[ 07-23-2009, 05:12 PM: Message edited by: Lymetoo ]
Posted by Lymetoo (Member # 743) on :
NOW!! Comes on again later tonight!!!!
The gentleman took treatment with malarone for 6-7 wks. Good luck. An ID dr treated him.
Posted by seekhelp (Member # 15067) on :
What time is this on again on an Eastern Standard Time basis?
Posted by Lymetoo (Member # 743) on :
I think 11:00 and 4:00.
Posted by Hoosiers51 (Member # 15759) on :
on right now.....11 PM Eastern, might be 10 PM Central.
They are talking about it last, so it will probably not come on until like 11:35-11:40 EST.
Posted by seekhelp (Member # 15067) on :
From watching this, I don't know how on earth I have this disease!! My presentation was NOTHING like this. No RBC low count, never had a fever, no enlarged spleen. Severe chills and some sweats in the beginning of my illness. That can't be enough to be something as severe as illustrated on TV.
Posted by Pinelady (Member # 18524) on :
I think I would like to try some of that parasitic
Atobaquan? I loved the part where he said if it was
not in the sample it may go undetected. Sounds familiar.
Posted by seekhelp (Member # 15067) on :
I just heard that. I'm so glad they admitted that. A 1% detection rate is horrible. I didn't realize how hard it is to find. Maybe I'm dead wrong.
MY ID doc, who is very Lyme friendly but an IDSA member, said if it's not in a blood smear, a person doesn't have it. How can you say this when a public TV show states otherwise? How can highly, highly educated docs not be in tune with producers of a show? I'm stunned.
Posted by Hoosiers51 (Member # 15759) on :
They mentioned the drug Atovaquone, which is Mepron.
It is not that the detection rate is 1%. They said that the babesia parasites often inhabit less than 1% of red blood cells, which is why detecting it on a smear is so difficult.
That is what the TV show said, and that is what we have also been saying here when people ask why babesia is not seen in smears. It isn't in enough of the RBC's to just be seen that frequently on a slide, under a microscope.
If it is in 1/2% of all RBC's, you would have to look at 200 RBC's until you saw one babesia parasite. My guess is most smears don't show that many RBC's, on one slide.
There are other ways of checking for it though, like doing titrations. (titers, like 1:256) Also, you can check for the antibodies, but I haven't had as much success with that as checking titer levels, probably because the titers are less species-specific?
This person was seriously ill with babesia. That is why it was so obvious to us. The show said that most people do not present with symptoms like that....that some people are asymptomatic.
Posted by asummers (Member # 18068) on :
i don't usually chime in on stuff like this...i have been watching the show every week. very interesting. if you are a germ-a-phobe, then you don't want to watch it, you will never leave your house.
anyhoo...i felt like on the show tonight, they portrayed this guy as taking just 10 DAYS of an antibiotic and then he is all cured and is back to his old self again. that didn't seem realistic to me.
also, the expert they had one made it seem like babs was only concentrated in new england. i thought that was misleading too.
i just had a weird feeling about the portrayal of that segment tonight -- a little to 'cookie cutter.'
Posted by Pinelady (Member # 18524) on :
My thoughts exactly. Me thinking how long will it take him to figure it out?
Posted by Pinelady (Member # 18524) on :
AT least they did highlight babs, so the public is more aware of how epidemic it is becoming, especially how tick born illnesses/parasites are easily gotten by just being in nature.
Don't think it really matters about the actual treatment length they publicized, as all true babs patients know it takes way more time to treat, and it is more wide spread.
The general public doesn't really need to know those truths immediately to get the point out...just that they need to test for it!
The more that know they have it, the more doctors will understand it and the true treatment guidelines will be tweeked, and the real stats of where it comes from will be known!
Will take some time.
Posted by lou (Member # 81) on :
My babesia duncani was detected by Bowen Lab, which had their license revoked by the state of FL, and later they went after the doctor in charge and removed her license. This was probably instigated by the CDC, which was also behind the attacks on IGeneX.
If it had not been for Bowen, I would not have been diagnosed. Chronic babesiosis is not necessarily like acute.
So, if it is hard to detect in blood smears, they shut down labs that look for it, what conclusion can you draw from this except that the authorities do not want it diagnosed. B. microti is not the only babesia, but that is what they are looking for at most labs, only recently added duncani. What about the others? Our medical establishment is totally corrupt.
And, of course, those shysters in the midwest, are now cashing in on the wrongful actions of the state of FL. Sickening.
Posted by asummers (Member # 18068) on :
good points lymeparfait -- i like looking at it your way, better than mine!
Posted by alliebridge (Member # 9103) on :
I think he said it took 8 months for him to feel better, back to his old self.
Amazing that living in MA he *only* got babesiosis and not Lyme (!). He's *incredibly* lucky!
And how lucky to have a positive test, too! I can't test positive for it.
He said he does tick checks now but he still runs in those same forests amidst the leaf litter?
I'd buy a treadmill if I were him.
Posted by bettyg (Member # 6147) on :
quote:Originally posted by lou:
And, of course, those shysters in the midwest, are now cashing in on the wrongful actions of the state of FL. Sickening.
lou, WHO are the shysters in MIDWEST? i'm from midwest but i have no idea who you are talking about? thanks.
i didn't know babs was that deadly according to them. i got in on the RERUN show after getting off here; shows segments 2 & 3 about worm/babs.
Posted by 22dreams (Member # 17846) on :
quote: And how lucky to have a positive test, too! I can't test positive for it. [/QB]
I did hear someone say in the show that negative test results are common. I wish they'd emphasized it a bit more.....
and yeah, no kidding---how lucky for him that he has no co-infections...unheard of nowadays.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Pinelady: [QB] I think I would like to try some of that parasitic
Atobaquan?
atovaquone (sp?) .. malarone
Posted by Hoosiers51 (Member # 15759) on :
Atovaquone is Mepron.
Malarone is Atovaquone with Proguanil.
Posted by Lymetoo (Member # 743) on :
Thanks, Hoosiers!! I never took Mepron .. so what do I know!!? Posted by Hoosiers51 (Member # 15759) on :
It's okay....you were close! Posted by pryorka (Member # 13649) on :
Keep in mind it's not the authorities per say such as the politicians that don't want us getting diagnosed. It's insurance companies that don't want us getting diagnosed. And of course we all know how they bribe doctors that control the academic curriculum taught in our med schools. So I think that's the real reason these doctors have no idea what they're doing or talking about.
Posted by JKMMC09 (Member # 15795) on :
I'm glad that Babesia is getting some "exposure"-- the guy presented exactly like my daughter-- she had an enlarged spleen & liver, high fever, very low RBC and elevated LDH. So glad this guy got better quickly, my daughter is still ill with these symptoms.
Posted by lymeparfait (Member # 14268) on :
Very odd...I never was diagnosed with babesia, just Ehrlichiosis and lyme. No babs symptoms.
Both Ehrlichiosis and lyme are now in remission and I feel great, just decided to check if I still had them or if they were truely put away for now, as I was visiting my ND, who is helping me with detox after being on abx.
Energetically tested by my ND, and she found BABS!!!! She said very positive, but not active presently. She saw no sign of the lyme at all now! Said I tested to not treat it, just let it be, unless I get symptoms...did not test to treat it.
She commented that many patients, as they begin to heal, and detox heavy metals and candida, like me, have new things start to appear, that were never able to be found in a blood smear. They do not even usually show energetically, )unless you test specifically for them), until they become exposed after other layers of things that hide them are gone....
Just thought I would share this info. It appears that this could be why many people relapse or find new things later in life...we treat, heal,detox, then our body rebalances and new things emerge that need to be addressed.
Posted by seekhelp (Member # 15067) on :
I know many trust ART testing and I respect that. However, I just can't buy into a practicioner 'saying' you have Babs meaning this is in fact true. I need more proof than that! Anyone can say you have anything. If no symptoms, no serological proof, etc., I don't think it's a good guess or worth treatment. It could be an expensive / dangerous proposition based on one person's 'intuition.'
Posted by Amanda (Member # 14107) on :
When I first got ill, I was so sick they kept me in the hospital for 5 days. I was in excellent physical health, and no one could figure out why I had high fever, chills, profuse sweating, terrible headache, body aches and pains and a low white blood cell count. My red blood cells were NOT low. So, they thought I had some kind of virus.
I think a major reason why Lyme and coinfections are so controversial is that western medicine in general is cookie cutter, and some illnesses often present differently in different people, lab results will be different, the organisms themselves that cause the problem are much more diverse than they think.
Under that paradigm, of course lab results are going to be variable, symptoms will be variable and therefore a cookie cutter understanding of a disease is not going to work.
MDs are taught that each disease will present the same way in every body. I think that is true for some illnesses, but not all. I think this is why so many people can not find relief for chronic conditions.
It is such a limited view of the human body, that its almost....stupid.
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