There is a doctor (not LLMD) a couple of hours from me that is doing some type of peroxide IV treatments and curing people of different types illnesses, which do not respond to traditional treatment. Anyone heard of this? Is it worth a try?
Thanks, Jen
Posted by mojo (Member # 9309) on :
I'm just starting to hear about this locally here - don't know much of anything but would love more information.
anyone??
Posted by Abxnomore (Member # 18936) on :
I've seen it used mostly to kill of viruses. It could benefit those with Lyme by bringing down the viral load thereby taking an additional burden off the body but not sure how it would kill off Bb.
Posted by WildCondor (Member # 434) on :
It doesn't work, and it burns your veins and damages them for life. I tried it, believe me, if it cured anything, I would tell you.
Posted by springshowers (Member # 19863) on :
I am getting peroxide DMSO IV once a week along with other stuff all week.
I have to say.. I do not enjoy that IV. It makes me feel icky and I am not sure if that is a good thing or a bad thing.
I can not tell what it is doing or not doing... to be honest..
So... who knows.
Posted by Blackstone (Member # 9453) on :
I had alternating 75g vitamin C and hydrogen peroxide IVs, at least 4 times a week at an early phase of my treatment. It was certainly not a miracle cure and there are some preparations that are outright dangerous. Be very careful and unless you are understanding of the risks and have tried more proven models, I wouldn't suggest it.
Posted by nspiker (Member # 22824) on :
I am a newbie, and this is my first post, but I agree with WildCondor. I had IV hydrogen peroxide years ago for CFS, as it was supposed to raise NK cells. It also burned my veins and didn't work. To this day, I'm still mad about what it did to my veins.
Posted by WildCondor (Member # 434) on :
Watch out with the high dose Vitamin C IV's it can really mess up your blood sugar/insulin and cause a major havoc on your immune system. You can take all you need by mouth, and with Vit C moderation is important.
I used to do both Vit C IV and H2O2 IV's and neither of them work for CFS, Lyme, or Fibromyalgia stuff. Tried UVB too, and DMSO, and chelation. I did up to 100 grams IV and it at one point, and it is indeed too much. It is thought that once you go over 25 grams of IV C that you can stimulate your body's interferon production (fail) to help your immune system fight off viruses like EBV, HHV6 and so on, in turn treating CFIDS. It doesn't work.
The Myers cocktails to give you energy make some sense but they cost too much, and you can get the same thing in IM shots. Out of everything I used to try years back, I wish I had Methyl B12 then, it has been the best for energy/stamina. I wish all the nutrition therapy and alternative stuff I got in IV's had been IV antibiotics. Instead I wasted valuable years trying things like Vit C IV's that did not work, destroyed veins, and cost a fortune.
Posted by Abxnomore (Member # 18936) on :
The main function of IV nutritional support is not meant to kill off bacteria, it's meant to support the body during a time of illness and stress, when used correctly.
A sensible combination of both under the care of a knowledgeable practitioner is not a waste of time or money.
As you stated it, like so many, you were not getting at the root cause as I can only assume at the time you didn't realize that you had Lyme and co's and had not yet found a good LLMD.
So, of course, the money spend on ABX was the money well spent but that is not to say the IV nutrition is of no benefit. I credit it with keeping me afloat until I got the proper dx and after getting the proper dx. I found it to be very helpful in supporting my body while undergoing tx.
Posted by jennie46 (Member # 20953) on :
Sounds too scary to risk & of no benefit. I am definitely passing on this one.
Thanks for the info, Jen
Posted by seekhelp (Member # 15067) on :
WC, how much total would you say it cost out-of-pocket for you to win your battle over Lyme/coinfections? I've always wondered. If you don't want to answer, no problem. It sounded like you tried it all and then some.
Posted by Ms Poo (Member # 22863) on :
I am a newby too and reading all this is scary as can be. I still waiting to hear from some of the sites that are supposed to tell you where doctors are. I am taking natural stuff and and seriously considering the salt C. Has anyone tried it and how much did you start out on? Did it mess with blood pressure? Did you feel them leaving the different areas of your body, eyes, ear drums etc.????
Posted by Abxnomore (Member # 18936) on :
Ms Poo if I understand you correctly you are looking for an LLMD?
Please place a post in "seeking a doctor" and you will get lots of help from the people who volunteer in that section.
I will also send you some info to get started. There's no need to wait for those referral sites.
Posted by brentb (Member # 6899) on :
I've used peroxide for years for my allergies. Works great, and if you do a slow infusion you shouldn't have any problems. From my experience it works good against viruses (my son had mono), but not so good against lyme.
Posted by Abxnomore (Member # 18936) on :
brentb my experience exactly. Like anything else these things must be performed in the hands of a practitioner who is good and has lots of experience.
I never had a problem with IV nutritional of this type.,only good experiences. For those who have had their veins burned out I wonder how many IV's they did and what other variables were involved.
Just like you said, very good for viruses, allergies, reducing inflammation. Great to support the body while fighting Lyme but they are not meant to kill spirochetes. Also, it depends what your practitioner puts in the IV drips. There are many options but it's not scary.
Posted by psano2 (Member # 11711) on :
I don't really understand how Vit C didn't work for some of you. I just finished 8 weeks of high dose IV vit C and it helped me tremendously. The first 3 weeks I had really strong herxes, (would usually start herxing during the infusion) but the last 5 had minimal herxes, and felt much better than when I started.
Also, per my MD, vit C converts to H2O2 in vivo, so getting both peroxide and vit C IV is probably redundant.
Posted by WildCondor (Member # 434) on :
Seek,
I lost track long ago but it was over $250K most of it was spent/wasted before receiving a Lyme diagnosis on alternative stuff that didn't work. That # is NOT including lost wages and living expenses caused from 10 years of misdiagnosis. After they figured out it was Lyme, it was easier. HBOT cost a big chunk, as did IV treatment and insurance. Lost my savings, it wasn't pretty!
Posted by zil (Member # 12048) on :
You can also do hydrogen peroxide baths. I was told to use food grade peroxide 35%. The 3% Hydrogen Peroxide you generally buy has preservatives in it. However, I don't know what to believe as I have read the 3% was ok.
Posted by Abxnomore (Member # 18936) on :
Food grade is preferred. The stuff you buy at the pharmacy has stuff added to it, chemicals, etc.
Posted by Heleneh (Member # 21207) on :
I receive vitamin C through IVs. If it is infused to fast it will burn your veins and cause scarring.
My doctor's office told me for EDTA, it should take 3 hours for the IV.
Posted by WildCondor (Member # 434) on :
I wonder just how many doctors out there say they "treat" Lyme patients just so they can rip them off by selling off their IV Vit C and IV H202 protocols because they do not know any better, and/or because they can and it's their business. Disturbing thought.
Posted by jennie46 (Member # 20953) on :
quote:Originally posted by Ms Poo: I am a newby too and reading all this is scary as can be. I still waiting to hear from some of the sites that are supposed to tell you where doctors are. I am taking natural stuff and and seriously considering the salt C. Has anyone tried it and how much did you start out on? Did it mess with blood pressure? Did you feel them leaving the different areas of your body, eyes, ear drums etc.????
I sent you a PM.
Jen
Posted by Abxnomore (Member # 18936) on :
Just like everything in life you have to be a wise consumer and the same applies to lyme disease and medicine and fortunately we have a site like Lymenet.
If you have done your homework it's not necessary to assume that all doctors who prescribe these IV's are evil and in it for the money. Many may well be but not all are.
The benefits of this kind of nutritional approach combined with proper Lyme treatment by an LLMD IMO is extremely beneficial and not scary at all.
There are doctors of all persuasions who are in for the money. It's up to the patient to screen out those doctors and sometimes we may get burned until we have figured it out. That's just life. We live and learn. But don't let your initial bad experience with IV nutritional medicine give the impression to others that this way of supporting the body is worthless or dangerous.
Many have had very good experiences with it and it should be considered as a valid complimentary protocol to be used along with ABX treatment for those who want to explore it.
jennie46, haven't you seen that we have a "seeking a doctor" section on lymenet where there are volunteers who can help you. There's no need to be waiting for a response from a referral site.
Place a post in "seeking a doctor" about your situation and where you reside and you will get lots help and assistance in finding an LLMD.
Posted by laceyj (Member # 13862) on :
i did hydrogen peroxide IV's and it did ruin my veins
i now have a hard time getting blood drawn every time and it was only after those treatments, they didnt know about lyme at the time
it really did not bring me any long term relief
Posted by Abxnomore (Member # 18936) on :
That is the point I am making that many who have had this trouble received these IV's before they had the proper diagnoses.
With the right diagnoses in combination with a good LLMD these treatments don't necessary have to be damaging. They are used to support the body while the body is undergoing extreme stress from the infection. Used in that way and under the care of an M.D. that is integrative and knowledgeable will likely not cause these problems.
I did not suffer any bad affects from them only beneficial ones. Yet, I do understand we are all different but we can't assume that they are bad for everyone and that integrative M.D.s all have ill intentions.
Posted by WildCondor (Member # 434) on :
True, however, I worry at how many doctors out there are taking advantage of the Lyme community and saying they treat Lyme, when in fact all they offer is IV Vit C therapy, which is not Lyme treatment. Not everyone has ill intentions, obviously, there are wonderful integrative MD's out there. Just be careful folks, learn about Lyme and co-infection treatment before you get possibly suckered by one of these docs and get your hopes up. No question that Vit C and others can help improve energy, but you can get the same effect doing injections for much cheaper. Just learn so you know what your getting into!