This is topic Anyone had success treating neuroborreliosis? in forum Medical Questions at LymeNet Flash.

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Posted by MayberryNut (Member # 16589) on :
Hi all,
I started back in May with headaches. By mid-June, I was having dizzy spells and moments of extreme lightheadedness. This included moments when it felt like my spinal cord was literally spasming in my neck.

Since, I treated with doxy alone, doxy and azithromycin, amoxicillin with azithromycin, doxy with biaxin, and doxy with tindamax.

Nothing seems to shake the tremulous feelings I get in my neck and head, mostly at night when asleep.

Can someone please recommend a treatment that has been effective for getting rid of these very annoying feelings? I am really getting discouraged after short periods when I seemed to get a little better, followed by periods where the tremoring comes right back again.

I will add that my Lyme test was positive, but my coinfection tests have been negative. I understand this doesn't mean much...surely I could have an odd strand of bartonella.

I really appreciate any suggestions and I'd like to hear what has worked for you.

Thank you!

Posted by Lymetoo (Member # 743) on :
Have you been tested for coinfections through Fry Labs?

Or .. would your LLMD be willing to try a trial run of meds for each coinfection to see how you respond?

You could easily have bartonella or babesia.
Posted by MayberryNut (Member # 16589) on :
My doctor would do that. What is the recommended treatment for bartonella?
Posted by TF (Member # 14183) on :
I believe you had your coinfection tests done through Quest because of the high cost of Igenex testing.

Why not reconsider Igenex testing and find out all the diseases you have. I think it is money well spent if it could be the key to getting your health back.

I know it is a lot of money, but the Igenex tests are so much better than Quest--no comparison.
Posted by Lymetoo (Member # 743) on :
Quest? Useless, totally useless.
Posted by Wimenin (Member # 15294) on :
pm sent...

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