I'm just starting treatment for Babesia Duncani (test just turned positive, I have had no symptoms until lately).
I have been in treatment for five years for Lyme, Bartonella, Ehrlichia and Anasplasma - still positive for most.
Lately I've had involuntary quick gasps for air. It's similar to the myoclonic movements I've had for years, but in this case, I involuntarily gasp for air through my mouth or nose, rather than having weird body movements.
Is this part of air hunger? Aside from the air gasps, I don't feel like I'm hungering for air.
I'm seeing one of my LLMDs tomorrow and will ask her.
I'm on Alinia and Biaxin. Next drug will be Malarone.
Thank you!! Jill
Posted by Starfall1969 (Member # 17353) on :
My air hunger seems to be more constant, like I always feel that I'm not getting enough oxtgen no matter how many deep breaths I take.
My LLMD says it's probably more related to babesia than Lyme.
It's one of my worst symptoms right now.
Posted by Jill E. (Member # 9121) on :
Thanks, Starfall,
What you describe is what other Babesia patients have described to me. But I've never had this gasping before so I figure it must be Babesia-related, but doesn't seem like classic air hunger.
I will be interested in hearing if anyone has this, or if my LLMD has patients with my version of the symptom.
Thanks again, Jill
Posted by MorningSong (Member # 19989) on :
I had air hunger at one time before starting IV. It was like trying to breath, but there was nothing in my lungs to give or like breathing through a straw. But it wasn't gasps.
Still I think yours could be related because each persons breathing could be affected differently.
Posted by bettyg (Member # 6147) on :
jill, your mailbox is full....
have you ever tested for sleep apnea, stopping breathing while sleeping & gasping for air?
i hadn;t until it was recommended; i HAVE SLEEP APNEA and know now i've had it 30-35 yrs!!
it also showed i get NO delta 4 sleep where body heals and you wake up feeling refreshed!!
good luck later today... xx
Posted by Jill E. (Member # 9121) on :
Thanks, Betty.
Yes, I recently did an overnight sleep study. I showed no sleep apnea and I do go through all four stages of sleep - ha! I couldn't believe that! I do have the gasping day and night - it's just been the last couple of months.
I'm now positive for Babesia Duncani, so maybe it's related. Also my thyroid medications were changed and I got underdosed for months so maybe that's adding to it.
The sleep specialist had worked with one Baronella patient before, so she was very interested in my case and wants to present it at a sleep conference.
My mother and brother both have sleep apnea and use C-PAP machines so I have the genetic history. It's just not showing up in the test.
I actually had the sleep study not for the gasping, but because in the last several months I've been having nighttime and early-morning vocalizations. It's like my myoclonus is now hitting the vocal chords.
The sleep doctor was baffled. She said it's the vocal chords, not the nasal area, but she had no solution. The Lyme doctors are not quite sure if it's my myoclonus of the last few years just hitting my vocal chords, or some other form of nerve inflammation or seizure.
Jill
Posted by bettyg (Member # 6147) on :
[QUOTE]Originally posted by Jill E.:
Thanks, Betty.
Yes, I recently did an overnight sleep study. I showed no sleep apnea and I do go through all four stages of sleep - ha! I couldn't believe that! I do have the gasping day and night - it's just been the last couple of months.
I'm now positive for Babesia Duncani, so maybe it's related. Also my thyroid medications were changed and I got underdosed for months so maybe that's adding to it.
The sleep specialist had worked with one Baronella patient before, so she was very interested in my case and wants to present it at a sleep conference.
My mother and brother both have sleep apnea and use C-PAP machines so I have the genetic history. It's just not showing up in the test. ****************************
hey, that's great about wanting to present yoru case at a sleep conference!!! maybe somethign good will come out of that !! it will get LYME/CO-INFECTIONS addressed too !!! progress..
Posted by peacemama (Member # 17666) on :
That sounds just like me these days. Like I'm sipping deeply.
Posted by lemonsnotlymes (Member # 19926) on :
My air hunger is a new symptom for me which
developed right after an increase in dosage for
my meds for Babs as well as an increase in some
herbs. Mine is like "sighing". It is really a
weird feeling. Mine is only occasional now, but
will likely happen more often when my LLMD
increases my meds tomorrow.
Posted by Jill E. (Member # 9121) on :
Lemons,
My main LLMD as well as local LLMD told me that sighing is a sign of Babesia. I've had a couple of uncontrollable loud sighs when I sleep - something I haven't had in five years of treatment.
Peacemama, that's so interesting that you and I are having the same symptom. Are you on treatment for Babesia? My IGeneX test was positive on the third test, what about you?
![[Smile]](smile.gif)
xx