LymeNet Flash: HOW I convinced a KAISER Non-LLMD to extend treatment....

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Posted by LymeLearned (Member # 20565) on :

I want to share how those who came before me are already changing the tides for newly bitten/diagnosed Lyme patients.

Because of the persistence of good people, there was compelling evidence to support a treatment outside of IDSA guidelines.

Let's hope this is the beginning of a new trend. In my case, an LLMD was not an option, so I approached a good doctor who cares with the following.

It remains to be seen whether he will renew again, but it's a start.

I hope this is helpful to others as well.

1. Flawed Treatment Guidelines for Lyme disease:

http://www.ct.gov/ag/cwp/view.asp?a=2795&q=414284

2. Unbiased Older Science:

http://lymediseasescience.blogspot.com/

3. New Law Protects Doctors: http://www.ct.gov/dph/cwp/view.asp?A=3659&Q=443628

4. Pandemic Infectious Disease Warning(GREAT 6pg. Article):
http://www.21stcenturysciencetech.com/Articles_2009/Lyme%20Pandemic.pdf

5. 80% of confirmed Lyme patients do not recall bite:

http://opa.yale.edu/news/article.aspx?id=3278

6. Clearinghouse Guidelines:

http://www.guideline.gov/summary/summary.aspx?doc_id=4836&nbr=3481&string=lyme

7. Antibiotics Interfere with Test Results (top of page two):

http://www.labtestsonline.org/understanding/analytes/lyme/test.html

8. Hearing notice for IDSA : http://www.idsociety.org/WorkArea/showcontent.aspx?id=14974

Posted by bigdreams87 (Member # 20493) on :

I am with Kaiser and have an appointment with a dr on wednesday. We have been going in the medical merrigoaround for a year now as I have been trying to tell them I am sick with Lyme.

I just got test results back from Igenex that show positive for lyme, babesia and erlichia. But I am not sure if Kaiser will "buy" the test results from there.

These are good articles though and I will take them with me.

Thanks!