This is actually a question about my sister, not myself...
My sister has all the classic symptoms of lyme, and I mean everything, plus, some bad bells palsey like facial contortions, severe joint problems, distorted vision (needs prisms to see), etc... plus...everytime she has a new medical test, which is every other week, they always come back negative... Theres little doubt that her immune system is compromised as shes constantly sick.
Her HMO drs think its a combination of lupus, fibromyalgia, depression, arthritis, hypoglycemic, diabetes, ...and the usual host of other immune disorders.
I think shes got lyme based on the fact that already in our family both parents have had bullseye rashes, and my two sisters and myself have tested positive for it.
My sister refuses to get tested for lyme.
Anyway, now in the past 2-3 weeks shes developed horseness in her voice, and a bad chest pain. Shes been seeing a ton of pulmonary, ENT experts, and so far...nothing. She keeps thinking its viral or thats shes fighting something, but she won't consider lyme.
Is horseness a symptom of lyme? Thats one of the few symptoms I never had with mine.
My fear is that it is lyme and its getting worse and starting to affect her heart, lungs, breathing..
Your thoughts about horseness?
Posted by SuZ-Q (Member # 5903) on :
Hoarseness can be a symptom. My daughter has had it for the duration(10 years) of her Lyme infection. There is a definite correlation in her general well being and the severity of the hoarseness.
I think the chest pain may be of more concern though. Keep trying to get her to an LLMD and good luck.
Posted by sixgoofykids (Member # 11141) on :
I have gotten hoarseness from it. I think I read that specifically hoarseness can be bart related?
Posted by map1131 (Member # 2022) on :
Yes, I had it for about 5 yrs off and on after becoming ill.
Posted by Jill E. (Member # 9121) on :
Yes, I've had it for about five years. According to an article in the Lyme Times, I believe hoarseness was one of the symptoms related to vagus nerve problems in Lyme Disease.
Posted by lymeladyinNY (Member # 10235) on :
Yep, I've had hoarseness off and on for about four years now.
Sometimes my voice goes down to a whisper. Sometimes I open my mouth and nothing comes out at all. I've even had "accent voice" - which is a supposedly rare condition in which a person sounds like they have a foreign accent.
Lyme can do some pretty bizarre stuff.
Posted by blaze (Member # 16838) on :
I developed a vocal chord polyp. Rather than figure out what kind of infection was causing the hoarseness, they wanted to send me to a speech therapist - let's just say no more karaoke for me.
Posted by psano2 (Member # 11711) on :
I think it could also be caused by Babesia. Mine has gotten better w/Babesia treatment.
Posted by bettyg (Member # 6147) on :
yes, in my personal opinion; for me since 74 when i became a secretary and answered phones all day long; and still have hoarseness.
Posted by GiGi (Member # 259) on :
Look into allergies. All these are allergie based (list of symptoms treated by Allergie Immun) Sorry this is both in German and English.
Angstzustände Anxiety Arthrose Osteoarthritis Asthma Augen, geschwollene Eyes, swollen Ausschlag Rash B B
Bandwurm Tapeworm Bauchschmerzen Abdominal pain Bronchitis, chronische Bronchitis, chronic Bulemie C C
chronische Autoimmunschwäche Autoimmune chronic weakness Die Zeichen einer Allergie können sich in fast allen Geweben und Organen entwickeln. The signs of allergy can be located in nearly all tissues and organs develop. Die typischen Allergie-Symptome treten an folgenden Organen auf: The typical allergy symptoms of the following bodies:
Haut Skin (zB Rötungen, Juckreiz, Schuppung oder Quaddeln) (such as redness, itching, wheals or desquamation)
Darmstörung Intestinal disorder Dauerschmerzen Continuous pain Diabetes Dauermüdigkeit Duration fatigue E E
Energielosigkeit Energy Energiemangel Energy shortages F F
Fließschnupfen Cold flow Füße, geschwollene Feet, swollen Gedächtnis, schlechtes Memory, poor G G
Gelenkschmerzen/Rheuma Joint pain / Arthritis Gesichtsschmerzen Facial pain Gewichtsverlust Weight Loss Gereiztheit Irritability H H
Haarausfall Hair loss Hände, feuchte Hands, wet Hände, rissige Hands, cracked Handgelenksentzündung Wrist inflammation Hashimoto Hautausschlag Rash Hautjucken Itchy skin Heuschnupfen Hay fever I I
Inkontinenz Incontinence Innere Unruhe bei Kindern (siehe: [Schulprobleme.info] einschl. Fallbeispiele) Internal unrest in children (see: [Schulprobleme.info] including case studies) K Cologne
Kniegelenksentzündung Knee inflammation Knochenschmerzen Bone pain Konzentrationsschwäche bei Kindern (siehe: [Schulprobleme.info] ) Concentration in children (see: [Schulprobleme.info]) Kopfschmerzen Headaches Krankheitsgefühl Malaise Kribbeln in den Händen Tingling in the hands L L
Lähmung, spastische Palsy, spastic Lymphknotenschwellung Swelling of the lymph nodes Lernschwäche (siehe auch: [Schulprobleme.info] ) Learning (see also: [Schulprobleme.info]) M Munich
Magenkrämpfe Stomach cramps MCS Menstruationsbeschwerden Menstrual discomfort Migräne Migraine Milchunverträglichkeit Milk intolerance Milchzucker LACTOSE MS Muskelkrämpfe Muscle cramps N Nuremberg
Nase, chronisch verstopft Nose, the chronically congested Nasenbluten Nosebleeds Nebenhöhlenentzündung, chronisch Sinusitis, chronic Nervenschmerzen Nerve pain Neurodermitis Neurodermatitis Niesattacken Sneezing O O
offene Stellen vacancies Osteoporose Osteoporosis P P
Polyneuropathie Polyneuropathy R Ratisbon
Regelschmerzen Period pain Rückenschmerzen Back pain S S
Schulprobleme (siehe unter: [Schulprobleme.info] einschl. Fallbeispiele) School problems (see: [Schulprobleme.info] including case studies) Schlafstörungen Sleep disorders Schleimhautentzündung Mucosal inflammation Schuppen Shed Schuppenflechte Psoriasis Schwäche Weakness Schwindel Dizziness Sehschwäche Sightedness Stoffwechselstörung Metabolic T T
Ticks Tinitus Ü Ü
Übergewicht Overweight W W
Wassereinlagerung Water storage Wetterfühligkeit Wundheilung, schlechte Wound healing, poor
Posted by scared08 (Member # 14695) on :
First, I am so sorry for your sister and for you!!!! That must be soooo hard!
I don't know of anyone agrees with this or not but-----I had maybe 5-6 neg. tests while extremely ill!! Not for this reason, although now I have heard of other Dr.'s doing this---the Dr. the finally dx. me--God bless him---had put me on Tetracyline for one month just to see what happened. At the time, he know nothing about Lyme and I only knew the basics.
Well 4 days later I ended up in the ER with a BP of 80/50 before it continued to drop. O2--88%, etc.... However nobody had ever heard of a herx!!!
After about 2 WKS. AFTER FINISHING THE 1MTH. ABX., he dicided to test me anyway. Very strong posatives!!!!!
He and other LLMD's had said the my immue sys. was too suppressed to pick it up and it was too deep in my tissue. By being on the abx for that month, it caused the bacterica to come out of tissue back into the blood stream = pos. test.
Please mention this to her!!! and, YES to answer your question!!!!! I always get side tracked. Anyway I have been hoarse off and on for years.
Please share the trial of abx. with your sister.
Posted by Wimenin (Member # 15294) on :
Thanks for all the answers to my questions...
It sure sounds like lyme, but the hardest part has been trying to convince her to see a LLMD vs the standard hmo dr. Shes been the sickest of the siblings and when I was diagnosed with lyme, I immedidately thought of her and told her about lyme. But for whatever reason, she refuses to look that direction, possibly out of fear that yes, it is lyme.
Theres a strong history that has developed of lyme in the family as was evident by myself and my 2 other sisters being confirm tested for lyme. Plus, as I said, both parents admitted to having the bullseye rash (my Dad twice), over the past couple of decades.
But they never had the symptoms, (at least not that they remember), and never had it tested. So they're skeptical about the whole family having been exposed to it.
I still think it was all from our family land we used to visit as kids and went camping, hunting in the deep woods, etc. That particular county is highly epedemic for lyme (didnt know it at the time), so it all makes sense that we may have been exposed as kids, but its lay dormant till our immune systems were weak in our adult lives.
Anyway... the next time I speak with my parents or the sister in question, I will again mention lyme and that yes, voice horseness and those chest/lung pains can be lyme related... but I already know Ill get "the look" (you know...the look of all the naysayers who think you're crazy and pushing your disease on them and trying to find every ache and pain as being lyme...).
After that, theres nothing else I can do.
You can lead a horse to water, but you can't make him drink... right?