Well folks, my first bionic 880 treatment is tomorrow. We drive two hours to get there, then a couple of hours there, then two hours home. I'm exhausted just thinking about this, and I'll have to do it twice a week.
Any words of wisdom as I begin this journey.
Forgot to say, the treatment is with Dr. W. in Germany. I live in switzerland.
Mary
[ 07-11-2009, 01:58 AM: Message edited by: lymewreck36 ]
Posted by feelfit (Member # 12770) on :
Just one:
BELIEVE
Best, Feelfit
Posted by KaitlinB (Member # 11718) on :
Good luck, Mary. I have had good results with the bionic 880 treatment (still ongoing) and I hope you do also.
You are in good hands with Dr. W. and his staff.
If the twice-weekly drive is overwhelming for you, could you possibly stay in the area between the two weekly treatments?
Posted by bettyg (Member # 6147) on :
MARY, best wishes that you will have a good outcome finally Posted by lymewreck36 (Member # 4395) on :
Thanks guys.
We just got home and had dinner with the kids. I missed them while we were gone. Three daughters.
Well, my husband is such a good man, and we are not rolling in money, but that does not prevent him from supporting this therapy.
We were laughing on the way home and saying that if the treatment works, we will NOT be able to call it the "placebo" effect.
I know that feelfit's advice above is to "believe," and that is what I am trying to do. But with my analytical mind, and my husband being a scientist, we are stretching our minds to believe in this therapy.
Nevertheless, we agree that I have nothing to loose at this point, so we are trying it.
When we got in the car to come home, my husband smiled at me and asked me if I felt any better yet.
I can't say yes,...I am very tired, but usually am, my feet are swelling up like potatoe sacks since I quit my antibiotics.....my heart beat has become irregular again, and my babesia leaves me swimming in water (sweat) all night long.
Don't know how many treatments it will take before I see a difference, but my husband and I agree that if we don't see a difference after the recommended 5 treatments, and I find I am able to return to antibiotics/anti-malarials, that I should resume the pill route.
What do you all think?
I begged the doctor to do simultaneous babesia treatment with the lyme treatment, and he gave me some speach about Americans always listing all their co-infections when a sick body could APPEAR to have all kinds of infections.
So his approach is to treat lyme, and then see what the body is left with.
He knows I have lyme from his little machine that he pressed on my leg with, and it registered lyme. Why can't he do that for babesia? Do his own theories and practices apply to other diseases?
I didn't want to push it with him. Right now I am trying to survive with immune system boosters and artimisinin for babs. I told him I was on artimisinin because I was just dying without it. He had no reply for that.
So that is where I am tonight. I must say that he is a very warm and fuzzy man, and his staff is also. It feels very peaceful in his office, and while I had my post-treatment detox drip, I just felt that peace and enjoyed it. Good Karma in there.
Thanks you guys for your replies. It means a lot.
Mary
[ 07-04-2009, 05:43 PM: Message edited by: lymewreck36 ]
Posted by cottonbrain (Member # 13769) on :
Mary, thx for posting .
When you are not too tired, cuold you explain what you did exactly in the session? And did you have to consult with Dr W in advance of the session?
Also, how long have you been ill, and under other treatments?
Do I understand correctly that the treatment only takes 2 and a half weeks?
It is wonderful of you to post your experience here -- so many of us want to know more about this therapy.
Posted by bamboo forest (Member # 21066) on :
LW after the MD treats you for 5 treatments and then tests you to see if your Lyme load is down if you continue to treat a bit more after that he will make a nosode of your own blood for you and start to treat all your co-infections with that nosode which contains all the diseases in your body.
My friend just started treating with a blood nosode with Dr. W. yesterday and had some old symptoms clear from that already.
Hang in there and keep doing the treatment.
Posted by sixgoofykids (Member # 11141) on :
The Lyme treatment is intense and it took time after I got back to treat the other infections. I would give it time after the five treatments before starting on meds again. It's just too much to treat them with the Bionic all at once, so do as the doc says and treat just Lyme first.
I found that my babs and bart aren't nearly as much of a problem as I had thought once I got rid of the Lyme. Apparently, according to testing, they are still there, but I go day after day feeling normal. I did treat them with Deseret Biologicals for six treatment like I did Lyme. Then I treated with blood. Now I treat monthly with blood.
I returned from Germany Nov. 1 so I've had lots of time to work on this. At first I had ups and downs, now I feel good.
Posted by lymewreck36 (Member # 4395) on :
Well, o.k. Let me see.....
We consulted with Dr. W. two weeks ago. He tried to explain the treatment to me, but I can't wrap my head around the concepts.
I was sick with lyme for more than 15 years, possibly decades, and am aware of different points of infection that were not diagnosed....until I saw a llmd in Dec. 2002. I was diagnosed by Igenex and by Danbury Hospital lab with lyme and babesia.
I have seen llmds in New York, Connecticut, North Carolina, Alabama, and now Louisianna. WE moved twice. I now live in Switzerland and fly to the U.S. for my llmd appointments.
I have treated babesia with high dose mepron/zith, cleocin/quinine, malerone/biaxin, artimisinin, ......
For lyme, I have had levaquin, cipro, cleocin, flagyle, tinidazole, zithro, biaxin, ceftin, omnicef, I.M. claforin, and even 5 months of rocephin, not to mention the doxy and minicin and tetracycline. I bet there are others I am not remembering.
No cure....and then I was hit this year with drug-induced lupus.
So I have had to quit the meds. I have had an occasional dose of meds to hold back acute symptoms which came back as soon as I withdrew from antibiotics/anti-malarials.....some zithro for a sinus infection.....which induced lupus symptoms.
I recently quit taking my plaquenil also, which I have been on for 7 years, and noticed I could take biaxin without full blown lupus after quitting it, the plaquenil. Perhaps plaquenil was the source of my problems.....It takes a few months to get out of your system I think, so it is too early to tell.
In the meantime, I had my first bionic treatment today.
My husband and I are the worse skeptics you can find I think. He is a Ph.D. scientist, and I am a very analytical person, and between the two of us, we hope we are not being sold snake oil. But we are open to healing coming from unexpected places....so....
Dr. W. is a very warm person, but I find the answers to the questions I put to him very vague and frustrating. For example....why not treat lyme and babesia at the same time?
He wants me to be off all medication, but he will not treat babesia right now? And then there was the suggestion today that people "think" they have babesia and other co-infections, but really it is lyme or a sick body mimicking other illnesses.
Nothing bothers a chronic lyme patient/activist more than a doctor suggesting you don't know if you have babesia or not, even when you are screaming with symptoms....every babesia test comes back positive, and withdrawing malarial medications makes it flare up.
NOthing worse than a doctor who won't validate you after you have learned and suffered as much as I have.
He even said to me...."why are you takiing malaria medication for babesia?"
Oh my God, and I'm putting my money and trust in this person.... you see what I mean....?????
So I went silent on the babesia front after I told him I would have to continue to take artimisinin for babesia if my symptoms continued to be out of control.
You know, this disease IS dangerous, especially when you have central nervous system symtoms with it, and irregular heart beats.
So...o.k. We began my treatment. I was put into a little space closed off by curtains, and the bionic machine sat next to me. The nurse came in and told me to hold the machine to 10 specific places on my body. She gave me a chart which numbered the places so I would have these instructions.
For each place, I was to hold my bionic "wand" on it for five minutes. My prescription for treatment asked for full power coming from the machine...100%.
I was also given a liter of water and a glass and told to drink it all.
Finally, there are little bottles of lyme bugs taped to your abdomen. Don't laugh folks at my lack of correct lingo. Please jump in to fill in the correct language for me. :-)
The places to hold the wand are inside of wrists, on the ears, top of head, forehead, under the neck both sides, chest, and abdomen. Ten places in all, always going from the right side to the left side....right wrist then left, right ear then left....etc.
I did all of this and drank my water, which took one hour. For this process you sit in a comfortable chair that reclines and raises your feet.
When that was over, I was told to use the bathroom if I needed, then I was put on an I.V. drip to help my body deal with toxins. I was told the I.V. had magnesium, support for liver detox and kidney, other stuff I can't remember, and bicarbonate to make the body alkaline, not acid.
This drip took one hour also.
All in all, I was in the office 2 1/2 hours for treatment.
The atmosphere is always pleasant and warm, and relaxing.
Funny thing about the treatment time.....and doctor claims....
You are prescribed five separate treatments. Treatments have to have two days between, so he schedules treatments for Mon/Thurs, or Tues/Fri, so that a person can have two treatments in a week. Total treatment time to get in the five treatments then is two 1/2 weeks, five separate visits you see.
He claims in his literature that he has a 95% cure rate , and then I noticed when reading a flyer in his office that it says that if you have the treatments and are still having symptoms after the treatments, then you didn't have lyme to begin with.
Upon talking to him about this, he explained that his machine tests for the bugs, and would test for lyme. Some kind of calibrating machine. I'm sure another patient will chime in here on this thread and remind me of the name of it. Again, no laughing please.
The machine said that I had lyme, and had it for decades and was very sick. This I already knew, but felt comforted that his machine wasn't going to argue with me.
So....I would do the five treatments, then have a month off for the photons to keep working he says. Then....we retest with this machine to see if I am cleared of the infection, or if I have it still. If I still have it, we treat more.
All of this is okay dokay if that machine is omniscient.
All of this, and the babesia is NOT being treated, and I'm supposed to stay off babs medication.
The theory here is that maybe I don't have babs, and I just think I do, he says (my blood was boiling at that comment).
Now, I am fully aware that we don't know everything about the human body and its mysteries, so I am willing to try to test his theory...but I do know that I have babesia.
I find that my situation is asking me to be off medication to figure out what to do about my drug induced lupus. So I am forced to stay away from medication.
That makes doing bionic 880 a natural alternative that I have nothing to loose doing.
Tonight my legs are huge with swelling. I hoped that my first sign of something happening would be the leg swelling going down.
So that is what I know so far. I am in no way well versed in bionic 880. I only relay my own, personal impressions at this early stage in the experience. That is all. I am not concluding anything right now about the experience.
We shall see.
Hope that helps, and I didn't offend anyone.
Mary
Posted by sixgoofykids (Member # 11141) on :
Mary, treating the Lyme first lessened the severity of babesia for me. I and my LLMD always thought my babesia infection was as bad as the Lyme, but when the Lyme was gone, I realized it was not.
Dr. B used to treat nothing but Lyme and treatment went on for years and years, then the coinfections would resolve themselves once the Lyme was gone. I have heard him say this in a talk ..... then they discovered that treating the coinfections simultaneously lessened treatment time. Taking that theory into account makes more sense of what Dr. W is saying.
I waited the month, then treated the Lyme again since I'm in the US. You can read my entire progression in my blog starting back in Oct. Now I'm well and hardly think about Lyme except from my friends who have it.
Posted by lymewreck36 (Member # 4395) on :
Hi sixgoofykids:
I did read all of your blog before deciding to do this treatment. Thank you for all the time you put into doing that for all of us.
Your blog pushed me into trying this....yes, so thanks.
Like I said, my mind is open, so we shall see what happens to me. But right now, I'm feel like I'm out on the empty ocean with no flotation device.
Mary
Posted by sixgoofykids (Member # 11141) on :
It is something you have to take on faith .... I don't even know that the good doctor can even explain HOW it works .... maybe theories on how, but not for sure how.
When you treat with the blood, that is when you get the rest of your specific infections ..... so if he seems aloof about what else you might have, that is most likely why. Your blood and saliva have all the information for what you have.
Posted by seekhelp (Member # 15067) on :
Wow, that sounds pretty goofy Lymewreck36. Not sure I could buy into all that at all either, but I wish you the best.
Posted by bamboo forest (Member # 21066) on :
lymewreck I think the bicarbonate of soda is very good for the human body. I also think it is a bit salty for my kidneys and it usually makes my ankles swell a little the next day after the magnesium IVs.
If it was me I would just try and stay as open minded as possible and give the analytical part of my brain a vacation for the next 3 weeks and try and relax and follow the MD's instructions. I know that keeping an open mind can be difficult at times. I think going through the treatment with a positive open mind can only help you and you plan to do the treatment anyway so try and stay open. This doctor is experienced. The fact he tested your thyroid when many LLMDs don't always catch thyroid issues is good.
I do think the doctor gets lots of positive results with many patients. It seems you have done a lot of abx already so why not try something new? You are lucky you already live in Europe. Many of my friends with Lyme would do almost anything to be able to go to Germany and treat with Dr. W. Try and relax and have faith and be grateful he is only two hours away from you not 11 or more.
Posted by tickbattler (Member # 14873) on :
lymewreck - I am watching this post and hoping you see good results! I have a feeling you will, but I'm sure it will take some time. What sixgoofy says about the coinfections makes sense.
Please keep us posted. Like you, I need to understand how things work, but I also am open-minded about treatment options. I would do the same as you if I were in your shoes. My entire family is infected and if we don't see results from abx, we may be over there too.
sixgoofy - thanks for all of your updates. It is wonderful news that it worked for you. I have not read as much as I should about the bionic, and one question I have is about safety.
Did you research that aspect and what did you find out? Are there any side effects besides herxes? How many years has the machine been in use? Do you understand how the lyme is killed while other things are not damaged?
Thanks,
tickbattler
Posted by sixgoofykids (Member # 11141) on :
My understanding is that what is actually happening is the light is strengthening the body. The body itself fights the infections. The reason for the nosodes is to get the pathogen into the body's energy field so it recognizes it's there. The light itself doesn't kill the pathogens.
I believe it's close to ten years that it's been in use for Lyme???
There is also a lot on a cancer experiment they did with kids. The kids would get mouth sores from treatment and the light would help the sores heal.
I think the biggest risk is of overuse. If you overuse it and your body starts trying to kill pathogens faster than you can detox the toxins, that is when you can get into trouble. I have used it very sparingly. I also let the Bionic do the work for months and only did other treatments that helped with detoxification.
Marnie has posted a lot of information, though it's hard to understand completely, it explains exactly how the light strengthens the cells.
It may only take three weeks in Germany, but the treatment is ongoing. At this point, I am about 100% well (KPU and parasite treatment has gotten me the rest of the way here). I still treat monthly for maintenance and because babs and bart still show up on muscle testing though I have little in the way of symptoms from them (though I haven't been tested again since KPU and parasite treatment).
Even though I'm doing little now, I treated for several months when I returned. Lyme monthly. Babs, bart, then blood .... three weeks of treatment, then a month break between. I found I made as much progress during the breaks as through the treatment.
It's a great treatment. It, like anything else, takes time and perseverance.
Posted by lymewreck36 (Member # 4395) on :
O.K. you folks are still in bed, middle of the night, but it is morning for me in Switzerland.
I slept well last night....
I feel a little lupusy this morning. Just a little. I was afraid that the light therapy would cause a lupus flare up, but it seems pretty safe. I would have had a full blown lupus flare by now if it were going to happen. So I am relieved about that.
I'll keep you posted.
Gee, it sure is nice to go through this with all of you, instead of alone. I mean, I'd rather none of us were sick,.....but, here we are....together.
Mary
Posted by sixgoofykids (Member # 11141) on :
That's good news, Mary! It was after the fourth treatment that I started feeling a difference. After the first one I felt weird .... not bad, but not good either, just weird.
Posted by ukcarry (Member # 18147) on :
Good luck, Mary!
I should try to suspend analysing what is going on with the babesia for the moment [you can always do that later!] and try to go with the flow of the treatment Dr W offers: that should be more relaxing for you.
Hope you see good results,
Carry
[ 07-06-2009, 06:48 AM: Message edited by: ukcarry ]
Posted by gemofnj (Member # 15551) on :
Mary,
Thank you so much for sharing. It is wonderful that you are willing to try a new approach.
I hope you have as much luck as Six in your recovery.
I find the stories very fascinating, and hope that someday soon we will have a 'breakthrough' that will work for everyone.
Who knows, maybe this is it.
(Thank you for keeping us posted and informed) Best in health!
Posted by Truthfinder (Member # 8512) on :
Best of luck, Mary.
Though this type of therapy may seem far from being `scientific', I think history will eventually tell a different story.
Selma (Brussels here on LN) recently reminded me of a couple of articles that you or your hubby may wish to take a look at. Though it won't necessarily explain why this treatment works, it may give you some insight as to what homeopathy is, and why biophotons and homeopathic remedies may work well together in the therapeutic realm.
Or, it may seem to you like just more talk about snake oils. You'll have to decide that for yourself.
As for Dr. W's resistance to treating Babs at the same time, if he doesn't have much experience treating Babs, do you really want him experimenting on YOU? Babs may require a different frequency/ remedy combination altogether. Let him work that out. I think the prevalence of some of our American co-infections is still baffling to him.
Posted by sixgoofykids (Member # 11141) on :
Babs does require a different frequency and remedy. I treated it after Germany .... I waited a month, did another Lyme treatment, then started on babs. Did another Lyme treatment after babs to be sure I got any Lyme the babs was hiding.
My babs is slowly letting go. Air hunger is my only remaining symptom from it, and it's lessened in severity over the months. I go in spurts with drinking high quality tonic water in addition to continuing treatment with the photons and blood (which contains the info for babs).
Lyme and babs just can't be treated together with the photons. Even if you did them both in the same day, it would just be too much.
Posted by lymewreck36 (Member # 4395) on :
Hi folks:
I will read through your links Truthfinder. Sometimes I get really lost in "lingo" though, but I'll give it my best shot. There are a lot of medical references that just fly over my head. I'm a literature student, not a science one, but I'll run them by my husband as well.
Thanks to you and everyone that sends a link my way to help me understand. My husband has said several times that he doesn't believe in this "treatment," but here we go spending over 1,000 Euros on this. When your health is gone, who really cares.
I had to take one Malerone today. I was so tortured by babesia last night, that I woke to crying fits today. Seems I just can't take one more day of it.
But the one malerone has dredged up lupus symptoms. My abdomen feels like hell, and the last few ribs on each side feel like they were dipped in acid.
I could just double over for the rest of the night.
God help me. How will I survive it.
I really want to see my grandchildren one day. That is what keeps me going.
Mary
Posted by gemofnj (Member # 15551) on :
Mary,
Sorry to hear you are having a bad day. Sounds like you are hitting something.
I think you are brave to give it a shot.
Hope you are feeling better tomorrow. Having grandchildren is a wonderful thing to focus on.
Posted by sixgoofykids (Member # 11141) on :
Mary, when I was in Germany, I had terrible night sweats every night for over a week. I think the photons did bring out some of the babs, but it stopped after some time. I know how badly you can feel, but I would encourage you to stay away from the bug killing drugs that interfere with the photon treatment. Hang in there. The treatment is INTENSE.
Posted by lymewreck36 (Member # 4395) on :
Today I had my second treatment in Germany with Bionic 880.
Before I comment on that, I want to say a few things about what I have experienced since my last appointment.
For 7 years, it has been the case that I have terrible swelling all over my body, but most visibly, in my legs and feet,... if I don't take my antibiotics.
It took almost a year of treatment in the beginning to get the leg swelling down to normal, despite using diaretics with my antibiotics. It just would not desist.
Anytime I have stopped my medication for a few short days, the swelling has come roaring back in.
Now, I have been off antibiotics for almost 8 weeks, and have been swollen to the point of misery. I did take zithro for 5 days for a sinus infection as I mentioned above, and followed it by one week of biaxin, and the swelling disappeared again.
But I quite the biaxin 3 days before my first bionic 880 treatment in order to comply with the doctor's wishes.
The day of my first appointment last Friday, I swelled to record proportions following my first I.V. drip.
But by Monday, the swelling had made remarkable progress, reducing to almost the same state as if I were taking antibiotics.
Today, despite driving four hours in the car to and from my doctor's appointment, and almost 3 hours sitting in the doctor's office, my ankles have no swelling whatsoever.
I am holding my breath.
Almost two decades ago, when I planned to have my first child, I read in a pregnancy book that a baby can die in the uterus, and the mother might not even know it. I brought this book to my husband is shear terror, and he told me to close it, that things like that would NOT happen to us.
But, during my third pregnancy, I was told what defects my baby had, when I was 20 weeks pregnant, and that she would die despite me carrying her full term. So I carried her, we waited, planned her funeral, and she died during delivery at 35 weeks gestation.
And a few years later, I finally had my diagnosis of lyme disease (which I think is what killed my third daughter).
I ran a girl scout troop at the time, and a parent noticed the pic line in my arm. I explained I had lyme disease...I was 36 years old at the time, hence my name in this forum...."lymewreck36."
The parent looked concerned and told me, "you know, that can be really impossible to get rid of."
I just smiled this smug smile, now that I think about it. I knew I had knowledge on my side, which most lyme victims dont' have in the beginning. I had done all the research, knew all the tricks, knew how to get a llmd, a pic line covered by insurance,....etc.
I also had God in my back pocket...I thought. I knew that God would see to this healing, right away. I was NOT like those other people in wheelchairs who could not get rid of lyme.
This was 2003.
By early 2004, I was floxed by fluroqinolone antibiotics, damaging my central nervous system, all my tendons and ligaments, and putting me in the hospital for emotional breakdown.
I remember crawling on the living room floor, hyperventilating, crying, and wondering how God could answer my prayer this way.
Then, I was humbled.
I have never put my faith in anything since then. And I am afraid to now. So, I hold my breath, and wait.
But something is different, after just this one treatment.
Do I still have hoards of other things wrong with my body, lyme and babesia....oh yes, absolutely. I am not seeing a light at the end of the tunnel at this early date.
I'm afraid to say more.
Today I went to my second appointment. I knew the routine. Arrive to the office, go to the treatment room, sit down and administer to myself the bionic treatment on the 10 positions instructed. Drink the liter of water.
Then, the I.V. drip to assist the body with detox. Lots of smiles in the office and a warm handshake from the doctor, and I'm in the car driving the two hours to get home.
I guess I have to say right now that I am afraid. NOt sure what of...what might not happen maybe...
Must get rest and I'll let you know tomorrow how I sleep tonight. Sleeping through the night has been actual WORK. I miss the days of sleeping 10 hours at night, when I was on my antibiotics.
Wishing wellness to all of you, Mary
Posted by tick battler (Member # 21113) on :
WOW Mary! The fact the the swelling has gone down is pretty amazing.
I would be interested to hear what Dr. W would attribute that to. Perhaps the detox? Or maybe the treatment itself!
Keep us posted. This is very exciting.
Hang in there. It sounds very hard. You are very brave!
Best,
tickbattler
Posted by sixgoofykids (Member # 11141) on :
Thanks for the update. I'm happy for your progress.
Posted by lymewreck36 (Member # 4395) on :
Slept like a baby last night, and dropped tons of fluid yesterday. Very interesting!
Mary
Posted by Truthfinder (Member # 8512) on :
"Very interesting"? Boy, I'll say.
I don't want to get overly exuberant, so I'll just give a small
.... though you might want to think about changing your name to LymeWrecker.... Posted by Brussels (Member # 13480) on :
I wrote you in the PM.
Most people doing the Bionics follow the pattern: before they do the sessions, they are all obsessed by killing, killing, killing.
A few months later after the treatment, all of them are not anymore on the killing obsession! They are trying to find other alternatives to build the immune system, detox etc.
That is why I think it works! For the Bb killing, I mean!
I hope you'll be also someone like that. Crossing fingers for you!
Posted by lymewreck36 (Member # 4395) on :
Very funny Truthfinder! I'd love to change my name to Lymewrecker, but we will have to wait and see on that one.
Brussels, you say you wrote me in the PM? Do you mean you sent a private message? Because I don't see one from you. Or did you mean something else?
ARe you saying that most people that do the bionic 880 are "cured" so they have time for other therapies? Or do they just stay off antibiotics and work on gettng the body to do the killing?
Anyway, if you mean "cure," then I also hope I am one of them.
Who are these people anyway, and do the bionic 880 people have one place where they post messages?
Mary
Posted by lymewreck36 (Member # 4395) on :
I forgot to mention, I have been so exhausted all day. I slept 10 hours last night, which is very unusual for the being off antibiotic pattern. And I have felt all day like I could just become one with my bed mattress.
It is like the fatigue after a long battle. Just exhausted.
STill no swelling in my legs. I can't get over that. All those medications to get it down, and now it is just down by itself.
Mary
Posted by Cass A (Member # 11134) on :
Dear Lymewreck36,
Sounds like you're making some good progress!
Please continue to keep us updated!
Best,
Cass A
Posted by lymewreck36 (Member # 4395) on :
Haven't felt well at all today. Like I could just dig my grave and get in.
What could it be? Well, I quit taking plaquenil about 2-3 weeks ago. Maybe the blood levels are just beginning to drop off.
Maybe because I quit taking the very, very low dose ultram I was on 3 days ago.
Maybe because it is a herx.....6th day since my first bionic 880 treatment, but the doc said I wouldn't herx on this treatment, just feel better.
What ever it is....very discouraging. I hurt so much, and am so tired..I don't know how I can drive myself to my appointment tomorrow.
Leg swelling still down though. :-)
Mary
Posted by linky123 (Member # 19974) on :
Praying for you!
Linky
Posted by lymewreck36 (Member # 4395) on :
Hi folks. Just got back from my third bionic 880 appointment.
Well....my pain level might be a little better than yesterday, but the fatigue in incredible. Perhaps this is my body working hard?
I really have NO way to gauge what is going on in my body. Very little response on this forum from previous bionic users...and the doctor is very absent at my appointments.
This is something I wanted to comment on. I have to wonder how the doctor can interpret how your treatment is doing when he doesn't talk to you at appointments. There is the consult before you begin treatment, with little note taking. Most of what the doctor bases his perception of your condition on is what his machine tells him.
Then, during treatment sessions, you get a handshake sometime during the photon application.
So I have to wonder, if I asked him if I were supposed to feel this way by treatment three, how would he know if he hasn't questioned people and kept records along the way? How would he know what a person like me might feel like at appointment three? How would he know if I might have a delayed response to feeling better, or immediate relief?
Seems that everything hangs on the machine, and what the machine says after your five treatments. If the machine says I no longer have lyme, then that is it. I don't have it. Just "symptoms."
If the machine says I don't have lyme, and I don't have symptoms, who am I to question!!!!!! That would be just fine.
But what if I do have symptoms.???? Retreat???
When you walk into the office, the lady at the desk tells the doctor you are there, and then tells you to go to the treatment room and begin therapy.
You go to the treatment room, she brings you the water you must drink, and sets up the photon machine, and you pull the curtain and begin.
Then, when you are done, the I.V., and you go home.
I guess I haven't known what to expect from an appointment, so anything I learn about this procedure is surprising.
(perhaps he reads the posts online? so he would know how I am doing then. When I first came to the doctor, he asked me if I heard about him from lymenet.
The office was busy today, and when I was in my little curtained room, I heard another American sounding voice in the farthest room. I introduced myself through the curtains, and so did she.
She told me some of her story. She is from Miami.....not a lymenet user right now, but I told her about you guys. She has been very crippled from tick born diseases, and she feels miraculous improvements from treatment. Today was her fifth treatment.
We never met face to face. But she sounded happy with her experience. I did not inquire further, about the future for her.
As for me, I do believe inside that if I weren't doing this therapy, I would be worse off today than the way I feel while I am doing the therapy.
No one has told me how they felt after treatment three. Not even the doctor has commented on it.
Groping around in the dark here.
Mary
Posted by bamboo forest (Member # 21066) on :
Hang in there and don't get discouraged. I did not start to feel really better until the end. I did have improvements but they were subtle and luckily I did not have any super fatigue but everyone is different. I did do a lot of mineral baths for help with detoxing so if you can find a sauna or mineral pool use it. Bad Wildbad has some super nice mineral pools and Ms. Florida can tell you how to get there and which ones to go to. She was my mineral pool partner in crime. She also can take you on a fun shopping tour of Germany but try and save some money for treatment if possible.
Ms. Florida was not on her 5th treatment. She did her 5th treatment before I did and I just did my 6th the other day.
Joking with her made my Bionic Treatments and IV's not bad at all. Next time you run into her ask her if she has come into contact with any bears in Dobel on her late night walks.
She will turn your treatment time into a sunny hour for you if you get her joking. She is getting better. I miss my treatment and walking shopping dining and soaking and floating buddy and had to take a walk last night without her. Next time you see her tell her her treatment buddy says hello.
Posted by SForsgren (Member # 7686) on :
Mary, that is how it works. There is generally not a need to see the doctor for every treatment session. Just go with it.
If you constantly question the process, the process will not work for you. You will sabotage any potential benefit. The mind is powerful and if you believe it will not work, chances are it won't.
Posted by lymewreck36 (Member # 4395) on :
Hey Scott, I'm examining the process and relaying my experience and thoughts/reactions to it as I promised people in this forum I would do that for them.
Also, I think it would be helpful to me and others if, instead of telling me to stop asking questions, you actually gave some feedback.
There was another thread about a week or so ago asking if some bionic people would be kind enough to explain the process, or something like that, so I am being thorough.
I noticed no doctor visits with the treatments, so that is what I report.
I noticed that there was no one to ask how I should feel after treatment three, so that is what I report.
Got it!!!! :-)
I think maybe it might bother some people for me to think out loud, but that is how I present my expereince.
People want to know what they are getting if they spend the time and money to come over here, and since I promised to tell all, I am telling exactly what happens. I feel the responsibility to do that, because I said I would.
Dr. W. is always a smiling, warm presence. I never doubt that he is concerned and watching. But the contact is very little during this part of the treatment. It's not a bad thing to say that.
And I am learning that there is less "clinical observation" in this process than "technical application." That is an interesting and surprising piece of information I have stumbled upon. I'm learning.
And examining this treatment protocol DOES NOT preempt faith. The two can co-exist. It is dangerous to think that they cannot.
No one should feel threatened by examining something.
Mary
[ 07-10-2009, 03:43 PM: Message edited by: lymewreck36 ]
Posted by lymewreck36 (Member # 4395) on :
Hey Bamboo, I think Ms. Florida might have told me this was her last treatment, and my mind called that the 5th treatment? Hard to say since I am so tired I can't be sure.
My treatment today included 6 hours of driving to do it. Traffic was bumper to bumper stand still on the highway back to switzerland.
I do bobble in the thermal mineral baths from time to time in Bad Sackingen.
But with packing my oldest to be off to college in the U.S., and company arriving on Sunday to spend a week, I'm not able to even nap.
I guess everything has its trade offs. I don't fly over here, spend that money, and stay in a hotel.
However, I have to attend to my daily life with my family while doing the treatments. That is just how it works out for me.
I caught onto Ms. Florida's sense of humor right away. I first asked the mystery person behind the curtain if she were another American, and she said "no!"
I was silent for a second. I'm thinking, Canadain? And she confessed she was from Florida.
She has quite a story to tell. WE all do.
So Bamboo, are you in treatment for a while longer. Might I bump into you?
By the way, I think the I.V.s are really a big part of feeling better. That is just my gut feeling. Mary
Posted by lymewreck36 (Member # 4395) on :
Gosh, I forgot one more thing. For someone who is tired, I sure am long winded tonight.
I shared the links sixgoofykids put in this thread about light therapy with my little sister. She is always interested in what I am doing with my illness.
And she sent me an email back that it was funny that I am doing this light therapy. Her very young son has type I diabetes, and she said she has read about a new procedure that uses far infrared light to treat type I diabetes.
I'll have to ask her for a link so we can all look at that. Sounds like we are all on to something.
Thank you for sharing your experience this way, Mary. It's very informative.
I've got all my fingers crossed that this works a miracle for you.
Posted by CD57 (Member # 11749) on :
Well said Mary. I don't think anyone should be telling you not to ask questions.
Posted by lymewreck36 (Member # 4395) on :
Thanks CD57. I'm trying to be a good girl and keep cool.
mary
Posted by wtl (Member # 19883) on :
quote:Originally posted by SForsgren: The mind is powerful and if you believe it will not work, chances are it won't.
So after all, it is all in our mind. Posted by wtl (Member # 19883) on :
lymewreck - without knowing much, could that be the language barrier that causes less communication? You speak German or he speaks English?
Isn't this teatment aiming at building up your immune system instead of killing the bugs? I am pretty confused with some conflicting theories even within this thread.
I too wish you a good luck and will be following the thread.
Posted by wtl (Member # 19883) on :
Someone also sent me this link from YouTube about one person's experience with the treatment.
It builds up the immune system and directs the immune system to kill the bugs .... more or less. It is directed to the Lyme .... if it were just an overall immune system building, then the other bugs would be killed, too, but as it is, most of us have to go back and kill the other stuff later.
Posted by bamboo forest (Member # 21066) on :
Ms. Florida will be around a bit longer so you might run in to her again. Last I heard she was going to still do some more treatments. I had to head home after our shopping spree last Tuesday due to spending all my Euros. Ms. Florida held a gun to my head and made me buy far too many items of clothing for "Your new life".
Actually you and I were treating on the same days for a bit just different time slots so we never ran into each other.
I finished treatment last Monday and the MD told me to go home and treat again in one month after he tested me with the Bicom 2000 and his Biotensor on Monday for Lyme and cos. Because my health has improved I used the Bionic 880 only with no nosodes and no IV's afterwards on my last treatment as instructed. He did not want me to over treat after he tested me and he found out that my spirochetes were not bothering me at the moment. I still have some cos too deal and with but for the moment I am feeling some what better.
He wrote me an Rx for 5 more magnesium zinc etc. IV's to use in the USA after my next five Bionic 880 treatments. I dragged home all the ingredients in my carry on.
If you want to talk to the MD more often you can arrange appointments with him and there will be a charge but it might help you get some assurance and questions answered. If you husband ever feels like calling or emailing the doctor I would still like to know about the MD's positive thinking instructions that he gives to all his German speaking patients.
If you want or need a acupuncture treatment let the receptionist know. Ms. Florida had one that really helped her gums and mouth feel better. Another person had a spinal adjustment that helped with her headaches.
The treatment can and does work for some! It certainly at least for me was better and faster acting then taking abx and Mepron and Malarone.
Posted by bamboo forest (Member # 21066) on :
Ps I did clear bart at least for the moment and I had bart at the start of treatment when I was first tested.
Posted by wtl (Member # 19883) on :
Thank you for the clarification about how it works, sixgoofykids.
Not that I don't have any more questions on how one could build up immune system specifically to fight Lyme, but I guess it sounds good for now.
Posted by sixgoofykids (Member # 11141) on :
Well, the nosodes direct the energies to Lyme ... that's very simplistic, but basically that's it. I mean, it makes you stronger, for sure, but the nosodes point out Lyme.
Posted by Truthfinder (Member # 8512) on :
Mary, you said: **''So I have to wonder, if I asked him if I were supposed to feel this way by treatment three, how would he know if he hasn't questioned people and kept records along the way? How would he know what a person like me might feel like at appointment three? How would he know if I might have a delayed response to feeling better, or immediate relief?''**
After treating thousands of patients, I'm sure Dr. W. feels like he has `seen it all' at every stage of the protocol. If you were only his 20th patient using the Bionic, I suspect things would be different.
If you read most of the blogs out there posted by Bionic users, I think you probably found that no two people had the same reactions, whether it was treatment 1 or treatment 3...... what I do remember from most of the blogs is that some degree of fatigue happened to virtually everyone during the course of treatment.
Wow, you have so much OTHER stuff going on right now! Frankly, I'm amazed at what you are able to do, not the least of which is driving yourself to and from the treatments! Just my opinion, but I think you've done amazingly well, so far.
Hang in there. Posted by lymewreck36 (Member # 4395) on :
Thanks Tracy, but I feel like hell. I can't believe how much a human being can stuff down and keep going. It is pure torture. My life never stops for me to get off, and no one seems to understand that. No one in my household understands that mother is next to needing an emergency room, even though they all have lyme.
The problem is that they are all high functioning lyme people, with medication.
I could crawl into bed at any moment and never get out again.
Company tomorrow,....if my husband knew what it felt like in my skin, he would have told them to get a hotel.
I have to say for all of you watching my post, that you must remember that I am struggling with lupus, and I have been suspecting that the "light" in this treatment is causing some flaring.
I have indicators that it is flaring.
Mary
Posted by sixgoofykids (Member # 11141) on :
Sorry, Mary, the light treatment is not easy at all. Be sure you get lots of rest (I read three novels the first two weeks of treatment because I was resting so much) .... you need the rest to heal.
Posted by bamboo forest (Member # 21066) on :
Sorry Mary that you are going through this and I hope you start to feel better soon.
I just wanted to say for other people reading this who might be considering treating with light that I did breeze through the treatment with the only a tiny bit of herxing in the form of night sweats. My herxing was basically not note worthy. I had no heavy added fatigue during treatment or any discomfort so everyone is different and not everyone has a difficult time during treatment. Some people do.
I think it is important to get time alone and rest and take saunas, detox baths or do mineral pools and not to make any big plans for the first 3 or 4 weeks of treatment.
It is important to have a restful comfortable relaxing environment so camp grounds are out. Time alone is helpful when killing bugs and waking up the immune system. Walking being surrounded by beauty and detoxing and taking time to visualize a new healthy you are all important. Eating well is important too.
Mary is there anyway you can get away from your family while doing the Bionic 880 treatment and stay somewhere more restful so you are actually able to receive the treatment as the MD intended? I just don't want to see you not being able to rest while spending so much money on treatment.
Posted by lymie_in_md (Member # 14197) on :
Mary -- I highly sympathise with anyone with lupus. It is problematic in your treatment, but you made a choice to find some manner of arresting lyme from your body.
I suppose it is best to look at this as a great opportunity to heal. As some of the others are saying, your body is transforming from point a to point b, rest and a positive frame of mind are sooo important. So imagine this period of time is like a moth in a crysalis and hold on to that hope.
Posted by cottonbrain (Member # 13769) on :
Mary, I appreciate your thread so very much. In my opinion, you are right to question. And your details are really helpful.
Especially since there are no definitive studies or even polls to show how many succeed on the therapy.
That's why people like me are so appreciative of your honesty. I really wonder if many of the people who report success with the treatment have started out at a higher functioning level than you, and thus it is easier to mop up the remaining infections for them?
For instance, people who underwent treatment are saying that they walked, shopped, flew on airplanes, went to restaurants, soaked in hot tubs, or read novels while undergoing treatment. Wow!!!
For many of us, doing any ONE of those activities would send us straight to bed.
Please continue to keep us posted and to let us know when you have questions, and whether they are answered; also, we like hearing when you notice improvements (such as your leg swelling -- has it sstayed down?)
And thanks to the other users of this treatment for keeping us informed as well. Posted by m0joey (Member # 13494) on :
I think many people will continue to be disappointed by this therapy if they expect a cure. For those us that have gotten to the point where we need a therapy like this, there will not be a magic bullet. At least not that I can imagine. For there to be a magic bullet, you need to have the right combination of detoxification genetics, methylation cycle genetics-- in which case antibiotics alone just might do it.
But we are not so lucky. We are here because we don't have the right combination, and in the process there are many vicious cycles in our body to attend to and reverse. Most of us have major emotional traumas, some physical traumas that just add to the overall body burden when you can't detoxify toxins and bugs.
However, I have a suspicion that with time, biophoton therapy will be one therapy that can be a jack of all trades. It can do so many things: reverse allergies to allergens, foods, pathogens, resolve emotional disturbances, help the body fight pathogens, reverse hormonal deficiencies, detoxify, and even help restore imbalances in the invisible (to naked eye) biophoton field that surrounds the visible body.
Of course, for us to reap these benefits now, we need to be very proactive in finding out what our body needs on a weekly if not daily basis. It is very very easy to think we're not overtreating when in fact our organs are already overloaded without manifesting any signs of such. That is what has happened to me on so many occasions. But when I know exactly what I need to treat and what my body can handle, I feel like I'm in utter control of my body's healing and destiny. I suspect there are others that are farther along with energetic treatment that feel the same way.
Mary--I hope you keep a positive attitude regardless of where you're at by the end of your trip. This is a great big first step you are taking to heal. Just realize that our journey isn't all about killing lyme.
Posted by m0joey (Member # 13494) on :
And I wanted to add: I am certainly not one of the patients that could do much more than walk for 10-15 min a day when I was in Germany. Scott, Six, and Paul can all attest to this. i've outlined my progress very meticulously in my blog. Of course, maybe a little too meticulously (I tend to be on the verbose side) which may make the trends hard to catch. But I suspect no one that is truly curious about this therapy and has taken the time to read my blog can say I've left many stones unturned and haven't made a ton of progress in the last 9 months, much due to photon therapy
Posted by sixgoofykids (Member # 11141) on :
I can vouch for mOjoey, he was in rough shape when he arrived in Germany.
Cottonbrain, I am hoping you did not intend to imply the rest of us were dishonest .... I am working on the assumption that is not what you meant.
I spent two days in bed after the flight over there except to go get something to eat and go to the grocery .... and the doctor .... only stuff that had to be done. Yes, I read books because I was lying in bed most of the day. By the last week, I wasn't reading at all because I was busy most of the time.
By the time Joey got there, I was highly functioning and only found the baths my last week there, so only got to go one time. I saw drastic improvement after the fourth treatment.
I, too, blogged and kept meticulous records of exactly how I felt all along.
When Dr. W tested me for Lyme with is Bicom 2000 he was very surprised how poorly I tested and was of the opinion that I have had Lyme for a very long time. My reading only went up to about 10-15 when it should have been at 70-80, which is where it was when I left. So, even though I had had long term abx, Lyme was still a major stress on my body.
So, it's not just highly functioning people doing well with this treatment.
Posted by cottonbrain (Member # 13769) on :
Hey Six, in no way was I implying that anyone was being dishonest. On the contrary, I think it is great hearing from ALL of you on your treatment.
I said, "I really wonder if many of the people who report success with the treatment have started out at a higher functioning level than you, and thus it is easier to mop up the remaining infections for them?"
That's what I meant, and I'm appreciative of your explaining what your situation was.
Mojoey, lots of us can't read through the blogs that you and others have so painstakingly put together. We just skim on good days. So thanks for letting us know.
You are all doing us a service by reporting on your outcomes, and I don't think anyone here would disagree, especially me. Posted by sixgoofykids (Member # 11141) on :
It wasn't only that statement alone ... it was almost the whole post that made the implication .... it's hard to know what people mean since so much of our normal communication is through body language .... that's why I always assume the best.
I was only high functioning on heavy medication. Once off heavy meds, I would crash, which is where I was when I went to Germany. I believe the only reason I could get there myself was due to adrenaline the day I went over.
Posted by bamboo forest (Member # 21066) on :
Dr. W. said when he tested me on the Bicom 2000 that I had Lyme over 20 years and that 80% of my energy was taken by Lyme. I have had all kinds of horrendous symptoms in the past such as non stop panic attacks, anxiety and insomnia that left me un-able to work or function to my most recent issues of lots of fatigue and lack of stamina along with ADD poor concentration and low thyroid just to name a few. I also had before Germany active EBV and CFS.
Flying makes me very ill and I arrived in Frankfurt in bad shape with a bad headache and I was feeling very nauseous. I felt like I needed oxygen on the flight yet did not ask for any. There was a child having seizures on our flight and I did not want to add my problems to the problems already going on. On the 11 hour flight home I did fine.
I do think looking back on it that the photon treatment did give me added energy and perhaps the thyroid Rx I started while I was there did so as well. The thyroid Rx though is not the fast acting kind of thyroid medicine so I am not sure if it helped or not or is even helping yet. For some reason today I am feeling rather low energy and that could be due to other variables such as jet lag or possible mold.
The further I was along in my treatment in Germany looking back on it the more energy I had. I had not been on any medication for well over a year before treating in Germany. I was taking some Buhner herbs until two weeks or so before leaving for Germany. Dr. W. advised me to treat again in one month after returning home and to try not to take a lot of supplements.
Normally shopping wears me out and in Germany it started to after too many hours spent trying on clothes. Floating in mineral pools sometimes gives me herx like symptoms the next day but in Germany it made me perhaps more tired the next day but seemed to be a good aid for me for relaxation and detoxing.
Posted by seekhelp (Member # 15067) on :
Is Dr. W using ART testing or simply hooking people up to a machine to give him all the answers? If one had access to a Bionic 880 and his diagnosis machine, along with IV supplements, could one do the treatment in the U.S.
I didn't realize much of the treatment while in Germany is self-administered by the patient. Very unusual. What if one has a severe herx reaction? Does he have a medical staff trained for emergency situations? Hospitals nearby? Under a universal health care system, wouldn't a U.S. resident be in HUGE trouble overseas since not entitled to emergency care if your domestic health plan doesn't provide International travel health coverage?
I guess I think about too much. lol. Mary, I hope the next two treatments help you turn the corner and make huge leaps in your health. Thanks ao much for the informative, detailed account. It's interesting to read.
Posted by lymewreck36 (Member # 4395) on :
Lupus crash!!!!
Either the plaquenil is not out of my system, and it WAS causing THE lupus....so the "photo" of the bionic 880 is causing a flare. You see, light can cause lupus flare ups. So if the lupus was caused by plaquenil, and I am receiving "light" therapy, and the plaquenil is still in my system, then bionic 880 can cause a flare, even though Dr. W says it shouldn't.
OR
Quitting plaquenil allowed the lupus to ravage me out of control. It has been three weeks off plaquenil tomorrow. Plaquenil is also the first line treatment of lupus. I know...confusing...me too.
Lord help me. Last night was tortuous night sweats and lupus pain....abdominal, lymph nodes from hell, vision blurred out, dizziness I can hardly stand....pain all over, especially low back, just horrible pain...crippling. Lungs are sore when I breath in and out, even my heart feels sore, if that is possible.
I'm just crying today.
I took plaquenil this morning. If the pain gets WORSE, then that was the wrong thing to do, and plaquenil is CAUSING the lupus and the photos of bionic 880 are causing a flare. It takes severl months to get plaquenil completely our of your system.
If the plaquenil makes the lupus flare calm down, then definitely I can't drop it. Must stay on it.
Some people just suffer until they die.
Mary
Posted by CherylSue (Member # 13077) on :
I'm so sorry to hear your latest travail. God hear your prayer and get relief soon!
Hugs, CherylSue
Posted by n.northernlights (Member # 17934) on :
seekhelp, there were some stories in the old long Bionic 800 thread about people who wrote that Dr. W is a very good clinician. One person happened to get an acute apppendicitis attack, and Dr. W. has excellent connections to the hospital and she got the appendix removed (and afterwards tested negative for borrelia...).
I have started to plow through reading that old thread. Getting some good information in there. I read through the appendicitis episode last night! Wow. The body is such an amazing mystery.
Thanks for replying. Everything helps. Sometimes just not being alone helps.
Mary
Posted by bejoy (Member # 11129) on :
Mary, I am so sorry about how difficult this is for you right now. I'm sorry about the pain.
Some suggestions for you if you have someone you can consult with about these ideas:
Can you get a glutathione IV to help you detox?
Can you get some drainage homeopathics to help your liver and spleen? The location of abdominal pain and the swollen lymph sounds like your drainage systems are not functioning well.
In the US I use DesBio homeopathic Systemic Drainage. In Switzerland I understand the Heel products are very good, although I am not so familiar.
Are you taking some form of adrenal support? It sounds to me like your adrenals are overtaxed, and your cortisol levels very well might be very low.
There are some very good herbal and nutritional supplements to support adrenals. I have seen some people sucessfully support cortisol levels with homeopathic cortisol as well.
If you have someone who can do energy testing you can have them test your body's response to Plaquenil. It is possible that you might also benefit from a homeopathic preparation of Plaquenil if your body needs to detox from it.
Mary, this is a temporary set back. Your body is working hard to clear the pathogens and toxins. You will get through this.
Posted by [email protected] (Member # 20152) on :
Mary, I'm sorry you are having such a rotten time. Please know we understand how bad you feel, even when your family doesn't quite get it. How could they, really? They haven't experienced it. Hang in there! I hope you feel better soon. Please keep us updated.
Posted by btmb03 (Member # 18394) on :
Cottonbrain, I too have asked the very same questions related to people's functioning levels...sightseeing, shopping, eating out, renting bicycles, etc- this controversy was covered in previous threads where (my brain fails me) someone who went to Germany had posted that they were functioning at around 90% prior to the trip.
I think it is good to ask these questions. I don't think anyone is implying anything, just seeking clarification. Posted by sixgoofykids (Member # 11141) on :
One thing to remember is, when you go for this treatment, you are there for three weeks. Many of us feel a lot better, though not well, by that third week. Also, by the nature of Lyme we have good days and bad. Plus, remember that we are sightseeing with other Lymies, so there are times for breaks.
The walk to eat out in Dobel is not far and is a lot easier than shopping and cooking for yourself.
So, you're hearing about the times we go out an do something over a period of three weeks. If I had felt good the whole trip, I would have done significantly more. For most of us, the vast majority of the trip was merely doing essentials.
I know Joey rented bicycles, but when I saw him his first week there and my last, he didn't look in any shape to be riding a bike .... he was generally seen either sitting or leaning against a wall when he was out of his apartment. We all spent many hours sitting in our jammies in the hall of the guesthouse visiting.
The couple week prior to going, I was mostly bed/couch bound due to having stopped meds a few weeks before.
Scott was highly functioning when he arrived, thankfully, because it was my last week and I got to spend a day with him traveling in France .... a highlight of my trip!
My two traveling partners were in about the same shape as I was (one was probably a little worse). Let's face it, who would bother to go over there if they were essentially healthy? Except for Scott, the rest of us were very typical chronic Lymies. And no one can fault Scott for wanting more than 90% .... I know I wanted more.
One year ago this month I was just starting back on Mepron/Zith/art/plaquenil/cedax and was having a tough time. I was discussing with my dad the financing of the Germany trip. Next month will be the one year anniversary for me of stopping the abx. I can't believe so much has changed in one year. I am not a person who just got a little better.
Posted by lymewreck36 (Member # 4395) on :
I folks. I have to agree, finding it hard to rest things on "faith" the way I do, that this treatment DOES do something for the lyme.
Who would have thought? Not me.
And yes, I am living in hell tonight with pain, but I don't know if it is lupus, left over plaquenil causing drug induced lupus to flare, or if I am having a HUGE detox reaction causing my immune system to get cross wired..as it has been in the past few months.
But I DO know that something has happened to some of my LYME symptoms....numbness for example, and anxiety for example....to make these things get better.
I am really a mess, but in my own mind and body, I know that that little photon machine is doing something......something....I am not sure what. But it is doing something.
I sent a quick email to Dr. W. about my situation. I'll get my husband to phone his office tomorrow to explain that I need to see him at my next photon appointment on Tuesday.
On the subject of being active while being sick....I have to say that I have dragged myself all over Switzerland with pain killers and leaning on my husband's shoulder or arm because I don't want to live here and miss anything. Then I have a good cry and spend the next few days in bed.
IT is so beautiful in Switzerland. It reminds me that I am alive even if I don't feel like it sometimes. So I go.
I can understand visiting a foreign country, sick as a dog, and making myself go out to see it.
But when I am home, I am completely bed ridden, or sofa ridden.
One life....once chance to do it....and it's over.
Mary
Posted by m0joey (Member # 13494) on :
I rented bikes because my main symptoms were fatigue related and not pain. In fact I've never had any pain...but Six actually portrayed my disability pretty well (thanks Six!). I rented bikes because I wanted to be able to do a little sightseeing...who knew when I'd be able to go back to Germany again, and biking on flat roads allowed me to cover more ground. It sounds way more intensive than it is. Being able to rent bikes at city centers was really a godsend for my orthostatic intolerance & fatigue. I suggest others that have similar symptoms to consider doing this too.
Also, I second Six's comment about eating out near or in Dobel. There's a place with pictures of its menu items out in front that I ate at every few days. I actually found Germany food to be really healthy (surprisingly), probably because I'm on the paleo diet. There are less additives in everything, so you're basically getting lots of meat if you take out the potatoes. There are also a lot of turkish/mediterranean places in the shopping mall near Dr. W's office. I pretty much eat Mexican food back home every time I go out, so those Turkish gyro wraps was the closest I could get to yeast-free, gluten-free, sugar-free, dairy-free (if you replace yogurt sauce with chili peppers--yum!). I actually we had more gyro places back home!! There's also a Greek restaurant called Dionysus (I think) on the way to Bad Herrenalb. Very healthy.
Posted by bamboo forest (Member # 21066) on :
For me some the activities I did in Germany helped me rather than wore me out. I was able to walk further as treatment went on so I often walked for exercise which I found relaxing and enjoyable. I also think when people are healthy enough to do some exercise it helps clear the lymph so improves you ability to detox.
The owner of the guest house Karin Klein is super and will take people walking through the Black Forest with her if she knows you like to walk. If you are afraid of ticks there are other walks you can take that are beautiful as well without going on a dirt trail.
One nice walk was down to the horse farm on a paved driveway. It starts where the T-Mobil phone booth is on the way into Dobel across the street from the guest house. I did that one with a friend after 1:00 pm on my last night in Dobel and it was wonderful. The walk past the horse farm to the right is super nice too. I did that same walk on the full moon and kept my eye on the beautiful pink orange moon above a valley and field below.
Walking into Dobel for dinner and back was a nice short walk.
For me floating in mineral pools was very nurturing and relaxing and they do help you detox while putting minerals into your body. If that is an activity one is able to do I highly recommend it. After soaking and floating I some other members of the guest house always slept much better.
I did not do any hardcore clothes shopping until my last day before I left Germany and I was feeling better by then. That kind of shopping before I left for Germany would have never happened or if it did I would have been fatigued and lying around for two days after that completely worn out.
Everyone is different and has different levels of energy before and after treatment.
Posted by lymewreck36 (Member # 4395) on :
I wanted to let folks in here know that I sent an email to Dr. W. last night with specifics of what I am going through, my questions about it being a lupus flare, or detox overload, etc. I told him I was scared and that my pain was so bad I was having "pain nightmares."
I dreamed night before last that I had a rope tied around my waist, and it was being pulled so tightly it was cutting me in half and flesh was breaking open.
When I woke up I realized it was the severe abdominal pain that made me dream that.
Anyway, this morning I am here drinking my coffee at 6:30 a.m. and I have a reply from Dr. W.
He says he feels it is a deep detox reaction and recommended a high raw vegee meal plan. He won't be in the office tomorrow for my appointment because it is his wife's birthday, but he said he would leave a "plan" for me, and we would talk on Friday.
How many doctor's answer your emails like that ?!
I feel a little better in some ways this morning, but I did take two plaquenil yesterday out of desperation and not knowing what the heck to do to survive the day. Don't know what part that played in feeling better today.
But by last night, I had kidney pain, which I have never had before in my life. Now I know what people mean when they say they have kidney pain. No mistaking it.
I see my rheumatologist this morning to go over blood work I had drawn last Monday.
Bionic 880 appointment tomorrow.
Mary
Posted by lymewreck36 (Member # 4395) on :
Hey, sixgoofy.....I was just reading through some of your blog again and noticed we have something in common...
We're both Catholic girls that play flute in the choir!
Well, for me,,,,the flute thing has been on the back burner for some time,..but the first half of my life was flute, flute, flute, and my DAd was the choir director organist for our church for 28 years. Dad is a retired music professor.
He's retired now, as my flute playing has been for a while since I have been sick, but....I still think of myself as the flute player.
Mary
Posted by sixgoofykids (Member # 11141) on :
Hi Mary! That's fun! I played from 5th grade through high school, then didn't play at all for 23 years. Picked it up several years ago. I was unable to go to choir practice when I was ill, but they understood and let me play anyway. Some days I was sitting on the stool (normally stand) and leaning my head against the organ between songs, but I refused to quit. Some days I'd only last half a Mass then would go sit with my family.
I hope you see the results I did with this treatment. It was a big piece of the puzzle for me.
I found the flute playing always made me feel better. I couldn't think about being sick, and it helped my breathing. It always put me in a good mood. Maybe you need to dust yours off and do some playing again!
Posted by lymewreck36 (Member # 4395) on :
I have some good news for everyone...but first I must address sixgoofy and the flute thing....
You know....I have always thought that a lot of my adult depression has been from being disconnected from those things that are part of my soul. Like music, and teaching......
I was All-State for four years...played in the Montgomery symphony my senior year in High School, and started college on a music scholarship...but dropped the scholarship to change my major.
But as a busy mom and sick adult, I have been separated from that part of me that makes my soul sing. And teaching is the same thing...
Teaching literature and writing is so personal, and you get into kids lives, and they talk to you, and you realize you are shaping their minds....I miss them so terribly...And I was so good at it...I felt the bond with my students, and they did with me.
O.K. enough blah, blah, blah......
I went to my new rheumatologist (didn't have a swiss doctor until now), and we went over my blood work which was drawn last week Monday.
My cholesterol, my blood sugar (with two metformin a day) are all normal. This is very good for someone overweight like myself.
But here is the biggest news.....(roll on a drum please)
My Lupus blood work is all negative. There is no trace of it.
Of course, I was not is this huge flare one week ago when the blood was drawn, but the doctor said it would not flip flop that fast.
I told her my story of the flare I am having and she said it sounded to her like a healing crisis.
This is what I have been going through. After my first treatment, I noticed the swelling in my legs miraculously went down to normal. AFter my second treatment, I started having this fatigue that got me crying it was so debilitating.
Then, I was cruising into my third treatment, but started, right between my second and third treatment, feeling pain from hell crawling into my body. I remember sitting last week Thrusday getting my hair done, and during the time of sitting in the chair and exiting the salon, I went so far down hill I was afraid I wouldn't get home.
Then Friday came and I had my third bionic treatment. Friday night was more crying because I was in so much pain, and by Saturday, when my family went to a renaissance festival in a Middle Ages village in Northern Switzerland, I was screaming bloody murder inside.
I got home Saturday night and had crying fits of anguish because of the pain. My vision blurred out, my head was throbbing, I had to sit on all fours and rock back and forth because of stomach pain, was sweating...
I started to shake and shutter like I was freezing cold, but I was sweating, and I had that pain dream that night that my body was being cut in half by a large, rugged rope being tightened.
On Sunday morning.... my lymph nodes were so swollen in my groin area that I couldn't even walk. Just trying to shuffle a few things on my desk made me shake and tremble all over from the effort. I continued to shake and tremble....and rock back and forth with pain.....but I took my advil and detox herbs and drank green tea all day.
This morning, Monday morning, I felt a huge difference from Sunday morning....likes it is backing off slowly. I realized that whatever was causing the explosion had climaxed on Sunday, and I was walking out of it.
I emailed Dr. W. last night and he said I should eat raw foods all day, no dairy, and little meat, and finally, no pork. Funny that pork thing. I'll have to ask him about that.
Tonight I need advil again. I've been drinking water and green tea, and hope for a more restful night tonight.
Tomorrow is my next bionic treatment...I treat on Tuesdays and Fridays....and I am scared to death to point that thing at my body. It is really stirring the pot. I am in SHOCK!!!!
But I know I have to do this....Dr. W. is now aware of what is happening and he said he would have a "plan" for me tomorrow. Anxious to see what that is.
So, I have to say folks, that even though I am feeling like garbage, I feel more positive tonight, like maybe I will have better days ahead.
That is my news for tonight. Thanks to all of you that PM me or write in this thread. Every single email I read over and over, and meditate on. You are all terrific people.
Mary
Posted by bamboo forest (Member # 21066) on :
Mary I am sure when the MD says he has a plan for you he does. He is very good at figuring out what to do for each of his different patients health issues. I watched him work on Ms. Florida's head and gum problems one day with acupuncture and a chiropractic adjustment. You are in good hands and are so lucky to be treating there. He helped another person with their headaches with an adjustment while I was still in Germany.
You might even run into Ms. Florida on Friday because that is one of her treating days too. She is still there until the doctor leaves on vacation. She told me she met you.
Enjoy the rest of your treatment. I have a feeling the worst of your herxing might be over and soon you will be feeling good. I still am and hope you will be soon too. It will all be worth it when you are.
Posted by lymewreck36 (Member # 4395) on :
I'm sure he has a plan. I'm excited today. I'm having my morning coffee and getting ready to hit the road. I'll post tonight about how it went today.
So nice not to take antibiotics.
Mary
Posted by bamboo forest (Member # 21066) on :
Mary I am glad you are getting excited. That is a good place to be mentally. Have a good treatment today.
Posted by Truthfinder (Member # 8512) on :
As I write this, you are probably back 'home' or on your way there..... can't wait for a report.
I hope you did remember to ask about the pork thing..... I've heard that before....
Mary, has your 'Lupus blood work' ever been negative before?
Also, if you think of it, could you list what tests were considered in your "Lupus blood work' by your new Swiss rheumy? (I'd be interested to know what tests are being looked at.)
Keeping my fingers crossed for ya....
Posted by lymie_in_md (Member # 14197) on :
Great news Mary. Posted by lymewreck36 (Member # 4395) on :
Thanks for all the replies guys. Yes, I am getting excited,....but afraid to at the same time.
But just the thought that there might be a non invasive treatment with no negative side effects, that will make me functional....is so exciting.
I still have miles to go, but I've made progress with the crazy beam of light.
O.K. So you know I am back home. Funny thing is that Dr. W. did not leave any notes or any "plan" in my file for the nurses to give to me or talk about to me.
You know he was not in the office today becuase it is his wife's birthday.
So he either got too busy and forgot, or just intends to discuss with me on Friday. That being the case, I did not get to ask him about the pork thing.
I got to the office. Horrible traffic today so my daughter and I were quite frustrated by the time we got there.
WE went behind the curtain for my treatment and sat there and giggled quietly for the entire hour. Then the I.V. Then back on the highway. Oh yes, my daughter is very excited because there is a SUBWAY sandwich place we have made a habit of stopping at before driving home.
So that is my news for the treatment. On the subject of the pain and fatigue I have been dealing with, it has been getting steadily better since the fallout on Sunday morning. So I am even better today than yesterday. But still very weak and tired.
About Lupus.....my first clue to the diagnosis was a very positive ANA. I have been having an ANA run every six months because it has been suspicious over the years, but never had a positive lupus "panel" before.
It was this winter that I started having the "lupus" symptoms, and it was my llmd appointment at Easter this year that the blood panel became positive for lupus. In that panel, my "Single Stranded DNA" was positive, but not the "Double STranded DNA."
Then I looked online under lupus testing because I did not have a rheumy yet, and found that drug-induced lupus usually has the single stranded DNA positive, but not the double stranded DNA.
This was hopeful for me in some ways. That meant that by finding the right medication to drop, I could side step that bullet. But.... that made the lyme/babesia situation more of a nightmare.
And as time wore on, it turned out that ANY medication caused a "lupus" flare. Only one medication I had NOT tried to drop, and that was plaquenil.
Finally I got a sinus infection and needed to take a z-pack. I had found ONE place on the net that said plaquenil could cause drug induced lupus. So I dropped the plaquenil with great trepidation, and took the z-pack.
Much to my surprise, the zithromax did not cause a flare!!! So I started to believe it was the plaquenil all along causing the nightmare. I've been on it for 7 years.
I have not, however, been able to resume taking an antimalarial other than artemisinin without a flare. I have to wonder if that is because the plaquenil is still in my system. It takes months to leave completely.
This is the place I was in when I started to see Dr. W in Germany and my rheumy in Switzerland.
I gave my rheumy my blood work with the positive lupus panels, and she said she could not tell me if my lupus was drug induced unless she had one other test, a histimine, or histone,....can't remember. So she did another complete panel with this one other test added in.
You would think I would know what that one other test was, since I am so relieved it came back negative.
So I went to her office yesterday morning to go over the blood work results. It has been 9 weeks off antibiotics, minus the z-pack I took, and 2 weeks off plaqauenil when the blood was drawn.
So, she told me my lupus blood panels were completely negative,....every one of them. She said there was no sign of me having a positive result.
We can guess that my earlier positive tests were "drug induced" which is what we did, but there is no sure cause and effect that the doctor can determine from information she has in a test.
My plan now is to continue following instructions from Dr. W. I have one more treatment to complete the five, but I am going to ask for two more next week, and then I leave for my "home leave" to the U.S. for three weeks.
AFter that, I want to begin treating babesia and/or continuing lyme treatments if that is what I still test positive for.
It would be interesting for me to know how many of you that have gone to Germany tested positive after the first five treatments and needed more treatments.
Now I must go and be with my family. I'm very tired as you all could imagine.
I'll post tomorrow about what reactions I had to today's treatment.
Take care all of you, Mary
Posted by SForsgren (Member # 7686) on :
I've done about 75 total treatments now with the Bionic and Borrelia still comes up in energetic testing if I don't treat for it again from time to time. Not all treatments were for Borrelia but I do a Borrelia treatment when it tests as needed.
It seems that many people that have done the Bionic still later test for Borrelia and have to treat again at some point, but it seems to at least allow you to manage the infections without antibiotics in some cases like mine.
Posted by seekhelp (Member # 15067) on :
Wow, 75 treatments. Unbelievable. THis organism could survive a nuclear holocaust probably. Outside of energy testing, how about it showing up in real blood work? Have you tried to test Scott?
Posted by SForsgren (Member # 7686) on :
What conventional testing would you trust to tell you it was gone? I've not come across such a test.
Posted by bamboo forest (Member # 21066) on :
This is my guess about the pork: It is a very hard meat to digest and sometimes causes me to have boils or seems to bother my liver because when I eat too much of it the mucus in my nose turns yellow green which I believe in homeopathy means a sluggish liver with liver congestion issues. I think pork can be hard on a herxing body to deal with and sort of a toxic meat to eat.
Regarding this question:
"This is something I wanted to comment on. I have to wonder how the doctor can interpret how your treatment is doing when he doesn't talk to you at appointments. There is the consult before you begin treatment, with little note taking. Most of what the doctor bases his perception of your condition on is what his machine tells him."
Mary not that you are getting ozone but for those who are:
Regarding the ozone blood infusions, the medical techs who give you the ozone treatment make notes in your chart about the color of your blood each time. Mine was darkish to start with and was still dark when I left but one of the techs told me it was getting lighter compared to when I first arrived. Lighter is better than too dark and a healthy sign. The doctor I assume reads the notes in the chart that the medical techs make.
Posted by sixgoofykids (Member # 11141) on :
I still tested slightly positive after the five treatments and he told me to treat three more times. I treated the Lyme monthly after that and as of the last ART testing was still negative for borrelia.
As I treated coinfections, I would sometimes feel the need to treat Lyme .... it seemed that treating the other infections would cause it to come out, but that's only a guess based on symptoms.
I'm down to insomnia as my last symptom. It's not bad, but I sleep very lightly. Could be hormonal due to being sick for so long.
Pork is a "dirty" meat. Scripturally, the Jews were not allowed to eat it .... Kosher delis don't have it .... it was considered unclean. (I ate lots of pork in Germany, LOL).
Posted by Marnie (Member # 773) on :
Dr. Valletta (Italian) has a U.S. patent titled: Magnesium for Autoimmune.
He used Mg pyrophosphate and sub(lingual) B6 to cure RA, ulcerative colitis and invasive cancer in months.
What is pyrophosphate?
PPi
How do we make it?
First...please go to this website that shows you (an animation) what is happening:
Scroll down a little and watch for the blue box on the left side.
You may have to use your computer tools to make that bright blue box bigger.
The word, ``Photon'' will appear in white as the animation goes on. A photon is pure energy with no "charge".
In the middle you will see the G-helper protein called ``transducin'' appear.
Notice what happens to the Na-Ca channel on the right.
It closes.
Now...Bb needs Na and Ca to go in and then OUT of the cell.
The "door" closes. Na and Ca are sorta "stuck" in the cell it appears.
See it happen in the animation? Look closely.
Does Bb like it if Na is "stuck" in the cell?
"The causative agent of Lyme disease, Borrelia burgdorferi, for example, encodes a vacuolar-type ATPase that is very similar to the one from T. pallidum and also contains a typical Na+-binding motif (data not shown).
Remarkably, the genome of B. burgdorferi does not encode any (known) primary H+ or Na+ pump,
except for
two NQR subunits, NqrA and NqrB, fused into a single polypeptide chain (BB0072).
Therefore, it appears that this organism uses its Na+ ATPase for ATP hydrolysis and
depends on its two NhaC-type Na+/H+
***antiporters***
(BB0637 and BB0638) for the generation of proton motive force....
...In conclusion, the results of this work show that in spite of the importance of Na+ circulation for the membrane energetics of Vibrio cholerae
and related microorganisms,
these organisms still rely on the proton motive force for oxidative phosphorylation."
Bb has an *antiporter* for Na. Logic would say, it would not like it if Na was "stuck" in the cell.
Note: ATPases cause ATP -> ADP + phosphate + energy is released.
***When GTP is high*** (animation shows this) and the Na-Ca channel closes...
then Mg helps GTP -> cGMP and PPi.
There's the pyrophosphate. Now can
ADP-> ATP?
Remember Bb looks to trigger ATP-> ADP.
Remember the patent? Mg pyrophosphate and sub(lingual) B6...
Why sublingual?
Because our stomach acids will destroy most of it unless it is in your IV.
Is it in your IV?
Why are they not using adefovir to counter edema factor?
Or do they expect/want edema factor to happen?
"EF, which is referred to as edema toxin once inside the cell, is an adenylate cyclase, an enzyme, which catalyzes the conversion of ATP to cyclic AMP (cAMP).
(My note ATP-> ADP + cAMP, Bb's Na-ATPase?)
Because cAMP is an important regulatory molecule in the cell, production of more cAMP by edema toxin disrupts normal cell function.
One of these functions of cAMP in the cell is to maintain proper osmotic pressure by regulating the flow of small ions and water in and out of the cell.
An increase in the amount of cAMP causes the cell to swell. Additionally, since edema toxin uses ATP to form cAMP, the cell becomes
depleted of ATP.
Macrophages need the energy-rich ATP in order to engulf and destroy bacteria. As a result, infected macrophages become bloated and
useless."
"The lethal factor, or lethal toxin, disrupts normal cell function by another route.
Lethal toxin is a zinc protease that targets members of the mitogen-activated protein kinase kinase (MAPKK) family.
This leads to inhibition of several cell signaling pathways and results in an increased amount of cytokines, protein that act as cell mediators.
While the exact role these cytokines play in causing cell lysis remains unknown, it is believed that high cytokine levels cause
an increase in harmful oxidative molecules.
If the concentration of these harmful molecules gets too high within the cell, the macrophage ruptures and dies."
Okay...so we're trying to kill off the infected damaged defense cells to get "at" Bb?
OR is Bb "dead" because we have disrupted Bb's Na "antiporter" (closing the doors on the Na-Ca channel)?
And once Bb is dead, the edema toxin is released into the macrophages causing them to swell and become depleted of ATP...and eventually die also?
What if Bb isn't knocked off, but only the defense cell IS destroyed?
Then does giving IV Mg support our OWN antibodies (esp. IgG) to finally be able to destroy Bb?
"Characterization of the physiological requirements for the bactericidal effects of a monoclonal antibody to OspB of Borrelia burgdorferi by confocal microscopy.
The bactericidal effect of Fab-CB2 is not dependent on the induction of spirochetal proteases but is dependent on the presence of Ca2+ and Mg2+.
Supplementation of Ca2(+)- and Mg2(+)-free medium with these cations restored the bactericidal effects of Fab-CB2.
The mechanism by which a Fab fragment of an antibody destroys a bacterium directly may represent a novel form of antibody-organism interaction."
PMID: 9125579
A ``novel form of antibody-organism interaction?'' I don't THINK so!
E. Required by immunological process. Magnesium, immunity, and allergy: Mg is required for several steps of immunological reactions
1. Lymphoblastic transformation, a prerequisite of secretion of antibodies by lymphoblasts, requires Ca2+ and Mg2+
2. Mg is required for synthesis of proteins, immunoglobulins included
3. Antibody-induced complement activation is Mg dependent
4. The antigen-immunoglobulin-complement reaction induces degranulation of the mastocyte
Why do so many cancer medical abstracts suggest the SAME nutrients can help fight various cancers (which can indeed be triggered by pathogens and/or too much oxidative stress):
Vitamin C, green tea extract, lysine, arginine, and proline?
Have you been told to keep taking a lot of probiotics? I think it is vital.
Don't expect an "overnight" cure. It takes time.
As Bb is destroyed and the defense cells are also destroyed, this releases a lot of proteins that must be broken down and NH3 (ammonia) "happens". This is toxic.
It appears ACZ Zeolite (oral spray, nano particles) can help with NH3 (binds it and removes it via the urinary system) and heavy metals too.
Too much die-off too fast is not good. It can lead to sepsis.
Our body can only handle so much "debris" just so fast.
The turtle wins.
You WILL get better slowly...and safely.
P.S. Edema can be caused by hyponatremia. Low blood level of sodium, but hyperlipidemia, *hyperproteinemia*, and hyperglycemia may cause a pseudo-hyponatremia.
Maybe why the doc suggested raw veggie diet? (No additional protein.)
Curious, but
"These data demonstrate that increased serum viscosity occurs following IVIG therapy due to hyperproteinemia, and the rare hyponatremia reported is a pseudohyponatremia also due to hyperproteinemia."
PMID: 12749010
[ 07-15-2009, 02:02 AM: Message edited by: Marnie ]
Posted by lymewreck36 (Member # 4395) on :
God bless you Marnie, but could you put all of that in some kind of paraphrase of layman's terms for us literature students?
By the way Marnie, and others....
My rheumy said my B-12 level is way too high and to stop supplementing it. She tested for it when she did my blood work.
I asked her if there was some kind of B-12 toxicity, but she just repeated that it was WAY too high and I needed to drop the supplementation, which for me in weekly B-12 shots.
What do you think? Mary
Posted by Marnie (Member # 773) on :
Increased vitamin B12 levels are uncommon. Usually excess vitamin B12 is removed in the urine.
Very occasionally have instances been found of excess of vitamin B12 or cobalamin in the blood level beyond the recommended limit.
This phenomenon is generally ascribed to excessive supplementation by consumption of energy drinks fortified with cobalamin, oral supplements or intramuscular injections.
However, there are occasions when extreme levels of vitamin B12 are noticed which arise apparently from unexplained natural causes.
In the absence of any proven reason it is assumed that this is the result of a malfunctioning metabolic process.
It is believed that vitamin B12 has a very low ability to become toxic. According to the Institute of Medicine, `no adverse effects have been associated with excess vitamin B12 intake from food and supplements'. Because of the lack of adverse effects, no serious studies have been conducted in cases of excessive vitamin B12.
Methionine is essential for choline synthesis; therefore, vitamin B12 plays a secondary role in this lipid pathway. A choline deficiency that causes fatty liver can be
prevented by cobalamin
or the other methyl donors (betaine, methionine, folic acid).
(One of Bb's Osps (outer surface proteins) is phosphatidylcholine.)
Do you take a daily supplement ALSO like Centrum, for example?
Some drugs you are on and even some tests you had done (using dyes) may have thrown off the test for your B12 level.
How are your liver enzymes? Been checked recently?
How are your electrolyte levels?
WBC, platelet levels okay?
"Vitamin B12 is stored in the liver for a year or more, which reduces a person's risk of anemia."
"Vitamin B12 functions as a methyl donor and works with folic acid in the synthesis of DNA and red blood cells and is vitally important in maintaining the health of the insulation sheath (myelin sheath) that surrounds nerve cells.
The classical vitamin B12 deficiency disease is pernicious anaemia, a serious disease characterized by large, immature red blood cells. It is now clear though, that a vitamin B12 deficiency can have serious consequences long before anaemia is evident.
The normal blood level of vitamin B12 ranges between 200 and 600 picogram/milliliter (148-443 picomol/liter).
Although deficiency is far more common than excess when it comes to vitamin B12 status cases have been reported where blood levels exceeded 3000 picograms/milliliter.
Such high levels may be caused by ***bacterial overgrowth*** as outlined in the article Vitamin B-12 Overload.
The link to B12 overload as a result of bowel bacterial overgrowth is here:
"High levels of vitamin B12 can occur in liver disease (such as cirrhosis or hepatitis) and some types of leukemia. But the vitamin B12 test is not usually used to diagnose these problems.
In rare cases, high levels may be found in people with diabetes or who are obese."
"High Vitamin B12 Levels May be Linked to Better Treatment Outcome for Major Depressive Disorder"
High levels Of B12 can also be linked to Polycythemia vera - a disorder of the bone marrow. It causes too much production of white blood cells, red blood cells, and platelets.
High levels of B12 actually ***lowers homocysteine***.
A good thing because high homocysteine levels (not good) do this:
You may have high levels of homocysteine when cholesterol, white blood cells, calcium, and other substances (plaque) build up in your blood vessels.
This buildup may increase your chances of having a heart attack, stroke, and blood clots in the lungs (pulmonary embolism) or deep veins of the legs (deep venous thrombosis)."
It is likely you simply need to stop additional B12 supplements to bring it back closer to normal range.
Posted by n.northernlights (Member # 17934) on :
Some people need weekly b12 shots no matter the level. I have seen it mentioned in cfs forums.
Posted by seekhelp (Member # 15067) on :
My latest B-12 lab showed pretty excessive amounts and I only supplement orally (normal - up to 840, mine was 1,650+).
Posted by Gabrielle (Member # 5329) on :
My levels of Vit B12 are also too high and I also only supplement orally. But my Methylmalonic Acid is increased which indicates that I have a Vit B12 deficiency.
As I am informed one can have too much Vit B12 in the blood but on cellular level one might still be deficient.
You might check your Methylmalonic Acid level.
Posted by Truthfinder (Member # 8512) on :
Hey, thanks for the detailed explanation of your Lupus tests and panels, Mary. Much appreciated. Posted by lymewreck36 (Member # 4395) on :
Hello everyone. Quick update.
Tuesday was my most recent treatment, and by that evening, around the time I posted a summary of the day, I felt the now familiar swelling of the lymph nodes, pain of all kinds, and swelling in my legs.
That whole reaction picture since a few days after I started bionic 880 started to return, and I was concerned about the next day, Wednesday, which I was to spend with our U.S. company playing host with my husband.
It is 90 degrees here, with no air conditioning anywhere, and sticky as hell. Just misery for someone with a sweat problem from lyme/babesia/overweight.....etc.
But, when I woke yesterday, I realized that crescendo of "reactive pain" from the treatment was not going to be as bad as last week, when I was balled up on the floor, ...so the decrease in reaction should be a sign of improvement?
So I ended up popping advil all day yesterday while we spent the day in medieval wine villages in the Alsace of France.
If it weren't for the temptation of Alsace and pottery and wine and linens and lace, I would have stayed in bed.
But the shopping part of my DNA kicked in that extra necessary adrenaline, and I was out the door.
To be true to my word and report what I am experiencing, I should tell you that when the explosive pain response started up last week after treatment #2 of bionic, the swelling in my legs came back in.
I can make educated cause and effect "guesses" as to why that is......
But I can't know for sure.
Being out in the heat, on my feet all day yesterday, sweating out the day in and out of stores while stuffing my pain levels below did not help the swelling.
So my company left today, and I"m trying to drink green tea and keep my feet up.
Tomorrow is my fifth treatment. I suspect I am not anywhere near "cured," so it will be interesting to report what kind of dialogue I end up having with Dr. W. tomorrow.
I'm still not taking any antibiotics, but I am still taking artemsinin.
That is today's report. Sorry I wasn't a better patient and I didn't stay in bed yesterday. It wouldn't have been very restful with this heat anyway.
I'm sitting in my recliner today with a fan blowing on me.
On hot days like yesterday and today, I take a cold shower before going to bed, and then put a floor fan on high and point it at the bed to try to sleep.
By the way, regarding my B-12 levels, and thank you all for your input, the rheumy in Switzerland did say that my red and white blood cells were in the normal range for the most part (red cells a little low but not a surprise with babesia).
She said my C-reative protein was 14, and my ESR was 30. I hope I remember that right.
Can somebody tell me what the ESR is, and how is that different from a C-Reactive Protein? Should I be concerned about these results?
I felt a lot better by treatment 5, but ... BUT I was not completely well. The borrelia may or not be gone ... there will still be parasites, coinfections, toxicity, mineral imbalances, etc., etc. to deal with. Getting the borrelia out of the way is a HUGE step though.
Mine was not gone at 5 treatments.
Posted by Stacyb (Member # 13084) on :
Mary,
From my understanding the C-reactive protein is a specific heart marker for inflamation. The ESR is a sed rate of general inflamation marker.
I am not sure if you are allowed any vitamins/supplements while there but it may be worth mentioning the results to Dr W. while in tx. He may be able to treat with some natural supplements while you are there. I am sure you know there are many herbs one can take for inflamation. The biggest one that comes to mind is Fish Oil in large quantity.
Hope the herxing lets up soon. Glad to see the last treatment did not leave you feeling so much pain as the one prior to that.
Stacy
Posted by sixgoofykids (Member # 11141) on :
Turmeric is good for inflammation, too ... but I'd talk to Dr. W .... he has some amazing remedies available.
Posted by Brussels (Member # 13480) on :
Mary, I disappeared for a while, sorry. I sent you a PM when you started posting this thread, you answered me then, so you did read it!
Glad to know you feel some big change going on. Your treatment doesn't look much placebo by your descriptions! I hope you reached the bottomline and won't get back there. It looks to me you have LOADS of toxins circulating still though...
As for your question about borrelia coming back, I guess it will come back for many people if they don't treat parasites and heavy metals.
I didn't use the Bionic, but used the PE1, it took me time to get rid of borrelia, and so did my daughter. About 5 monhts or so? If I would do it again, i would do like dr. W., about a fixed protocol (about 1x every week or 1x every 2 weeks).
I waited until my borrelia to test active again to do the next treatment. If I had to do it again, I wouldn't wait for borrelia to gain terrain and start testing positive to flash infrared on it...
Both me and my daughter are not treating borrelia for about 2-3 months. And of course, we are symptomless.
It does worth to treat it EVEN if you still get a positive borrelia after, in my opinion, because the load of infection becomes really REDUCED. I have a clear impression that the infrared treated our infection in a way that EVEN when borrelia showed positive again, we didn't feel DOOMED like before. This makes a BIG difference.
I just stopped my car in the region of Alsace this afternoon returning from Belgium to Switzerland, it's a beautiful area, amazing!!
Gosh, it WAS a hot day.
I hope tomorrow won't be that hot for you to drive to Pforzheim!
Posted by lymewreck36 (Member # 4395) on :
Hi Brussels:
My husband is now pushing for us to buy a machine instead of me continuing treatments in Germany. Expensive and time consuming for me to drive there twice a week.
But I'm not convinced yet I need to fork out that cash, or continuing to drive, or maybe I should......Maybe I should drop the entire experiment.
Did any of you feel this confusion after treatment 5?
I'm very confused at this point.
When the swelling came back into my legs I felt some hope drop, but then again,....the bionic stirred the pot so much....I know something is happening....
Yes Brussels, it was very hot. Yesterday I couldn't leave the path of my floor fan without over heating. Very miserable for a girl used to the air conditioning of Alabama.
Mary
Posted by bamboo forest (Member # 21066) on :
Mary two hours is nothing try paying to fly 11 hours from the USA and a train ride on top of that. One day when staying in Dobel I just missed the bus and it took me over 2 hours to get to the doctor's office by bus and train and I was still glad to get the opportunity to treat that day even with the long trip and to get there.
You are very fortunate you live only two hours away from the doctor. If it was me I would keep making the trek to his office and I would be very happy to be close enough by to be able to do so.
You might have a return of the swelling in your legs from the Bicarbonite of Soda in your IVs. It seemed to make my left lower leg swell a bit because it irritated my left kidney but the swelling did improve in the long run.
Posted by ukcarry (Member # 18147) on :
Given the high price of the machine, I would say that it makes sense to continue going to the doctor if you can until you feel more confident about the efficacy of the whole treatment.
Posted by lymewreck36 (Member # 4395) on :
Thank you bamboo and unkcarry. I appreciate all of your input as I am just a beginner. The traffic has been so bad this past week that the drive is wearing me down big time.
But I know, when I think of all of you that can't just get in the car and get to his office, that I am so fortunate. Spoiled even, compared to the rest of the suffering population.
Today was my 5th appointment. Dr. W. was in the office today. I thought he might want to have a discussion, but really, that will not happen until we test again.
That appointment to test again is Monday afternoon. He did stop by to comment on his "plan" for me that he mentioned after I emailed him about the huge pain and swelling responses I am having to each treatment.
That plan is 5 "orals" to take. I'm too tired to examine the bottles right now. I'll do that tomorrow. And he did not say what the purpose of each thing is. He told me that one of the nurses would give me the "plan," and one did give me a prescription to take to the pharmacy.
I went to the pharmacy after my appointment to get the goods.
The nurse also gave me the protocol, when to take what, for three weeks.
My guess, and I'll get more clarification when I get to have a conversation with Dr. W. on Monday, is that these five items are to help me eliminate toxins.
Don't know if any one of you guys were given a "plan" after treatment number 5.
Tonight I am exhausted, and my husband says I look pale. The 2 hour drive home has been 3-3 1/2 hours this week due to traffic. It's been tough.
I got home and the family had dinner then watched a Marlyn Monroe movie. Now I will have my green tea and get into my p.j.s.
I met a very nice Canadian woman and her daughter being treated while I was at Dr. W's office today. It's so interesting to meet these people from all over while I'm in the office.
Only unpleasant thing about today's office visit is that they couldn't find a vein.....in my hands!!!!
I can't say I've ever had a nurse find it difficult to get a vein in my hand, but after four tries, four different hand veins total from both hands....she still couldn't get it in.
Dr. W. came by and put the I.V. in. Another patient with the same vein problem was waiting for Dr. W. to find her vein long after I had my I.V. running.
That had to be frustrating, for everyone.
I'll let you know more about the "plan" tomorrow.
Tonight....severe fatigue.
Mary
Oops! forgot to say..I have just started to feel "kidney pain?"
I'm guessing that is what this is based on the location of the pain. Pretty scary.
AFter I.V. today, kidney pain again.
goodnight
Posted by Brussels (Member # 13480) on :
Mary, when I was still thinking to see dr. W. I would never do the 2 hour driving like you...
I also live 2 hours away, but I WOULDN'T do that with the risk of herxing in the car...
But that was me. I would have stayed in a small hotel in between the treatments because I fear herxes.
And because I knew that when fatigue came, I got unable to drive. Quite a few times I had to stop my car to rest. Besides, I lost so much concentration that I could do an accident any time (as I did during lyme...).
As I don't think I have Bb anymore, I won't go see him anymore. Nor my daughter. Now I have a brother living in Stuttgart, so I could even stay on his place for treatment. But I really don't need it anymore.
I hope you treat it until he says 'you're free of Bb'. So that you will know if it worked. Or not.
If not, you'll never know, and the experiment will never be really done. Just my thoughts, of course...
I hope you get a good rest and let us know about your Monday appointment!
Posted by bamboo forest (Member # 21066) on :
Please say hello to the Canadians for me.
Posted by aklnwlf (Member # 5960) on :
Thank you so very much Mary for sharing this information with the rest of us who are interested.
I've enjoyed this thread very much because of the lack of drama.
Some of the other Bionic threads were too full of bickering.
Good luck!
Posted by lymewreck36 (Member # 4395) on :
Hi Brussels. As far as driving to and from my appointments, there is less "punishment" involved in doing that than staying away from home.
The gunk I have to wade through and sort/clean up after being away is more than I can handle. Three kids...etc.
It is better for me to stay home and keep things in order.
Also, I'm so used to stuffing my pain and moving forward. It has been a lifetime of doing it. It was the only way to raise the children...keep my home running.
For example, two years ago I had a hysterectomy...and had to board the airplane to move to Switzerland 4 weeks later. I gave myself one day in bed after surgery, and then with the pain killers I was given, I began the process of sorting my home.
For the most part, I sat in one room after another while my girls paraded things in front of me and I pointed..."throw, give away, pack, stays, ..." etc. But the desire to just go to bed was tremendous.
I think generally that all of us that are mothers know exactly what I am talking about.
But it really has been a way of life, and sometimes I do feel bitter about it and it errupts in a fit of rage...then I can calm down and continue ...
I've never been able to go to bed when I needed to.
Thanks to you that are reading the thread here. And thanks to those who offer advice/support. I haven't been good about answering my private posts this last week, so I need to get to those.
Now, about the treatment.....I have an appointment today to do testing to see if I am still infected. We shall see, but my body says,..hell yes!
I promised to tell you what "orals" I obtained from the pharmacy with the script from Dr. W. last Friday....you know..the "plan" for my extreme reactions to the bionic.
I have these bottles in front of me and I wish I could tell you what they are. But typing the info on the bottle into a free translation program doesn't provide much information.
So I am bringing these five items to my appointment today to ask the doctor what they are for, and I will write what he says on the side of the bottle.
As for how I am feeling, the swelling in my legs is going down slowly again.
After last Friday's appointment, I started to feel the familiar swell of a reaction...but it didn't get far and stopped. Each appointment has yielded less of a painful reaction...which tells me that something productive is going on.
But I feel that I won't be free and clear of whatever bad things are being treated until I can have a bionic treatment and have not reaction at all.
Would you pros agree with this.
I leave for the U.S. this week, and that will be my time off until I resume treatment in August.
I will tell you what happens after today's testing and discussion.
I still feel exhausted all the time....so exhausted....I'm sleeping 7 hours (not enough) at night with the help of my sleep pills, but I was doing horribly before I started the bionic. I feel the bionic has helped me sleep better. But I have far to go to get off sleep medication.
All in all, there is no doubt that the bionic is treating something....I am surprised as I said before. WE all are hit by "light" everyday. But this light has "special powers!!!!" :-)
Mary
Posted by sixgoofykids (Member # 11141) on :
Well, you might test clear of Lyme, and that's a HUGE step, but you will still have any other infections. They are easier to treat once the Lyme is out of the way.
It's taken me months of continuing treatment and treating parasites to really feel well.
Posted by jam338 (Member # 14002) on :
Dear Mary, I am not well enough or able to read/ post often these days. Found your thread this morning. Had to post to tell you how much I admire your bravery and how much I appreciate your efforts to share your journey/experience with us.
You will get well as you as you are so inspired to do so. Along with others, I am praying for you!
I know it must be hard to still keep posting when you feel so horrible, but your efforts and kindness in doing so are much appreciated by those of us who have waited desperately for this kind of reporting on this treatment.
Thank you for your level of detail and specificity about the exact diagnostic, treatment process, and level of interaction with the doctor/staff seems vital to contemplating this treatment. This is the exact level of detail I have been hoping someone would eventually post.
While you are not the first to go to Germany for the treatment, you are the first (that I am aware of) to give such great detailed report of the treatment process as it relates to your particular treatment program there. Thank you for the effort to do that for us.
You have explained things in such a way that makes it easy for us to understand, almost as though we are there with you....which we are in spirit and encouragement!
Mary, you have pioneered in posting your journey and sharing with us about this treatment in the most useful and forthcoming way I have read.
Thank you for lifting a lot of the veil of confusion on this process (at least for me) to help us better understand what one would experience in terms of process with this treatment.
Understandably outcomes for all will vary based on a variety of factors.
Mary, I look forward to reading posts on your thread. Please keep posting. Hang in there, you are doing great!
Posted by sixgoofykids (Member # 11141) on :
Jam, I posted the treatment in detail in my blog. I didn't come on Lymenet while I was in Germany as I tried to be on the computer at little as possible.
Posted by lymewreck36 (Member # 4395) on :
Dear Jam...thank you for your kind words. There are other people that have posted their journies as well, but I don't know if they were on this forum. I believe several created blogs and remained faithful to them, as sixgoofy has pointed out. One of the more recent bionic posts in one of these threads lists the web addresses for several of those blogs.
I am under the impression there was a little lull in bionic posting on this forum for awhile.... just my impression from several things.....
O.K. I had my appointment today. I got in the car after my appointment wishing my husband were with me to discuss the levels of frustration I was feeling, the depth of sadness I was feeling for another patient I met in the waiting room, and my own feelings of confusion and despair.
So this is what happened. I ran into another patient I met "through the curtain" last week who has been receiving treatment in Germany (she is American) for I think she said 9 treatments.
She was so happy last week....and then she evidentally had a "lapse." I put that word in parenthesis because we do not know why she feels less well than last week. Could be a "healing crisis" like I believe I have been feeling.
Who knows. But one thing I do know for sure....and that is the look in her eyes. That familiar look I have imagined in my own spirit after feeling so sure about something, and then being smacked with the whiff of failure.
It is that desire to believe that it will get better, that there is some little twig sticking out of the side of the precipice that will hold your body weight...and that while you cling there, the one you have been waiting for will ride up on the white horse and scoop you up to safety.
She and I held each other's gaze, and I told her it would be o.k. I told her that she needed additional detox, and that when God shuts a door, he open's a window....
WE only talked briefly....maybe 15 minutes, but I felt I knew her for a lifetime. I can't get her out of my thoughts, my worries....I wish her wellness. I won't forget holding her gaze, the question, the desire for comfort.
Then I had my appointment. The doctor came in with his usual jovial mood. We exchanged nicities and then he asked me how I was feeling.
I told him straight. I can do little activity and then I need to put myself to bed, or recline, or sit. I am not capable of much more.
And then I reviewed my treatment experience with him: I had one treatment and felt pain relief; I had a second treatment and started to feel a swelling wave of pain, which turned into the tsuanmi of sweat, trembling, rattling, bone crushing fatigue and pain that completely crippled me for two days.
By the third day after treatment number 3, I was feeling the wave retreat from shore and the clouds break, and then treatment number 4 came along. AFter treatment number 4, I had another swell of crisis, but to a lesser degree, and then the same last Friday after treatment number 5.
AFter reviewing this history, the doctor commented that because I am very overweight, my body store many toxin from many years and many illnesses. This I knew, much to my despair.
He explained that usually Americans come over to Germany and feel better with each treatment, and test negative after treatment number 5 or so. But because of my size, there were complicating issues.
So then we turned to the testing. Lots of button pushing and taking the "pointer" (excuse my lack of lingo again) and touched the sides of my fingers with it, all the while pushing more buttons....and more finger touching, and more button pushing.
Then he stopped and took a long look at the numbers that resulted from all this testing.
He was very sorry to report that most Americans, after these treatment, test between 400-1,000 on this particular scale. But I was only testing 30. I began my treatment by testing 10, and I had only moved up to 30.
His immediate conclusion was that my home must have a big problem with EM emissions. Most Americans come to his office and stay at the house in Dobel and avoid interference by EM emissions during treatment, therefore ending up with much better results.
He pointed out that he gave me a card at my first appointment, which I do vaguely remember, of a guy living near my city who will test my home for emissions.
He gave me the card again, and his advice is this. He can treat me and treat me, but if I don't have the emission problem under control, I will be spinning my wheels and spending my money at the same time.
Also, when he treats me, because of my weight, he believes I will need the I.V. afterwards because of the severe reactions I am having. I think he is suggesting that treating on my own would be really uncomfortable for me.
So, the plan we decided on was for me to get my home tested....(money again) and then return to him with those results so we can make a plan in August.
I paid my bill for the 5 treatments thus far and swallowed hard.
Tonight my head is spinning. I'm exhausted beyond belief. After dinner my youngest daughter was stricken with a high fever and had pain and I sent her to the emergency room with my oldest daughter and my husband.
They just arrived home. My mind was spinning with swine flu and everything else that could go wrong. But the emergency room said it was just a flu and sent her home.
It is late now and I need to get in my p.j.s.
Oh yes,,..the medicines I got from the pharmacy last time....I will tell you tomorrow.
mary
Posted by lymewreck36 (Member # 4395) on :
O.K. Got into the p.j.s and have a few minutes to post while the sleep meds take hold. Daughter is settled in, but still with a raging fever.
GEt this, the E.R. does not think she has swine flu becuase she has not traveled outside the country.
DO THEY KNOW IF ANYONE FROM OUTSIDE THE COUNTRY WAS IN DOWNTOWN LATELY? COULD SHE HAVE 'CAUGHT' IT FROM SOMEONE!!!
The Logic kills me. Sounds familiar to all of us though, doesn't it!!!!
We've already had 6 confirmed cases in that hospital.
O.K. The homeopathic medicine that I collected from the pharmacy last week was for the following, as described by Dr. W. today.
My husband and I have been discussing our plan of action with the bionic in between home emergencies. Not sure what to do next. WElcome to all suggestions.
Don't know if my body will tolerate drugs at this point because I haven't tried them in almost a month.
Currently taking artemisinin for babs, and have not taken anything for lyme. My husband and I tried to go out for dinner last night, our 23rd wedding anniversary, and I could barely walk.
Really going to sleep this time. Mary
Posted by sixgoofykids (Member # 11141) on :
Mary, I know I was extremely sensitive to EMF's during and after the treatment. We disconnected our wireless internet and our cordless phones when I got home. It was extremely uncomfortable to use the cell phone. This is getting better.
He has had another treatment failure with someone staying in an apartment in Pforzheim. This was before I went, so I knew about it and stayed in Dobel. We greatly limited our computer use and when we did use the computer, it was not wireless. This is the main reason I blogged instead of posting on LN, that way I could say what happened but didn't have to answer questions (could get off the computer quicker).
The weight thing makes sense, too, as so many toxins are stored in fat.
I hope you continue with the treatment after fixing any EMF problems.
I hope your daughter feels better soon.
I left my husband with my six kids to go stay in Dobel for three weeks. I figured it was three weeks without me which was difficult, but in the end, they had the real me back because I came home so much more healthy. Perhaps staying in Dobel, being away from EMF's, and getting proper rest might be a consideration for you.
Posted by bamboo forest (Member # 21066) on :
If it was me I would get my home tested for EMFs and continue to treat with Dr. W.
The person you ran into in the waiting room told me many times she has a very bad strain of LD according to one East Coast famous LLMD which is a very very difficult strain to treat and they have mold issues and still reside in a moldy residence as well so I hope no one bases how this protocol works on that one patient's experience. I so wish that person good and improved health.
Also this person was very fond of talking on the phone and had a cell phone and also used the guest house owner's cordless phone for a period almost nightly while I was there after spending a lot of money on their cell calls home to the USA so you might say their EMF exposure was heavier than most people staying at the guest house in Dobel.
The less EMF exposure while treating the better and it is something to keep in mind. If you plan on going to Germany it is much better to stay off the phone as much as possible.
I know the doctor does not require people to have their amalgam fillings out before Bionic 880 treatment. I think it important and a good idea to do so and I did this before my trip after two other people who went to Germany with their amalgams still in warned me to do so after their fillings heated up and were uncomfortable. The Bionic 880 can move metals so I wanted my amalgams out before they were moved out into my system.
[ 07-20-2009, 10:31 PM: Message edited by: bamboo forest ]
Posted by bamboo forest (Member # 21066) on :
Mary I hope your daughter does not have the Swine Flu. I think I might have it right now myself. The newspaper reported it going around my county a couple of days ago so it could easily have reached your city by now from numerous other places. I am trying to decide if I want to pay to get tested or not. It would mean I would need to be seen at a doctor's office that misdiagnosed my Lyme disease for years because I am probably too sick to drive anywhere else to get tested.
Posted by sixgoofykids (Member # 11141) on :
That is true, Bamboo. When we were there we went to an internet cafe that was hard-wired to call home. We only went either the day before treatment or the day of treatment if we had time to go prior to the appt. We were very careful to stay away from EMF's as much as possible.
Posted by lymewreck36 (Member # 4395) on :
Well, I thought I was careful about EMFs.I only use my land line computer....though the kids have wireless laptops in their bedrooms.
And I refused phone calls for three weeks. Even my sister from overseas was told I could not talk to her.
What if my home tests to be an EMF nightmare. So what are they going to do about it? I will have to stay in Dobel if I do this again.
I think we have decided for me to hit the dieting full force. I already talked about it with my new doctor in town here, and she wants to work with me on it.
What's a girl to do.....
Nevertheless, no matter what has happened with the lyme disease up to this point, I am a believer in this bionic thing because of the reactions I was having to it.
It is powerful, and does incredible things to our bodies. I feel like I must own one at some point.....
My daughter is still spiking a fever this morning. It really scared me last night because she was holding her head and saying it hurt so bad, she was shivering hard, and it came on so fast. Scared the heck out of me.
Thanks guys, Mary
Posted by lymewreck36 (Member # 4395) on :
I forgot, my daughter wonders about this wireless thing being a problem for our home because she has a hard time getting a wireless connection in the house, and our cell phones have a difficult time with connections as well. Most people in our apartment complex you will see on the patio when they are on the cell because they can't get a good connection inside.
Bamboo, I hope you don't have swine flu. Rest well.
Posted by bamboo forest (Member # 21066) on :
Thanks. I hope your daughter's fever goes away and she starts to feel better.
The wireless computers in your home could be a major EMF problem and even your neighbors wireless computers in your apartment building might be affecting your health. The fact that you have a hard time getting a wireless connection might not be a good thing at all when it comes to EMFs. It might mean more EMFs rather than less.
In the USA the power companies will come to your home and measure the EMF's for you for free of all your appliances.
Posted by n.northernlights (Member # 17934) on :
If the signal strength is weak, cell phones will upregulate their output in response to that....I am EMF sensitive and notice. The worst is inside cars. My sister does not have any concept of time, nor my hubby, when on the phone and I have to endlessly say yes to the same thing when he phones....
There is EMF fabric, it can be ordered online, both in Europe and the U.S. People drape it around their bed, or wear a smaller pieces as a scarf covering the head, or use it on the head while on a phone. EMF sensitive people use it if they must. Avoidance is best. I got a "switch", a small box to hard-wire the computers and laptops, it works fine. Someone put up www.bionic880.com I guess to have a backup of some postings and it explains avoidance of EMF's is important, and out of the 100 people getting in the test for the bionic the one who took antibiotics failed treatment. So they had some sort of clinical trial. I wonder why noone updated that site, one could take away personal information and store information about this treatment there. Like importance of avoiding EMF's. I think there might be a lot of EMF's from your neightbours too. Is anyone living above you? From reading german websites about the two grids naturally occurring on the earth and the faults and so, if the people living above you happen to have cork or glass foam in their floor, all the rays from teh earth reflect unto everyone living below them, like you. You might live at a crossing where energies are bad. The person Dr. W recommended to you knows all about that.
Posted by sixgoofykids (Member # 11141) on :
I would have it checked out. We have no wireless in our house, but we get weak signals from the neighbors. I have one of those "tents" around my bed. I can't be near a computer picking up a neighbor's signal .... though that's getting better.
It sounds like you tried ... but who was to know you were exposed to it anyway? I'd have it checked out to be sure.
Posted by bamboo forest (Member # 21066) on :
I think some things everyone must pay some consideration to before starting treatment in Germany to make the treatment more successful is exposure to EMF's during their stay (staying off the phone and staying away from wireless anything in their living arrangement) getting the EMF's levels checked out before treatment and dealing with their mercury and metal dentistry before starting the protocol. Gold and other metals are not okay either in my opinion and will improve your health in general if you have them removed by a good biological dentist. When Dr. W. checked my mercury level on my last office visit it was low.
Planning at least 3 weeks during treatment to rest and relax and to not have to deal with the hustle and bustle of the normal daily grind helps as well. If you are staying in Germany and are from say the USA or Canada try and leave the stressful parts of your life behind in your country of origin while you are in Germany.
Posted by Brussels (Member # 13480) on :
I am with Bamboo forest for the isolation during treatment too... But I know what Mary says about children too as I'm a mother too. It's a difficult decision.
But if I invested my time and money in a treatment, I would try to take the best of it, so sacrificing other things. Specially if the treatment was so short (two weeks).
Or, long term, it could be a total loss of time (like the treatment not working)...
If you have portable and wireless Lan around, you are being bombarded with EMRs.
If you use transformers (to change voltage from the US appliances to the Swiss voltage), you are getting EMRs.
If you use ANY wireless phones at home, you are BOMBARDED with EMRs in the whole house (and bombarding your neighbors and people in your garden) 100% of the time, stronger than if you are ONLY using mobile phones.
If you use the Swiss plugs (only two 'exits'), it is also not good as if you plug it at the bad direction, you'll get a lot of EMRs.
If you have ONLY the 3 point plugs then you're safe though. I have LOADS of 2 point plugs in many of the appliances I use, so I need to test each of the plugs everytime I connect them.
My bedroom has loads of INTERNAL EMRs coming from the walls (thin walls of wood). If I don't cut the circuit breaker, I can's sleep well. It has been like that for YEARS. The electrical circuit inside the walls create EMRs and will only get canceled when I cut the bedroom circuit breaker.
If you use a metal bed, or anything metalic around your bed, or any appliances that are on, you can get EMRs the whole night. First symptom is a bad quality of sleep.
There are solutions, Mary. They are not 'easy', but there are solutions for each of the problems.
Now that I solved most of the problems here at home, I'll be moving and have to start again.
Posted by lymewreck36 (Member # 4395) on :
Oh my Gosh Brussels! Your post reminds me of how toxic our lives are, and with my weight, I know now more than ever, I am a toxic cess pool. Seeing me is like visiting Chernobyl.
My treatment experience with Dr.W. taught me this, and also taught me how powerful bionic 880 is. I am still so surprised. It's just incredible.
I told my husband that at some point, I want to buy the bionic 880 machine.
I am in between that rock and hard place again in my treatment.
We have decided for me to give yet another try at wacking off the weight. I have done pretty well so far this week.
In theory, this is the plan. I loose xxx pounds, then I go to Dr. W. again and stay in Dobel at the house.
That is the plan. If all the "premises" as to why bionic did not work for me are correct, then giving bionic another try right now would be futile. At least, those are my feelings this morning while I sip my coffee by the computer.
That could change.
IN the meantime. I started biaxin again. Already my body is saying this is going to be a long and rough journey with drugs. Not sure how to proceed, but I travel to the U.S. early tomorrow morning to go over all of this with my llmd.
Wondering what low dose naltrexone will do to enable me to take the antibiotics without the reaction.
I will get my lupus panels run again in the U.S. since I have resumed antibiotics.
I know that just reading that I resumed antibiotics will make some of you cringe, but desperate people do desperate things???
I cringed at the first pill as well. I'm still cringing.
Please say a prayer for me, and thank you to all of you that have taken this journey with me. I need to get to my private messages that have backed up without me responding to each individual one, so those of you who sent me one, please forgive my tardiness.
Today I must pack my home for 3 weeks in the U.S. I have spent the last week going over closets and drawers with my oldest who is moving out for college. Lots of tears for me.
God bless all of you, Mary
Posted by bamboo forest (Member # 21066) on :
Have a good trip to the USA and I think your plan to stay in Dobel next time is a very good one. When you are there you can detox in the wonderful mineral pools close by in Bad Wildbad. Check out both spas they are both beyond lovely and I highly recommend them as part of getting better.
I think one reason I did so well while treating in Germany was I had not been on any antibiotics or Western medicine for well over a year which I think Dr. W. says helps with treatment. I can understand you needing to take abx now but do try to get off of them before you start the Bionic treatment again.
Posted by lymewreck36 (Member # 4395) on :
Thank you bamboo. Having familiar pain that I have associated with adverse reactions to antibiotics tonight. Trouble keeping my spirits up.
It's 11:00 p.m. and the family is packed. Just waiting a few minutes before sleep meds take hold.
I have quite a story to tell the llmd this visit. I also have the bionic 880 brochures from Dr. W's office to give the llmd.
I'm such a mess. Sometimes I wonder how long a death can drag out....decades? I hate this disease.
Mary
Posted by Hoosiers51 (Member # 15759) on :
I have been sort of reading this thread from afar.
Mary, can you just go on an antibiotic that your body doesn't react poorly to?
That might be a better solution. Maybe something like Amoxicillin (IMO, it is easier on the body). Then combine it with a natural antibiotic or natural cyst buster, or some kind of enzyme like Wobenzym. Or green tea, I dunno.
I find it hard to believe all antibiotics are the same degree of "terrible"...like when I get muscle testing done, some test well and some not. Maybe some are "cringe-worthy" and some aren't....for your body.
Posted by Brussels (Member # 13480) on :
Hey Mary, sorry for the daughter moving out. It must be difficult on top of this disease.
But great to know that your general impression is that the protocol can do something and that you would give it a try again!
for me, before I used photons, what worked better for Bb (I'm saying Bb, not other coinfections) were Buhners' herbs in combination.
Andrographis + cats claw + stephania tetandra + Japanese knotweed sometimes + sarsaparilla sometimes + astragalus sometimes. They don't kill the intestinal flora and are systemic, cross the BB barrier.
I hope your trip to the US goes on well!
Posted by Truthfinder (Member # 8512) on :
Mary, I know you will be in the U.S. for 3 weeks so don't know if you will see this or respond to it for awhile. In any case, I hope you have a great trip.
Mary, you created a wonderful running account of your experiences with the Bionic + nosodes here at LymeNet, which has been very helpful to so many here.
However, I'm feeling more than a little remorse about that if, in fact, your efforts to bring us a real-time report ended up creating a barrier to your potential progress due to EMFs from using your computer. Ugh. Not a happy thought on this end.
While I'm aware that EMFs/ EMRs definitely contribute to borrelia problems - this is even noted by our famous Dr. B. - I have to wonder if this is the main culprit as to what went wrong in your case.
As to the overweight issue, this is the first I've heard about this kind of thing being a problem. While I understand the extra toxin burden on the body - which could make you feel worse if you can't get the debris and toxins eliminated - I guess I don't quite understand why it might be a problem with reducing the borrelia load in the body.
One thing that might be important here is the PLAQUENIL issue. Though not all agree on this, it does appear that Plaquenil alters the way the immune system operates. I'm not sure it is actually immunosuppressive per se, but it does alter the immune response.
You were on Plaquenil for 7 years and stopped taking it only a little while before you had your first Bionic treatment. Then out of desperation, you took Plaq during the course of treatment.
Know this, Mary: Speaking purely from a homeopathic standpoint, drugs like steroids and antibiotics - anything that messes with the immune system - can be practitioner's worst nightmare when it comes to patient response to remedies. In fact, there are some homeopaths who no longer accept patients who are on any type of immune-altering medication. That's how potentially-important the Plaquenil issue could be for you, personally.
I don't know if you discussed your Plaq usage with Dr. W - either before you started or during treatment - or if he would even know what it is. (Maybe it isn't a drug used much in Europe.)
So, while you are considering some weight loss and checking out your EM exposure at your home, please consider ways to find out how much of a role the Plaq may be causing in your case. This may mean some `energetic testing' is in order - perhaps ART or electronic testing similar to what Dr. W. uses. I know it may seem pretty woo woo and maybe you aren't comfortable doing any of that. But if you are going to invest more time and $$$ into this treatment, it seems prudent to get as much information as you can.
All the best! Posted by sixgoofykids (Member # 11141) on :
Tracy, you make good points. Those of us who were in Germany while I was there did post on the computer but weren't being exposed to wireless. That may be the difference as far as EMF exposure.
In the testing of the Bionic 880, the only treatment failures were the ones who were taking abx on the sly ... so that could be a part of it, too.
I don't know that it's any one thing, but just all the things in combination.
Brussels, I, too, really like the Buhner herbs for borrelia.
Posted by lymewreck36 (Member # 4395) on :
Hello folks. This is my first full day in the U.S. It is like putting on an old glove, a perfect fit...so comfortable....my own skin. So different from living in Switzerland.
I am enjoying air conditioning, and my parents keep the house very cool. This helped me sleep well last night after we arrived.
I want to respond to all your comments, so if I pass one by without responding, please point that out.
As far as using the computer and EMF, I did use my home computer which has a land line. Nevertheless, EMFs could be a huge problem in my home. I'll have to investigate that.
I don't know how many people are reading my thread, but I figured I should do this bionic posting because if I were in the U.S. and heard about bionic, I would want "the good, the bad, and the ugly." :-)
Antibiotics and antimalaraials all causing a reaction for me.....
Well, that is how the picture developed by late winter....and I tried so many times single medictations to try and figure out what I can and can not take. They all caused the same horrible "lupusy" reaction.
Then, after dropping my plaquenil, I was able to take biaxin. Surprise, surprise.!!!!
Tried an antimalarial again a few weeks ago, and boom....lupusy pain.
So I decided that plaquenil, as far as I know, takes up to two months to exit the system, so if it were plaquenil causing the drug reaction, then I would need to wait longer and then try an antimalarial again.
Yes, I did take one plaquenil during the height of my "healing crisis" while on bionic, but just that one pill, and not another.
I was desperate and terrified. I never took an antibiotic during my treatment. I was off all antiboitics for treatment.
I have not been on plaquenil now for 5 weeks, minus that one pill.
Today I took one malerone. Let's see how that does. I'll know after a few days, or even tomorrow, if I am going to have that horrible reaction again.
So....right now, since the completion of my bionic treatment, I am taking biaxin, and trying to add in malerone.
If this does not work, I will have to go back to the herb route and give that a go. Thank you for listing the herbs that are most helpful. Really, I appreciate those "flotation" devices being offered.
Loosing weight.....I cannot believe that borrelia will not be cleared if one is very overweight, yet, if the body is very toxic, which mine must be, then doesn't this lower the immune system? Doesn't it make detox pathways very burdened, making me feel sicker? Could these things make the lyme disease have more power over me?
My mother feels very strongly that loosing the weight and staying in Germany for the treatment has to be my goal. I think so also.
I have had to wonder why my children and husband do not have the same problems with medication I do. They are thin and I am not. A connection? Maybe. Probably.
I miss my bionic treatments. It was exciting to be off medication....just the idea of it was full of hope. And the treatments itself really affect the body. It just wasn't enough for me, for whatever reason.
Jet lag setting in....must sleep. I'll post tomorrow I hope.
Mary
Posted by Sparrow (Member # 11734) on :
It is my understanding that borrelia die off is very toxic--in fact isn't that one doctor's theory that borrelia die off is considered a neuro toxin?
If I am miss stating, I apologize, but it would make sense that you might have more toxins stored and that is a bigger problem for you.
I believe I have also read--but I don't know where--that when you loose weight that you will release toxins and herx from that.
I very much appreciate your sharing and I think you have a good treatment plan.
Posted by Truthfinder (Member # 8512) on :
Mary, I suspect the use of Plaquenil has affected your Bionic treatment more than you think. Not just the two pills (your post said you took 2 pills that day) during treatment, but the 7 years of it prior. Your body compensated for that, and I'm not sure 2 months off would be enough for a return to normal operation for your body. At the very least, I'd sure ask Dr. W. about it before any subsequent treatment.
It certainly would be nice if he could use his machine -or his own biotensor - to determine if a person were `ready' for Bionic treatments.
Posted by lymeparfait (Member # 14268) on :
Mary,
Plaquenil goes very deep, and stays a long time after you stop, as I was on it as well for lupus, before being ready for the bionic. although I was not on it as long as you, only a few months before I decided to get off it to go to Germany. This was scary to stop! But I felt it was right to stop...so took the risk!
It took at least two months detoxing to be ready and cleared via ART testing, to get a YES, to being physically ready to start the bionic treatment.
As I have posted, I did not go to Germany for treatment, due to other family comittments, and postponed it, and started the AI here at home with continued detox.
so I cannot post anything about the bionic 880 experience. Only my experience with plaquenil, and the fear associated with having lupus. I relate.
Although I can tell you my lyme is not testing positive now. ART testing cannot detect it, nor can the IGENEX test.
This was due to the detox! Specifically after treatment with abx for almost 2 years, and then finally getting off everyting and detoxing body and spirit!
And being "open" to trying new and different, safe approaches to rebuilding my immune system, and removing my emotional blockages to healing. This was the turning point.
Preparing for the bionic and my friends here on lymemet encouraged me to move in this direction. So in some sense , I can say the bionic helped me! Little did I know the power of detoxing.
This is something we all need to do, no matter our pre-existing conditions.
Detox will get us to a place for the next level of healing. There are different stages for each of us.
It is hard to not be where someone else is physically when we all compare notes, but know that there is healing available for all at different degrees!
I suggest, while back in the states, get tested by a ND who can direct about ways to detox , and test you to see when the plaquenil will no longer give you a problem with thee bionic treatment.
Go to Dr. K"s site and look for ART practitioners near where you are staying. They can give you some plan and direction. Also give you some specific remedies made for you, that will aleviate your lupus imflammation symptoms as you move forward.
We are all different, but detox is key. Plaquenil stays for a long time, so give it time to remove!
Someone said to me "the turtle wins the race". Go methodically and stick with your plan.
so don't get discouraged. This is a learning experience about your own body, and you will gain support and knowledge here from those who have gone before you. peace and healing. lp
Posted by Forgiveness (Member # 20417) on :
Mary, my symptoms were horrible in Germany, most of the time during treatment, I physically could barely get back to the apt. to rest, I was such a mess and in tremendous pain. It gets better very slowly. The Bionic does still zap my energy, but the pain is way down. Symptoms are different now after treating. Troy
Posted by sixgoofykids (Member # 11141) on :
I find toxicity is still my #1 issue after treating with the Bionic .... and I am fit. I still test negative for borrelia, but if I'm not constantly on top of toxins (liver cleanses, coffee enemas, KPU, red root tincture, homeopathic detox, exercise, lymphatic drainage massage, etc.), then I will start having pain.
I think (but am just guessing on this) that it's a lifetime of toxins that are just starting to be released now that I'm getting healthier. Interestingly, I am also noticing that the fat and cellulite is going away ... though I am thin and have lifted weights throughout my illness, I had some cellulite on my legs. I do think, from my experience, that fat can store a bunch of toxins since as I'm detoxing more and more this fat is going away.
Posted by lymewreck36 (Member # 4395) on :
Shoot...here I go trying to reply to everyone. My lymebrain is very limited. (still need to get to my p.m.s)
Well, yes, borrelia die off is very toxic. If I know anything, I know this. A herx is a die off response. IT HURTS!
Interesting thing is that the "herx" I had from bionic treatment, be it stored toxins causing it or borrelia, was just as painful, just as fatiguing, but had a different character. It is hard to express.
The fatigue was unbearable. Trembling, earth shaking lymph node pain and even my hair was fatigued.
Each treatment brought this on, but less and less each time. It would have been nice to continue and see how this might continue to decline, and then how my energy might finally go up.
But....as I have learned and I think you all point out very astutely, I think I need to be "ready" for treatment before I try this again.
Plaquenil was still exiting my system while I did this treatment. I did not consider how this might affect my outcome. Didn't occur to me.
And the toxicity levels of my body did not occur to me before I did the treatment.
LP, you have been so very supportive, and Troy, and Six, and Truthfinder, and Brussels, and Hiker53, and Bamboo....and others....
Thanks so much. I think we all know how much it means to have our hands held through these journeys, but I can't say it enough.
I never understood detox the way I do now, so that is what I am focusing fact finding on right now, and weight loss.
I am hoping that I can continue to get advice/treatment from Dr. W. on detox methods.
My parents are doing the Zone diet, so I have been on that since I touched down in Alabama. Doing well.
My malerone trial is going great. This reinforces the idea that plaquenil was the drug causing my disaster from the beginning. But the journey I have been on while wading through this mess has been very enlightening. Maybe that is what I needed to start to see the forest.
So now I am on biaxin and malerone, and started to add in ominicef yesterday. Within 24 hours, my head cleared, and joint pain reduced. This is called the "honeymoom" before the herx.
God's willing, I will not crash with lupus again, now that plaquenil has diminished in my system this much.
This will get me through the time I need to loose weight. I pray for the strength to get through that as well.
In the meantime, I have reason to believe that my gallbladder is failing me, or is diseased, probably from 1 1/2 years I.M. claforin injections. SLUDGE!
I need to do a flush to see if I get improvement. Haven't gotten the nerve up for that . I did one 3 years ago with great sucess. So I know what it takes. Hopefully, I can take that on this Thursday.
My husband took our three daughters to the beach today, and I did not go which made me cry. Just not well enough to sit on a hot beach all day.
Maybe next year. :-)
Mary
Posted by sixgoofykids (Member # 11141) on :
Sorry about the beach ... I think we all know how that feels to sit out ....
Please do the liver cleanse! Oh, it helps me soooo much!!
Posted by lymewreck36 (Member # 4395) on :
Thank you Six. Have any great links to gallbladder and liver flushes? Mary
Posted by sixgoofykids (Member # 11141) on :
Just wanted to share this - I am borrelia free! Yes, I was tested three different ways - all three doctors confirmed.
Yes, I am still dealing with virals, parasites, fungi and emf's. I feel much different than I did in January/February. Though I still have symptoms, overall I feel better than I did.
Dr. W provided me Five Bb treatments with the Bionic. I purchased the machine and now treat at home.
Treatments at 75% 0r 100% - I see a doctor for IV's to detox. Treatments at 25% or 50% I detox at home.
Detox: Prep. has really helped me. - Prepare 2-3 quarts of water with HEEL detox drops - place beside the machine and drink what I can. - drink mixture of green bentonite clay with apple pectin - helps my elimination - I do this an hour or so before using machine - take clorella tablets and drink luke warm cilantro later in the day
Herx: You bet - I feel it every time I use the Bionic - always in my head. I feel the Rife every time I use it also. It seems I have lots of neuro symptoms.
Good Days: (Or parts or a day) ears ring less, head buzzes less or not at all, tingling disappears, horrid feeling from emf's not felt, eyes less dry/red, no headaches, no sharp pains in brain, no tingling in thyroid area, fingers/toes not swollen/painful, no shooting pain in eyes.
Bad Days: Add to the above heavy tingling, heavy buzzing in head
Symptoms Gone: Many, many.
Chronic: Systemic Candida
Two weeks ago I saw a homeopathic who tested me on his EAV machine. He confirmed "no" borrelia. This doctor said I am dealing with a high load of MycoPlasma + Candida, Nanobacterium, Mycobacterium TB, Chlamydia
Ohhhh for the Love of ancestral DNA!!
Bad News: Husband was just diagnosed with Ehrlichia.
We will treat with the Bionic, homeopathics and herbs.
EMF's: Dr W once told me he would never own a battery operated car as he would not place his children near those batteries.
I cannot ride with my girlfriend in her hybrid car (painful). Even my own car I can drive only 30 minutes, but can sit in the backseat for about 1 hour before I feel something.
Compressors and A/C's in grocery stores or theatres, even the overhead lighting and music frequencies I feel pain - heavy buzzing.
I need one of those special tents to hide under when I go out to shop.
Two relatives in Oregon live in a pocket without cell/TV reception. I will visit soon and see what this feels like.
Mary - I admire you. You will win this battle one day. Keep pursuing information and answers to your questions.
Detox... I had a friend who gave me homeopathic shots to open up my meridians before I went to Germany. What a huge help this was.
This friend has been traveling. I noticed that I need her help again as my lymphs are not as open as they should be. This detox pathway is critical as is our kidney, liver, spleen, lungs, and so on. I'm no expert in this area - barely understand it.
Have not been on LymeNet for a while but find I need you guys!!
Thanks for being there and sharing. Grace
Posted by sixgoofykids (Member # 11141) on :
Thanks for the update, Grace! That great news!
Posted by ukcarry (Member # 18147) on :
Congratulations on your improved health, Grace, and thank you for filling us in with such an encouraging account,
Best Wishes,
Carry
Posted by lymie_in_md (Member # 14197) on :
Mary -- put KPU on the horizon as well or look into it. You'll probably want to do at least 3 or 4 liver cleanses spaced 2 to 3 weeks apart. By doing the KPU you'll rebuild your livers natural enzymatic functioning. I now know after doing the cleanse only the KPU protocol helps to make this happen. Once the liver is rebuild you'll have to work on the kidneys. Find some good herbals to help detox the kidneys and the bladder. All this will take some time, but it appears your starting to make progress.
Posted by sixgoofykids (Member # 11141) on :
Bob, what kind of herbals do you think rebuild the kidneys and bladder?
Posted by m0joey (Member # 13494) on :
Make sure you test for the KPU if you pursue it, either energetically or through lab if you can. I took it for about 3 months before it stopped testing for me energetically.
Posted by Healing in Santa Cruz (Member # 7798) on :
I agree with everyone that has suggested looking into KPU.
Posted by lymie_in_md (Member # 14197) on :
Hey Six -- Gravel root, marshmallow leaf or root, hydrangea root, and goldenrod leaf. I make a tea of this in the morning for about 16 oz. Over time it will help the kidneys heal and recover. Six you can use your bionic 880 over the kidneys to help the healing process. 10 minutes over each kidney 3 times a week should do it. It takes about 1 to 2 months if the kidneys were over stressed. If you add uva ursi, use it only for about 2 weeks and stop. Use uva ursi no more then three times a year.
Use l-citruline 1/4 teaspoon in the morning and the same before bed. It will help build nitrous oxide levels in the body. Do this with the KPU protocol, we sooooo need the zinc. From my research a lot of zinc can be found in healthy individuals both in the bladder, and liver. The KPU protocol helps address regaining enzymatic functioning to these organs. The herbs help regain healthy terrain from the parasites and viruses which took residency while lyme was on its rampage.
I think we should ask Dr. K. about including this in his kpu protocol.
I've just replaced the lightworks I had been using with the PE1. I now can sense how much a difference the bionic must have to the lightworks. The PE1 which is similar to the bionic is sooooo much more then lightworks. It penetrates much, much deeper. It has to be 10 times more healing then the lightworks, just my opinion.
I'm learning more and more each day how using LED light and herbals can make such a difference in the healing process.
I also suggest looking up the herb yarrow. Yarrow helps to increase body temperature. Its funny too, because it is an easy herb to tincture for very little money.
Posted by sixgoofykids (Member # 11141) on :
Thanks for all the suggestions, Bob. My body temp is normal.
How do you know if your kidneys are stressed .... I actually don't think mine are ... last time I was muscle tested my liver and ascending colon were the stressed organs.
Posted by mati (Member # 15233) on :
On detoxing, I am doing pretty good. I have made my skin become once more, an organ for elimination which it has not been doing previously. I skin brush, massage lie in the sun exercise then infrared sauna every morning and the sweat drips off me. In the past I stopped using the sauna (just a cheap portable one) because I could not sweat, but now it is working. They say you lose weight by sweating.
I am sleeping well, not feeling wiped out like before, ankle swelling down and pain in some areas has reduced. I feel like I am in healing mode. Later I will have to employ various means to kill my resident bacteria bugs etc but this way feels good - like very natural and at the pace my body wants to go. I hear that sauna's are not good if your adrenals are weak but I am going it anyway, though slowly only 10 mins listening to my body if it wants to stop.
mati
Posted by lymie_in_md (Member # 14197) on :
Six -- lower back pain was my clue along with inflamation in the lower extremities including leg stiffness. Also how well your bladder is working, and in my case the prostate. So I used herbs to ameliorate those symptoms and it seemed to work quite well.
If your body temp is normal forget the yarrow (along with cayenne). The other herbs are only going to help your kidneys work better, plus the herbs do a good bit to help renormalize the liver. Especially goldenrod leaf -- which is also called solidago.
Comfrey is another really great herb.
Posted by sixgoofykids (Member # 11141) on :
Thanks, Bob, for sharing your wisdom again.
My main symptoms is still fibromyalgia, mainly in my shoulder. Last time I treated with the photons it helped, then when I had some emotional stuff pass, it helped more.
I still have some insomnia, but I sleep, it's just I wake up easily unless I'm sleeping alone. That's an improvement, though.
Other than that, no symptoms, except if the pain gets bad I get fatigue.
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