Adult daughter had strong positive Lyme test. 6 months on abx with no effects for better or worse. Primarily bad arthritis symptoms, plus some neuro.
Has been off abx for a month, using a homeopathic remedy with mildly good results.
Today she reports onset of muscle twitches along the facial nerve (upper and lower jaw line) on the left side.
Once today she had a shooting pain behind her left eye, which could also be the facial nerve.
We can't reach her llmd til Monday at the earliest. Is this an emergency?
Should she go back on the abx, do you think, or can it wait til Monday or beyond?
Posted by c3mom (Member # 16412) on :
I have had horrible pain in the eyes. So bad I couldn't move them side to side. The pain was UNBEARABLE, but it passed. I can't say if it is an emergency for you, but I have experienced it before. Hope this helps.
Posted by Richard1062 (Member # 19233) on :
c3, do you do anything for it? Does it go away on its own?
Posted by purplemom (Member # 21064) on :
Does she have bell's palsy? Do you have a pediatrician you trust that you could call and run it by them?
Posted by cjnelson (Member # 12928) on :
i have had the twitching and shooting pains for years...and had temp bells palsy as well in 05. it is very unpleasant but has gotten much better with treatment...do call ur md and if it gets worse and unbearable or facial droopiness then yes take to er!!!!!!!
Posted by Richard1062 (Member # 19233) on :
Well, we don't know yet if it is Bell's palsy or not. Symptoms just arising now, and it's Friday night so we'll have to wait if she's to see her own llmd.
What treatment did you use CJNelson? I looked it up and saw Prednisone is used, but that's not a good idea with Lyme...
Posted by Carol in PA (Member # 5338) on :
quote:Originally posted by Richard1062: Today she reports onset of muscle twitches along the facial nerve (upper and lower jaw line) on the left side.
The muscle twitches may be a symptom of low magnesium. The Lyme bacteria use up the magnesium in our cells.
Is she taking magnesium?
Carol
Posted by Richard1062 (Member # 19233) on :
Yes Carol, thank you. She had all-over muscle twitches last winter, when she became acute, and they went away when she added magnesium.
Since this is such a specific location, we thought it might be something different, yet another a fun new problem for her to cope with.
I'll advise her to up the mag. anyway, and see if it helps.
Posted by Carol in PA (Member # 5338) on :
What about taking things to reduce inflammation.
Pharmaceutical quality fish oil Devil's Claw Zyflammend Serrapeptase
just typical treatment for Bb infection...and now on MP protocol for past year. just another symptom...mine started about 3 1/2-4 yrs after tick bite...