LymeNet Flash: When you go to a new doctor, do you always disclose your Lyme disease?

This is topic When you go to a new doctor, do you always disclose your Lyme disease? in forum Medical Questions at LymeNet Flash.

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Posted by Janice70 (Member # 16319) on :

Every time you go to the doctor, they ask if you are on any medication. If you start listing a bunch of antibiotics, they will ask what they are for.

Do you sometimes not disclose your antibiotics?

Or do you always tell every doctor you see that you have Lyme, even a doctor like a gynecologist that you're just going to for a yearly pap smear?

Posted by Keebler (Member # 12673) on :

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If just for your gyn appointment, I think you should be straightforward. The abx will be obvious, no doubt, so I think it is important to list them to put it all in context or they will wonder what is going on.

I say list them. And if asked to fill in a dx, write borreliosis or neuroborreliosis (&, if necessary, name of other TBD that are being treated).

For a doctor who has no strong holds over your future, I say it's safer to come out of the closet and, and with self-respect, simply state it as it is.

Now, if this were a doctor whose decisions could shape future diagnoses or treatments, that would vary. I do think the fewer words, the better. Keep it simple when possible.

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Posted by Blackstone (Member # 9453) on :

I feel it is absolutely necessary, especially if you are taking medication or supplements, that you disclose all of your diagnoses and treatments. Normally, physicians who are of other specialties will not interfere with your treatment - your GYN, orthopod, or cardiologist will not question your treatment methodology. Rather, they will ensure that anything new they prescribe for you will not interact with your current regimen. They need to know what you're all ready on.

Unless you're seeing an IDSA doc for some reason, there's no reason that your Lyme treatment should really concern most other physicians.

Posted by bettyg (Member # 6147) on :

i agree with above; we've gone to electrical medical records lately, and they check on my meds EACH time i'm in.

was in april 1, and said no changes but when she read them all off, i had to say ... i've not taken my allergy inhalers/spray since using my cpap machine!

so it's important all be disclosed. [Smile]

Posted by Dekrator48 (Member # 18239) on :

I do agree that you should disclose all meds and supps.

I also take a copy of the IDSA guidelines and Dr B's guidelines in case they are interested in reading the real truth about lyme diagnosis and treatment.

Posted by mushroomman06 (Member # 13088) on :

I agree, it is in your interest and the doctors.

I also bring my case of Lyme to there attention to see there reaction and response and what there knowledge of Lyme might be.

I also have a complete log of the events and things that my body has been subjected to since the statment from my LLMD. We have hit the jackpot!

I take this folder with me and with in it I have different headings if further questions are asked.