But, I just learned they still need 300 more patients so the data can be presented in its full glory at the upcoming IDSA Lyme Guideline Review Panel Hearing.
Please take a few minutes to complete this survey...
And then send this message to those you know who have Lyme disease and encourage them to complete it too.
If you've sent it out already, maybe you could send it out again as a reminder. Time is running out!
California Lyme Disease Association (CALDA) sponsored
Survey will send message from patients to IDSA* Lyme panel
Have you taken CALDA's new Lyme survey? If not, click here to participate. CALDA CEO Lorraine Johnson will present the results at the IDSA's Lyme guidelines hearing in Washington DC on July 30. (The hearing will be streamed live over the internet. Stay tuned to the CALDA web site for details.)
The Infectious Diseases Society of America's (IDSA) new Lyme disease guidelines review panel will hold a one day hearing on July 30.
This hearing is part of the antitrust settlement that the Connecticut Attorney General negotiated.
Of the 18 speakers selected to testify, two are patient advocates, including me, Lorraine Johnson.
The testimony will be aired live on the internet on July 30 so stay tuned. STAND UP AND BE COUNTED CALDA is conducting a survey of individual Lyme experiences to give you a chance to have input.
Results of the survey will be included in my testimony to the IDSA panel.
Speak out and be heard. Help CALDA represent your views to the IDSA at the July 30 hearing.
Posted by Nicole_Denise (Member # 20620) on :
Oh good- you don't need an American postal code now. The first time I tried (a long time ago), it wouldn't accept my Canadian postal code.
Posted by Melanie Reber (Member # 3707) on :
Just posted this at LymeLand. Thanks for making it so easy for us who tend to procrastinate just a tad.
Posted by bettyg (Member # 6147) on :
i posted it on mdjunction lyme board; they have over 1000 members; most very ACTIVE !!
Posted by keltyl (Member # 14050) on :
Done!
Posted by mtree (Member # 14305) on :
done Posted by venus (Member # 16991) on :
done
Posted by tickssuck (Member # 15388) on :
done!
Posted by lymeinhell (Member # 4622) on :
Done. Up to the top for others!
Posted by kam (Member # 3410) on :
Any updates on how it is going??
Posted by mtree (Member # 14305) on :
Hi Tincup...
maybe this should also be posted in general...???
I myself find that I often just go to General Support...not so much Activism or Medical...
just a thought... I do have them once in awhile...
mtree
Posted by randibear (Member # 11290) on :
my done!!
Posted by mtree (Member # 14305) on :
I also did my daughters.... Posted by viva (Member # 8183) on :
Forwarding the link to my husband; he has promised to send it in.
Up!!
Posted by bettyg (Member # 6147) on :
heard back from 1 mdj lyme patient who is a moderator there; done; now that she did it; others will follow ...
Posted by gemofnj (Member # 15551) on :
done. glad to have the opportunity to do it!
Posted by Zebco 33 (Member # 18376) on :
Done...It's a wrap..Thanks Tincup for the reminder. Posted by feelfit (Member # 12770) on :
just finished.
Posted by bettyg (Member # 6147) on :
lou b posted this in activism too
Posted by pepperspeck (Member # 18837) on :
done!
Posted by linky123 (Member # 19974) on :
done
Posted by mushroomman06 (Member # 13088) on :
Did mine when first posted. Is there any way one can see if it posted?
Posted by Nancy2 (Member # 95) on :
Done!
Posted by groovy2 (Member # 6304) on :
Hi All
where is the survey-- I click on the link and it takes me to a page that says Click Here to take survey-
A new page opens up with a bunch of articals on lyme but No survey that I can find --jay-
Posted by mtree (Member # 14305) on :
groovy...
click on to the link above again... then ...click on to survey...
then go to......
June16th Listen Up! click on to full story....
then click survey again....
I hope that works.....
mtree
Posted by Jane2904 (Member # 15917) on :
Done!
Posted by fighter (Member # 20170) on :
did my part
thanks for the reminder
Posted by jlc (Member # 18061) on :
Just did mine.
Posted by Healing in Santa Cruz (Member # 7798) on :
![[Big Grin]](biggrin.gif)
![[hi]](graemlins/hi.gif)
![[confused]](graemlins/confused.gif)
![[bonk]](graemlins/bonk.gif)
![[Smile]](smile.gif)
mtree
![[dizzy]](graemlins/dizzy.gif)
![[spinning smile]](graemlins/spinsmile.gif)
mtree
![[lol]](graemlins/lol.gif)
![[Cool]](cool.gif)