So I have been doing the 500 mg of zithro once a day for 2 weeks now. I switched from doxy. So, I dont know if this is because the abx may not be fully working yet but let me tell you.
My symtpoms are worse then they have been. My stiff neck pain, chest pain, heart paps, numbness in limbs, shakes, headacjes, and stabbing pain won both sides of neck are all back with a vengence. I didnt go through this much pain onthe doxy. My symptoms werent as bad.
I just sent my doc an email asking if he thought combining the two would be a good mix or just increasing zithro to 1000 mg daily.
Any hints, tips, suggestions, comment, or concerns would be greatly appreciated.
Thanks for listening to me wine.....
Hope you all are doing well!!
Posted by bettyg (Member # 6147) on :
hi jaime,
never been on this; no personal experience,
you accidentally got duplicates of this post, please delete one of them.
click on link you are deleting click pencil to right of your name go to top left corner click delete post; click enter, and it's gone!
ignore moderator's comment; you can do this anytime.
if you have DUPLICATE posts like this, if you have a REPLY on the duplicate you will be deleting, please COPY ALL REPLIES and paste to the post that remains so their energy, time, etc. aren't wasted since they are so sick.
YOU CAN DELETE THIS ONE; my comments are not important; just tells you how to delete a post and how to edit REMOVING DOSAGES....
also NO DOSAGES of meds are to be mentioned; you can show meds....just not dosages. so please edit using pencil, 3rd box to right of your name, to delete info.
lou b's post recently on this and enforcing rule...
My best result were when combining zithromax, mepron, and rife - after 6 mos. I was back to work.
never taken it by itself so cannot give further advice, sry to hear you are declining. Posted by beths (Member # 18864) on :
Zith also hits bart..the fast heart, shakey and chest pain sound like my bart herx!
Posted by liesandmorelies (Member # 15323) on :
My LLMD really likes to combine zith with say amox or doxy.
It has been a great combo for me.
Zith is great for brain penetration.
Posted by gemofnj (Member # 15551) on :
Jaimie,
I was on zith for 4 months. It worked really good. I had most of your symptoms, especially the fierce neck pain for months and months. I remember complaining to my LLMD that I thought I had meningitis it hurt so bad.
Finally, I decided to listen to my LLMD and started getting a massage therapist who actually got rid of the pain. (could have been toxins lodged in the muscles)
I used to walk around the house with one of those bean neck bags you nuke to warm up, which did help a little.
If he ups your dosage, you could become quite sicker. My LLMD took the treatment slow and steady.
Anyway, stick with it. I am actually in remission since January, so there is light a the end of the tunnel!
Posted by JaimieB (Member # 19076) on :
Thank you everyone for replying. I am glad to hear that this may be the Zith actually working. I had added 400 mg of doxy to the mix as well. I need some major brain penetration to kill those boogers.
GEMO- CONGRATULATIONS!!! I am so happy to hear that for you!! How long were you on treatment, may I ask?
Posted by CTMomof3 (Member # 15493) on :
interesting to hear about the neck pain with zithro - my son is on it now (along with ceftin) for about 2 weeks and he is complaining that his neck really hurts. I've actually just noticed what looks like an enlarged node behind one of his ears (protruding). We're going to take him to pedi tomorrow b/c I'm concered about it - but does it sound like it could be because of the zith and that it's actually working? Oh, this is so confusing...
Posted by luvs2ride (Member # 8090) on :
Yes. I am on zith and I had a swollen peri-auricular gland. After 4 or 5 days, it went away.
Stiff neck comes and goes. I am only taking 250 mg zith every other day. I am also taking Mepron 1/2 tsp bid.
My doctor believes in starting low and slowly working up the dose.
Too much herx can cause permanent damage.
Posted by peacemama (Member # 17666) on :
I like the zith/mino combo that I'm on. Really gets to the brain.
Posted by seekhelp (Member # 15067) on :
![[Frown]](frown.gif)