
Eleuthero
Ginko
Propolis
Horsechestnut
Peppermint oil pills
Oregano oil pills, sometimes
Digestive enzymes
lactoferrin
Rhodiola
Quercitin
Calcium-D glucarate
EGCG
Nettles tea, not always
Green tea
Apple pectin
Cilantro extract drops

lysine sometimes
Indole-3-carbinol
Vit E sometimes
Broccoli pills sometimes
fish oil pills sometimes
Betaglucan sometimes
Colostrum pills if urgently needed,--- works!
(Bovine)Immunoglobulin pills sometimes (causes inflammation, don't know if they do anything good)

Quina drops, have as backup
Cryptolepis,have for future tx
Cumanda, no reaction from 45 drops!
Noni, once in awhile(alkaloids hurt my tendons)
Cat's claw, once in a while (alkaloids hurt my tendons)

While on Mepron, i had to stop taking most of the antioxidants except once a day away from the Mepron. Is that correct?? Big problem and unknowns about the Mepron, whether and which antioxidants are allowed??? Dr J S writes that it's a problem, and he hopes for future resesarch.

from pamois.

[ 16. December 2008, 07:01 AM: Message edited by: pamoisondelune ]
 
Posted by Nancy2 (Member # 95) on :
 
Fish Oil
Evening Primrose Oil
CoQ10
B-6
B-5
B100 Complex
B-12 sublingual
Milk Thistle
Multi vitamin
Ester C
Grapefruit seed extract
Mag Tab SR

Vit D-3
Zinc
Andrographis
Olive leaf extract
Theralac, Culturelle and various probiotics
 
Posted by hiker53 (Member # 6046) on :
 
daily vitamin
vitamin B complex
magnesium
silymarin
vitamin D3
probiotics
klonopin for minor seizures
 
Posted by GraceT (Member # 16558) on :
 
Tincup, When you do get your 100 listings, will you want help creating this into a document? I'll volunteer, but suspect you've got it under your wing.

Also, when the document is completed, will it be posted anyplace or can the participants gain a copy?

Thanks Grace
 
Posted by jwf (Member # 6292) on :
 
Cat's Claw (RainTree)
Kyolic 103 (Immune formula)
Allimax (British Formula)
Grape Seed Extract
Vivix (Shaklee)

Beat Lyme twice, Morgellons once.
Knock on Wood.

Blue Skies.........John
 
Posted by charlie (Member # 25) on :
 
...only one I take with any regularity is milk thistle for liver support.

sometimes take pycnogenol and l argenine if I think of it,

Charlie
 
Posted by bettyg (Member # 6147) on :
 
up for more members giving their input!
 
Posted by wantabe (Member # 14703) on :
 
This list hasn't changed much in my 1st year of treatment.
Including prescription meds =52 pills a day

B12 methylocabalamin shot daily- energy
Artic Root-Swedish Herbal Institute- energy
Orthobiotic or Klaire- probiotic
Phytostan
Enzalase
Multi-vitamin- One-n-Only
ProOmega Omega fish oil
Mag./potassium aspartate
Vitamin D3
Calcium
Ester C
Nattakinase- increase circulation/Raynauds
White Willow Bark- pain
DIM- hormone
Alpha Lipoic Acid- use with fluconazole


RO and distilled water
white & green tea
dairy, gluten,sugar,cafine, alcohol free diet
very limited fruits

Infrared sauna 5+X week
epsom salt baths as needed
PT exercise 1-2X week
 
Posted by stuman455 (Member # 17823) on :
 
Source Naturals, Renewal Antioxidants

Now Foods, Spirulina Powder

Now Foods, cat's claw

Now Foods, 8 Billion Acidophilus
 
Posted by bettyg (Member # 6147) on :
 
wow, wantabe, 52 pills daily! i have problems getting them down and would take most of day to do so.

up for more weekenders only members...
 
Posted by DebAz (Member # 18039) on :
 
Hello.. Tincup. I was wondering when you make the list is i possible to sort them out as in .. what they are mainly used for.

For instance right now I am doing research one which ones are
for parasite cleansing.. which ones help virus..
Which are anti bacterial..
Which are anti fungal..

And so on....

That would really hep as we sort through.

As well which ones are for
Detox help
Adding to nutritional support..
IF they have a mechanism that is known to do something such as
work against or for something else.?

Am I asking too much?

I am doing reading and researching and it is a lot of work and when I see someone mention a new supplement of some sort I try to keep a log and I try to research it ..

then I am trying to choose from there a protocol of my own without guessing or taking things that do not make sense with one another.. or so I do not overdo one thing or another.
and so on and so forth.

Deb
I would be willing to help out too .. if you would like.
 
Posted by Tincup (Member # 5829) on :
 
GraceT and DebAZ..

I was sitting here crying till I saw your posts.

[lol]

It is NO secret I am a horrible organizer. I DREAD having to sort through this stuff.. but since I need it I would have to try.

If you all want to help... Praise the Lord and YIPPEE!!!

You couldn't have said anything more magical to my ears.

And yes.. I want this final product to be used by anyone and everyone... so a group effort here is VERY much appreciated.

If we can get 100 responses... that is just a good round about number and enough to get a good sampling....

Then we can chat and share duties.

I'll be offline shortly for a few weeks. Hopefully there will be a lot of responses by then. When I get back online.. you'll see me stumbling around... remind me and we can work on it.

And thank you for offering. I think we will have a good final product that can be used in different ways.

[Big Grin]

PS.. Betty G.. thanks for keeping this post up top.
 
Posted by Allie (Member # 10778) on :
 
I take:

probiotics (about 3-4 brands)
kefir
multivitamin (iron free)
magnesium tablets (magtab SR)
alpha lipoic acid
serrapeptase
vitamin C
fish oil
 
Posted by bettyg (Member # 6147) on :
 
up for those who have time between christmas and new years to answer and contribute to tincup's latest poll for whatever project she is working on now!


looks like another 50 plus people to add what they do. bg
 
Posted by merrygirl (Member # 12041) on :
 
Iron
magnesium
b complex
b12 sublingual
b12 injections\
b 6
IV GLutathione
adrecor
fish oil
theralac
ultraflora df
s. boulardi
transfer factor
avea
 
Posted by AmandaM (Member # 17466) on :
 
Probiotic (Culturelle)
B Complex
Sublingual B12
Multivitamin (Centrum)
Magnesium
 
Posted by NorthboroMass (Member # 15892) on :
 
RIFE 2wice a week

Salt / C daily

Samento Daily

Magnesium

Osteobiflex

Exercise !!!
 
Posted by bettyg (Member # 6147) on :
 
up for newbies to add theirs and for the golden oldies too...

with so much activism going on, this was going to get buried. [Smile]
 
Posted by sonicbmx (Member # 12949) on :
 
here's my complete list. i just began to cutting back. most of my supplements are Metagenics brand.

i have a more thorough list with links and all. PM or email me direct if you're interested. i will post it eventually.

SUPPS
Multi-Vitamin 2 tabs 2xD
Flaxseed Oil: 1,000 mg 2 tabs 2xD
Acetyl L-Carnitine: 500 mg
PS: 100 mg 1xD
Olive Leaf: 500 mg 2xD
Sam-e: 400 mg 1xD
MSM: 1000 mg 3xD
NAC: 500 mg 1xD
Chlorella: Prime 3/4 scoop 1xD
E-400: Tocopheryl 400 IU 2xD
NADH: 5 mg 1xD
Magnesium: 200 mg 2xD
Co-Q10: 100 mg HOLD (on MEPRON)
Glucosamine/Chron 1500 mg 2xD
B5/B6: 500/100 mg 1xD
Calcium: 1000 mg 1xD
Iso-D3: 2,000 2xD
Vitamin C: 1,000 4 tabs 2xD
Vitamin K: 100 mcg 2xD
Alpha Lipoic Acid: 400 mg 2 tabs 2xD
Grape Seed Extract 120 mg 1xD
Probiotic: Proboulardi 275 mg 1xD or
Probiotic: Florastor 250 mg 1xD
TF Multi-Immune: 2xD
TF LymPlus: 2xD
Psyllium Husk: HerBulk 1 scoop 1xD
Resveratrol: 20:1 100 mg 3xD
Liver Health 3xD

HERBS
Apo-Hepat: 20 drops 2xD
Crypto Plus: half dropper 3xD
Mora: 20 drops 2xD

MEDS
Doxy: 100 mg 2xD
Zithromax: 500 mg 1xD
Suprax: 400 mg 1xD
Mepron: 750 mg 2 tsp 2xD

--
sonicbmx
 
Posted by Bobidor (Member # 14453) on :
 
Aged garlic caplets
Oregano oil
Omega-3
Probiotics (VSL#3)
S. boulardii (Florastor)
Vitamin D3
Vitamin C
B Complex
Multivitamin
Magnesium glycinate
Milk thistle
NAC
ALA
Ginger capsules
Host Defense by New Chapter (cordyceps, reishi, etc.)
Ortho-Adapt (AOR)
Chlorophyll super concentrate
 
Posted by daystar1952 (Member # 3255) on :
 
This is a good thought...making a list of what supplements we most use and what works the best...however, someone else mentioned Codex and the desire by corporations to take away our natural supplements.

I know we all talk about what we use anyway here in an informal way but it just struck me today that because this list is public and I'm sure there are different factions monitoring it....that we need to be careful as to what information we give away. We also give away very private info about ourselves...basically our medical histories
 
Posted by Robin123 (Member # 9197) on :
 
As of now, we are protected from CODEX by the 1994 DSHEA bill which classifies supplements as foods. If they were to tamper with that bill, then we'd be in trouble.

I invite any of us to get more acquainted with the topic at www.healthfreedomusa.org

Some good news: Health Freedom just got voted into the list of ten top national priorities for the new administration.

Now they want our input on each of these priorities, to develop some national policies.

So...we can go and chat about what health freedom means to us, including as Lyme patients, as users of supplements, etc. Go see my post in Activism on it.
 
Posted by kellyb2411 (Member # 15467) on :
 
Garlic Oil Capsules
Pau D Arco
Milk Thistle
Vitamin C
Multivitamin
Co Q10
B Complex
Fish Oil (Omega 3)Capsules
NADH
Calcium
Selenium
Zinc
NADH
Pro Boost (thymic protein)
Transfer Factor (Researched Nutritionals)
Soothe & Relaxx (Researched Nutritionals)
Probiotics
 
Posted by Judy G. (Member # 18498) on :
 
Here's mine

Vitamin D 1000 unit per day (this is a question -- some say don't add D)

Milk Thistle (for liver) protective effects on the liver, lowers cholesterol, reducing insulin Resistance

Grape Seed Extract - heart disease, wound healing,

Digestive Enzymes - to aid pancreas

Multivitamin

Acidophilus - to prevent and treat yeast infection resulting from use of anitbiotics

CO Q-10 - heart, antioxidant, brain health

Fish, Flax Borage Omega 3,6,9 - blood circulation and blood pressure, healthy skin,
joints and cardiovascular function

L-Glutamine - break sugar craving cycles, GI help, brain function

Alpha Lipoic acid - antioxidant and peripheral neuropathy (burning itching, weakness,)
improve blood sugar control, brain function

Grapefruit seed extract - 100 mg 3xd for Lyme cysts

Cordyceps

Lyme Transfer factor

Soil probiotic

B-12

Magnesium
 
Posted by steve1906 (Member # 16206) on :
 
on tetracycline 2 caps twice a day 250mgx4= 1000 mg per/day I took them from 09-01-2008 - 12-30-2008.

These meds did help with some of my symptoms. But my neuro symptoms are all still here!

New Meds>I started on 01-01-2009 Clarithromycin 2000mg per/day + Hydroxychloroquine 400mg per/day -
 


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