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Posted by lakes592 (Member # 18905) on :
 
Orginally posted 20 days ago. Still dizzy, disconnected, foggy, suicidal, shaky at times. Saw llmd that Dr. D trained doc started me on low does doxy 200mg a day and ativan. Tounge is full of white thick crap. Mouth tastes like metal.

I keep thinking when I was trying to detox yeast I stirred up some heavy metals but dont know if I am just imagining that and making it worse. It also seems to have started when I started Juicing to try and get rid of fatigue. Now worried I am going to become addicted to the ativan need it every night to sleep. Wondering why my head feels so weird and not myself. Feel like I am going to end up in a straight jacket. Any little stress and I start shaking uncontrollably. Horrible crying spells...feel angry, irritable, scared, headaches.

Would heavy metals do all that? How would I know if that is what I did?...Is it the Lyme? Dr. did Western Blot negative...co infections negative...CD57 high immune response all blood work in fine...Would yeast cause this? Not sure if the metal taste and swollen tounge feeling were before or after I started the doxy. Sorry for rambling just so damn scared.
 
Posted by sixgoofykids (Member # 11141) on :
 
Metals and candida often go hand in hand. Have you tried chlorella or zeolite to help absorb some of those metals?

What are you doing for candida? Garlic, coconut oil, fermented foods (raw sauerkraut, kefir, kombucha), onions, all help.

Yeast can be as bad as Lyme itself and it sounds like, based on your white tongue, that you may have a bad yeast problem. I would tell your LLMD. He may prescribe Diflucan to help with the yeast, but you still have to change the terrain by cutting out simple carbs, taking probiotics, eating ferments, etc.

As far as the suicidal part, are you getting support for that? Does your family and doctor know? We're here anytime you need us.
 
Posted by Keebler (Member # 12673) on :
 
-
I'm sorry you are dealing with all this. Many years ago, I felt the same way you do and found that while lyme and candida contributed much to the situation, the meds I was taking were causing most of the suicidal impulses. It was a difference of night and day. For me, nearly every pharmaceutical that I tried had me a such a suicidal basket case that even the emergency call line told me to stop calling every day.

Getting off the psychoactive or sleep drugs saved my life. Getting onto magnesium and fish oil, liver support, adrenal support, etc. helped . . . and - oh - some good dark cocoa powder with stevia in a glass of soy milk, too.

Also rather than think of "detox" as an event, on-going gentle support helps keep mood stable. Juicing is good but be sure to eat, too. Low blood sugar can bring on a suicidal temptation big time. So can an adrenal drop.

Take care, now. This can get better.

==========

http://anxiety.emedtv.com/ativan/ativan-side-effects.html

Ativan Side Effects

. . . Common side effects of Ativan can include dizziness, weakness, and unsteadiness.

A few other possible side effects include nausea, constipation, and fatigue.

Some risks are more serious and require immediate medical attention; be sure to report side effects such as seizures or suicidal thoughts to your healthcare provider right away.

. . .

- full page at link above.

======================

http://en.wikipedia.org/wiki/Ativan

Lorazepam, initially marketed under the brand names Ativan and Temesta, is a benzodiazepine drug with short to medium duration of action. . . .

Adverse effects

* Paradoxical effects: . . . It is worth noting that frustrating stimuli may trigger such reactions, even though the drug may have been prescribed to help the patient cope with such stress and frustration in the first place. . . .

* Suicidality: . . . Though relatively non-toxic in themselves, the concern is that benzodiazepines may inadvertently become facilitators of suicidal behaviour. . . .

* Amnesic effects: Among benzodiazepines, lorazepam has relatively strong amnesic effects . . .

. . . .
==========

If you decide to stop ativan, it should not be stopped suddenly. Slowly titrating down is best under the guidance of a physician. You can find more about that by searching, too. This is just one link about that - I'm sure there are more. Still, a doctor's guidance is best.

http://www.prozactruth.com/ativan.htm

. . . What can you do to eliminate withdrawal side effects or general side effects caused by Ativan? . . .
-
 
Posted by Keebler (Member # 12673) on :
 
-
http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/77321

Topic: NATURAL SLEEP - Links to articles & supplements
-
 
Posted by lakes592 (Member # 18905) on :
 
Thanks keebler I think it all started before the ativan. I will see if there is something else with less side effects that I can take.

My fiance thinks it is black mold, We found some in the window sills of our bedroom and the back of my night stand was covered in thick green mold.

To many things to consider it makes my head spin. Do LLMD's even recognize yeast, metals, mold she was trained by Dr. D so I am doubting that.

I wish I could see Dr. k but just dont see how. I thought I read things about problems with Chorella also. All of it is overwhelming me. I literally feel like I want to bite my tounge off it is freaky and scary. What about Valerian at night to sleep? Also, I am afraid to take antidepressants I had a cousin commit suicide on Paxil.

I was planning to take nothing this weekend and see if I could clear my mind but so much for that. I started shaking all over legs esp. and very weak. So I took the ativan I did skip it last night but didn't sleep that well. I am going to have to find a substitute for the ativan as I can't seem to calm myself otherwise.

Thanks,
Ann
 
Posted by Keebler (Member # 12673) on :
 
-
Ahhhh. Ohhh. Black mold? Oh, I'm so sorry. PLEASE call your local chapter of the American Lung Association. They will help you get that tested.

That is a priority before anything else - TODAY. You need to know if that is stachybotrys. If it is, you need to stay away from that - special measures are required.

Good luck.

============

Just for a start:

http://en.wikipedia.org/wiki/Stachybotrys

Stachybotrys

=============

www.lungusa.org

American Lung Association

===============

From the work of Ritchie Shoemaker regarding mold toxins - and what you can do about that. Just a start to the links:

www.chronicneurotoxins.com

http://www.chronicneurotoxins.com/learnmore/fungaltoxins.cfm

-
 
Posted by LisaS (Member # 10581) on :
 
I believe I was sick with lyme for many years, but it became out of control when I moved into a house we found out had black mold behind the walls in the basement, where my bedroom was. I am still completely sick.

I don't think there is a way to remove it without calling a specialist. It's not safe. They will come in with special suits on and everything.

I feel for you with the suicical thoughts and that desperate feeling. I so know what you're going through. It's such a desperate feeling, not knowing when and if you're going to get better. ANd not being able to handle stress, man do I understnad that. When any little thing happens I feel like I'm going to have a heart attack and faint. I can't even stand my legs get so weak.

I don't have any great answers to help. Just wanted you to know you're not alone. Hope you find relief soon.
 
Posted by lakes592 (Member # 18905) on :
 
I wrote this as a note to Keebler but guess I will ask it of everyone:

I was wondering if you could choose any LLMD to put your life in the hands of who would it be and why? I was thinking Dr. K but some of his stuff on his guidlines seems so stringent & expensive. There is an ND here in NH that works with Lyme Patients H ND Portsmouth, NH should I try him first?

Do you think this head thing could be just from simply being anxious and worried I have had extreme stress lately and a series of death, my daughter being sexually assaulted and financial problems over the last month. Could it just simply be that and I am just grasping at straws about the lyme, mold, candida & heavy metals.

I keep praying for god to guide me and have never been so scared in my life. I have moments of clarity but overall and esp at night my head just feels abnormal and I just feel something is very wrong but maybe I am being a hypochondriac as my mother used to call me.


My sister & her gf who is a nurse just want me to take anti depressants and ativan but I feel like that is just a bandaid. I am just wondering if this is a pyschological problem from the stress or actual illness and how I would know the difference?

I do know something about the heavy metal thing makes me scared esp since one woman wrote about ALA and feeling like she should be in a straight jacket. That is my ultimate fear ( losing my mind) So maybe this is all just from worry?

Thanks,
Ann
 
Posted by JamesNYC (Member # 15793) on :
 
Band-aid or not, treating the depression and anxiety will make you FEEL better. You will be able to think more clearly. (Assuming those meds work). How can you make *good* decisions if you're depressed, feeling suicidal, and anxious?

Whether the depression is physiological or psychological is not relevant to your immediate situation. If you're lucky it will be the latter.

My advice would be to get the depression under control. You have enough to deal without feeling suicidal.

I hope you feel better soon!

James
 
Posted by Keebler (Member # 12673) on :
 
-
The thing is that for many lyme patients, mood altering drugs that may work well for others, often have the opposite effect, a paradoxal effect. For me, the only things that got depression under control was to address the causes: infection and nutritional deficiency. I also had mold issues and moved.

A magnesium deficiency can cause depression. So be sure to address that. But, FIRST, get away from the mold. That can sure explain a lot.

Be sure to see the name and links I sent. Also:

-----------

NEURO-COGNITIVE LYME DISEASE

Lyme disease patients can experience symptoms such attention problems, short-term memory loss, depression, panic attacks, personality changes, mood swings, and/or learning disabilities.

Literature on these manifestations is found here:

http://www.lymeinfo.net/neuropsych.html

-
 
Posted by Keebler (Member # 12673) on :
 
-
Porphyria may be related to many psychological symptoms. This explains how mold, certain medications - and infections - can cause depression and also trigger suicidal tendencies.

Help can be found in addressing issue of toxicity (infection, mold) . . . specific liver support and avoidance of things that trigger excess porphyrins.

One LLMD says he thinks 85% of newly dx lyme patients have KPU (one type of porphyria) and that all chronic lyme patients are affected by this condition.

---------------------

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=071168

Topic: PORPHYRIA LINKS (inc. KPU ) - Re: Cytochrome P-450 liver detox pathway

==============

http://www.cpnhelp.org/secondaryporphyria

Secondary Porphyria: what you should know before starting a CAP (combined antibiotic protocol)

Excerpt:

Symptoms of Porphyria- Porphyria may affect the nervous system or the skin.

When porphyria affects the nervous system, it can cause:

chest pain

shortness of breath

abdominal pain

nausea

muscle cramps

weakness

hallucinations

depression

anxiety

paranoia

seizures

. . . .

- Full article at link above.
-
 
Posted by JamesNYC (Member # 15793) on :
 
Sure Keebler,

That is true, sometimes anti-depessants don't work. But usually they do and many, many people on this site use them with good results.

I agree that the underlying physiological cause should be addressed. HOWEVER Lakes tx is not helping this problem , and it may take a long time to get the lyme diminished enough to stop the depression.

MEANWHILE Lakes is suicidal. In so much depression-pain that he/she wants to kill him/herself. So waiting for the tx to work will not mean anything if he/she's dead.

I URGE an attempt to ameliorate the depression with anti-depressants. There are many different types of very good ones.

People with physical pain take pain-killers, would you recommend that they just suffer the pain until the lyme stops hurting????

Why should the pain of depression be treated any differently?

I'm sorry you're going through all this Lakes.

James

(I apologize for not knowing if you're a man or woman. Every time I think I know the gender of someone with a genderless handle, I seem to be wrong!) [Smile]
 
Posted by Keebler (Member # 12673) on :
 
-
My intention is not at all to ignore the pain of depression or the tender state of feeling suicidal.

I am not suggesting to not to treat the depression. I'm just saying that, in many cases, (in addition to related to infection) it can be directly related to liver stress, adrenal exhaustion and also to specific nutritional deficiencies - as well as inflammation.

As the ativan is not working, it might help look to magnesium and fish oil and B-vitamins. If other meds can work, great. But the nutritional issues should first be considered as, with correction, mood can be positively affected. If these measures are not enough, then some particular meds may be in order.

=============

http://www.ncbi.nlm.nih.gov/sites/entrez

PubMed Search:

magnesium, depression - 1309 abstracts

fish oil, depression - 377 abstracts

Fish oil, anxiety - 47 abstracts

=======================

This book, by an ILADS member LLMD, holds great information about treatments options and support measures - some pharmaceutical, some nutritional:


http://tinyurl.com/6lq3pb (through Amazon)


THE LYME DISEASE SOLUTION (2008)

- by Kenneth B. Singleton , MD; James A. Duke. Ph.D. (Foreword)

You can read more about it here and see customer reviews.

Web site: www.lymedoctor.com

========================


http://www.vrp.com/articles.aspx?ProdID=art1999&zTYPE=2

Natural Support for Depression: New Mechanism of Action Behind Nutritional Mood Enhancers - By Chris D. Meletis, ND

Excerpt:

. . . Inflammation's Emerging Role . . .

Scientists are beginning to realize that the mechanism behind treating depression is more complex than they first thought.

In fact, they are now discovering that there might be an inflammatory cause behind depression and that many of the natural mood enhancers mentioned above may work partly due to their ability to reduce inflammation.

A body of evidence indicates that the therapeutic activity of natural mood enhancers is connected with their modulatory effect on the inflammatory response system. . . .

=============

Just as the good fats and complex carbs are important, getting enough protein can greatly support mood:


http://icmr.nic.in/ijmr/2006/august/0804.pdf - 20 pages


THE REQUIREMENTS OF PROTEIN & AMINO ACID DURING ACUTE & CHRONIC INFECTION . . .


Anura V. Kurpad - Institute of Population Health & Clinical Research, Bangalore, India 129. Indian J Med Res 124, August 2006, pp 129-148.

Excerpt:

" . . . In general, the amount of EXTRA protein that would appear to be needed is of the order of 20-25 per cent of the recommended intake, for most infections. . . ."


- Full article at link (or google the title if it does not go through).

-
 
Posted by JamesNYC (Member # 15793) on :
 
Oh, Okay Keebler,

I misunderstood.

Actually, treating with supplements and anti-depressants are not mutually exclusive. Why not do both?

I would also suggest switching from Ativan to Klonipin. Some benzos, like valium, can have a depressant effect. I don't know if Ativan does as well but Klonipin is known not to (it's also much longer acting and it's effect is more mild). Xanax is good too, but it's very short acting.

I hope something works.

James
 
Posted by seibertneurolyme (Member # 6416) on :
 
First I want to tell you that hubby is the Lyme patient -- not me. For him, Ativan is just about the only med that controls his Parkinsonian type tremors and seizure-like episodes and dystonia.

He has been on that med for over 7 years -- had gotten down to 1/2 mg daily recently, but then he crashed with the antibiotics he was on and went back on the oral Ativan at 4 mg per day. We stopped the Lyrica and Benadryl as they just weren't working and I figured 1 med he knew he could tolerate was better than lower doses of 3 different meds.

When he first got sick and we didn't know what was wrong he ended up in many ER's and had 3 psych admits. The psych meds they tried made him worse and not better.

He could not tolerate juicing at that time. Now he does really well on V-8 juice with extra salt added. He had bad gastritis and also G.I. parasites -- had lost 30 pounds. Could not tolerate meal replacement protein drinks either due to the glutamate content.

What you are describing sounds to me like a combination of a toxicity issue and a herx reaction plus the overall effects of Lyme and whatever other infections you have.

Some things you could try -- epsom salts bath with baking soda added -- start with maybe 1/2 cup of each -- goal is 2 or 3 cups of epsom salts and 2 cups of baking soda.

Need really good probiotics. Refrigerated brands usually are better -- your health food store should be able to advise you.

SAM-e -- one of the best and quickest acting supplements for depression -- 200 mg up to 800 mg daily in the morning.

For yeast -- to start brush your tongue with a chlorox bleach solution -- instructions are in Dr B's guidelines.

I would suggest seeing the local doc first. You need to see someone ASAP who can monitor things closely.

Hubby had a mercury toxicity issue before he had his tickborne illness -- for him his major symptoms were nausea, vomiting, dry heaves and a Parkinsonsian tremor -- the exact same symptoms he had when he first got sick with Lyme.

But with the tickborne illnesses the symptoms have gotten progressively worse over the years and are 10 times worse than they were with just the mercury. Also the mercury chelation quit working and tests showed very little mercury left to be chelated. He will probably never be 100% mercury free but then I don't think anyone is.

In your situation I would be more concerned with infectious diseases and candida.

The shakiness could be partly from hypoglycemia. If you have a bad candida problem that could interfere with absorption of nutrients. A really good multivitamin would probably be of benefit.

There are lots of herbs which could help with candida, but you need a doc to advise you so you don't make yourself sicker.

Depending on your personal situation it might even be advisable to stop antibiotics to knock down the candida and heal your gut first.

Don't worry about test results at this time. Often the sickest patients have negative test results for tickborne diseases.

Hang in there and things will get better.

This is not medical advice, just my opinion based on hubby's experiences.

Bea Seibert
 
Posted by bettyg (Member # 6147) on :
 
ann, just giving you moral support [group hug] [kiss]
 
Posted by Cass A (Member # 11134) on :
 
There's a lot of good advice here. Unfortunately, many different things to consider.

Mold may trump everything else. That's not something I've had to deal with.

I do know that psychotropic drugs can cause suicidal thoughts, brain damage, psychotic rages, and other very, very nasty adverse effects.

There are some very clear alternatives mentioned previously on this thread. If these work for you, I would go with those. Caution, as psychotropic drugs can be physiologically addicting.

I truly hope you get the help you need to sort through this terrible situation.

Best,

Cass A
 
Posted by lakes592 (Member # 18905) on :
 
Thanks so much everyone. I was thinking about going to the Herbal Path and talking to the pharmacist there about what is going on and what I could take instead of the ativan. He is very knowledgeable and I wont be able to get to an DO until next week. I have decided to go with a DO as I believe I need traditional and natropathic help. A friend from worked that I cried to on the phone last night recommend one. I told her that I wanted to drive into oncoming traffic on my home.

I told her what I had recently done trying to do a anticandida protocol then after that switching to juicing. She felt that I had detoxed to quickly and that can make you feel nuts. She said that her daughter went kinda nuts from candida and this DO was able to help her and that she does a sliding scale which is helpful.

I will get the mold test kit. I will stay on the ativan until I can get to the doctor but will then pursue something milder and non-addictive. I guess it will be one step at a time. I'm just selfish I want to be normal and drink hot cider with my kids and make fudge at Christmas and just be a normal person. Sounds silly but with young kids that have known those things it bothers me. My health is more important though bottom line. I will look for a counselor as well for all the emotional stuff.

Monday I will drop my A&P class that has been really stressing me out it can wait my health is more important right now. I will keep praying and just get through today. My girls are with their dad this weekend so I will just rest.

Thanks again,
Ann

[ 10-24-2009, 09:17 AM: Message edited by: lakes592 ]
 
Posted by Pinelady (Member # 18524) on :
 
My dad is in cancer treatment and has taken the Detox on the shelf at the pharmacy after chemo. It makes him feel a lot better. And keeps him from being so sick. Just a thought.
 
Posted by sixgoofykids (Member # 11141) on :
 
Mold should be the priority right now IMO. It's horrible stuff.

Check out the videos at biotoxin.info It's a great site!
 
Posted by Keebler (Member # 12673) on :
 
-
Yes, the mold is as important as if you had a fire in that room. Get out until you know what it is. But, if you sleep in the living room, you can't just take the bed linens with you if that is stachybotrys. Even clothes from your closet may all need to be washed in a special solution.

If it is stachybotrys, you may need to seal off the room until you can get professional help. If it is not stachybotrys you may not have to be so strict with the laundering of all textiles, etc. in a special way.

But - right now - determining the type of black mold is the first step to regaining your health. Mold toxins really can make people feel horrible in many, many ways.
-
 
Posted by Jeff S. (Member # 21361) on :
 
A comment on your Ativan concerns. I have taken it previously for anxiety and found it to be very addictive.

I now, from time-to-time, use Klonopin (Clonazepam) 0.5 mg for mild anxiety and to aid in falling asleep. It works very well, even with 1/2 tab.

It is not as addictive (you still have to watch it) and you don't get the hangover you get with Ativan.

I much prefer it.

On the black mold issue. I operated a company that solved house water problems. We confronted black mold regularly.

It can make you extremely sick.

If it is in small localized areas. Have a healthy someone put on a breathing mask and take a solution of chlorine bleach and water and apply it to the mold. It will kill it.

Do not stay in rooms that have mold.
 
Posted by lakes592 (Member # 18905) on :
 
I got this letter this morning from my stepmom. I am desperate but not sure with feeling so weird to begin with that this is the time to try this "cure" any thoughts? I wrote asking who the Dr. was they live in NJ. Here is the note:

Hi, a few weeks ago when you got sick and landed in the hospital and put out that email asking for help, I forwarded it to members of my family, as many have had Lymes. My sister Cathy responded. She emailed me back about it and after several emails back and forth, and a talk with your dad, she searched out some of the homeopathic meds that they had used when her husband Larry and daughter Lori and her husband Jeremy got Lymes. Cathy used to work for a homeopathic doctor/chiropractor and they still remain very good friends. She goes to him for everything. Larry has had Lymes 4-5 times, Lori had Lymes for 2 years before they knew what it was, and her husband Jeremy has had it a few times as well. The reason they know about this cure is they have all used it when they got bit and it cured them, according to them. They have also all gone to a Lymes medical doctor and done the antibiotics treatments, but this homeopathic one seems to work better and faster.

I know you have met my sister and her husband Larry before, Larry served in Viet Nam 4 times, and pretty much, everything with both of them is black and white. You are either with them or against them. Her and I have had several run ins over the years, but all in all, they both have a good heart, and are very caring people. She took your cry for help very literally, and went to her homeopathic doctor friend and has pulled together what she claims is a cure for you. After talking to your dad, who told her he thought you were not on any antibiotics at this time, her friend put together a package for you and your dad and I are paying them the $93 for it. Apparently, he worked the package around you not being on the antibiotics but I think that is just the probiotics portion of the cure that is affected by the antibiotics.

My sister strongly claims it will cure you and they really went to great lengths to get this homeopathic cure and the nutritional items that go along with it. It is a 10 day program which she has written out the instructions to that you are supposed to follow. It only involves the homeopathic cure which is 10 small white pills (very small) one pill per day that has to be dissolved in room tempurature water for one hour, then you drink the water. The other portion is nutritional supplements that are all organic, green all-natural supplements that boost your immune system, digestive system and blood so the homeopathic cure can work for the 10 days. Then she says, after the 10 days, just finish taking the rest of the supplements until they are all gone and that is the cure. That is all that it takes. Larry has done it, Lori did it two years or so after she had gotten bit and Jeremy has done it as well and they all claim they are cured.

Cathy's doctor felt that since you have had Lymes for 5-6 years or so, it would take the 10 days instead of the 7 they have done in the past for the homeopathic cure to work, so of course, they all want to hear how you make out when you do the 10 day treatment.

We are coming down to Matt's party at Theresa's tomorrow and are bringing down the package from NJ as she has already shipped it to us. I guess my only hope is that you will take my sister's efforts seriously and do the full ten days and be willing to respond back to them with the results as my sister was adament about the pills being like "gold". They all keep a small supply in case one of them gets bit, which I guess happens all the time down there. If you have started some other treatment with your new doctor and don't want to go this route, I would like to know so I can send it all back down to them.

Of course, your dad and I hope you would be thrilled to try anything that might cure you, but you have to make the ultimate decision to want to, not us. Again, it is only for 10 days, and it is free as we are paying her back for the treatment. All she asks is for you to follow the program written and let them know if it works. She has the hand written instructions in the package.

Also, interestingly enough, Larry's brother Brett was one of the first known cases of Lymes ever diagnosed in the US. He was sick for two or three years before Cathy and Larry got married, which was 32 years ago, when he was 19 years old. Cathy said that he has had many of the same symptoms you have had. I don't know if he has done this cure or not, but he has had Lymes almost all his life and maybe it is just too late for him.

Let me know what you think, we hope you will try it, you have nothing to loose but Lymes. It may very well work but you won't find out unless you give it a try.

[ 10-25-2009, 02:16 PM: Message edited by: lakes592 ]
 
Posted by seibertneurolyme (Member # 6416) on :
 
To keep peace in the family I would take the homeopathic treatment.

Do I think it will cure you -- I doubt it. Some people do get some relief from homeopathic ledum and others (hubby's herbalist says 2%) have miraculous results with teasel.

Generally when someone says they have had Lyme 4 or 5 times my guess is that it was never "cured" -- it was an ongoing infection that may have been put into remission.

One other suggestion -- in my opinion antioxidants which can penetrate the blood brain barrier are very important. That includes things like high dose vitamin C, pycnogenol (pine bark extract) and CoQ10.

Good luck and let us know more about this supposed cure.

Bea Seibert
 
Posted by Cass A (Member # 11134) on :
 
Dear Lakes,

What a wonderful, caring family you have!!!

If I were you, I'd be handling the mold and taking the homeopathic remedies for starters!

The rest of your plan sounds very good, also!

Thinking of you a LOT--I'm checking this thread daily to see how you're doing!

Best to you,

Cass A
 
Posted by Marnie (Member # 773) on :
 
The metal taste can be from old blood (oral or nasal- dripping into the throat). Sinus problems?

That taste usually goes away after a good mouth rinse with Scope/other.

But there is a huge list of other things that can cause the metal taste (including some drugs) here:

http://www.wrongdiagnosis.com/symptom/metallic-taste-in-mouth.htm

Or Dr. Weil here:

http://www.drweil.com/drw/u/QAA350574/Metallic-Taste-in-Your-Mouth.html

The white thick coating on your tongue is likely thrush...oral yeast which needs to be treated.

Be sure to keep your toothbrush clean.

Dipping your toothbrush in a 50% solution of clorax and water in a cup (= 1/2 Clorax and 1/2 water) followed by dipping the toothbrush in some H2O2 (it will bubble), followed by a really good rinsing under running water (faucet) should knock out any bacteria/yeast/virus on your toothbrush. Goal: don't re-infect by using a "contaminated" toothbrush.

Yeast infections happen (too) frequently as a result of abx. along with other drugs/ high blood glucose levels from diet/diseases.

It is sooooooo critical to keep the level of probiotics up while fighting lyme.

Loading doses of a really powerful probiotic formula is really needed. The beneficial bacteria help to keep yeast in check/balance.

If the "good guys" drop, you can't absorb and make the nutrients you need to MAKE the neurotransmitters and this -> depression.

Healing begins in the gut.

It is really important you restore the health of your bowel flora.

I personally like Essential Formulas Probiotics. (Metagenics is good too.)

FIVE capsules, 2x/day, one hour before a meal with a full glass of water, for one week = loading dosage. This = a full box. Sorry, Essential Formulas is expensive (about $42)...but IMO, absolutely worth it.

Your are diluting the stomach acids by taking probiotics with a full glass of water and then wait for them to reach the bowel before a meal so they can use the foods you eat to thrive and multiply.

Then..."cheaper" maintenance probiotics is okay. Chose a variety. When one bottle is finished, switch to a different kind/brand. Usually the ones in the refrigerated section of health stores are the best.

VCO - virgin coconut oil - has nutrients in it that can indeed help clear yeast. It is not expensive. It is hard to swallow tablespoons of VCO (sorta like eating Crisco), but it can be mixed with some peanut butter to make it easier to take. Or drinking coconut milk (places like Fresh Market carry it)...about 10 oz. per day... can be consumed instead of the "soft" Crisco-like VCO that comes in jars.

Source Naturals makes VCO capsules and I personally have taken 5 capsules 2x/day for about 3 days to knock out a (vag) yeast problem following medicine.

This too shall pass. You CAN get over all of this. Never ever give up.

The mind is very very powerful. You must believe and say to yourself you will get well...and then you will.

Believe it and then you will see it...not the other way around.

P.S. When you are feeling up to it...use good old soap and water and wash away the mold on your furniture/windowsill, etc. (I heard that on TV recently and was sorta surprised because I always thought it took a clorax solution to rid mold, but the man said soap and water works just as well). We live in Florida where mold is always a battle. A solution using the newer "orange" or "lemon" soaps (like Mr. Clean) should work.
 
Posted by Topaz (Member # 20216) on :
 
First, I would find out what's in the homeopathic remedy before taking it.

Then I would thank my stepmom and give it a try(knowing that it probably won't be a cure).
 
Posted by Shosty (Member # 12232) on :
 
I would get off all meds, including both the Ativan (but be careful and taper slowly) and the doxy. Tetracycline drugs caused our daughter to be psychotically depressed. It was not a herx, it was a drug reaction, and it took a couple of months to realize that, for which I am forever sorry.

You do have a lot going on. Yes mold, yeast and metals should be investigated.

But the main thing right now is your state of mind, and it sounds like there are plenty of reasons to feel depressed and anxious.

I think counseling is a priority, followed by treatment for the depression/anxiety. Many SSRI's treat both, and getting good psychopharmacological help can determine the best med.

Isolate each drug and its effects. Right now, you can't tell. The daily Ativan is a very bad idea, and the same thing can be accomplished with drugs that aren't as addictive (although all have withdrawal effects).

Get off the doxy because it would seem your physical health is not too bad, and Lyme is not a priority for treating. Get stable emotionally and then, if you are treating Lyme, you can tell whether you are reacting to an antibiotic or herxing. But with the emotional stress you have, you just can't tell.

Dealing with the actual causes of the stress (daughter, finances) will help the most,of course, but having some short-term meds to get you over that hump, like SSRI's or SRNI's, seems like a good way to go.
 
Posted by lakes592 (Member # 18905) on :
 
Hi,
Thanks guys I appreciate it. I am off everything and just yesterday started diflucan I couldn't take the feeling on my tounge any longer. I scraped my tounge with a spoon and white chunks of gunk literally came off then the white still remained. I don't think my tounge has been pink for years. I am leaning more toward systemic candida at this point but will still investigate all things.

I am scared to start any new treatments right now esp. a susposed 10 day cure. I will ask the DO about all that. I will also ask if there is anything natural I can take to replace the ativan. There have been a few nights I have not needed it but otherall I have had to take 0.5 mg a day only at night or my whole body shakes, I start having tons of bowel movements and cannot sleep and feel nuts. I have lost 6 lbs in less than a week. It is such a small dose I think it should be ok.

I have people praying and of course all of you which is very comforting because if I had to go it alone it would be too hard. I will look into all the suggestion and advice as I am open to whatever may help. Been resting alot and just taking one day at a time.

Thanks so much,
Ann
 
Posted by Cass A (Member # 11134) on :
 
Dear Ann,

Thanks for the update!

Ativan needs a very gradual decrease under the care of someone who knows what they're doing. What you are experiencing could well be withdrawal effects from not taking it. It's a toughie!!

You're in my thoughts daily.

Please keep us informed as you decide what to do and do it, eh?

Love,

Cass A
 


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