So I went to discuss my herniated discs in my neck, and showed her my MRI reports...
She obviously felt that I needed an expert opinion on that, from someone like a Neurosurgeon and such, ofcourse I kinda knew that.
But then I had asked her if she knew anything about Lyme disease...
She replied "Ofcourse and I have treated many"
I smiled and was glad in hopes that someone actually knew...
But when she said that after 21 days of ABX one would be cured,
I almost lost my temper and explained as much as she was willing to hear, about chronic Lyme and the Bull***t 21 day protocol to deal with something that has no Cure for today...
I asked her if she ever did follow up tests with them, she said "What For ?"
So she advised me that I still stick with my so called LLMD and he would obviously know better.
Anyways just wanted to share this with you people...
Posted by AnnaL (Member # 18464) on :
This post reminded me that I wanted to share a story, rather different than Eric555's.
Last week I had a great experience with my primary care doctor. I'm a new patient, and I chose a practice that emphasizes holistic treatment. They have MDs, NDs, chiros, massage therapists, LAc's, etc, and they all work together.
So I was hopeful that my new MD would be open-minded. I printed out some materials from ILADS to offer her.
She said that she was happy to hear that I was receiving treatment for Lyme, and was *excited* that I'd brought her more information! She said she was very interested in learning more!
So while she doesn't have any experience herself with treating Lyme, she also doesn't automatically buy into the IDSA nonsense.
And she didn't give me any trouble with all the abx and supplements I'm taking.
*And* she sympathized, saying that "these chronic illnesses can really wear you down," and wished me all the best.
All I can say is WOW.
So, don't lose hope! There are good and open-minded primary care docs out there! And if anyone in Seattle wants her name, just PM me.
-AnnaL
Posted by Keebler (Member # 12673) on :
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eric,
Well, it's actually good she does not do follow-up tests as they are not that helpful with lyme and she'd surely not know to look at it from several angles.
You might also ask your LLMD for a referral for your neck. If you do require surgery, it would also be good to have a surgeon familiar as steroids are often involved in surgery and need very special care regarding lyme patients.
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Anna,
Thanks so much for sharing your experience. That's good to hear.
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Posted by lpkayak (Member # 5230) on :
annal-nice to hear that
i have had primaries say they won't treat me if i do what llmd says
my new primary ignors what llmd has me on...and prescribes stuff that interacts
i know this primary won't be here long...but who knows what will replace him
Posted by Tincup (Member # 5829) on :
OK everyone.. put on your duck hats and do the dance!
Poor eric has been "ducked" again!
Darn it all!!!
Eric...
I don't have a lot of time.. but here goes.
Can you find a REALLY good chiropractor who does nutritional things too?
I've had and still do.. 2/3 of my disks mess up badly due to Lyme, et al...
And then there was that itty bitty tractor trailer thing that wiped me out.
I think the chiropractors would be the best route to go.. MUCH before surgery and complications, not to mention drugs involved.
Often people fear chiropractors when they have disk or specific "back/neck" issues.
But think about it.
They are the best trained for that speciality.
Here is my saying...
Chiropractic FIRST.
Drugs SECOND.
Surgery LAST!
Most take insurance too and they can reduce your pain.. and UNDERSTAND it too.
Maybe give it a whirl.
For me?
Posted by seekhelp (Member # 15067) on :
Another PCP who says 'go to the experts.' Wonderful. Why follow-up or re-test patients? The PCP already made money on the office visit. That would make too much sense. Come back if you get an earache or something easy.
I'm sorry about your bad experience. Was your PCP receptive to running any of the labs? I'm guessing she said go see specialists for those too.
Posted by dmc (Member # 5102) on :
Be warned cervical chiropractic adjustments can cause strokes. There is a bill being proposed (hearing was the same day as the lyme bill hearing).
People talking about their strokes and one man's young wife dying from the stroke.
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