Another update from Snake on HealingWell. I am part of this forum too and it looks as if he sees the doc more often than I and has the current info to follow.
Update on the new bacteria. It is classified in the same genus class as Burkholderia Cepacia, the same bacteria found in Cystic Fibrosis patients. It has a cell wall and is gram negative. The reason we all have band #41 positive is because it has a tail "flagella like". The new name for the organism is betaprotearheumatica. It will probably be renamed very soon. It creates a biofilm and feeds off arginine.
The research has went from small to very expansive. Grants are in and more scientists have been hired. Blood samples from the people sick are already in test tubes and DNA sequencing is being used. New drugs are being used and biofilm communicators "busters" are in the works. Biaxin and Plaquenil seem to be the drugs of choice, since so many are feeling better rather quickly.
Many doctors believe this organism should be called "chronis lyme", since it is what is probably causing all the "chronicity". The devasting effects and resiliance to survive are pushing this organism to the forefront.
Doc said that 80% of people who sent their blood for sampling had this bacteria on the smear, but 100% of people had positive DNA results for the new bug.
Posted by charlie (Member # 25) on :
and unfortunately we'll be unable to even communicate about betaprotearheumatica because one of its insidious effects is to use up all the letters..... Posted by Cold Feet (Member # 9882) on :
Very interesting, thx for sharing. This genus (though maybe not the bug you mention) is thought to be a fairly common bug. A few other links on the genus:
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