My daughter recently started IV EDTA once a week chelation for mercury and several other heavy metals. She has felt absolutely terrible since starting treatment. Is this normal? How long before it might actually start to help? She is under a lot of stress from school right now, but is barely able to function. Not sure where stress, lyme and metal toxicity begin or end. The doctor performing chelation is not her llmd, but is supportive of lyme.
Any thoughts are much appreciated!! Suzy
Posted by mojo (Member # 9309) on :
Once a week sounds like a lot.
I did IV's with DMPS but only every other week.
I was OK when I did mine, but my twin got pretty sick when she chelated for metals (she also did every other week with DMPS).
Did you speak with the physician who is doing her chelation about this?
I sure hope you can resolve this - I hate when the kids/teens have to suffer.
Posted by SuZ-Q (Member # 5903) on :
She's only had 2 treatments so far and the doctor is aware that she is not feeling well. I thnk I will talk to him again at our appt. on Monday. I may call the LLMD also; she wanted an update after a few treatments. She had been worried that if it was done too fast it could cause a crash. The treating doctor has some of his patients chelating several times a week. I wonder how they can take it.
Thanks for your response, mojo!
Posted by mojo (Member # 9309) on :
I think it's good that your LLMD is paying attention.
Sounds like you are in good hands.
Several times per weeks sounds like a lot.
Posted by seibertneurolyme (Member # 6416) on :
Does your daughter have a positive bloodslide from the Fry lab for bartonella or haemobartonella?
Rumors say that he is treating some patients with oral chelation at very low doses to either dissolve biofilms or improve antibiotic penetration.
Bea Seibert
Posted by SuZ-Q (Member # 5903) on :
That's interesting. She did test positive for Bart several years ago. Do you know which chelating agent he is using?
Thanks! Suzy
Posted by Keebler (Member # 12673) on :
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It's very typical to fell horrible while undergoing chelation. I think lyme patients have a MUCH harder time.
I would not call it a herx but, yes, it's very hard. Sometimes, it can be from some essential minerals getting too low. Adrenal support and liver support, too, are vital.
Sometimes, it's just that this is such a hard process. The outcome may be worth it but I'd ask about what to make this more tolerable.
I don't think very many doctors who do chelation understand just how much harder this is for lyme patients. EVERYTHING is harder for lyme patients, even a regular trip to the dentist can take a month out of my life to recover. Some of this is due to the adrenal stress and that can also affect the heart with high cortisol and exhaustion, etc.
Be sure her LLMD is totally informed of this process, too.
Good luck.
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Posted by Keebler (Member # 12673) on :
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You also might do a search above for threads here by GiGi. She has posted a lot about chelation.
Certain brain protection is also necessary with this.
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Posted by Keebler (Member # 12673) on :
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I have tested high in mercury and some other metals but there was no way I could afford chelation.
I just remembered that when I did some EDTA rectal suppositories (Detoxamin), that I had a horrible reaction - each time I tired that - 4 times during one year.
I had more seizures, much more weakness, vertigo, etc.
It seems that there were to have been some protective or additional measures that I should have employed but no one told me.
I'm too tired to go through my computer files (and they are not organized) but I do recall finding out that my treatment really needed something else or another method beside EDTA.
I do better with oral DMSA and chlorella - for limited times.
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[ 03-28-2009, 07:30 PM: Message edited by: Keebler ]
Posted by ESG (Member # 4816) on :
I did a very slow & gentle oral chelation and it made me very ill - so you may want to discuss with your LLMD a gentler approach to chelation; my LLMD stopped the chelation, figuring attacking one thing at a time was more than enough for my body to handle.
The idea of IV chelation terrifies me - I would never do it nor make one of my children do it.
You could stop the chelation until she is out of school for the summer, at the very least.
ESG
Posted by SuZ-Q (Member # 5903) on :
Thanks for your responses! I will discuss it with her LLMD next week.